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Back to methotrexate...which I'm allergic to?!?!
So since my hospital admission in July I've been off all ra drugs, I can tell you it's not been easy. After all the issues with my lungs and how every drug has given me the worst of its side effects I really believed in myself that I would go into my future without anymore ra drugs, that I would just
So since my hospital admission in July I've been off all ra drugs, I can tell you it's not been easy. After all the issues with my lungs and how every drug has given me the worst of its side effects I really believed in myself that I would go into my future without anymore ra drugs, that I would just
orchidcass77
in
NRAS
7 years ago
Waiting for diagnosis
I'm 39 and just had my first appointment with a rheumatologist yesterday. She did x rays and ultrasound on my joints and says she does not think it's RA and now doing more blood tests which may indicate lupus I have had a positive ANA along with pretty much every symptom of RA except swollen, red joints
I'm 39 and just had my first appointment with a rheumatologist yesterday. She did x rays and ultrasound on my joints and says she does not think it's RA and now doing more blood tests which may indicate lupus I have had a positive ANA along with pretty much every symptom of RA except swollen, red joints
DenverKUK
in
LUPUS UK
7 years ago
Flare on immunosuppressant
When u flare but are on
immunosuppressants
does that mean they are not wrking ?? My dr just said something like that but only just thought of it when I left hospital Been in remission for 5 years why have they stopped working ?? Many thanks
When u flare but are on
immunosuppressants
does that mean they are not wrking ?? My dr just said something like that but only just thought of it when I left hospital Been in remission for 5 years why have they stopped working ?? Many thanks
poodlegal
in
LUPUS UK
7 years ago
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Update: B12 Toxicity (Ha)...B12 Not Working...Diagnostic Busses Rolling In...Treatment Has Commenced...and a Big Thank You.
So I have a titrate dose of steroids for three weeks and have also started on
immunosuppressants
(which will probably take up to twelve weeks to kick-in). The prospect of beginning to feel well is a strange and wonderous thing 😀😀. And even better, they're going to continue to treat me.
So I have a titrate dose of steroids for three weeks and have also started on
immunosuppressants
(which will probably take up to twelve weeks to kick-in). The prospect of beginning to feel well is a strange and wonderous thing 😀😀. And even better, they're going to continue to treat me.
Foggyme
Administrator
in
Pernicious Anaemia Society
7 years ago
New member
On treatment of steroids and
immunosuppressants
. Currently on 10mg predisilone and 50mg azathioprine. Steroid treatment is rough!
On treatment of steroids and
immunosuppressants
. Currently on 10mg predisilone and 50mg azathioprine. Steroid treatment is rough!
Jenmc86
in
British Liver Trust
7 years ago
Fast train coming (when renal relapse threatens)
Currently on usual cocktail of
immunosuppressants
, steroids, statins. Live active, happy life focused on building health, strength and wellbeing which includes quite a lot of physical exercise. A week ago I subjected my body to some intense physical exertion.
Currently on usual cocktail of
immunosuppressants
, steroids, statins. Live active, happy life focused on building health, strength and wellbeing which includes quite a lot of physical exercise. A week ago I subjected my body to some intense physical exertion.
HealthStrength
in
Early CKD Support
7 years ago
NSAIDS, other pain killers as cause of diverticular disease?
Hello folks On top of everything else I have been diagnosed with diverticula disease. This is odd, since I am predominantly vegetarian, and eat mostly beans, lentils, peas and veg. I make my own whole meal bread. Plenty of roughage! I am wondering if this disease could have been caused by the long term
Hello folks On top of everything else I have been diagnosed with diverticula disease. This is odd, since I am predominantly vegetarian, and eat mostly beans, lentils, peas and veg. I make my own whole meal bread. Plenty of roughage! I am wondering if this disease could have been caused by the long term
Hidden
in
NRAS
7 years ago
Opinions on azathioprine
Just wondering if anyone had tried the non pharmacological approach with an auto immune paleo diet and exercise plan as a way of reducing flares rather than
immunosuppressants
. I ready taking hydroxychloriquine. Just wondering if anyone could shed some light Many thanks x
Just wondering if anyone had tried the non pharmacological approach with an auto immune paleo diet and exercise plan as a way of reducing flares rather than
immunosuppressants
. I ready taking hydroxychloriquine. Just wondering if anyone could shed some light Many thanks x
shielsamas
in
LUPUS UK
8 years ago
Lou1967
So I've been on steroids for just over 2 months now and my platelets are no higher than they got after a couple of weeks on them, so last week I was still at only 21 and taking 50ml of steroids so now I'm on
immunosuppressants
and 40ml of steroids!
So I've been on steroids for just over 2 months now and my platelets are no higher than they got after a couple of weeks on them, so last week I was still at only 21 and taking 50ml of steroids so now I'm on
immunosuppressants
and 40ml of steroids!
