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LRA Celebrates Major Research Breakthroughs in 2019
January 7, 2020 2019 was a phenomenal, breakthrough year for lupus research on both the clinical development and basic science fronts. The Lupus Research Alliance (LRA) is incredibly proud that every new discovery leading to a brand new medicine for lupus had its origin in work funded by LRA years ago
January 7, 2020 2019 was a phenomenal, breakthrough year for lupus research on both the clinical development and basic science fronts. The Lupus Research Alliance (LRA) is incredibly proud that every new discovery leading to a brand new medicine for lupus had its origin in work funded by LRA years ago
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
LRA Celebrates Major Research Breakthroughs in 2019
January 7, 2020 2019 was a phenomenal, breakthrough year for lupus research on both the clinical development and basic science fronts. The Lupus Research Alliance (LRA) is incredibly proud that every new discovery leading to a brand new medicine for lupus had its origin in work funded by LRA years ago
January 7, 2020 2019 was a phenomenal, breakthrough year for lupus research on both the clinical development and basic science fronts. The Lupus Research Alliance (LRA) is incredibly proud that every new discovery leading to a brand new medicine for lupus had its origin in work funded by LRA years ago
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Going on interferon pegasys
Hi everyone, and happy new year 💞 From next Wednesday I am having to go onto interferon pegasys injections....wish me luck. 😘😘
Hi everyone, and happy new year 💞 From next Wednesday I am having to go onto interferon pegasys injections....wish me luck. 😘😘
Yvette49
in
MPN Voice
5 years ago
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Hydroxycarbamide to interferon injection and side effects
I am 50yrs old diagnosed with ET Jak2 positive 2 yes ago. I was on 500 and 1000mg of hydroxycarbamide and platelets lowered from 950 to 550 however stopped working platelets started to rise and I had dreadful mouth ulcers and soreness. I've been on 90ml interferon weekly for 6 weeks now and had suffered
I am 50yrs old diagnosed with ET Jak2 positive 2 yes ago. I was on 500 and 1000mg of hydroxycarbamide and platelets lowered from 950 to 550 however stopped working platelets started to rise and I had dreadful mouth ulcers and soreness. I've been on 90ml interferon weekly for 6 weeks now and had suffered
Sam247
in
MPN Voice
5 years ago
Taking Peginterferon
Today I will be taking my first Peg Interferon injection - starting on 45mcg once a week. What’s everyone’s routine for taking it?. Am planning at bed time with a couple of Paracetamol and hopefully sleep through the worst (for those that experience side effects - how quickly after taking do you experience
Today I will be taking my first Peg Interferon injection - starting on 45mcg once a week. What’s everyone’s routine for taking it?. Am planning at bed time with a couple of Paracetamol and hopefully sleep through the worst (for those that experience side effects - how quickly after taking do you experience
Tylerdog1
in
MPN Voice
5 years ago
Diabetes 2 - cause & treatment
Diabetes 2 is now reclassified as an Autoimmune disease. See article below http://www.medicalnewstoday.com/articles/222766.php It means there are antibodies to Insulin. The insu-lin is there but the antibodies bind to it and it is not free to act as insulin. Even when more insulin is produced
Diabetes 2 is now reclassified as an Autoimmune disease. See article below http://www.medicalnewstoday.com/articles/222766.php It means there are antibodies to Insulin. The insu-lin is there but the antibodies bind to it and it is not free to act as insulin. Even when more insulin is produced
brick9
in
Diabetes Research & Wellness Foundation
5 years ago
Breakthrough science provides hope for lupus patients
DECEMBER 18, 2019
Breakthrough science provides hope for lupus patients
by
Monash University
Today the prestigious New England Journal of Medicine (NEJM) publishes research led by Monash University Professor Eric Morand that offers the first real hope for the treatment of lupus, a disease
DECEMBER 18, 2019
Breakthrough science provides hope for lupus patients
by
Monash University
Today the prestigious New England Journal of Medicine (NEJM) publishes research led by Monash University Professor Eric Morand that offers the first real hope for the treatment of lupus, a disease
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Post 578 Why 20 Dec 2019
