Search
Search
About
Log in
Join
Experiences with
Interferon beta-1a
Posts
Communities
1,086 public posts
Filter results
Nauseous with ET
Hello all,haven't been on for a while,just after advice,Et for 9 years diagnosed at 39 after stroke,had tia'also bleed in bowl,been on interferon alpha injections 2x week for 9 years and asprin 75mg daily,just recently I have been feeling nausea of a morning and when travelling in car,don't see my hematologist
Hello all,haven't been on for a while,just after advice,Et for 9 years diagnosed at 39 after stroke,had tia'also bleed in bowl,been on interferon alpha injections 2x week for 9 years and asprin 75mg daily,just recently I have been feeling nausea of a morning and when travelling in car,don't see my hematologist
Jbut
in
MPN Voice
6 years ago
Peg Interferon and lower phosphate levels
Hi all, The last couple of blood tests I have had my phosphate level is below normal. I have been told normal is 0.8 and my readings have been 0.62 followed by 0.64. Between these 2 readings I had a phosphate top up in the form of a kind of electrolyte drink for a week. My symptoms are muscle aches and
Hi all, The last couple of blood tests I have had my phosphate level is below normal. I have been told normal is 0.8 and my readings have been 0.62 followed by 0.64. Between these 2 readings I had a phosphate top up in the form of a kind of electrolyte drink for a week. My symptoms are muscle aches and
Jocko
in
MPN Voice
6 years ago
it has come to my attention
I changed once to
interferon
beta
1a
(Rebif) but it hurt too much so I went back to 1b, Betaseron, but I did not stop. Disease Modifying Therapy (DMT) will not cure me but it will at least slow ms down a little.
I changed once to
interferon
beta
1a
(Rebif) but it hurt too much so I went back to 1b, Betaseron, but I did not stop. Disease Modifying Therapy (DMT) will not cure me but it will at least slow ms down a little.
RoyceNewton
in
My MSAA Community
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Pegasy and interferon dosage
My heamo prescribed for me Pegasy 135mcg, he said dosage is same like roteferon 3UI, one weakly.Last year I was on only 3ui roteferon weakly , but stopped becouse of bad side effect . In last 12 month I have 9 venosection becouse my hct was 48 , platets always stable all 12 month 420 , rbc5,6, wbc
My heamo prescribed for me Pegasy 135mcg, he said dosage is same like roteferon 3UI, one weakly.Last year I was on only 3ui roteferon weakly , but stopped becouse of bad side effect . In last 12 month I have 9 venosection becouse my hct was 48 , platets always stable all 12 month 420 , rbc5,6, wbc
Lilly1958
in
MPN Voice
6 years ago
My Hep B journey...
Hi there, I was diagnosed with chronic hepatitis B in 2008 after apparently having the disease petty much symptom free for around 20 years. I was given entecavir which was quite effective in managing the condition, but in 2014 the virus had started to become resistant to the drug and it was discontinued
Hi there, I was diagnosed with chronic hepatitis B in 2008 after apparently having the disease petty much symptom free for around 20 years. I was given entecavir which was quite effective in managing the condition, but in 2014 the virus had started to become resistant to the drug and it was discontinued
Hb39
in
British Liver Trust
6 years ago
Does Interferon affect BMB results?
Dx ET JAK2+ with platelets rarely over 600 (just from blood tests). Was on hydroxyurea for 3 years, now on Roferon A (interferon) 3 x weekly for 10 months. I have just started noticing an improvement with symptoms but i would like to request a BMB and was wondering whether interferon can affect the results
Dx ET JAK2+ with platelets rarely over 600 (just from blood tests). Was on hydroxyurea for 3 years, now on Roferon A (interferon) 3 x weekly for 10 months. I have just started noticing an improvement with symptoms but i would like to request a BMB and was wondering whether interferon can affect the results
fee13
in
MPN Voice
6 years ago
Delaying Treatment No More - Pegasys, here I come.
