ITP with counts less than 10, is revolade is dangerous?

Question is that we live up on these medicine forever? . is there any permanent solution ? what if you stop revolade n counts again comes down?

I have been on Promacta which is another name for Revolade. I started in February of this year. I was at 63 at the time but I had been on Nplate and had good success and needed to just drop some before starting Promacta. I started at 25 mg a day and over time went up to 239. If you are over 200 you are supposed to drop your dose so I went down to 12.5 mg just 5 weeks ago. I went from 239 down to 104 in the first month but then a week later I was at 141 which was just last week. I have had some bad side effects but they didn't last long so if you can just put up with it for a while it will go away. I do still get heartburn but if I take Prilosec it is under control and not a problem. I feel great taking this and my numbers are good and starting to go up on the lowest dose. I would try it, absolutely before getting my spleen out (wouldn't work for me as an indium test showed). It doesn't work for everyone but it works great for me and like everything with ITP, we must pick our poison or go without and see what happens.

In India it's very costly medicine. Which country you live in?

Lucky you really , here in my country (Pakistan) , It cost me 4 pounds per pill. i can afford this but like you said your count again comes down to 33, so there is no benefit of using this medicine. These medicine makes ur mind sick,. n u become very sensitive about ur self. Life with these tension is not easy . especially when u also have to work with that much stress.

God bless you all.

our medical science is so much advance but still no permanent cure for ITP

Yes. my first Dr suggest me to remove spleen instead of taking expensive revolade. but removing spleen is also risk in long term. he( Dr) also told me that it might clot ur blood any where in ur body . thats y i dint take it .neither i agree to remove my spleen,.

Thanks to god almighty that removin spleen work in ur case.

God bless u

I have tried steroid along with neoral n imuran ( immnusuppersive drugs) .for about 3 months. but it does not work in my case. i dont know about h pyloria . i will check it soon.

P.S nothing comes before health . i can afford money but like i'm worried about side effects and also what after all this counts are remain at same level.

Steroids already change me alots. my face is swell .. and m too much paranoid just by watching red colour . really . although i have no active bleeding. but after using steroids my skin is so soft n and easily get bruises by rubbing it turns red.

i just want to live normal life.

death is certainly . so why live with that fear.

what if we have no active bleeding at all. can we live with that much count ( <10)

i had ana, and anti body test. both are negative. also LDH , its double the normal range. and bone marrow too. ( waiting for result )

Thanks for replying,

I'm just waiting for my bone marrow result as soon i get it . n hopefully it will be negative then i will quit all medicine. I don't drink. just smoke weed

Thanks scaryteacher for your post. I have read sailor's posts as well and am hoping I can come off this promacta for good ..... and agree with both of you 100% .....

here one pill cost 3200, Company rate for a pack of 27 pills. total 86400 for a pack. and if u buy from medical store. then single pill cost 4200. In EU and USA its under medical insurance