Once a week recombinant interferon injections - MPN Voice

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Once a week recombinant interferon injections

fee13 profile image
4 Replies

This is interesting ... I was having 3 x standard interferon injections per week and stopped taking it for 5 weeks when I couldn't handle the side effects any more. Had specialist appt & decided to trial once a week from 27.10.19. Platelet counts were 311 then went up to 461. After a month of weekly injections they have come down to 384. This is amazing news for me as I cannot tolerate any other meds and was declined funding for pegylated interferon.

I do realise there is a normal variance in platelets but this may well be an option for others in the same boat.👏

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fee13
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Simon96 profile image
Simon96

Marvellous! Long may your platelets stay in control and those nasty side effects stay away

fee13 profile image
fee13 in reply toSimon96

Hear, hear!! Fingers toes and knees crossed lol

yarrowleaf profile image
yarrowleaf

Morning feel13!!

Interesting !! Cause I've been just having a 7 week's break from Pegasys. These weeks were a pure bliss <3. I started again 1 week ago have taken one more jab yesterday and will then try to settle on once every third week.

I was on 480 when I started my "holiday" and felt miserable. When I was checked after 7 weeks it was 830 . I don't know by now and and my next check will be in a month, but I take great care about how my body reacts.

Good luck to you and have a fine day !!

Yarrowleaf

fee13 profile image
fee13 in reply toyarrowleaf

Thank you and good luck with your 3 week trial 😁

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