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Interferon beta-1a
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New Patient with ET for 18 years but developed some odd symptoms!
Hi - I am new to the group and have had ET for 18 years. I have been lucky to be able to have 2 healthy children while being treated on pegulated interferon for 9 years but have since developed odd symptoms which they do not know whether is related to the drug or not?!! I have been in and out of GP/Hospital
Hi - I am new to the group and have had ET for 18 years. I have been lucky to be able to have 2 healthy children while being treated on pegulated interferon for 9 years but have since developed odd symptoms which they do not know whether is related to the drug or not?!! I have been in and out of GP/Hospital
BeckyDing
in
MPN Voice
4 years ago
Diagnosis Update
Thought I’d come on and give an update as not been on here since my initial diagnosis. My ET Jak2 positive was upgraded to Prefibrotic myelofibrosis after having a bone marrow biopsy some months ago. I opted for Peg interferon Alfa and am coping really well on it. Platelets are now around the 290 mark
Thought I’d come on and give an update as not been on here since my initial diagnosis. My ET Jak2 positive was upgraded to Prefibrotic myelofibrosis after having a bone marrow biopsy some months ago. I opted for Peg interferon Alfa and am coping really well on it. Platelets are now around the 290 mark
ajdolly
in
MPN Voice
4 years ago
Coronavirus infection and medication for cardiovascular disease
Given the recent publication in the Lancet medical journal which questions whether the severity of COVID-19 is greater in patients taking ACE inhibitors, please as a matter of urgency could the BHF obtain empirical data from China or Italy to determine whether this is the case. The NNT for ACE inhibitors
Given the recent publication in the Lancet medical journal which questions whether the severity of COVID-19 is greater in patients taking ACE inhibitors, please as a matter of urgency could the BHF obtain empirical data from China or Italy to determine whether this is the case. The NNT for ACE inhibitors
Hidden
in
British Heart Foundation
4 years ago
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High TSH levels
Hi all, Just wondering is there anybody on interferon that have had a raise in their TSH level (hypothyroidism) Thanks! Sheila
Hi all, Just wondering is there anybody on interferon that have had a raise in their TSH level (hypothyroidism) Thanks! Sheila
Sheila-collins
in
MPN Voice
4 years ago
🇮🇹 Italy Using Prone Positioning With Regard Coronavirus
In today’s papers was article about Italy having coronavirus patients face down in bed’s Not really sure how that works SO did bit of reading ANYWAY seems like last ditch effort to open alveolar from total collapse. Think it’s called atlectasas BUT this complication is caused by sars-cov virus that
In today’s papers was article about Italy having coronavirus patients face down in bed’s Not really sure how that works SO did bit of reading ANYWAY seems like last ditch effort to open alveolar from total collapse. Think it’s called atlectasas BUT this complication is caused by sars-cov virus that
Hidden
in
Lung Conditions Community Forum
4 years ago
Hair loss ET treatment
hair loss. I am 72 and suffer from ET I took Hydroxycarbamide for six months, various problems plus hair loss. ( Hair loss normalised a few months after ceasing hydro.) Now prescribed interferon alfa, still hair loss if I was prescribed Anagnelide would it cause hair loss? Are there other drugs for
hair loss. I am 72 and suffer from ET I took Hydroxycarbamide for six months, various problems plus hair loss. ( Hair loss normalised a few months after ceasing hydro.) Now prescribed interferon alfa, still hair loss if I was prescribed Anagnelide would it cause hair loss? Are there other drugs for
