Post 536 side effects 8 Oct 2019 - My MSAA Community

My MSAA Community

9,440 members21,223 posts

Post 536 side effects 8 Oct 2019

RoyceNewton profile image
3 Replies

Side effects, what are "YOU" willing to put up with? Seriously, what? I put up with headaches, painful injections and a basic feeling of crap for years on interferon Beta 1B(Betaseron). Even worse for my month on Rebif Interferon Beta 1A. None on Tecfidera, and it is a tablet so no needles. Yaay as I have a needle phobia. There are side effects with pretty much everything, especially this condition. Have "YOU" noticed that birth has a guaranteed side effect? A fatal condition. They call it death, guaranteed that if "YOU" live long enough, that "YOU" will die. Let that sink in, really sink in.

Good, "YOU" worked that one out. Does that change your perspective on Disease-Modifying Therapy (DMT), it should. If the DMT will not kill you or at least does not have the risk of killing "YOU, TAKE IT, TAKE IT and do not stop taking one. Change if need be, I most certainly have, but I have never stopped taking it. I do not expect to be cured of this condition. I do not expect to see any changes. What I do expect, perhaps hope for, is to get worse slower, no more, that is good enough for me, and should be for "YOU also.

ms is a chronic, incurable illness that we have. A cure does not exist and likely may not exist in my lifetime, another thirty more years. What does exist is DMT and we should take the strongest that we can get. They do have side effects, but we can persevere and get around them. A good, worthwhile life exists for all of us. Do what "YOU" have to do to live it, and live it ell.

Giving up and crying in that cold dark corner does not have to be your future or ever a part of your ms life. Have a little strength, just a little willpower and LIVE this ms life. "YOU" can do it give it a little time. Limit the silly decisions. Always LOVE yourself, and take care of the favourite person in your life. The one who is always yes "YOU.

Royce *the ms writer)

go look up the criteria for reporting side effects on your medicines

Written by
RoyceNewton profile image
RoyceNewton
To view profiles and participate in discussions please or .
Read more about...
3 Replies
twooldcrows profile image
twooldcrows

i agree to find the best and hope to not have any side effects ...had lots for years felt like i was on the flue bed everyday well most days say more than have the week every week ..and of course the dents from the shots ...now it is the infusion ever six months and it is great and has helped me or i am dreaming right....have a great day ...laugh and smile...it just is so much happier that way....

RoyceNewton profile image
RoyceNewton in reply totwooldcrows

good point

carolek572 profile image
carolek572CommunityAmbassador

I will tolerate the side effects if the benefit is a better quality of life :-D

Not what you're looking for?

You may also like...

Post 544 I need to try harder 16 Oct 2019

Okay just because I turned up at the gym at the appropriate time, does not mean that I worked hard...
RoyceNewton profile image

Post 548Determination strengh sheer bloodymindedness21 Oct 2019

Bloodymindedness, an Australian term that I have always taken to mean. I do not care what anybody...
RoyceNewton profile image

post 509 ms symptoms 14 Sep 2019

I know that everybody raced off to Amazon and bought a laminated copy of your Central Nervous...
RoyceNewton profile image

Post 561 Congratulations 7 Nov 2019

Congratulations, for what "YOU" may ask. Congratulations because "YOU" have got a handle on this....
RoyceNewton profile image

Post 703 ms may be bad but 16 Oct 2020

G’day my beloved ms family. We are all well I hope. Slept well, little to no ms gremlins...
RoyceNewton profile image

Moderation team

See all
johnMSAA profile image
johnMSAAPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.