Test results

[Tulip77]

Hi there... I have not seen the neuro yet, but do have all my results in. My blood work was ok except for the Immunoglobulin A and Ferritin were both high.

So on my brain MRI, it looks like it is ok with a notation that I have “rare scattered punctate subcortical T2W hypertensities of the frontal lobes bilaterally seems. No demyelination plaque isn’t noted.” I know that last line is good, however, the Neuroquant/Lesionquant on my brain says “the total FLAIR and T2W hypertensity count is 22 with a lesion volume of 4.07 cm and a total lesion burden of 0.91%.” It also say that I have bilateral thalamic atrophy.

My numbness is getting worse and now I have this stinging sensation on various parts of my body.

[rjoneslaw]

Thanks for keeping me informed

[Sweetheartonvdayl]

Well, I was an RN, but I. Can give you ( only) my opinion. How long do you have MS???

[Hidden in reply to Sweetheartonvdayl]

For life unfortunately

[Sweetheartonvdayl in reply to Hidden]

Unfortunately...

[Tulip77 in reply to Sweetheartonvdayl]

I have not been diagnosed. I am in the process of being evaluated. I welcome your opinion.

[Sweetheartonvdayl in reply to Tulip77]

Well , sounds like MS , to me...

[Tulip77 in reply to Sweetheartonvdayl]

Thank you for your input. I am kinda scared about the whole situation.

[Sweetheartonvdayl in reply to Tulip77]

Believe me , it's better than cancer.

🙏❤Lisa💕

[Tulip77 in reply to Sweetheartonvdayl]

That was actually my first fear. My mother and sister both died of brain cancer.

[Sweetheartonvdayl in reply to Tulip77]

Wow....

I didn't think it was hereditary.

Cancer is in my family too.

I knew breast ♋ skips a generation , which , I'm in now.

Wy first cousin had breast ♋ &pancreatic ♋ & the SAME TIME !!! She is now cancer free!!! Hope it's not my turn LOL😂🤣😅

Best of wishes to you🙏🙏🙏

❤Lisa💕

[Sweetheartonvdayl in reply to Sweetheartonvdayl]

Actually, thinking about it ,CA would be better than this disease because MS is so unpredictable - like I said it's " like a box of chocolates-u never know what your gonna get."

🙏❤Lisa💕

[pamgarner in reply to Sweetheartonvdayl]

and cancer does have a possible cure but I wouldn't wish Cancer on anyone!

[Sweetheartonvdayl in reply to pamgarner]

I wouldn't either...

[palomino27]

Not sure if this has been said but I would demand a cervical (neck) and thoraciac spine MRI. MS can be more debilitating when it shows up on those two. Sounds like your symptoms are more spinal related.

When I was diagnosed 7 years ago I had only 2 small flares on my brain but 27 flares on my thoracic spine and more then 10 on my cervical spine. My doctors are amazed at how mentally sharp I am based on how far and fast my physical disability has progressed.

[Tulip77 in reply to palomino27]

I actually did have both of those scans and there was no evidence of demyelination on either.

[Tulip77]

I saw the urologist yesterday and she confirmed that I am retaining urine. She is having my come back today to be taught how to self catheter myself in an emergency. Then in a week or, I am scheduled to have a urodynamics test to try to determine the cause. I explained the whole story of what has been going on. She was very kind.

[Sweetheartonvdayl in reply to Tulip77]

Hi Tulip77😊

[Tulip77 in reply to Sweetheartonvdayl]

Hi there!

[Sweetheartonvdayl in reply to Tulip77]

The cause I was given ,was " spastic" bladder directly r/t MS.

Isn't this great, I trade in 1 pad( if ya know what I mean) for another!!

Well,MS, it's the gift that keeps giving...

🙏❤Lisa💕

[kdali]

No demyelination event...I think that is the same as saying no enhancing lesions (to contrast dye) 🤔

[Tulip77 in reply to kdali]

Thank you. I was unfortunately diagnosed yesterday.

[kdali in reply to Tulip77]

I responded to your diagnosis post. I’m almost certain my assumption about the read wording is correct (it’s going to bug me until I ask a MD 🤣).

I keep my reports and discs in a file folder.

[Sweetheartonvdayl in reply to kdali]

No demilimonization seen, is a 👍 thing! That means no scaring along your nerve root( if ya had more than 1 MRI)

I , always say , to my friends , " "got an MRI today & nothing lit up" Well, we all knew that anyway🤣🤣😂😂🤣🤣😂🤣

[Sweetheartonvdayl in reply to Tulip77]

Hi Tulip77😊

All I can say of your diagnosis, YOU'RE. AT THE RIGHT now.

That's what we're all here for, to support each other. We all understand.

🙏❤Lisa💕

[Tulip77 in reply to Sweetheartonvdayl]

Thank you 💜

[Sweetheartonvdayl in reply to Tulip77]

Your welcome 🌷 77

🙏❤Lisa💕

[Sweetheartonvdayl in reply to kdali]

It is.