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People of HU - Neuromyelitis Optica: Ashlee's story
Neuromyelitis optica (NMO), also known as Devic's disease, is a rare condition where the immune system damages the spinal cord and the nerves of the eyes (optic nerves), [i]NHS England.[/i] [i][/i] Today, Ashlee shares with is her story with the disease, hoping to inspire others who may be going through
Neuromyelitis optica (NMO), also known as Devic's disease, is a rare condition where the immune system damages the spinal cord and the nerves of the eyes (optic nerves), [i]NHS England.[/i] [i][/i] Today, Ashlee shares with is her story with the disease, hoping to inspire others who may be going through
SaskiaHU
HealthUnlocked
in
HealthUnlocked Blog
2 years ago
Nottingham University Researchers undertaking work aiming to create personalised long-term monitoring plans for those on immunosuppressants
THE RESEARCHERS NOW HAVE ALL THE VOLUNTEERS THEY NEED FOR THIS STUDY - THANK YOU. People with inflammatory conditions treated with immune suppressing medicines are recommended to have regular blood tests to monitor for potential side-effects. Researchers at the University of Nottingham are undertaking
THE RESEARCHERS NOW HAVE ALL THE VOLUNTEERS THEY NEED FOR THIS STUDY - THANK YOU. People with inflammatory conditions treated with immune suppressing medicines are recommended to have regular blood tests to monitor for potential side-effects. Researchers at the University of Nottingham are undertaking
Alida_Bennett
LUPUS UK
in
LUPUS UK
2 years ago
Help - my teeth are moving!
Hi lovely people A strange one to help your week-end along! The row of teeth in my bottom jaw have started to move. This has happened a few times in the past and has resulted in an abscess each time. The most recent infection was about 2y ago following radiation therapy for breast cancer. I was
Hi lovely people A strange one to help your week-end along! The row of teeth in my bottom jaw have started to move. This has happened a few times in the past and has resulted in an abscess each time. The most recent infection was about 2y ago following radiation therapy for breast cancer. I was
MEGS53
in
LUPUS UK
2 years ago
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Question? Methotrexate and Actemra
I question being on both methotrexate and Actemra and was wondering if any others are taking all three
immunosuppressants
.
I question being on both methotrexate and Actemra and was wondering if any others are taking all three
immunosuppressants
.
Elephants2019
in
PMRGCAuk
2 years ago
NCCN Provides Major Update to COVID-19 Vaccination Recommendations
The National Comprehensive Cancer Network (NCCN) is a not-for-profit alliance of 32 leading cancer centers devoted to patient care, research, and education in the United States of America. Extracts from https://www.insideprecisionmedicine.com/coronavirus-2/nccn-provides-major-update-to-covid-19-vaccination-recommendations
The National Comprehensive Cancer Network (NCCN) is a not-for-profit alliance of 32 leading cancer centers devoted to patient care, research, and education in the United States of America. Extracts from https://www.insideprecisionmedicine.com/coronavirus-2/nccn-provides-major-update-to-covid-19-vaccination-recommendations
bennevisplace
in
CLL Support
2 years ago
Re Scottish autumn 2022 vaccine appointments
For any fellow Scots due an autumn/winter vaccine it’s a good idea to keep an eye on the Scottish appointments website vacs.nhs.scot My autumn/winter vaccines appointment has showed up there but I haven’t had any email this time and haven’t got my letter yet. My husband has been given an appointment
For any fellow Scots due an autumn/winter vaccine it’s a good idea to keep an eye on the Scottish appointments website vacs.nhs.scot My autumn/winter vaccines appointment has showed up there but I haven’t had any email this time and haven’t got my letter yet. My husband has been given an appointment
vivdunstan
Volunteer
in
Vasculitis UK
2 years ago
Still not convinced
I have recently been diagnosed with Crohn’s disease and have started a steroid treatment and will then go on
immunosuppressants
. But the thing is I am not actually convinced it’s Crohn’s as all of my "flare ups" are always around my period.
I have recently been diagnosed with Crohn’s disease and have started a steroid treatment and will then go on
immunosuppressants
. But the thing is I am not actually convinced it’s Crohn’s as all of my "flare ups" are always around my period.
