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Anyone suffer from haemochromatosis or have high Ferritin levels?
I discovered recently that I had high ferritin in 2018 and that I may have it still (awaiting test results). I checked back old blood tests and I've only had ferritin measured once before and while it was within limits then, I noticed it was already quite high, and that was back in 2016. Now it's gone
I discovered recently that I had high ferritin in 2018 and that I may have it still (awaiting test results). I checked back old blood tests and I've only had ferritin measured once before and while it was within limits then, I noticed it was already quite high, and that was back in 2016. Now it's gone
Chancery
in
Restless Legs Syndrome
5 years ago
Very low B12 Levels...
Hi All, I’ve been found to have very low levels of vitamin B12 & folate. I’m having a blood test to check the intrinsic factor tomorrow. If that comes back negative can I supplement myself to get my levels up or do I have to have injections?? My only symptom is hairloss! I’m on loading doses of vitamin
Hi All, I’ve been found to have very low levels of vitamin B12 & folate. I’m having a blood test to check the intrinsic factor tomorrow. If that comes back negative can I supplement myself to get my levels up or do I have to have injections?? My only symptom is hairloss! I’m on loading doses of vitamin
Sarahlouise1980
in
Thyroid UK
5 years ago
Supplements and exercise
Hi and thanks to all who responded to my first ever anywhere post yesterday. One recurring theme in your replies seems to be that I need to think about supplements whilst receiving injections for B12 deficiency. I had heard some mention of iron, potassium and folic acid, but I'm not sure if the requirement
Hi and thanks to all who responded to my first ever anywhere post yesterday. One recurring theme in your replies seems to be that I need to think about supplements whilst receiving injections for B12 deficiency. I had heard some mention of iron, potassium and folic acid, but I'm not sure if the requirement
Embra-girl
in
Pernicious Anaemia Society
5 years ago
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Vitamin d level
I’m gutted, I was on 10000iu of vitamin d3, vitamin k2 and magnesium as was vitamin d deficient back in 2016.. my levels reached 183nmol in Feb this year so I reduced to maintenance level of 5000iu and I’ve just done a test and it’s dropped to 105nmol.. I’m going to have to go back to 10000iu to get
I’m gutted, I was on 10000iu of vitamin d3, vitamin k2 and magnesium as was vitamin d deficient back in 2016.. my levels reached 183nmol in Feb this year so I reduced to maintenance level of 5000iu and I’ve just done a test and it’s dropped to 105nmol.. I’m going to have to go back to 10000iu to get
Dollydaydream11
in
Thyroid UK
5 years ago
Sainsbury’s mushrooms with Vit b12!!
Have you seen this? I thought only meat and a type of seaweed contained this vitamin.
Have you seen this? I thought only meat and a type of seaweed contained this vitamin.
Kazania
in
Pernicious Anaemia Society
5 years ago
Lab Results - Iron and Thyroid
Hi. I recently had my iron levels checked. It's quite confusing, I am wondering if I should maintain my iron supplementation dose or decrease it. July 16, 2019 Ferritin N/A (yes, they did not run this) Serum Iron 9.9 (10.6-33.8) Transferrin 2.51 (2.00-3.30) Saturation 0.16 (0.13-0.50) In Summer 2018
Hi. I recently had my iron levels checked. It's quite confusing, I am wondering if I should maintain my iron supplementation dose or decrease it. July 16, 2019 Ferritin N/A (yes, they did not run this) Serum Iron 9.9 (10.6-33.8) Transferrin 2.51 (2.00-3.30) Saturation 0.16 (0.13-0.50) In Summer 2018
Andyb1205
in
Thyroid UK
5 years ago
Does taking oral B12 bias a B12 test high for someone with PA?