Why do I say what I say? Why do I put in writing and post it here for all who want to, to read and think about? The answer is long and easy, depending on how "YOU" look at it. Twenty plus years ago, when I was diagnosed (Dx'd). I was a younger man with a future ahead of me. I had plans, dreams
Why do I say what I say? Why do I put in writing and post it here for all who want to, to read and think about? The answer is long and easy, depending on how "YOU" look at it. Twenty plus years ago, when I was diagnosed (Dx'd). I was a younger man with a future ahead of me. I had plans, dreams
RoyceNewton
in
My MSAA Community
5 years ago
Christmas message 2019 from the team at MPN Voice
Hello everyone We really have had another fantastic year and would like to thank all of you for your support and involvement, not just in attending forums, completing surveys, organizing and taking part in fundraising events, but for your very kind and generous donations which we have received throughout
Hello everyone We really have had another fantastic year and would like to thank all of you for your support and involvement, not just in attending forums, completing surveys, organizing and taking part in fundraising events, but for your very kind and generous donations which we have received throughout
Mazcd
MPNVoice
in
MPN Voice
5 years ago
Newly joined
Had JAK2 ET for 15 years now, with no symptoms and only being treated with Venesections. It is now changing to Myeloid Fibrosis, still with no symptoms - but nows the time to start taking Interferon to manage it . Wondering what people’s experience of taking this is
Had JAK2 ET for 15 years now, with no symptoms and only being treated with Venesections. It is now changing to Myeloid Fibrosis, still with no symptoms - but nows the time to start taking Interferon to manage it . Wondering what people’s experience of taking this is
Tylerdog1
in
MPN Voice
5 years ago
Post 575 You are responsible for you 16 Dec 2019 2
Not everybody wants to hear it, and not everybody wants to believe it. It is much easier to blame something or somebody else, but. My Relapsing-Relapsing ms (RRms) sibling for the most part, "YOU" are to blame\resposible for your life with this illness. Getting it, none of us is responsible for
Not everybody wants to hear it, and not everybody wants to believe it. It is much easier to blame something or somebody else, but. My Relapsing-Relapsing ms (RRms) sibling for the most part, "YOU" are to blame\resposible for your life with this illness. Getting it, none of us is responsible for
RoyceNewton
in
My MSAA Community
5 years ago
Availability of Interferon Scotland
I am currently on Pegylated Interferon and we are considering moving to Scotland, and wondered if this drug is readily available in hospitals there. I know that not all hospitals here in England provide it and hence the question regarding Scotland. Whilst this is a general query about Scotland we have
I am currently on Pegylated Interferon and we are considering moving to Scotland, and wondered if this drug is readily available in hospitals there. I know that not all hospitals here in England provide it and hence the question regarding Scotland. Whilst this is a general query about Scotland we have
AnitaJ
in
MPN Voice
5 years ago
Post 536 side effects 8 Oct 2019
I put up with headaches, painful injections and a basic feeling of crap for years on interferon
Beta
1B(Betaseron). Even worse for my month on Rebif
Interferon
Beta
1A
. None on Tecfidera, and it is a tablet so no needles. Yaay as I have a needle phobia.
I put up with headaches, painful injections and a basic feeling of crap for years on interferon
Beta
1B(Betaseron). Even worse for my month on Rebif
Interferon
Beta
1A
. None on Tecfidera, and it is a tablet so no needles. Yaay as I have a needle phobia.
RoyceNewton
in
My MSAA Community
5 years ago
Pegasys and breast feeding
Hi all, After some advice... I think that pegasys and breast feeding is contra indicated but I also think that peg is not fully approved in pregnancy? I injected interferon throughout pregnancy and thankfully all went well. I now need to start taking it again. I'm currently breast feeding and would
Hi all, After some advice... I think that pegasys and breast feeding is contra indicated but I also think that peg is not fully approved in pregnancy? I injected interferon throughout pregnancy and thankfully all went well. I now need to start taking it again. I'm currently breast feeding and would
hansyhand
in
MPN Voice
5 years ago
Positive effect of interferon alpha 2b???
