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b12 injections making me worse
Hi, My bloods came back as having a serum b12 of 73 so my doctor started me on b12 injections. I have had 3 out of 6 so far, but instead of feeling better my symptoms seem to be getting worse. I can't think straight and missed my 4th b12 injection today because I thought it was at a different time
Hi, My bloods came back as having a serum b12 of 73 so my doctor started me on b12 injections. I have had 3 out of 6 so far, but instead of feeling better my symptoms seem to be getting worse. I can't think straight and missed my 4th b12 injection today because I thought it was at a different time
hc918
in
Pernicious Anaemia Society
7 months ago
Vitamin D and Dementia
Vitamin D is a topic that gets a regular airing on this forum. In the context of CLL, here is a good place to review past posts https://healthunlocked.com/cllsupport/posts/149126536/recent-research-report?responses=149129259 (reply by Lankisterguy). Personally, the idea of dying with CLL just doesn't
Vitamin D is a topic that gets a regular airing on this forum. In the context of CLL, here is a good place to review past posts https://healthunlocked.com/cllsupport/posts/149126536/recent-research-report?responses=149129259 (reply by Lankisterguy). Personally, the idea of dying with CLL just doesn't
bennevisplace
in
CLL Support
7 months ago
B12 patches
At present I get B12 injection every 8 weeks, however I feel I need more as I am still suffering all the symptoms of B12 deficency/PA. I have found OmniCo B12 patches (high strength) on Amazon. It says the B12 is Methylcobalamin. Has anyone tried them? are they antgood. I, and am sure others would
At present I get B12 injection every 8 weeks, however I feel I need more as I am still suffering all the symptoms of B12 deficency/PA. I have found OmniCo B12 patches (high strength) on Amazon. It says the B12 is Methylcobalamin. Has anyone tried them? are they antgood. I, and am sure others would
Whiskymack
in
Pernicious Anaemia Society
7 months ago
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B12 deficiency
I was diagnosed with a B12 deficiency. I'm recovering from covid it's been 3 weeks. Not sure if the covid knocked my B12 down. I had first injection today. I woke up out of my sleep my body burning and dry month. I had that feeling first week of covid it went away. Now I'm not sure if the B12 is fighting
I was diagnosed with a B12 deficiency. I'm recovering from covid it's been 3 weeks. Not sure if the covid knocked my B12 down. I had first injection today. I woke up out of my sleep my body burning and dry month. I had that feeling first week of covid it went away. Now I'm not sure if the B12 is fighting
Michbell45
in
Pernicious Anaemia Society
7 months ago
Please may I get your thoughts on 2nd round of thyroid tests?
Hello š Please could I have some help with interpreting my 2nd lot of thyroid results? They are 8 weeks after the first as kindly advised on here. Please can I also get some advice on possible next steps? Apologies this is so long but wanted to share as much detail as possible to save anyone having
Hello š Please could I have some help with interpreting my 2nd lot of thyroid results? They are 8 weeks after the first as kindly advised on here. Please can I also get some advice on possible next steps? Apologies this is so long but wanted to share as much detail as possible to save anyone having
Bertiepuss
in
Thyroid UK
7 months ago
iron panel test
Would it be best to do iron panel test as I am now free of B12 and b complex or start taking them and then do?
Would it be best to do iron panel test as I am now free of B12 and b complex or start taking them and then do?