Hermi_t
in
Endometriosis UK
2 years ago
Scientists hail autoimmune disease therapy breakthrough
A paper of potential interest. But, as usual, no mention of thyroid! Newspaper article: [i]
Scientists hail autoimmune disease therapy breakthrough
Study finds CAR T-cell treatment sends lupus into remission, raising hopes it could be used to treat diseases such multiple sclerosis[/i]
A paper of potential interest. But, as usual, no mention of thyroid! Newspaper article: [i]
Scientists hail autoimmune disease therapy breakthrough
Study finds CAR T-cell treatment sends lupus into remission, raising hopes it could be used to treat diseases such multiple sclerosis[/i]
helvella
Thyroid UK
in
Thyroid UK
2 years ago
Food Standards Agency warns vulnerable consumers about ready to eat smoked fish causing Listeria
The Food Standards Agency, Food Standards Scotland and the UK Health Security Agency have issued advice to vulnerable groups of consumers such as those with weakened immune systems about the risks of Listeria monocytogenes infection linked to ready to eat smoked fish.
Listeria is a bacterium
The Food Standards Agency, Food Standards Scotland and the UK Health Security Agency have issued advice to vulnerable groups of consumers such as those with weakened immune systems about the risks of Listeria monocytogenes infection linked to ready to eat smoked fish.
Listeria is a bacterium
Chanpreet_Walia
LUPUS UK
in
LUPUS UK
2 years ago
Transplant Journey outcomes/advice anyone?
Hi, I have had CKD for several years and declined dramatically over the last 6mths -1yr and was actually started urgently on dialysis in July when my GFR dropped to 3 and creatine was 12.43. I had already had a consult and was added to a wait list for kidney transplant in early February of this year.
Hi, I have had CKD for several years and declined dramatically over the last 6mths -1yr and was actually started urgently on dialysis in July when my GFR dropped to 3 and creatine was 12.43. I had already had a consult and was added to a wait list for kidney transplant in early February of this year.
Hawaiilover
in
Kidney Disease
2 years ago
Low Testosterone Linked to Hospitalization for COVID - By Kristen Monaco, Staff Writer, MedPage Today, September 2, 2022
This research is in direct contrast to the earlier held notion that "low T" (say, via ADT) is protective for COVID. Unfortunately, the research completely evades the issue of suppressed T due to ADT in the PCa patient population. However, the earlier notion that low T provides a protective benefit was
This research is in direct contrast to the earlier held notion that "low T" (say, via ADT) is protective for COVID. Unfortunately, the research completely evades the issue of suppressed T due to ADT in the PCa patient population. However, the earlier notion that low T provides a protective benefit was
cujoe
in
Fight Prostate Cancer
2 years ago
I HAD severe A-fibrillation after being given Evusheld as a prophylactic against covid .I am scared I may have permanent cardiac issue now
Hello everyone, I was admitted to the hospital with severe hydrophrenosis and very bad rise in creatinine and drop in gfr. I need nephrostomy tube or pcnu because I have a ureteral stricture that they have tried many times to stent ,balloon etc and it must be exchanged out for new one every 4-6 weeks
Hello everyone, I was admitted to the hospital with severe hydrophrenosis and very bad rise in creatinine and drop in gfr. I need nephrostomy tube or pcnu because I have a ureteral stricture that they have tried many times to stent ,balloon etc and it must be exchanged out for new one every 4-6 weeks
Calebzztop
in
Kidney Transplant
2 years ago
Autumn booster and flu jab invite
Finally got my follow up with rheumy nurse next week on Tuesday so will ask this week with everything else I need to ask. But I’ve just had a text from my gp with a link to book my flu jab and autumn covid booster. I’ve not been told I am immunosuppressed, or that I’m more at risk and I’m only on
Finally got my follow up with rheumy nurse next week on Tuesday so will ask this week with everything else I need to ask. But I’ve just had a text from my gp with a link to book my flu jab and autumn covid booster. I’ve not been told I am immunosuppressed, or that I’m more at risk and I’m only on
Bowtruckle
in
NRAS
2 years ago
stopping methotrexate - misdiagnosis?