presto21
in
MPN Voice
4 years ago
Ropeginterferon superior to Interferon and HU in PV patients
TAKE-HOME MESSAGE In this phase III study and its associated extension study, 257 patients with polycythemia vera (PV) were randomized to receive a monopegylated interferon, ropeginterferon alfa-2b, or hydroxyurea. Throughout the extension study, use of ropeginterferon compared with hydroxyurea was
TAKE-HOME MESSAGE In this phase III study and its associated extension study, 257 patients with polycythemia vera (PV) were randomized to receive a monopegylated interferon, ropeginterferon alfa-2b, or hydroxyurea. Throughout the extension study, use of ropeginterferon compared with hydroxyurea was
JT_Marlin
in
MPN Voice
4 years ago
Chances of getting ill with or without intervention
Morning Maz. Do you know whether there are any statistics showing risks of having a stroke or heart attack etc with and without treatment other than Aspirin? Also do you need to take Interferon etc for rest of life? Thank you
Morning Maz. Do you know whether there are any statistics showing risks of having a stroke or heart attack etc with and without treatment other than Aspirin? Also do you need to take Interferon etc for rest of life? Thank you
Cassie11
in
MPN Voice
4 years ago
Nutraceuticals (NAC) have potential for boosting the type 1 interferon response to RNA viruses including influenza and coronavirus
In light of worldwide concern regarding the recent outbreak of a deadly novel strain of coronavirus in China, it is fortuitous that two recent discoveries point the way to effective nutraceutical measures for potentiating the type 1 interferon response to RNA viruses. It is clear that certain nutraceuticals
In light of worldwide concern regarding the recent outbreak of a deadly novel strain of coronavirus in China, it is fortuitous that two recent discoveries point the way to effective nutraceutical measures for potentiating the type 1 interferon response to RNA viruses. It is clear that certain nutraceuticals
2greys
in
Lung Conditions Community Forum
4 years ago
Tinnitus??
Hello my MPN family, ET with JAK2+ on Pegulated Interferon Apha 2, 135mc every three weeks. I been having Tinnitus in my both ears and I would like to ask if anyone else have this experience and if anyone is using any medication or herbal remedies for this? Please advise.
Hello my MPN family, ET with JAK2+ on Pegulated Interferon Apha 2, 135mc every three weeks. I been having Tinnitus in my both ears and I would like to ask if anyone else have this experience and if anyone is using any medication or herbal remedies for this? Please advise.
light
in
MPN Voice
4 years ago
Does interferon slow progression of et?
I have heard a few people say interferon slows down progression of et? Does anyone know is this true? My haemo is leaving me on no meds only aspirin which am happy about but if I have a chance to slow down progression I'd rather take it
I have heard a few people say interferon slows down progression of et? Does anyone know is this true? My haemo is leaving me on no meds only aspirin which am happy about but if I have a chance to slow down progression I'd rather take it
Irishgal12
in
MPN Voice
4 years ago
PV and dreadful itching
Hi everyone, I am 4 weeks into having interferon injections, I had my last one last week, I had a blood test yesterday and see the haematologist tomorrow, and I imagine my dose of 90 will be increased as I am itching like crazy. Has anyone else experienced this while on interferon.....and what can I
Hi everyone, I am 4 weeks into having interferon injections, I had my last one last week, I had a blood test yesterday and see the haematologist tomorrow, and I imagine my dose of 90 will be increased as I am itching like crazy. Has anyone else experienced this while on interferon.....and what can I
Yvette49
in
MPN Voice
4 years ago
Is anyone else like WTF?