Fluffyone
in
Pernicious Anaemia Society
7 months ago
nhs stopping b12 injections
I have heard that nhs are stopping b12 injections due to the work load on surgeries.the nurse said that people will have blood tests and those who are above the level will then go onto oral medication.my concern is if they give you a blood test just after your b12 injection then levels will be high and
I have heard that nhs are stopping b12 injections due to the work load on surgeries.the nurse said that people will have blood tests and those who are above the level will then go onto oral medication.my concern is if they give you a blood test just after your b12 injection then levels will be high and
Triggert5656
in
Pernicious Anaemia Society
7 months ago
Ferritin levels decreased despite iron supplement
Hello In November I did a Monitor My Health Anaemia test, which showed: HB133g/L (normal) Ferritin 27ug/L (normal) TSAT 18% (normal) Active B12 47pmmol/L (normal) Folate 20ug/L (normal) In December my TSH at the GP was 1.01 (0.27 -4.2) Monitor My Health was TSH 1.19 (0.27-4.2) FT4 17 )12 -
Hello In November I did a Monitor My Health Anaemia test, which showed: HB133g/L (normal) Ferritin 27ug/L (normal) TSAT 18% (normal) Active B12 47pmmol/L (normal) Folate 20ug/L (normal) In December my TSH at the GP was 1.01 (0.27 -4.2) Monitor My Health was TSH 1.19 (0.27-4.2) FT4 17 )12 -
Amtired
in
Thyroid UK
7 months ago
Vitamin B12 produced by gut bacteria modulates cholinergic signalling
I simply can't help but think that this has some relevance to Pernicious Anaemia. But goodness knows what! And the lack of access precludes reading it all to try to find out. Seems such an odd bit of genetics that we developed an incredibly complex system to grab a tiny bit of B12 from our food, which
I simply can't help but think that this has some relevance to Pernicious Anaemia. But goodness knows what! And the lack of access precludes reading it all to try to find out. Seems such an odd bit of genetics that we developed an incredibly complex system to grab a tiny bit of B12 from our food, which
helvella
in
Pernicious Anaemia Society
7 months ago
Iron, estrogen & RLS
Just wondering if anyone is aware of any connection between iron & estrogen (from an RLS perspective)? I'm a 73 year-old male, and I've had high-ish estrogen levels for at least the last 7 years (42-49; normal level should be below 41). I think there is some correlation between high estrogen and high
Just wondering if anyone is aware of any connection between iron & estrogen (from an RLS perspective)? I'm a 73 year-old male, and I've had high-ish estrogen levels for at least the last 7 years (42-49; normal level should be below 41). I think there is some correlation between high estrogen and high
707twitcher
in
Restless Legs Syndrome
7 months ago
Goldpharma not letting me buy B12
Hi Everyone. I have had problems with B12 deficiency and have regularly self-injected for years. I always get my B12 from Goldpharma and it has never been a problem. However today I have tried to buy B12 and when I try to go to the next screen to pay for it, after putting all my details in I just get
Hi Everyone. I have had problems with B12 deficiency and have regularly self-injected for years. I always get my B12 from Goldpharma and it has never been a problem. However today I have tried to buy B12 and when I try to go to the next screen to pay for it, after putting all my details in I just get
Hayley31
in
Pernicious Anaemia Society
8 months ago
Iron supplement recommendations please
Can anyone recommend an iron supplement that won't cause constipation? My iron is low so GP prescribed me 200mg Ferrus Sulphate. I'm supposed to be taking 3 a day but I can barely manage 1, my bowels do not agree at all! š I was looking at Floradix liquid iron however it contains b vitamins which I'm
Can anyone recommend an iron supplement that won't cause constipation? My iron is low so GP prescribed me 200mg Ferrus Sulphate. I'm supposed to be taking 3 a day but I can barely manage 1, my bowels do not agree at all! š I was looking at Floradix liquid iron however it contains b vitamins which I'm
Mummybear0213
in
Thyroid UK
8 months ago
pregabalin and iron
Hello, I have tried googling if there is any interaction between pregabalin and iron but canāt find anything. I take an iron tablet due to low iron (morning and it has not helped) but will switch to iron bisglycinate at night after reading posts here. I stop eating at 6:30pm so I can take my pregabalin
Hello, I have tried googling if there is any interaction between pregabalin and iron but canāt find anything. I take an iron tablet due to low iron (morning and it has not helped) but will switch to iron bisglycinate at night after reading posts here. I stop eating at 6:30pm so I can take my pregabalin
e365
in
Restless Legs Syndrome
8 months ago
Vitamin/mineral deficiencies
Hi. I've had Pbc for 6 yrs now. Recently I've noticed that I am more fatigued than normal. I asked for my blood results over the last 10 yrs . I noticed a progressive decline in my ferritin levels over the last few yes. I had a vitamin b12 level done recently and it was just above the borderline/normal
Hi. I've had Pbc for 6 yrs now. Recently I've noticed that I am more fatigued than normal. I asked for my blood results over the last 10 yrs . I noticed a progressive decline in my ferritin levels over the last few yes. I had a vitamin b12 level done recently and it was just above the borderline/normal
Finn2021
in
PBC Foundation
8 months ago
Death of Dr. Joseph Chandy
Very sad news of the death of Dr. Chandy, who was a hero for his B12 deficient patients . He wrote , with Hugo Minney , a great book āVitamin B12 deficiency in clinical practiceā. ( Doctor , you gave me my life back) He stood up to the medical authorities in order to treat his B12 deficient patients
Very sad news of the death of Dr. Chandy, who was a hero for his B12 deficient patients . He wrote , with Hugo Minney , a great book āVitamin B12 deficiency in clinical practiceā. ( Doctor , you gave me my life back) He stood up to the medical authorities in order to treat his B12 deficient patients
wedgewood
in
Pernicious Anaemia Society
8 months ago
Latest results.