I have stopped taking methotrexate after taking it since 2014. I stopped four weeks ago, on the advice of the new consultant. He is not convinced I have RA, and suggests that the bone erosions on my hands are osteo not rheumatoid. My GP friend does not agree with this new diagnosis, and thinks that
I have stopped taking methotrexate after taking it since 2014. I stopped four weeks ago, on the advice of the new consultant. He is not convinced I have RA, and suggests that the bone erosions on my hands are osteo not rheumatoid. My GP friend does not agree with this new diagnosis, and thinks that
AudreyJ
in
NRAS
2 years ago
Study Finds: Drug typically used in cancer therapy emerges as powerful anti-aging remedy
Stud y Finds: Drug typically used in cancer therapy emerges as powerful anti-aging remedy Rapamycin is a cell growth inhibitor and immunosuppressant that people normally take while undergoing cancer treatment or after receiving an organ transplant. A team from the Max Planck Institute for
Stud y Finds: Drug typically used in cancer therapy emerges as powerful anti-aging remedy Rapamycin is a cell growth inhibitor and immunosuppressant that people normally take while undergoing cancer treatment or after receiving an organ transplant. A team from the Max Planck Institute for
cesces
in
Advanced Prostate Cancer
2 years ago
E.Coli/UTI
As a result of some symptoms I reported to my Transplant Coordinator (“TC”) because I was recently prescribed Sodium Bicarbonate for the low CO2 result in my blood test, the TC ordered a Urine Culture test for me at LabCorp. It came back with a “colony” of bacteria in my bladder. I went thru 10 days
As a result of some symptoms I reported to my Transplant Coordinator (“TC”) because I was recently prescribed Sodium Bicarbonate for the low CO2 result in my blood test, the TC ordered a Urine Culture test for me at LabCorp. It came back with a “colony” of bacteria in my bladder. I went thru 10 days
TaffyTwoshoes27
in
Kidney Transplant
2 years ago
pred dose and immunosuppression - teaching & covid
Can anyone advise the red dose at which the immune system is considered working? .I am down to 2.5mg pred daily. I've had 4 covid jabs. I've been lecturing online only but am so keen to get back to face-to-face teaching Am I safe to do so? Grateful for any thoughts
Can anyone advise the red dose at which the immune system is considered working? .I am down to 2.5mg pred daily. I've had 4 covid jabs. I've been lecturing online only but am so keen to get back to face-to-face teaching Am I safe to do so? Grateful for any thoughts
Sanekate
in
PMRGCAuk
2 years ago
Steroid injection in knee - worth it?
Hello. I have inflammatory arthritis and have had knee pain for a few years, and a baker's cyst in my left knee. Scans also showed osteoarthritis and some mild effusion a year ago. Sometimes the pain is quite bad, especially on stairs. Sometimes it's only aggravated by activity. Sometimes there's barely
Hello. I have inflammatory arthritis and have had knee pain for a few years, and a baker's cyst in my left knee. Scans also showed osteoarthritis and some mild effusion a year ago. Sometimes the pain is quite bad, especially on stairs. Sometimes it's only aggravated by activity. Sometimes there's barely
rmros
in
NRAS
2 years ago
Visiting people in hospital
Does anyone know if those of us on immunosuppression drugs are allowed to visit poorly people in hospital? Thanks, Sarah
Does anyone know if those of us on immunosuppression drugs are allowed to visit poorly people in hospital? Thanks, Sarah
SLS2103
in
LUPUS UK
2 years ago
Scotland’s Autumn 2022 Covid boosters starting on 5 September
See https://www.bbc.co.uk/news/uk-scotland-62565496 Appointments for immunosuppressed people will be sent in the post, so watch out for a blue letter. It’s also likely your appointment will show up on the Scottish appointments website before your letter arrives. That is at vacs.nhs.scot
See https://www.bbc.co.uk/news/uk-scotland-62565496 Appointments for immunosuppressed people will be sent in the post, so watch out for a blue letter. It’s also likely your appointment will show up on the Scottish appointments website before your letter arrives. That is at vacs.nhs.scot
vivdunstan
Volunteer
in
Vasculitis UK
2 years ago
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