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Immunosuppressants
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Consequences of stopping the immunosuppressants?
When I was suffering from a bad dose of campylobacter enteritis recently, my consultant advised me to stop taking mycophenolate mofetil. He did say to re start once I thought the infection had gone, which is now. However, I feel well and am wondering if I should just start taking them again or wait
When I was suffering from a bad dose of campylobacter enteritis recently, my consultant advised me to stop taking mycophenolate mofetil. He did say to re start once I thought the infection had gone, which is now. However, I feel well and am wondering if I should just start taking them again or wait
Ayla
Volunteer
in
Vasculitis UK
11 years ago
I.V. steroid injections? Anyone?
I couldn't tolerate any of the
immunosuppressants
I was on because they just made me more sick and miserable.
I couldn't tolerate any of the
immunosuppressants
I was on because they just made me more sick and miserable.
behcetshurtsbeyondwords
in
Behçet's UK
11 years ago
High LDH and Behcet's?
I had this scare already last summer when my LDH had doubled within two weeks, so there was fear about Lyphoma because of the
immunosuppressants
and Remicade treatments I am on.
I had this scare already last summer when my LDH had doubled within two weeks, so there was fear about Lyphoma because of the
immunosuppressants
and Remicade treatments I am on.
behcetshurtsbeyondwords
in
Behçet's UK
11 years ago
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Autoimmune cholangiopathy
I'm being treated with
immunosuppressants
- at present prednisolone, and to begin on azathioprine in a few weeks too. So my question for you all is this: Is it similar to 'AMA negative PBC'? Or is it another condition? Has anyone else got it?
I'm being treated with
immunosuppressants
- at present prednisolone, and to begin on azathioprine in a few weeks too. So my question for you all is this: Is it similar to 'AMA negative PBC'? Or is it another condition? Has anyone else got it?
witchiegirl
in
PBC Foundation
11 years ago
Fluid retention and immunosuppressant drugs
There have been several past postings relating to ascites and oedema flowing from liver disease and particularly cirrhosis but I am inquiring to ascertain whether anyone knows if immunosuppressant drugs could also be another one of the causes for one or both of these conditions or for symptoms that mimic
There have been several past postings relating to ascites and oedema flowing from liver disease and particularly cirrhosis but I am inquiring to ascertain whether anyone knows if immunosuppressant drugs could also be another one of the causes for one or both of these conditions or for symptoms that mimic
findasolution
in
British Liver Trust
11 years ago
To Introduce Myself and Ask A Question :)
(i.e. with symptoms controlled by
immunosuppressants
)... I have a full time job - an area manager for a parcel company which is pretty fast paced, hectic, pressured - and obviously having had this flare up I have been off work - 2 months so far.
(i.e. with symptoms controlled by
immunosuppressants
)... I have a full time job - an area manager for a parcel company which is pretty fast paced, hectic, pressured - and obviously having had this flare up I have been off work - 2 months so far.
lovenothate
in
Behçet's UK
11 years ago
Bowel transplants, bike rides and biopsies
I am reliably informed that the reason for the heightened risk of it returning is due to being a transplant patient and being on
immunosuppressants
. The end result is that I will now have 3 monthly checks for life. Yet again I am incredibly privileged to receive amazing care at Oxford.
I am reliably informed that the reason for the heightened risk of it returning is due to being a transplant patient and being on
immunosuppressants
. The end result is that I will now have 3 monthly checks for life. Yet again I am incredibly privileged to receive amazing care at Oxford.
michaelseres
in
IBS Network
11 years ago
Response to Sue about severe headaches
More aggressive treatments would include
immunosuppressants
and chemo drugs. You can do some online searches for Behcet's headaches and discuss these options with a physician who believes you and is willing to help. I really hope you find something that gives you relief.
More aggressive treatments would include
immunosuppressants
and chemo drugs. You can do some online searches for Behcet's headaches and discuss these options with a physician who believes you and is willing to help. I really hope you find something that gives you relief.
amietamant
in
Behçet's UK
11 years ago
Feeling Blue :(
I have Lupus with secondary APS and after nearly five years of suffering with excruciating pain in my legs, bleeding in my joints, strokes, TIA’s etc etc I finally went for a private consultation in Barcelona as I could no longer tolerate the lack of knowledge about both diseases at my local hospital
I have Lupus with secondary APS and after nearly five years of suffering with excruciating pain in my legs, bleeding in my joints, strokes, TIA’s etc etc I finally went for a private consultation in Barcelona as I could no longer tolerate the lack of knowledge about both diseases at my local hospital
InSpain
in
Hughes Syndrome APS Forum
11 years ago
Recently diagnosed with large vessel vasculitis after a PE and wondering what treatment will be & if my shortness of breath will improve?
