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Interferon beta-1a
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Stem cell transplant appointment for post PV MF
My husband met with the transplant team yesterday. They went through pros and cons of a transplant. The only option offered to him for his post PVMF was ruxlitnib. We wanted to know about Pegasus and interferon but these two weren't an option. So for now he's going to take ruxlitnib for as long as he
My husband met with the transplant team yesterday. They went through pros and cons of a transplant. The only option offered to him for his post PVMF was ruxlitnib. We wanted to know about Pegasus and interferon but these two weren't an option. So for now he's going to take ruxlitnib for as long as he
tracey13
in
MPN Voice
6 years ago
Drink is a curse!
Help!! I contracted Hepatitis C through drug use and was treated twice with interferon almost 20 years later and finally was clear of the virus. My problem is that while I gave up drugs I picked up alcohol so actually, in terms of liver health I am no better off. My husband is a daily very heavy drinker
Help!! I contracted Hepatitis C through drug use and was treated twice with interferon almost 20 years later and finally was clear of the virus. My problem is that while I gave up drugs I picked up alcohol so actually, in terms of liver health I am no better off. My husband is a daily very heavy drinker
BedeB
in
British Liver Trust
6 years ago
Beta-Sitosterol
I came across this regarding beta-sitosterol, but nothing further regarding PCa potential benefits. Curious why there's not more on this, if anyone knows. http://cancerres.aacrjournals.org/content/67/9_Supplement/1650 Jeff
I came across this regarding beta-sitosterol, but nothing further regarding PCa potential benefits. Curious why there's not more on this, if anyone knows. http://cancerres.aacrjournals.org/content/67/9_Supplement/1650 Jeff
Spaceman210
in
Advanced Prostate Cancer
6 years ago
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Treatment not working
Hello everyone, I was on Hydroxyurea for a couple of months after my platelets reached 900 and it helped at first but after a while my platelets count kept raising again to 750 and during that period I suffered from horrible vertigo and nasuea and nothing helped. My doctor decided to switch to an injection
Hello everyone, I was on Hydroxyurea for a couple of months after my platelets reached 900 and it helped at first but after a while my platelets count kept raising again to 750 and during that period I suffered from horrible vertigo and nasuea and nothing helped. My doctor decided to switch to an injection
Wadz
in
MPN Voice
6 years ago
Persistent cold symptoms with Pegasys?
One great side effect of being on Pegasys for the last 3 years is that I’ve had hardly any colds, as interferon helps combat the cold virus. More recently, since I’ve reduced my dose to just 45mcg every 4 weeks, I’ve started to get some cold symptoms again which I guess is logical due to lower levels
One great side effect of being on Pegasys for the last 3 years is that I’ve had hardly any colds, as interferon helps combat the cold virus. More recently, since I’ve reduced my dose to just 45mcg every 4 weeks, I’ve started to get some cold symptoms again which I guess is logical due to lower levels
AndyT
in
MPN Voice
6 years ago
Parotid removal and Hydroxychloroquine
Hi everyone, thanks for having me. I've had Sjogrens since interferon treatment 10 years ago and recently needed a troublesome parotid gland removed due to unidentified lumps and chronic pain and swelling. Am awaiting biopsy results, I've previously had mediastinal lymphoma. I was also recommenced
Hi everyone, thanks for having me. I've had Sjogrens since interferon treatment 10 years ago and recently needed a troublesome parotid gland removed due to unidentified lumps and chronic pain and swelling. Am awaiting biopsy results, I've previously had mediastinal lymphoma. I was also recommenced
MajorTom
in
The Australian Sjögren's Syndrome Association
6 years ago
Ropeg versus HU/BAT results after 3 years
This is very interesting summary of trial results after 3 years. (CHR is Complete Haematological Response.) “After 36 months of treatment Ropeginterferon alfa-2b sustained higher CHR response rates compared to HU/BAT (70.5% vs. 51.4%; p=0.0122). Further, the composite endpoint, CHR including disease
This is very interesting summary of trial results after 3 years. (CHR is Complete Haematological Response.) “After 36 months of treatment Ropeginterferon alfa-2b sustained higher CHR response rates compared to HU/BAT (70.5% vs. 51.4%; p=0.0122). Further, the composite endpoint, CHR including disease
Paul123456
in