I’m very recently diagnosed ET with JAK2 mutation having been tested since I had a TIA (side note, had an MI 4yrs ago which may or may not be related). On a twice daily baby aspirin and eliquis, and starting pegasys soon. How life altering was this for you - particularly mentally? I consider myself and
I’m very recently diagnosed ET with JAK2 mutation having been tested since I had a TIA (side note, had an MI 4yrs ago which may or may not be related). On a twice daily baby aspirin and eliquis, and starting pegasys soon. How life altering was this for you - particularly mentally? I consider myself and
JT_Marlin
in
MPN Voice
4 years ago
Aspirin and peg interferon
Quick question Iam Et jac positive on peg interferon every other week 45dose. When I was diagnosed my hemo suggested aspirin every day before I even started peg interferon. Was just wondering if I still need aspirin alongside my injection
Quick question Iam Et jac positive on peg interferon every other week 45dose. When I was diagnosed my hemo suggested aspirin every day before I even started peg interferon. Was just wondering if I still need aspirin alongside my injection
Elab
in
MPN Voice
4 years ago
Post 585 Take your time 8 Jan 2020
That does seem to be an obvious statement, but I will say it again. Take your time. "YOU" have just been diagnosed (Dx'd) with Relapsing-Remitting ms (RRms), "YOU" have tears to shed brick walls to kick and the sky to yell at. Give it everything that "YOU" can muster. Let the scientist on the space station
That does seem to be an obvious statement, but I will say it again. Take your time. "YOU" have just been diagnosed (Dx'd) with Relapsing-Remitting ms (RRms), "YOU" have tears to shed brick walls to kick and the sky to yell at. Give it everything that "YOU" can muster. Let the scientist on the space station
RoyceNewton
in
My MSAA Community
5 years ago
Recommendation on Haematologist in London
Hi, I am travelling to London for some work and plan to see any good Haematologist for ET. I am male, 36 years of age and its been 2 years since diagnosed with ET. Would like to have any recommendations on good haematologist (private practices) for ET in London. I want 2nd opinion on starting Interferon
Hi, I am travelling to London for some work and plan to see any good Haematologist for ET. I am male, 36 years of age and its been 2 years since diagnosed with ET. Would like to have any recommendations on good haematologist (private practices) for ET in London. I want 2nd opinion on starting Interferon
MrThara
in
MPN Voice
4 years ago
Post 582 Medicines 3 Jan 2020
What are your expectations when "YOU" take a medicine? Any medicine not merely Disease-Modifying Therapy (DMT). Ask yourself again, this time really think about your answer. I take my medicines and with the exception of aspirins, my expectatio nare very low. I do not count on medicine doing very much
What are your expectations when "YOU" take a medicine? Any medicine not merely Disease-Modifying Therapy (DMT). Ask yourself again, this time really think about your answer. I take my medicines and with the exception of aspirins, my expectatio nare very low. I do not count on medicine doing very much
RoyceNewton
in
My MSAA Community
5 years ago
Lupus Flares May Be Linked to Damage to Mitochondria, Study Reports
JANUARY 17, 2020 BY JOANA CARVALHO Lupus Flares May Be Linked to Damage to Mitochondria, Study Reports Excessive production of type I interferon (IFN-I) — a molecule that mediates immune and inflammatory responses — in people with systemic lupus erythematosus (SLE) may be caused by small fragments of
JANUARY 17, 2020 BY JOANA CARVALHO Lupus Flares May Be Linked to Damage to Mitochondria, Study Reports Excessive production of type I interferon (IFN-I) — a molecule that mediates immune and inflammatory responses — in people with systemic lupus erythematosus (SLE) may be caused by small fragments of
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
New treatment options
https://www.targetedonc.com/news/expert-highlights-benefits-of-fedratinib-in-subgroup-of-patients-with-myelofibrosis Mesa: It’s an exciting time in MPNs without a doubt. I would break it down into 2 advances. The first is in patients with ET and PV. At this meeting, there continues to be further updates
https://www.targetedonc.com/news/expert-highlights-benefits-of-fedratinib-in-subgroup-of-patients-with-myelofibrosis Mesa: It’s an exciting time in MPNs without a doubt. I would break it down into 2 advances. The first is in patients with ET and PV. At this meeting, there continues to be further updates
Paul123456
in
MPN Voice
5 years ago
Positive Results on Anifrolumab for Lupus Published in New England Journal of Medicine
December 18, 2019 The Lupus Research Alliance (LRA) welcomes additional positive results published today in the New England Journal of Medicine online edition from AstraZeneca’s Phase 3 TULIP-2 trial studying the investigational biologic anifrolumab as a treatment for systemic lupus erythematosus (SLE
December 18, 2019 The Lupus Research Alliance (LRA) welcomes additional positive results published today in the New England Journal of Medicine online edition from AstraZeneca’s Phase 3 TULIP-2 trial studying the investigational biologic anifrolumab as a treatment for systemic lupus erythematosus (SLE
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
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