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Problems immediately after DBS surgery , pls help
Me omg , i am having a horrible reaction to dbs surgery, what in the world is going on??? symptom's i never had before are present, what in the hell is going on here? frozen with anxiety, other horrible weird symptom's i just pray to go home to my savior. anyone have a bad outcome from the surgery
Me omg , i am having a horrible reaction to dbs surgery, what in the world is going on??? symptom's i never had before are present, what in the hell is going on here? frozen with anxiety, other horrible weird symptom's i just pray to go home to my savior. anyone have a bad outcome from the surgery
fossygma
in
Cure Parkinson's
3 years ago
Class 4 Medicines Defect Information, Syonell: sodium valproate
From time to time, members have mentioned taking sodium valproate. For that reason, it might be worth my posting this new MHRA alert. [i]
Class 4 Medicines Defect Information, Syonell 250mg Gastro-Resistant Tablets,(PL 35507/0191), Syonell 500mg Gastro-Resistant Tablets, (PL 35507/0192), EL (21
From time to time, members have mentioned taking sodium valproate. For that reason, it might be worth my posting this new MHRA alert. [i]
Class 4 Medicines Defect Information, Syonell 250mg Gastro-Resistant Tablets,(PL 35507/0191), Syonell 500mg Gastro-Resistant Tablets, (PL 35507/0192), EL (21
helvella
Thyroid UK
in
Thyroid UK
3 years ago
Food Database Link
I saw a post with a link to a very nice nutritional food list. It had page after page of foods with calories, sodium, potassium, phosphorus, etc. Does anyone have the link to that database/spreadsheet of foods? Thank you!
I saw a post with a link to a very nice nutritional food list. It had page after page of foods with calories, sodium, potassium, phosphorus, etc. Does anyone have the link to that database/spreadsheet of foods? Thank you!
miraclelady
in
Kidney Disease
3 years ago
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Happy with gfr going up but....
I just got my 3 month bloodwork back...first one after dropping into 3a category kidney disease in January. My family doctor was useless and I still wouldn’t know about having kd if I didn’t check my bloodwork results online myself. For the last 2 years my gfr dropped from 85 (2019) to 54 (this past
I just got my 3 month bloodwork back...first one after dropping into 3a category kidney disease in January. My family doctor was useless and I still wouldn’t know about having kd if I didn’t check my bloodwork results online myself. For the last 2 years my gfr dropped from 85 (2019) to 54 (this past
Dllfb
in
Kidney Disease
3 years ago
Help with my results
Hi Friends, I got my results back today and i've attached below. Doctor sad i'm a bit low and to up my Levo... to 125 from 100. She'll also send my results to an endocrinologist and see what they recommend, this could take awhile. I was hoping that someone would be able to help me understand my results
Hi Friends, I got my results back today and i've attached below. Doctor sad i'm a bit low and to up my Levo... to 125 from 100. She'll also send my results to an endocrinologist and see what they recommend, this could take awhile. I was hoping that someone would be able to help me understand my results
Suzannah17
in
Thyroid UK
3 years ago
Chi machine?
Has anyone used a Chi Machine? A man at my church who has Parkinson's said he used to use the machine to help him sleep. (He had Deep Brain Stimulation and is now doing really well. No more tremors and his sleep is much better so it sounds like he doesn't use the Chi Machine any more.)
Has anyone used a Chi Machine? A man at my church who has Parkinson's said he used to use the machine to help him sleep. (He had Deep Brain Stimulation and is now doing really well. No more tremors and his sleep is much better so it sounds like he doesn't use the Chi Machine any more.)
kicker2
in
Restless Legs Syndrome
3 years ago
Diabetic Toothpaste ? Yes, you have read correctly , Colgate , the world leader in Toothpaste, now has launched a Toothpaste for Diabetes.
If you are using any commercial toothpaste , if you read through the list of ingredients , you will find a dozen of Synthetic chemical additives in it- some are preservatives, some are foaming agents, some are cleansing agents, some are dispersing agents, some are for flavour and many such things . But
If you are using any commercial toothpaste , if you read through the list of ingredients , you will find a dozen of Synthetic chemical additives in it- some are preservatives, some are foaming agents, some are cleansing agents, some are dispersing agents, some are for flavour and many such things . But
namaha
Administrator
in
Diabetes India
3 years ago
Remedies for Parkinson's constipation
This subject comes up a lot, so I figured it would be useful to post our collective wisdom in one place as a reference. As usual – what works for one may not work for another. So members of our club are invited to also post your remedies in the comments.
