Search
Search
About
Log in
Join
Experiences with
Immunosuppressants
Posts
Communities
1,265 public posts
Filter results
Spring booster
Hi guys I had my knee replacement and have been off Baricitinib for four weeks( two weeks either side) . I thought I would get spring booster to give it best chance to work while off meds and rheumy nurse said to start back on it a week later . I want to have Pfizer as didn’t have any reaction apart
Hi guys I had my knee replacement and have been off Baricitinib for four weeks( two weeks either side) . I thought I would get spring booster to give it best chance to work while off meds and rheumy nurse said to start back on it a week later . I want to have Pfizer as didn’t have any reaction apart
Mozart150
in
NRAS
2 years ago
Cosyntex (double dose) and tested positive for Covid ?antivirals
Good morning, I tested positive yesterday. The second pink line appeared really quickly! I feel really rough today. Called GP yesterday about antivirals but she said that once I’d uploaded my test to the NHS app it would trigger a response. That was nearly 24hrs ago and I’ve heard nothing. I’m
Good morning, I tested positive yesterday. The second pink line appeared really quickly! I feel really rough today. Called GP yesterday about antivirals but she said that once I’d uploaded my test to the NHS app it would trigger a response. That was nearly 24hrs ago and I’ve heard nothing. I’m
MadamePetitPois
in
NRAS
2 years ago
Skin pigmentation
Hi everyone Over the past couple of years or so, I've developed three different types of skin pigmentation: 1) hyperpigmentation - darker patches of skin located on my upper thighs 2) hypopigmentation - lighter patches of skin predominantly on my legs and trunk including back but makes an intermittent
Hi everyone Over the past couple of years or so, I've developed three different types of skin pigmentation: 1) hyperpigmentation - darker patches of skin located on my upper thighs 2) hypopigmentation - lighter patches of skin predominantly on my legs and trunk including back but makes an intermittent
Amakura
in
LUPUS UK
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Still positive after 11 days
Has anyone else found this. I felt rough for a few days at the start but had antivirals ( Molnupiravir) and antibiotics and soon felt a lot better. I’m ok now just got a bit of a cough but I’m still testing positive on LFT every day. I know that I can now go out and about but I don’t really know if
Has anyone else found this. I felt rough for a few days at the start but had antivirals ( Molnupiravir) and antibiotics and soon felt a lot better. I’m ok now just got a bit of a cough but I’m still testing positive on LFT every day. I know that I can now go out and about but I don’t really know if
Downtime
in
NRAS
2 years ago
Lupus & COVID-19 Vaccinations - UPDATED 25/07/2022
Hi everyone, We have updated our information and guidance about COVID-19 vaccines and lupus - https://www.lupusuk.org.uk/covid19-vaccination/ This update includes: 💜 Details of the autumn booster programme (including the eligibility criteria). 💜 Updates to booster eligibility for immunosuppressed
Hi everyone, We have updated our information and guidance about COVID-19 vaccines and lupus - https://www.lupusuk.org.uk/covid19-vaccination/ This update includes: 💜 Details of the autumn booster programme (including the eligibility criteria). 💜 Updates to booster eligibility for immunosuppressed
Paul_Howard
LUPUS UK
in
LUPUS UK
2 years ago
hypothyroid with IBD & Covid
Silly question, has anyone else really struggled with Covid, Hypothyroidism and also a Colitis sufferer. I gather i am immunosuppressed, due to having IBD ( Colitis) Dont know if immunosuppressed applies to Hypothyroidism. I am Still testing strongly (8th day Positive after day 0 test!) i dont feel
Silly question, has anyone else really struggled with Covid, Hypothyroidism and also a Colitis sufferer. I gather i am immunosuppressed, due to having IBD ( Colitis) Dont know if immunosuppressed applies to Hypothyroidism. I am Still testing strongly (8th day Positive after day 0 test!) i dont feel
Wilko91
in
Thyroid UK
2 years ago
Over 50s to be offered Autumn Covid 19 booster and flu vaccine.