It's been a little over 2 weeks since my first MPN doctor prescribed me with Pegasys which I decided to put off. I was debating for a while and speaking with another MPN specialist, I am going to start my peg interferon treatment this week. My platelets have increased from the 800s to now 960. I had
It's been a little over 2 weeks since my first MPN doctor prescribed me with Pegasys which I decided to put off. I was debating for a while and speaking with another MPN specialist, I am going to start my peg interferon treatment this week. My platelets have increased from the 800s to now 960. I had
annem22
in
MPN Voice
6 years ago
Flu jab and pneumonia
Iam et jak2 positive on 45mg interferon or pegasys ( still cant remember). Yesterday morning I went for my flu jab and was told I need pneumonia jab too. So had two at the same time. Felt fine till late afternoon then I started feel achy etc. Could not sleep all night and this morning have fever and
Iam et jak2 positive on 45mg interferon or pegasys ( still cant remember). Yesterday morning I went for my flu jab and was told I need pneumonia jab too. So had two at the same time. Felt fine till late afternoon then I started feel achy etc. Could not sleep all night and this morning have fever and
Elab
in
MPN Voice
6 years ago
Milburn - Information on Radioactive Phosphate P32
I have being suffering from ET for the last 11 years. This has been controlled very successfully with Hydroxycarbamide through this period. Earlier this year suffered leg ulcers. After circulation checks this put down to the prolonged use of Hydrox. Hydrox treatment stopped in April and ulcers started
I have being suffering from ET for the last 11 years. This has been controlled very successfully with Hydroxycarbamide through this period. Earlier this year suffered leg ulcers. After circulation checks this put down to the prolonged use of Hydrox. Hydrox treatment stopped in April and ulcers started
Milburn
in
MPN Voice
6 years ago
My Osteoporosis Journey
I've just realized it may not be so easy for people on the Bone Health forum to find this account which I posted on the PMRGCAuk forum a few months ago. So here it is. This is just copy and paste of an account I wrote to keep track of things for myself. Please note I have no medical training and I
I've just realized it may not be so easy for people on the Bone Health forum to find this account which I posted on the PMRGCAuk forum a few months ago. So here it is. This is just copy and paste of an account I wrote to keep track of things for myself. Please note I have no medical training and I
HeronNS
in
Bone Health and Osteoporosis UK
6 years ago
"What's New in MS Research" - The Latest from MSAA
Hello! MSAA is launching a new article series today, "What's New in MS Research," featuring updates on current MS-research topics. In this inaugural article, topics covered include: 1. Ibudilast in progressive MS 2. Fingolimod versus interferon beta 1-a in pediatric MS 3. Lifetime sun exposure and associates
Hello! MSAA is launching a new article series today, "What's New in MS Research," featuring updates on current MS-research topics. In this inaugural article, topics covered include: 1. Ibudilast in progressive MS 2. Fingolimod versus interferon beta 1-a in pediatric MS 3. Lifetime sun exposure and associates
MSAA_Staff
in
My MSAA Community
6 years ago
This is sort of obvious
I will try to keep the old stuff brief. 1. wear your protective underwear, DEPENDS are my choice. 2. take a Disease Modifying Therapy (DMT) My 3rd one is Tecfidera, originally Betaferon then
interferon
beta
1a
, not Avonex the 3x a week one, Now Tecfidera.
I will try to keep the old stuff brief. 1. wear your protective underwear, DEPENDS are my choice. 2. take a Disease Modifying Therapy (DMT) My 3rd one is Tecfidera, originally Betaferon then
interferon
beta
1a
, not Avonex the 3x a week one, Now Tecfidera.
RoyceNewton
in
My MSAA Community
6 years ago
Travel tips - Pegylated Interferon
Hi all. I wonder if anyone has tried Frio cooking travel wallets for travelling with interferon? We go away next week and it’ll be the first time we are away on an injection day so feeling really anxious about travelling with it and keeping it cool. My airline suggested I buy a Frio wallet which looks
Hi all. I wonder if anyone has tried Frio cooking travel wallets for travelling with interferon? We go away next week and it’ll be the first time we are away on an injection day so feeling really anxious about travelling with it and keeping it cool. My airline suggested I buy a Frio wallet which looks
LinaZW
in
MPN Voice
6 years ago
Interferon or not???