The causes of Parkinson's constipation
This subject comes up a lot, so I figured it would be useful to post our collective wisdom in one place as a reference. As usual – what works for one may not work for another. So members of our club are invited to also post your remedies in the comments.
The causes of Parkinson's constipation
park_bear
in
Cure Parkinson's
3 years ago
PTT FUS 4 months later
I had today my 3 months phone consultation with Prof. J. (one month later). He saw my videos, with and without levodopa e said that i was "very close to normal". Indeed, sometimes i feel close to normal, not everyday, not every hour, but especially in the morning i feel like that. I am able to run again
I had today my 3 months phone consultation with Prof. J. (one month later). He saw my videos, with and without levodopa e said that i was "very close to normal". Indeed, sometimes i feel close to normal, not everyday, not every hour, but especially in the morning i feel like that. I am able to run again
Markbit
in
Cure Parkinson's
3 years ago
Potassium in the diet
I know that too much salt in the diet is not good for you, so for many many years I've been using (sparingly) so-called "50% sodium salt, which is a mixture of 50% sodium chloride and 50% potassium chloride. It's readily available in supermarkets as a means of reducing your sodium intake. I've now had
I know that too much salt in the diet is not good for you, so for many many years I've been using (sparingly) so-called "50% sodium salt, which is a mixture of 50% sodium chloride and 50% potassium chloride. It's readily available in supermarkets as a means of reducing your sodium intake. I've now had
Mart25
in
British Heart Foundation
3 years ago
Started on depixol 40mg depot inj fortnightly and now have severe RLS
Hi everyone I'm new here, hope everyone is doing OK. I have just been started on Depixol depot inj 40mg fortnightly. Previously I was on clopixol and previous to that was on depixol bylut don't remember the dose. While I was on clopixol I didn't have and RLS symptoms but the first time and now again
Hi everyone I'm new here, hope everyone is doing OK. I have just been started on Depixol depot inj 40mg fortnightly. Previously I was on clopixol and previous to that was on depixol bylut don't remember the dose. While I was on clopixol I didn't have and RLS symptoms but the first time and now again
Magpie2016
in
Restless Legs Syndrome
3 years ago
Do brain implants (like DBS) change your personality?
From the New Yorker Magazine For the great majority of patients, deep-brain stimulation was beneficial and life-changing, but there were occasional reports of strange behavioral reactions, such as hypomania and hypersexuality. Then, in 2006, a French team published a study about the unexpected consequences
From the New Yorker Magazine For the great majority of patients, deep-brain stimulation was beneficial and life-changing, but there were occasional reports of strange behavioral reactions, such as hypomania and hypersexuality. Then, in 2006, a French team published a study about the unexpected consequences
jackedmonston
in
Cure Parkinson's
3 years ago
Keto diet - two weeks in
I have spent 2 weeks eating keto way with TRE (only breakfast and lunch, so no food after 4pm) and here are some of my experiences. I was worried about the amount of food I was eating, and my weight loss was not spectacular (1.6kg, and most of it during the first week), but I noticed a few extraordinary
I have spent 2 weeks eating keto way with TRE (only breakfast and lunch, so no food after 4pm) and here are some of my experiences. I was worried about the amount of food I was eating, and my weight loss was not spectacular (1.6kg, and most of it during the first week), but I noticed a few extraordinary
TheMoaningViolet
in
Low-Carb High-Fat (LCHF)
3 years ago
Generalised anxiety and persistent diarrhoea/abdominal pain
Hi All, Struggling badly with depression, generalised anxiety and abdominal pain to the point diarrhoea is 14 times a day for months. Aside from breathing exercises I'm very very low to the point of giving up on life. Dr just gives me imodium, doesnt help. Any advice sort Been waiting for gastroscopy
Hi All, Struggling badly with depression, generalised anxiety and abdominal pain to the point diarrhoea is 14 times a day for months. Aside from breathing exercises I'm very very low to the point of giving up on life. Dr just gives me imodium, doesnt help. Any advice sort Been waiting for gastroscopy
ja105
in
Anxiety and Depression Support
3 years ago
More Encouraging Focused Ultrasound News
I readily admit that I don't understand much of this article, but I do understand that it's another encouraging bit of information regarding focused ultrasound with specific potential for treatment of Parkinson's Disease and may other ailments. "Parkinson’s Disease, epilepsy and insomnia are just a few
I readily admit that I don't understand much of this article, but I do understand that it's another encouraging bit of information regarding focused ultrasound with specific potential for treatment of Parkinson's Disease and may other ailments. "Parkinson’s Disease, epilepsy and insomnia are just a few
jimcaster
in
Cure Parkinson's
3 years ago
Does anyone take supplements only for UC and IBS-C rather than prescription drugs?
