Experiences with

Immunosuppressants

Good afternoon CLL Community I was told in the past week by the consultant haematologist that it is unlikely that my CLL is unlikely to worsen/cause problems/progress. My blood tests show no change over two years, Lymphocyte Count is stable. I will be monitored again next September. Does this mean

results “underscore our goal of delivering meaningful new therapies to people with cutaneous lupus … who currently have limited treatment options,” Nathalie Franchimont, MD, PhD, head of Biogen’s multiple sclerosis and immunology development unit, said in a separate company press release.Werth noted that immunosuppressants

Neuromyelitis optica (NMO), also known as Devic's disease, is a rare condition where the immune system damages the spinal cord and the nerves of the eyes (optic nerves), [i]NHS England.[/i] [i][/i] Today, Ashlee shares with is her story with the disease, hoping to inspire others who may be going through

Hi lovely people A strange one to help your week-end along! The row of teeth in my bottom jaw have started to move. This has happened a few times in the past and has resulted in an abscess each time. The most recent infection was about 2y ago following radiation therapy for breast cancer. I was

THE RESEARCHERS NOW HAVE ALL THE VOLUNTEERS THEY NEED FOR THIS STUDY - THANK YOU. People with inflammatory conditions treated with immune suppressing medicines are recommended to have regular blood tests to monitor for potential side-effects. Researchers at the University of Nottingham are undertaking

The National Comprehensive Cancer Network (NCCN) is a not-for-profit alliance of 32 leading cancer centers devoted to patient care, research, and education in the United States of America. Extracts from https://www.insideprecisionmedicine.com/coronavirus-2/nccn-provides-major-update-to-covid-19-vaccination-recommendations

For any fellow Scots due an autumn/winter vaccine it’s a good idea to keep an eye on the Scottish appointments website vacs.nhs.scot My autumn/winter vaccines appointment has showed up there but I haven’t had any email this time and haven’t got my letter yet. My husband has been given an appointment

A paper of potential interest. But, as usual, no mention of thyroid! Newspaper article: [i]Scientists hail autoimmune disease therapy breakthrough Study finds CAR T-cell treatment sends lupus into remission, raising hopes it could be used to treat diseases such multiple sclerosis[/i]

I question being on both methotrexate and Actemra and was wondering if any others are taking all three immunosuppressants.

The Food Standards Agency, Food Standards Scotland and the UK Health Security Agency have issued advice to vulnerable groups of consumers such as those with weakened immune systems about the risks of Listeria monocytogenes infection linked to ready to eat smoked fish. Listeria is a bacterium

I have recently been diagnosed with Crohn’s disease and have started a steroid treatment and will then go on immunosuppressants. But the thing is I am not actually convinced it’s Crohn’s as all of my "flare ups" are always around my period.

Hi, I have had CKD for several years and declined dramatically over the last 6mths -1yr and was actually started urgently on dialysis in July when my GFR dropped to 3 and creatine was 12.43. I had already had a consult and was added to a wait list for kidney transplant in early February of this year.

This research is in direct contrast to the earlier held notion that "low T" (say, via ADT) is protective for COVID. Unfortunately, the research completely evades the issue of suppressed T due to ADT in the PCa patient population. However, the earlier notion that low T provides a protective benefit was

Hello everyone, I was admitted to the hospital with severe hydrophrenosis and very bad rise in creatinine and drop in gfr. I need nephrostomy tube or pcnu because I have a ureteral stricture that they have tried many times to stent ,balloon etc and it must be exchanged out for new one every 4-6 weeks

Finally got my follow up with rheumy nurse next week on Tuesday so will ask this week with everything else I need to ask. But I’ve just had a text from my gp with a link to book my flu jab and autumn covid booster. I’ve not been told I am immunosuppressed, or that I’m more at risk and I’m only on

I have stopped taking methotrexate after taking it since 2014. I stopped four weeks ago, on the advice of the new consultant. He is not convinced I have RA, and suggests that the bone erosions on my hands are osteo not rheumatoid. My GP friend does not agree with this new diagnosis, and thinks that

Stud y Finds: Drug typically used in cancer therapy emerges as powerful anti-aging remedy Rapamycin is a cell growth inhibitor and immunosuppressant that people normally take while undergoing cancer treatment or after receiving an organ transplant. A team from the Max Planck Institute for

As a result of some symptoms I reported to my Transplant Coordinator (“TC”) because I was recently prescribed Sodium Bicarbonate for the low CO2 result in my blood test, the TC ordered a Urine Culture test for me at LabCorp. It came back with a “colony” of bacteria in my bladder. I went thru 10 days

Can anyone advise the red dose at which the immune system is considered working? .I am down to 2.5mg pred daily. I've had 4 covid jabs. I've been lecturing online only but am so keen to get back to face-to-face teaching Am I safe to do so? Grateful for any thoughts

Hello. I have inflammatory arthritis and have had knee pain for a few years, and a baker's cyst in my left knee. Scans also showed osteoarthritis and some mild effusion a year ago. Sometimes the pain is quite bad, especially on stairs. Sometimes it's only aggravated by activity. Sometimes there's barely