Lou1967
in
ITP Support Association
8 years ago
Foods/Supplements-Vitamins: Medicinal Fungi - Button mushroom - Agaricus bisporus
Surely I jest? The lowly white button mushroom [WBM] contains an aromatase inhibitor. As such, it may inhibit the conversion of testosterone to estradiol. WBMs are also a source of conjugated linoleic acid [CLA]. Surely, not a whole lot - but [1c] describes it as "an important component". & "WBM was
Surely I jest? The lowly white button mushroom [WBM] contains an aromatase inhibitor. As such, it may inhibit the conversion of testosterone to estradiol. WBMs are also a source of conjugated linoleic acid [CLA]. Surely, not a whole lot - but [1c] describes it as "an important component". & "WBM was
pjoshea13
in
Advanced Prostate Cancer
7 years ago
Joint pains
The next group of drugs I really need to take are
immunosuppressants
which really is not ideal given that I have extensive bronchiectasis. Many thanks in advance Dianne
The next group of drugs I really need to take are
immunosuppressants
which really is not ideal given that I have extensive bronchiectasis. Many thanks in advance Dianne
dmacheta1
in
PCD Family Support Group (UK)
8 years ago
Foods/Supplements-Vitamins: Magnolia - magnolol - honokiol - obovatol - Relora
Timing of this post is due to Gus, who recently posted enthusiastically about honokiol & time to Lupron failure. [1] The following deals with three constituents of the magnolia that have been shown to have anti-tumor effects in PCa: magnolol, honokiol & obovatol. Mention should be made of Relora: "
Timing of this post is due to Gus, who recently posted enthusiastically about honokiol & time to Lupron failure. [1] The following deals with three constituents of the magnolia that have been shown to have anti-tumor effects in PCa: magnolol, honokiol & obovatol. Mention should be made of Relora: "
pjoshea13
in
Advanced Prostate Cancer
7 years ago
ITP with counts less than 10, is revolade is dangerous?
Hello everyone Im 28 years old n diagnose ITP after dental surgery.. When i had my first cbc after dental surgery count was 2. after 3 months of prednisolne and immunosuppressive treatment counts are same. Now i tapper off steroid . Luckily i dont have any kind of bleeding. just my legs get pain . very
Hello everyone Im 28 years old n diagnose ITP after dental surgery.. When i had my first cbc after dental surgery count was 2. after 3 months of prednisolne and immunosuppressive treatment counts are same. Now i tapper off steroid . Luckily i dont have any kind of bleeding. just my legs get pain . very
AWSAR
in
ITP Support Association
8 years ago
Flu jab
Hi all, for the record, I got my annual flu vaccine last week. The wonderful pharmacist explained that the substance used in the shot is not live virus. The major issue with PMR and prednisone users is that the desired immune response may be less than optimal, given the immunosuppressive action of pred
Hi all, for the record, I got my annual flu vaccine last week. The wonderful pharmacist explained that the substance used in the shot is not live virus. The major issue with PMR and prednisone users is that the desired immune response may be less than optimal, given the immunosuppressive action of pred
1Purplecrow
in
PMRGCAuk
8 years ago
Lupus or infection?
Hi everyone, Had a bad day yesterday. I've had swollen lymphs behind my jaw/ear that got worse over a couple of days until it was so bad I couldn't turn my head or sleep properly. Went to bed feeling OK other than the soreness. A few hours later I was awake with a massive headache and starting vomiting
Hi everyone, Had a bad day yesterday. I've had swollen lymphs behind my jaw/ear that got worse over a couple of days until it was so bad I couldn't turn my head or sleep properly. Went to bed feeling OK other than the soreness. A few hours later I was awake with a massive headache and starting vomiting
Emily00
in
LUPUS UK
8 years ago
Flu jab?
Anyone know if you're eligible for the flu jab if you're on hydroxychloroquine? I.e. does it count as an immunosuppressant? Last year I paid for the flu jab privately as I wasn't diagnosed with anything at the time or on any serious medication, and I'll do that again if I'm not eligible on the NHS, but
Anyone know if you're eligible for the flu jab if you're on hydroxychloroquine? I.e. does it count as an immunosuppressant? Last year I paid for the flu jab privately as I wasn't diagnosed with anything at the time or on any serious medication, and I'll do that again if I'm not eligible on the NHS, but
LuckyJC
in
LUPUS UK
8 years ago
Newly dx'd.
Hi I'm 42 live in Arkansas and trying to find assistance to help with Copaxone. I have Medicare so I'm not sure why there is a problem. I am a Registered Nurse disabled from an inflammatory muscle disease called Dermatomyositis or DM for short, MS, Hashimoto, and Fibromyalgia I take Imuran for the DM
Hi I'm 42 live in Arkansas and trying to find assistance to help with Copaxone. I have Medicare so I'm not sure why there is a problem. I am a Registered Nurse disabled from an inflammatory muscle disease called Dermatomyositis or DM for short, MS, Hashimoto, and Fibromyalgia I take Imuran for the DM
laurarogersclark
in
My MSAA Community
8 years ago
Immune response
If a diagnosis of autoimmune hypothyroidism is given before any antibodie tests have been done, what other indication would the gp be going of. Also wouldn't they then also prescribe something for immune suppression or is that already added to the thyroid meds.?
If a diagnosis of autoimmune hypothyroidism is given before any antibodie tests have been done, what other indication would the gp be going of. Also wouldn't they then also prescribe something for immune suppression or is that already added to the thyroid meds.?
Angelic69
in
Thyroid UK
8 years ago
Follow up on Rituximab- induced Hypogammaglobulaemia
If you are on
immunosuppressants
. Ask about your IgG level and keep a record of any infections and make sure you report them to your Rheumatologist. If we don't report them then they remain in ignorance of the prevalence.
If you are on
immunosuppressants
. Ask about your IgG level and keep a record of any infections and make sure you report them to your Rheumatologist. If we don't report them then they remain in ignorance of the prevalence.
Scorer
in
NRAS
8 years ago
Mandatory consideration
Hi , I had my esa stopped and was told I am fit for work , I am appealing and sent off for the mandatory reconsideration. I got a letter back saying that they have not changed their original decision but they then say my request will be sent to the disputes resolution team who will look at the decision
Hi , I had my esa stopped and was told I am fit for work , I am appealing and sent off for the mandatory reconsideration. I got a letter back saying that they have not changed their original decision but they then say my request will be sent to the disputes resolution team who will look at the decision
Buffy14
in
LUPUS UK
8 years ago
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