I was diagnosed with UC about 20 years ago and have been in remission for a while but have constipation. I'm prescribed Mezavant XL and docusate sodium, when I remember to take them. I've also been taking slippery elm and psyllium husk more often as prefer to take this in an attempt to keep me regular
I was diagnosed with UC about 20 years ago and have been in remission for a while but have constipation. I'm prescribed Mezavant XL and docusate sodium, when I remember to take them. I've also been taking slippery elm and psyllium husk more often as prefer to take this in an attempt to keep me regular
DarrenH70
in
IBS Network
3 years ago
Pioneering neural recordings lay the groundwork for personalized Parkinson's treatments
In a study published May 3rd in Nature Biotechnology, UCSF Weill Institute for Neurosciences researchers implanted novel neurostimulation devices that monitor brain activity for many months, with and without deep brain stimulation (DBS) therapy. Pairing the brain recordings with wearable monitors of
In a study published May 3rd in Nature Biotechnology, UCSF Weill Institute for Neurosciences researchers implanted novel neurostimulation devices that monitor brain activity for many months, with and without deep brain stimulation (DBS) therapy. Pairing the brain recordings with wearable monitors of
Farooqji
in
Cure Parkinson's
3 years ago
Protenuria and possible FSGS
Good day everyone, I'm here to seek hopefully professional opinions out there regarding my condition. I am 38 yrs old male, overall very healthy. From the age of 19 to 36, I have been a recreational bodybuilder and have used anabolic steroids for that period of time on and off. Couple of years ago I
Good day everyone, I'm here to seek hopefully professional opinions out there regarding my condition. I am 38 yrs old male, overall very healthy. From the age of 19 to 36, I have been a recreational bodybuilder and have used anabolic steroids for that period of time on and off. Couple of years ago I
s0me1else
in
Kidney Disease
3 years ago
Probable Kidney Disease
Hi I am new to the forum. I am 46 yo male and have diabetes type 2 for around 12 years, mostly uncontrolled. HBA1C always around 7.5. BP is OK around 120/84. I did a urine test last week and Urine Albumin was 1+. eGFR is 124 , sodium at 100 and chloride at 90. Other values are ok. I also have NASH liver
Hi I am new to the forum. I am 46 yo male and have diabetes type 2 for around 12 years, mostly uncontrolled. HBA1C always around 7.5. BP is OK around 120/84. I did a urine test last week and Urine Albumin was 1+. eGFR is 124 , sodium at 100 and chloride at 90. Other values are ok. I also have NASH liver
amitc23
in
Kidney Disease
3 years ago
Advances in deep brain stimulation
A friend who is an electronics engineer sent me this article about an experiment to monitor brain activity remotely using WiFi and Bluetooth, and to use the results to improve the tuning of DBS in 5 patients with parkinson's disease https://gizmodo.com/in-a-first-people-had-their-brain-activity-tracked-rem
A friend who is an electronics engineer sent me this article about an experiment to monitor brain activity remotely using WiFi and Bluetooth, and to use the results to improve the tuning of DBS in 5 patients with parkinson's disease https://gizmodo.com/in-a-first-people-had-their-brain-activity-tracked-rem
WinnieThePoo
in
Cure Parkinson's
3 years ago
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