Maybe a dumb question but does taking oral B12 bias a B12 test high for someone with PA? My doc has asked me to try oral B12 prior to my next re-test to "see if it works". She said that sometimes diet absorption isn't enough for some people and supplements help. She's talking B12D in general, not PA
Maybe a dumb question but does taking oral B12 bias a B12 test high for someone with PA? My doc has asked me to try oral B12 prior to my next re-test to "see if it works". She said that sometimes diet absorption isn't enough for some people and supplements help. She's talking B12D in general, not PA
AirAl
in
Pernicious Anaemia Society
5 years ago
Test Results Advice Please
Hi, these are my latest vitamin test results Vit B12 613 (211-911) Folate 10.16 (>12 normal <7.63 deficient) Vit D 24.73 (<20 deficiency, 20-30 insufficiency, 30-100 sufficient) My ferritin wasn’t tested because the doctor said my haemoglobin was good 14.1 (12-15) I’ve been given 50,000 Vit d tablets
Hi, these are my latest vitamin test results Vit B12 613 (211-911) Folate 10.16 (>12 normal <7.63 deficient) Vit D 24.73 (<20 deficiency, 20-30 insufficiency, 30-100 sufficient) My ferritin wasn’t tested because the doctor said my haemoglobin was good 14.1 (12-15) I’ve been given 50,000 Vit d tablets
LynLyn
in
Thyroid UK
5 years ago
IF Negative after cutting alcohol, B12 descending?
I just put most of this in my profile for convenience, but thought I'd post to ask a couple questions. Short version of next two paragraphs: Feb-18 B12 non-detect (zero) and Folate high; Feb-18 started injections; Apr-19 symptoms just about gone; Jul-19 re-tested and B12 was high; 1-Aug-19 stopped injections
I just put most of this in my profile for convenience, but thought I'd post to ask a couple questions. Short version of next two paragraphs: Feb-18 B12 non-detect (zero) and Folate high; Feb-18 started injections; Apr-19 symptoms just about gone; Jul-19 re-tested and B12 was high; 1-Aug-19 stopped injections
AirAl
in
Pernicious Anaemia Society
5 years ago
Would appreciate input on latest bits A, E, and ferritin levels
I am bit concerned about my latest vit A and E readings: vitamin A (retinol) (C.L.H.P) 2.86 pmol/l (1.55-3.30) 819 ug/l (444-945) Is this good or should it be higher? I take fish oil and dried beef liver capsules daily (together, they are said to contain 100% of RV) since reading that non-animal vit
I am bit concerned about my latest vit A and E readings: vitamin A (retinol) (C.L.H.P) 2.86 pmol/l (1.55-3.30) 819 ug/l (444-945) Is this good or should it be higher? I take fish oil and dried beef liver capsules daily (together, they are said to contain 100% of RV) since reading that non-animal vit
Hidden
in
Thyroid UK
5 years ago
Is Iron a persistent deficiency with Hypothyroidism?
I wanted to know If iron deficiency is a constant thing that I need to manage long term with hypothyroidism?
I wanted to know If iron deficiency is a constant thing that I need to manage long term with hypothyroidism?
Hidden
in
Thyroid UK
5 years ago
Nausea and b12??
It’s a week until my b12 injection, and all week I have felt so nauseous, can low b12 make you feel this way ?? Thanks in advance
It’s a week until my b12 injection, and all week I have felt so nauseous, can low b12 make you feel this way ?? Thanks in advance
Elleeee
in
Pernicious Anaemia Society
5 years ago
Can I have PA (pernicious anemia) even with normal B12 amount test results?? I have many of the symptoms!! plz help
Hi im new to this forum but im looking for advice to what im experiencing For the last year and a half Ive been experiencing some of the symptoms like of PA without knowing of it. The symptoms have gotten worse as time has gone by leading to: extreme fatigue (even after sleeping 9 hours), restless
Hi im new to this forum but im looking for advice to what im experiencing For the last year and a half Ive been experiencing some of the symptoms like of PA without knowing of it. The symptoms have gotten worse as time has gone by leading to: extreme fatigue (even after sleeping 9 hours), restless
izaldumbide
in
Pernicious Anaemia Society
5 years ago
Vitamin timings
Hi, If taking the following medixation and supplements, are there any certain times best to take them to avoid any interference. Levothyroxine 125 Selenium Zinc Vitamin B complex Vitamin D Magnesium (Read this needs to be taken if taken vitamin d)