Hi, I’ve been unwell since spring 2011 and finally in May 2012, was diagnosed with a pulmonary embolism. I was given warfarin and although things initially improved slightly, I continued to suffer with shortness of breath, tiredness, feeling unwell, cough, chest pains etc. After a period of
Hi, I’ve been unwell since spring 2011 and finally in May 2012, was diagnosed with a pulmonary embolism. I was given warfarin and although things initially improved slightly, I continued to suffer with shortness of breath, tiredness, feeling unwell, cough, chest pains etc. After a period of
Littledot3
in
Vasculitis UK
11 years ago
a letter from the haemostasis today.
hi all. i got my letter from the haemostasis but its in docters language. just some of the things he said . i have a 2.4cm nodule in the right adrenal gland. a screen for lpus anticoagulant was positive with slight caveat that the interpretation of these results is harder in people on warfarin. its
hi all. i got my letter from the haemostasis but its in docters language. just some of the things he said . i have a 2.4cm nodule in the right adrenal gland. a screen for lpus anticoagulant was positive with slight caveat that the interpretation of these results is harder in people on warfarin. its
chapman
in
Hughes Syndrome APS Forum
11 years ago
MY JUICING EPIPHANY - my kitchen has become my home-made pharmacy ;)
After 10years plus of taking a cocktail of
immunosuppressants
, as well as spending most of last year on antibiotics for the digital ulcers on my fingers, I hit a turning point in December 2012.
After 10years plus of taking a cocktail of
immunosuppressants
, as well as spending most of last year on antibiotics for the digital ulcers on my fingers, I hit a turning point in December 2012.
living-the-dream-ssc-ray
in
Scleroderma & Raynaud's UK (SRUK)
11 years ago
2nd opinion from different rheumy, translation of letter required plzzzz
hi all i took the advise from other lupys on here and asked to see a different rheumy id done my research and wanted a certain rheumy so i waited 3 months 2 see him the appointment was a dissapointment and now im really confused with this outcome i have antinuclear antibodies being made by my immune
hi all i took the advise from other lupys on here and asked to see a different rheumy id done my research and wanted a certain rheumy so i waited 3 months 2 see him the appointment was a dissapointment and now im really confused with this outcome i have antinuclear antibodies being made by my immune
kittykat68
in
LUPUS UK
11 years ago
My life with an ileostomy from the start
I was diagnosed with Ulcerative Colitis in 2002. It progressed quite quickly and by December 2005 I was virtually housebound because of incontinence. In March 2096 I haemorrhaged and was admitted to hospital. I was given high dose steroids for three weeks in an attempt to get the UC under control but
I was diagnosed with Ulcerative Colitis in 2002. It progressed quite quickly and by December 2005 I was virtually housebound because of incontinence. In March 2096 I haemorrhaged and was admitted to hospital. I was given high dose steroids for three weeks in an attempt to get the UC under control but
StomaOwner
in
Living with a Stoma
11 years ago
Anyone else get visual migraines when vasculitis flares up?
Hi all, I'm pretty new to this. I have a tentative (?) diagnosis of 'limited' Wegener's, it's mostly my lungs that have been affected, with a first 'flare' 2 years ago, and another (milder) one about 5 months ago. Both times I got multiple pulmonary nodules & breathlessness. First time round, I had
Hi all, I'm pretty new to this. I have a tentative (?) diagnosis of 'limited' Wegener's, it's mostly my lungs that have been affected, with a first 'flare' 2 years ago, and another (milder) one about 5 months ago. Both times I got multiple pulmonary nodules & breathlessness. First time round, I had
Anyanka
in
Vasculitis UK
11 years ago
Stuck in snow - meds running out.
My meds (
immunosuppressants
and omeprazole) run out tomorrow. My repeat prescription is at home. Whilst I've learned a lesson about being more prepared - has anyone any idea if I could go a couple of days without either if I can't get home?
My meds (
immunosuppressants
and omeprazole) run out tomorrow. My repeat prescription is at home. Whilst I've learned a lesson about being more prepared - has anyone any idea if I could go a couple of days without either if I can't get home?
Hidden
in
Lung Conditions Community Forum
11 years ago
I wasn't even in the queue for patience
I was due to start
immunosuppressants
forty eight hours ago but when I got the packet ready and had screwed up courage, I found no dose instructions, only to be taken with food, so now have to wait tll tomorrow to speak to gp about dose.
I was due to start
immunosuppressants
forty eight hours ago but when I got the packet ready and had screwed up courage, I found no dose instructions, only to be taken with food, so now have to wait tll tomorrow to speak to gp about dose.
KathinAyrshire
in
LUPUS UK
11 years ago
Chilblains
Also on
immunosuppressants
so don't heal very quickly.
Also on
immunosuppressants
so don't heal very quickly.
jennywren444
in
LUPUS UK
11 years ago
MMF and chicken pox
Hi, I am off prednisolone for 4 months and on MMF for 6 months. I have also had splenectomy 10 years ago. I am going to celebrate Christmas with a family with kids who are having or just had chicken pox. I had chicken pox 20 years ago in my early teens. But I'm a bit concerned now as I was immunosuppressed
Hi, I am off prednisolone for 4 months and on MMF for 6 months. I have also had splenectomy 10 years ago. I am going to celebrate Christmas with a family with kids who are having or just had chicken pox. I had chicken pox 20 years ago in my early teens. But I'm a bit concerned now as I was immunosuppressed
lc12345
in
ITP Support Association
12 years ago
Steroids and shingles
I've been on steroids a long time and
immunosuppressants
. My dad has today been diagnosed with shingles. My side effects leaflet has always warned about coming into contact with people with chicken pox and shingles.
I've been on steroids a long time and
immunosuppressants
. My dad has today been diagnosed with shingles. My side effects leaflet has always warned about coming into contact with people with chicken pox and shingles.
Hidden
in
Lung Conditions Community Forum
12 years ago
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