Hi I am 52 years old finally diagnosed with PCD after persisting for 26 years to get a diagnosis!
I have been colonised with pseudomonnas for many years due to this I have really problematic joint pains along with stiffness and swelling. The rheumatologist thinks its reactive arthritis from the pseudomonas on my lungs. I am really struggling with drug therapy that I can tolerate. Unfortunately I have been on NSAID's for many years and now unable to tolerate as I have begun to aspirate from refluxing on a night despite maximum antireflux drug therapy, omeprazole, ranitidine and sulcrafate.
I would be very interested to hear if anyone else has problematic joints and what drug therapy you have found beneficial. The next group of drugs I really need to take are immunosuppressants which really is not ideal given that I have extensive bronchiectasis.
Many thanks in advance