Hi, If taking the following medixation and supplements, are there any certain times best to take them to avoid any interference. Levothyroxine 125 Selenium Zinc Vitamin B complex Vitamin D Magnesium (Read this needs to be taken if taken vitamin d)
mishoakes
in
Thyroid UK
5 years ago
Above range Active b12
I’m asking some advice for my friends daughter who I’m convinced has a b12 problem. 5 yrs ago she was very ill and diagnosed with CF( (all started after a trip to Africa). She then started having awful migraines and has been rushed to a&e a few times as they thought she’d had a stroke but drs said it
I’m asking some advice for my friends daughter who I’m convinced has a b12 problem. 5 yrs ago she was very ill and diagnosed with CF( (all started after a trip to Africa). She then started having awful migraines and has been rushed to a&e a few times as they thought she’d had a stroke but drs said it
Vicky2822
in
Pernicious Anaemia Society
5 years ago
For anyone interested in a potent supplement for raising B12
I’ve recently, because of my remaining symptoms, been testing to see if I might have an issue with B12, anyway these supplements were recommended to me and by my results I think you can see they have worked, so thought I’d share... They have 3 different types of B12 in them. I did this test which included
I’ve recently, because of my remaining symptoms, been testing to see if I might have an issue with B12, anyway these supplements were recommended to me and by my results I think you can see they have worked, so thought I’d share... They have 3 different types of B12 in them. I did this test which included
jamjar67
in
Thyroid UK
5 years ago
B12 & MMA Test result
Following on from my last post I have my MMA results, photo attached. I will put my most recent Thyroid test results which include active B12 although I have been supplementing. 5/4/19 TSH 0.264 (0.27 - 4.2) FT3. 4.51. 3.1-6.8 FT4. 21.4. 12-22 Active B12. 155. (37.5 - 188) Folate. 19.8 (3.89 - 26.8
Following on from my last post I have my MMA results, photo attached. I will put my most recent Thyroid test results which include active B12 although I have been supplementing. 5/4/19 TSH 0.264 (0.27 - 4.2) FT3. 4.51. 3.1-6.8 FT4. 21.4. 12-22 Active B12. 155. (37.5 - 188) Folate. 19.8 (3.89 - 26.8
jamjar67
in
Pernicious Anaemia Society
5 years ago
Where to start? Self injection B12
Hi, I am new here and having a hard time with my GP with my B12 and want to have my own health in my own hands since my symptoms are worse and I don't believe my results are at a normal range for me. I am looking to inject myself B12, Where do I start? Where do you get the B12 from ? and where do you
Hi, I am new here and having a hard time with my GP with my B12 and want to have my own health in my own hands since my symptoms are worse and I don't believe my results are at a normal range for me. I am looking to inject myself B12, Where do I start? Where do you get the B12 from ? and where do you
LittleA
in
Pernicious Anaemia Society
5 years ago
Can improved b12 affect need for thyroid hormones in hypothyroidism?
I have been self injecting b12 for about 2 months ( using to date 10 plus ampoules) and after a 2 week gap certainly feel the need for more, so believe b12 ‘deficiency’ at cellular level has been confirmed ( my b12 results were good, and my Gp wouldn’t test anything related to B12 for obvious neurological
I have been self injecting b12 for about 2 months ( using to date 10 plus ampoules) and after a 2 week gap certainly feel the need for more, so believe b12 ‘deficiency’ at cellular level has been confirmed ( my b12 results were good, and my Gp wouldn’t test anything related to B12 for obvious neurological
Judithdalston
in
Pernicious Anaemia Society
5 years ago
False Positive PA Test
Hey guys, I took a PA test recently (Intrinsic Factor Antibody) and it came back positive. I'm always a little skeptical so I did some more research. I ended up finding the information below from Quest who is the lab that did my test. I had been getting 3 b12 injections per week when I got the tests
Hey guys, I took a PA test recently (Intrinsic Factor Antibody) and it came back positive. I'm always a little skeptical so I did some more research. I ended up finding the information below from Quest who is the lab that did my test. I had been getting 3 b12 injections per week when I got the tests
lownskater52
in
Pernicious Anaemia Society
5 years ago
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