MPN Voice
6 years ago
New mpn
Hi diagnosed with ET 3 years ago age 28 been stable since now 31 and platelets high at 1560 started interferon last week last check platelets dropped to 1200!! Just wondering if anyone else on this and how it makes them feel am ok apart from I just feel quite disconnected from things, and sleepless nights
Hi diagnosed with ET 3 years ago age 28 been stable since now 31 and platelets high at 1560 started interferon last week last check platelets dropped to 1200!! Just wondering if anyone else on this and how it makes them feel am ok apart from I just feel quite disconnected from things, and sleepless nights
Samlowery17
in
MPN Voice
6 years ago
Pegasys
Hi everyone I saw my haematologist yesterday for my ET. Platelet count is gradually going up. He has said in a few months I may need to start treatment other than aspirin and whereas previously he's mentioned hydroxy this has now changed to interferon. I've read up about it including side effects. Does
Hi everyone I saw my haematologist yesterday for my ET. Platelet count is gradually going up. He has said in a few months I may need to start treatment other than aspirin and whereas previously he's mentioned hydroxy this has now changed to interferon. I've read up about it including side effects. Does
hall2
in
MPN Voice
6 years ago
Advice
Hello , I was diagnosed earlier this year .... ET...I am being asked to take Hydra carbo but I have declined .... now am considering interferon ... Still waiting for a buddy ...I’m so concerned about these treatments .. Grateful got any advice ... Melanie .
Hello , I was diagnosed earlier this year .... ET...I am being asked to take Hydra carbo but I have declined .... now am considering interferon ... Still waiting for a buddy ...I’m so concerned about these treatments .. Grateful got any advice ... Melanie .
Melanie66
in
MPN Voice
6 years ago
PV and/or ET - JAK2+ - currently asymptomatic
This is my first posting with the support group. I was diagnosed with PV in March 2018 where at that point my hematocrit was 62 and of course the hemoglobin was also elevated. However, all other data within the CBC were normal to near normal at the time of diagnosis. After four (4) phlebotomies of the
This is my first posting with the support group. I was diagnosed with PV in March 2018 where at that point my hematocrit was 62 and of course the hemoglobin was also elevated. However, all other data within the CBC were normal to near normal at the time of diagnosis. After four (4) phlebotomies of the
Pat032018
in
MPN Voice
6 years ago
Essential Thrombocythemia & Pain Killers
Hi All. I was just wondering what pain killers others have used for Bone pain headaches etc with ET. I paid a visit to my GP which again was a doctor i have never seen before. I have been taking paracetamol for my migraine, headache, bone & joint pain which does not work as most of you will already know
Hi All. I was just wondering what pain killers others have used for Bone pain headaches etc with ET. I paid a visit to my GP which again was a doctor i have never seen before. I have been taking paracetamol for my migraine, headache, bone & joint pain which does not work as most of you will already know
Mycancerconcern1
in
MPN Voice
6 years ago
Allow myself to introduce myself...
Hi I was diagnosed at almost 48 in January 2018. In November 2017 I went to the GP with pins and needles in my feet and got a full blood work up. The results came back with platelets that were a 'bit high' (over 900). The GP referred me to haematology, I was seen pretty quickly - by December I'd
Hi I was diagnosed at almost 48 in January 2018. In November 2017 I went to the GP with pins and needles in my feet and got a full blood work up. The results came back with platelets that were a 'bit high' (over 900). The GP referred me to haematology, I was seen pretty quickly - by December I'd
Not2bad
in
MPN Voice
6 years ago
Interferon advice please
I've had PV for eleven years and recently started on Interferon Peg. I have had two injections so far (dose 90 per week) with no improvement whatsoever. My red cell and platelet count have in fact got much worse. Is it too early for the Interferon to be having any effect? Does it take longer than this
I've had PV for eleven years and recently started on Interferon Peg. I have had two injections so far (dose 90 per week) with no improvement whatsoever. My red cell and platelet count have in fact got much worse. Is it too early for the Interferon to be having any effect? Does it take longer than this
jazzyb
in
MPN Voice
6 years ago
Multivitamins
I have spent a lot of time searching for the best iron free multivitamin. I know someone here posted that the vit A should be as beta carotene. Suggestions?