https://www.gov.uk/government/news/over-50s-to-be-offered-covid-19-booster-and-flu-jab-this-autumn From: UK Health Security Agency Published 15 July 2022 On coronavirus (COVID-19) boosters, the Joint Committee on Vaccination and Immunisation (JCVI) has now published its final recommendations for
https://www.gov.uk/government/news/over-50s-to-be-offered-covid-19-booster-and-flu-jab-this-autumn From: UK Health Security Agency Published 15 July 2022 On coronavirus (COVID-19) boosters, the Joint Committee on Vaccination and Immunisation (JCVI) has now published its final recommendations for
Moomin8
in
NRAS
2 years ago
Covid Vax Long Term T-cell Immunity
I posted this in a thread, but it seems worth a top post with recent info as there are many discussions on the vaxes, immunity and boosters. "Acquired Immunity" occurs by vax or infection. A large portion of the world has acquired immunity and likely T-cell protection. We saw last Spring in Hong
I posted this in a thread, but it seems worth a top post with recent info as there are many discussions on the vaxes, immunity and boosters. "Acquired Immunity" occurs by vax or infection. A large portion of the world has acquired immunity and likely T-cell protection. We saw last Spring in Hong
EPguy
in
MPN Voice
2 years ago
Caught COVID abroad?
I am immunosuppressed after treatment with rituximab and cannot produce antibodies against COVID. I would like to fly home to visit family. Have any of you travelled whilst still immunosuppressed? Has anyone ever caught COVID abroad? What did you do?
I am immunosuppressed after treatment with rituximab and cannot produce antibodies against COVID. I would like to fly home to visit family. Have any of you travelled whilst still immunosuppressed? Has anyone ever caught COVID abroad? What did you do?
Tonkotsu
in
LUPUS UK
2 years ago
Pneumonia and Azathioprine/Prednisolone
I had managed just over 2 years since my last case of pneumonia after i swore by the 'onion trick', to treat resp infections. I've been having maybe a month and a half of apnoec and SOB episodes which were finally improving after a few weeks of antiepileptic medication, Keppra. But as the dose increased
I had managed just over 2 years since my last case of pneumonia after i swore by the 'onion trick', to treat resp infections. I've been having maybe a month and a half of apnoec and SOB episodes which were finally improving after a few weeks of antiepileptic medication, Keppra. But as the dose increased
LottieLou96
in
LUPUS UK
2 years ago
IV Alpha Lipoic Acid Treatment for PBC and autoimmune hepatitis
I've been diagnosed with overlapping PBC and autoimmune hepatitis and doctors are hesitant to prescribe
immunosuppressants
since I recently had breast cancer. I'm looking for treatment alternatives. Thanks!!
I've been diagnosed with overlapping PBC and autoimmune hepatitis and doctors are hesitant to prescribe
immunosuppressants
since I recently had breast cancer. I'm looking for treatment alternatives. Thanks!!
Sanov
in
PBCers Organization
2 years ago
Vitamin
Is anyone taking a vitamin (Niacinamide) to reduce the cause of skin cancers? My new dermatologist has asked me to take the vitamin and I am reluctant to add a medication/vitamin to my immunosuppression medications for fear of a rejection.
Is anyone taking a vitamin (Niacinamide) to reduce the cause of skin cancers? My new dermatologist has asked me to take the vitamin and I am reluctant to add a medication/vitamin to my immunosuppression medications for fear of a rejection.