I have been struggling with pelvic pain for 2 years... My idea of its origin is the pelvic inflammatory disease from an unidentified pathogen (20% of cases, although u. urealiticum was isolated from urine at one point). It was a classical case - I was not dressed appropriately for the surrounding temperature
I have been struggling with pelvic pain for 2 years... My idea of its origin is the pelvic inflammatory disease from an unidentified pathogen (20% of cases, although u. urealiticum was isolated from urine at one point). It was a classical case - I was not dressed appropriately for the surrounding temperature
Tarragon83
in
Pelvic Pain Support Network
5 years ago
Change from Interferon to Pegasys
At last my trust has approved the change from basic Interferon to Pegasys. I have only been allowed standard Interferon for the past year, but the last few months my platlets have risen from 350 to nearly 700, and I have had to increase my injections to every other day. My heamo wants me to start Pegasys
At last my trust has approved the change from basic Interferon to Pegasys. I have only been allowed standard Interferon for the past year, but the last few months my platlets have risen from 350 to nearly 700, and I have had to increase my injections to every other day. My heamo wants me to start Pegasys
swimswam
in
MPN Voice
5 years ago
Hydroxy to Pegasys switch
Hello - couldn’t find this on a search and wonder if you can help. Here’s the context: Partner is 33, ET triple negative with acquired Von willebrand on 1.5mg hydroxy a day after heart attack and platelets approaching 2m. All under control now after a lot of time adjusting the dose. We’re thinking of
Hello - couldn’t find this on a search and wonder if you can help. Here’s the context: Partner is 33, ET triple negative with acquired Von willebrand on 1.5mg hydroxy a day after heart attack and platelets approaching 2m. All under control now after a lot of time adjusting the dose. We’re thinking of
intothewoods
in
MPN Voice
5 years ago
Dr Silver update re PV/MF and Interferons
https://youtu.be/XGEAlov50mY Well worth watching. Dr Silver has used INF as first choice line of attack for over 20 years, hence significant experience re efficacy although critics argue that limited clinical data. He believes that patients should start INF as early into their disease as possible
https://youtu.be/XGEAlov50mY Well worth watching. Dr Silver has used INF as first choice line of attack for over 20 years, hence significant experience re efficacy although critics argue that limited clinical data. He believes that patients should start INF as early into their disease as possible
Paul123456
in
MPN Voice
5 years ago
Once a week recombinant interferon injections
This is interesting ... I was having 3 x standard interferon injections per week and stopped taking it for 5 weeks when I couldn't handle the side effects any more. Had specialist appt & decided to trial once a week from 27.10.19. Platelet counts were 311 then went up to 461. After a month of weekly
This is interesting ... I was having 3 x standard interferon injections per week and stopped taking it for 5 weeks when I couldn't handle the side effects any more. Had specialist appt & decided to trial once a week from 27.10.19. Platelet counts were 311 then went up to 461. After a month of weekly
fee13
in
MPN Voice
5 years ago
Et progression to mf and bone marrow biopsy.
Hi, I'm 49 and have et ( jak2 pos) for 7yrs. Been on hydroxycarbamide and anagrelide ,but transferring to interferon. Diagnosed with mf this week and very scared. Need fortnightly transfusions and bone marrow biopsy. Any support would be gratefully welcome. Also am self employed and concerned re finances
Hi, I'm 49 and have et ( jak2 pos) for 7yrs. Been on hydroxycarbamide and anagrelide ,but transferring to interferon. Diagnosed with mf this week and very scared. Need fortnightly transfusions and bone marrow biopsy. Any support would be gratefully welcome. Also am self employed and concerned re finances
soomoo
in
MPN Voice
5 years ago
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