Hi all. I wonder if you could share your thoughts on my latest results. My levothyroxine has been increased from 50 to 75mg. I have had a very sore mouth and tongue for over 12 months and was hoping if my B12 levels increased and my levothyroxine was working well, it would go. It hasnāt. My B12
Hi all. I wonder if you could share your thoughts on my latest results. My levothyroxine has been increased from 50 to 75mg. I have had a very sore mouth and tongue for over 12 months and was hoping if my B12 levels increased and my levothyroxine was working well, it would go. It hasnāt. My B12
Kebabalon
in
Thyroid UK
8 months ago
Functional B12 problem, advice wanted
Hi Over the last 20 odd years I got very sick with lots of the typical PA symptoms. I was virtually housebound and incapable of any physical activity, with lots of neurological problems, muscle wasting, anemia etc. These were so pronounced that I received a preliminary (incorrect) diagnosis of motor
Hi Over the last 20 odd years I got very sick with lots of the typical PA symptoms. I was virtually housebound and incapable of any physical activity, with lots of neurological problems, muscle wasting, anemia etc. These were so pronounced that I received a preliminary (incorrect) diagnosis of motor
Uluru72
in
Pernicious Anaemia Society
8 months ago
do I need to stop Biotin containing supplements before a Blue Horizon iron status profile test?
I am testing my iron after very low ferritin results on a thyroid plus vitamins test ( I am seeing a Dr at private online clinic from the Thyroid UK list) In the past II had normal/high iron, so before I supplement I want to check all the iron indicators my question is: do I need to stop my b complex
I am testing my iron after very low ferritin results on a thyroid plus vitamins test ( I am seeing a Dr at private online clinic from the Thyroid UK list) In the past II had normal/high iron, so before I supplement I want to check all the iron indicators my question is: do I need to stop my b complex
london81
in
Thyroid UK
8 months ago
Vitamin B12 (hydroxocobalamin, cyanocobalamin): advise patients with known cobalt allergy to be vigilant for sensitivity reactions
A somewhat lacklustre MHRA warning: [i]
Vitamin B12 (hydroxocobalamin, cyanocobalamin): advise patients with known cobalt allergy to be vigilant for sensitivity reactions
[/i] [i][/i] [i]The medicines used to treat vitamin B12 deficiency (hydroxocobalamin, cyanocobalamin) contain cobalt. There
A somewhat lacklustre MHRA warning: [i]
Vitamin B12 (hydroxocobalamin, cyanocobalamin): advise patients with known cobalt allergy to be vigilant for sensitivity reactions
[/i] [i][/i] [i]The medicines used to treat vitamin B12 deficiency (hydroxocobalamin, cyanocobalamin) contain cobalt. There
helvella
in
Pernicious Anaemia Society
8 months ago
Nees help
iām a 43-year-old guy whoās been diagnosed with Parkinsonās for five years. The meds for Parkinson sort of help. Iāve tried lots and lots of things, but the thing that made me feel the very best was B12. I think I have pernicious, anemia and Parkinsonās. I also have a very low B2 levels. If I donāt
iām a 43-year-old guy whoās been diagnosed with Parkinsonās for five years. The meds for Parkinson sort of help. Iāve tried lots and lots of things, but the thing that made me feel the very best was B12. I think I have pernicious, anemia and Parkinsonās. I also have a very low B2 levels. If I donāt
38yroldmale
in
Pernicious Anaemia Society
8 months ago
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