gpr52
in
Kidney Transplant
2 years ago
Covid spring booster Scotland
I got my booster today only because one dr in my surgery said I should go and walk in to a centre and ask for it. A month ago another gp at my surgery said I don’t qualify. If you are in Scotland with our rising covid rates and awaiting your invitation just make a wee trip to your local centre and make
I got my booster today only because one dr in my surgery said I should go and walk in to a centre and ask for it. A month ago another gp at my surgery said I don’t qualify. If you are in Scotland with our rising covid rates and awaiting your invitation just make a wee trip to your local centre and make
BreatheasyBe
in
Lung Conditions Community Forum
2 years ago
Evusheld vaccine
Hi All, I’m due for my 5th covid vaccination tomorrow and have just found out about Evusheld from AstraZeneca which is for the immunosuppressed and lasts for six months. My CNS knows nothing about it! I can’t see any way to get it. Anyone out there know? X Gill
Hi All, I’m due for my 5th covid vaccination tomorrow and have just found out about Evusheld from AstraZeneca which is for the immunosuppressed and lasts for six months. My CNS knows nothing about it! I can’t see any way to get it. Anyone out there know? X Gill
Guilane
in
My Ovacome
2 years ago
My friend tested positive for Covid
I had a visit from a friend on Sunday, we sat outside in the garden for coffee and certainly didn't get close. We are still being extremely careful, don't let anyone in the house or visit other houses. However, just had a text message from my friend to tell me that she has tested positive. We were out
I had a visit from a friend on Sunday, we sat outside in the garden for coffee and certainly didn't get close. We are still being extremely careful, don't let anyone in the house or visit other houses. However, just had a text message from my friend to tell me that she has tested positive. We were out
kitchengardener2
in
CLL Support
2 years ago
RA, immunosuppression and Paxlovid
Hallo all Just wondering if anyone has been prescribed Paxlovid, the very new antiviral, if you are on
immunosuppressants
for your RA? I am on Baricitinib and Prednisolone and have had Covid since Sunday when I tested positive.
Hallo all Just wondering if anyone has been prescribed Paxlovid, the very new antiviral, if you are on
immunosuppressants
for your RA? I am on Baricitinib and Prednisolone and have had Covid since Sunday when I tested positive.
Amnesiac3637
in
NRAS
2 years ago
Could Palmitoylethanolamide Be an Effective Treatment for Long-COVID-19?
Could Palmitoylethanolamide Be an Effective Treatment for Long-COVID-19? Hypothesis and Insights in Potential Mechanisms of Action and Clinical Applications https://innovationscns.com/palmitoylethanolamide-treatment-long-covid-19/ "Conclusion Available data suggest that PEA could be an optimal therapy
Could Palmitoylethanolamide Be an Effective Treatment for Long-COVID-19? Hypothesis and Insights in Potential Mechanisms of Action and Clinical Applications https://innovationscns.com/palmitoylethanolamide-treatment-long-covid-19/ "Conclusion Available data suggest that PEA could be an optimal therapy
Bolt_Upright
in
Cure Parkinson's
2 years ago
Covid jab number 5
I have just been invited by the nhs vaccine centre to have a fifth covid vaccine. I explained that I had already had 4 jabs with the latest one done in early February 2022 but the lady said that if I hadn't had one since March '22 then, as I was Immunosuppressed, I still needed jab number 5 and she
I have just been invited by the nhs vaccine centre to have a fifth covid vaccine. I explained that I had already had 4 jabs with the latest one done in early February 2022 but the lady said that if I hadn't had one since March '22 then, as I was Immunosuppressed, I still needed jab number 5 and she
blue1
in
Lung Conditions Community Forum
2 years ago
5th jab, difficulties getting it
Hi, I thought I would let people know about the problems I encountered getting my 5th jab and how I dealt with them. Firstly my GP has NEVER sent an invitation for any previous jabs, despite my trying very hard to reason with them and understand why not. So when it came to my fifth I read the guidelines
Hi, I thought I would let people know about the problems I encountered getting my 5th jab and how I dealt with them. Firstly my GP has NEVER sent an invitation for any previous jabs, despite my trying very hard to reason with them and understand why not. So when it came to my fifth I read the guidelines
Living-in-the-moment
in
NRAS
2 years ago
I'm checking out!
The common cold is the plague when taking
immunosuppressants
, it soon persists into a viral condition gastroenteritis to be precise!. Rate laugh! So 3 weeks in with shivers and shxxs....boom there you go.... kidney failure stage 3 injury..... hospital for you Danny.
The common cold is the plague when taking
immunosuppressants
, it soon persists into a viral condition gastroenteritis to be precise!. Rate laugh! So 3 weeks in with shivers and shxxs....boom there you go.... kidney failure stage 3 injury..... hospital for you Danny.
Zukosmile07
in
British Liver Trust
2 years ago
1
...
10
11
12
...
64
Next page
10
20
30
40
50
60
Filter results
Clear filters
Posted in
All communities
LUPUS UK
189 results
NRAS
144 results
Vasculitis UK
100 results
View top 10 communities
Sort by
Most Relevant
Newest