HI all, Im ET triple neg 2 years diagnosed. I initially tried Anagrelide but suffered side effects and it made little difference to my platelet level. So went on to Hyroxy, which works well for the platelets if I take 1000 daily. However, I have had nausea daily for 2 years, always have mouth ulcers,
HI all, Im ET triple neg 2 years diagnosed. I initially tried Anagrelide but suffered side effects and it made little difference to my platelet level. So went on to Hyroxy, which works well for the platelets if I take 1000 daily. However, I have had nausea daily for 2 years, always have mouth ulcers,
SuET2017
in
MPN Voice
6 years ago
Pegasys
Hi all. I have been on Interferon alpha injections (anything between 2 and 5 days a week) for the last 8 years. I am going to be changed to pegasys ( supply issue with the interferon). How has everyone else found pegasys? I do get flu like symptoms with interferon but as I take it at night it’s fairly
Hi all. I have been on Interferon alpha injections (anything between 2 and 5 days a week) for the last 8 years. I am going to be changed to pegasys ( supply issue with the interferon). How has everyone else found pegasys? I do get flu like symptoms with interferon but as I take it at night it’s fairly
teddy21
in
MPN Voice
6 years ago
7 weeks on Low Dose Naltrexone (LDN)
I am on a mission to eliminate the need for Mirapex (Pramipexole). I have been taking it for over 20 years and it has been very effective at controlling RLS even though it took a larger and larger dose to achieve mastery over the “dancing”. When my arms started joining in the Herky Jerky and I was experiencing
I am on a mission to eliminate the need for Mirapex (Pramipexole). I have been taking it for over 20 years and it has been very effective at controlling RLS even though it took a larger and larger dose to achieve mastery over the “dancing”. When my arms started joining in the Herky Jerky and I was experiencing
libraryannie
in
Restless Legs Syndrome
6 years ago
side effects
It’s been a long year since I was diagnosed with ET + Jak 2 positive and already fought and battled my way through the side effects of Hydroxy, Anagrelide and Interferon. When I started Pegasys four weeks ago, I thought this may be the one. However I started it and I still had not recovered from the
It’s been a long year since I was diagnosed with ET + Jak 2 positive and already fought and battled my way through the side effects of Hydroxy, Anagrelide and Interferon. When I started Pegasys four weeks ago, I thought this may be the one. However I started it and I still had not recovered from the
MaggieMagpie49
in
MPN Voice
6 years ago
I Would Appreciate Some Advice Please?
I already use Foligain shampoo/conditioner and am finding new little hairs growing back, only fine ones but they are there. Today I was reading the reviews for these supplements and they were all practically 5*. Looking at the ingredients they do contain iodine which I know we hypo’s aren’t supposed
I already use Foligain shampoo/conditioner and am finding new little hairs growing back, only fine ones but they are there. Today I was reading the reviews for these supplements and they were all practically 5*. Looking at the ingredients they do contain iodine which I know we hypo’s aren’t supposed
Ellie-Louise
in
Thyroid UK
6 years ago
Change of diagnosis, previously ET - Now Post ET Myleofibrosis JAK2 Negative, CAL R positive
As of today I have been diagnosed with Post ET Myleofibrosis intermediate Phase 2, JAK 2 Negative, CAL R Positive. The probability is that I was at the Pre Fibrotic stage of MF when I was diagnosed with ET 10 years ago, 2008. It is a very sad day but I am compelled to not let this disorder get the
As of today I have been diagnosed with Post ET Myleofibrosis intermediate Phase 2, JAK 2 Negative, CAL R Positive. The probability is that I was at the Pre Fibrotic stage of MF when I was diagnosed with ET 10 years ago, 2008. It is a very sad day but I am compelled to not let this disorder get the
SP-2008
in
MPN Voice
6 years ago
PV Treatment Options
For me the trickiest part about PV has been deciding optimum treatment plan. The options are: If low risk, venesections and aspirin. Otherwise principle choice is Interferon/Peg or HU with Ruxo a possible alternative for some. The dilemma arises because there is no consensus amongst the experts. Dr Silver
For me the trickiest part about PV has been deciding optimum treatment plan. The options are: If low risk, venesections and aspirin. Otherwise principle choice is Interferon/Peg or HU with Ruxo a possible alternative for some. The dilemma arises because there is no consensus amongst the experts. Dr Silver
Paul123456
in
MPN Voice
6 years ago
1
...
37
38
39
...
55
Next page
10
20
30
40
50
Filter results
Clear filters
Posted in
All communities
MPN Voice
777 results
My MSAA Community
39 results
British Liver Trust
28 results
View top 10 communities
Sort by
Most Relevant
Newest