I have spent a lot of time searching for the best iron free multivitamin. I know someone here posted that the vit A should be as beta carotene. Suggestions?
gwillistexas
in
PBC Foundation
6 years ago
Just random thoughts for today I think
ms has joined our life, did anybody notice the young man just diagnosed (DX'd) at 15 years of age. I mentioned this last night to "she who must be obeyed" and she said looking back she had noticed things a long time before her Dx. Thinking about it I had noticed the same types of things, and just
ms has joined our life, did anybody notice the young man just diagnosed (DX'd) at 15 years of age. I mentioned this last night to "she who must be obeyed" and she said looking back she had noticed things a long time before her Dx. Thinking about it I had noticed the same types of things, and just
RoyceNewton
in
My MSAA Community
6 years ago
Help
Advice please,I have ET,I take interferon alpha injections 2 times a week,tonight I took out fridge and it didn't feel cold enough,put thermostat inside checked was 10 should be under 5,so my fridge has been faulty,don't know how long could be weeks, phoned out of hrs they said shouldn't harm me but
Advice please,I have ET,I take interferon alpha injections 2 times a week,tonight I took out fridge and it didn't feel cold enough,put thermostat inside checked was 10 should be under 5,so my fridge has been faulty,don't know how long could be weeks, phoned out of hrs they said shouldn't harm me but
Jbut
in
MPN Voice
6 years ago
Today's Rheumy Appt: Wish You'd Been There! 👍⭐️🌈
I had a 9am rheumy appt today in the clinic overseen by one of the professors, and I have another next week in a clinic overseen by another professor. I haven't, and most definitely wouldn't , question why I have 2 appointments. Gold dust comes to mind. At today's I was called in by a very pleasant
I had a 9am rheumy appt today in the clinic overseen by one of the professors, and I have another next week in a clinic overseen by another professor. I haven't, and most definitely wouldn't , question why I have 2 appointments. Gold dust comes to mind. At today's I was called in by a very pleasant
Lupiknits
in
LUPUS UK
6 years ago
Experience with Pegasys
Just joined MPN Voice, I was diagnosed with ET 2 years ago, recently had a more definitive diagnosis, CALRins5 (Type 2), other non driver mutations not known. Only taking Aspirin at the moment but may be starting Pegasys at the beginning of 2019. I have read that a high proportion of people come off
Just joined MPN Voice, I was diagnosed with ET 2 years ago, recently had a more definitive diagnosis, CALRins5 (Type 2), other non driver mutations not known. Only taking Aspirin at the moment but may be starting Pegasys at the beginning of 2019. I have read that a high proportion of people come off
welshhuw
in
MPN Voice
6 years ago
MF with falling Hb: what drugs to go to next?
Hi guys, I have MF, platelets fine, whites a bit high (23), Hb dropping, now 90. On 10mg x2 Jakafi a day, spleen expanding again and liver. Haematologist not sure what to do - back in 4 weeks after he has taken advice. Mentioned Interferon and both higher and lower doses of Jakafi. Sorry about the similarity
Hi guys, I have MF, platelets fine, whites a bit high (23), Hb dropping, now 90. On 10mg x2 Jakafi a day, spleen expanding again and liver. Haematologist not sure what to do - back in 4 weeks after he has taken advice. Mentioned Interferon and both higher and lower doses of Jakafi. Sorry about the similarity
jane13
in
MPN Voice
6 years ago
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