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Experiences with
Implantable cardioverter defibrillator (ICD)
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mirena coil and migraines
I got the mirena coil two weeks ago. Had constant bleeding, cramps / contracting near the coil. On and off headaches. Now I have the worst migraine. Feels like constant pms symptoms. I know it can take 6 months to settle but not sure I can cope with the headaches. Long did you wait for it to settle
I got the mirena coil two weeks ago. Had constant bleeding, cramps / contracting near the coil. On and off headaches. Now I have the worst migraine. Feels like constant pms symptoms. I know it can take 6 months to settle but not sure I can cope with the headaches. Long did you wait for it to settle
sw04
in
Endometriosis UK
5 months ago
where do I go from here…
Hi all, I was diagnosed with stage 4 endometriosis in 2016 and underwent excision surgery. After surgery I still struggled with pain however went on to try and start a family. We have been incredibly fortunate and have 3 children (this wasn’t without loss). My periods always returned very quickly
Hi all, I was diagnosed with stage 4 endometriosis in 2016 and underwent excision surgery. After surgery I still struggled with pain however went on to try and start a family. We have been incredibly fortunate and have 3 children (this wasn’t without loss). My periods always returned very quickly
NatAlex29
in
Endometriosis UK
5 months ago
Decapeptyl injection and marina coil
i have always been told that having endometriosis, i could not get the copper coil? i am currently getting the 3 monthly decapeptly injections and taking body identical HRT. i am not coping well with the progesterone and my doc has now suggested i continue with the injections and also get the marina
i have always been told that having endometriosis, i could not get the copper coil? i am currently getting the 3 monthly decapeptly injections and taking body identical HRT. i am not coping well with the progesterone and my doc has now suggested i continue with the injections and also get the marina
vjhm
in
Endometriosis UK
5 months ago
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Travel Insurance
Hello all, I was diagnosed with Liver Cirrhosis last October with Gastric Varices that where treated with a coil at the time. Can anyone advise as to any travel insurance companies that specialise in Liver disease conditions? Best regards Gary
Hello all, I was diagnosed with Liver Cirrhosis last October with Gastric Varices that where treated with a coil at the time. Can anyone advise as to any travel insurance companies that specialise in Liver disease conditions? Best regards Gary
RoryG2023
in
British Liver Trust
5 months ago
Could I have Endometriosis?
Hi, I was diagnosed with PCOS at 21 after years of horrific periods. I had the mirena coil fitted for 6 years. No periods, but did get random crippling pains throughout the month and spotting. Had the coil removed July 2022. For the first 6 months my periods were perfect. On time, one/two days of bleeding
Hi, I was diagnosed with PCOS at 21 after years of horrific periods. I had the mirena coil fitted for 6 years. No periods, but did get random crippling pains throughout the month and spotting. Had the coil removed July 2022. For the first 6 months my periods were perfect. On time, one/two days of bleeding
HibiscusDream
in
Endometriosis UK
5 months ago
Did anyone not take birth control following excision surgery?
Hello, I'm due to finally have surgery to remove endometriosis in 2 weeks' time after 12 years of trying to get doctors to take my pain seriously. I've had an MRI previously which showed endo behind my womb and on my uteral sacral ligaments, but I also have bowel and bladder symptoms. I met with my
Hello, I'm due to finally have surgery to remove endometriosis in 2 weeks' time after 12 years of trying to get doctors to take my pain seriously. I've had an MRI previously which showed endo behind my womb and on my uteral sacral ligaments, but I also have bowel and bladder symptoms. I met with my
Jessieb92
in
Endometriosis UK
5 months ago
Finally getting my Laparoscopy
Hey,First time posting, been reading many post, but just thought I would ask for any advise for my first laparoscopy ? After waiting 2 years since my pre operation and 11 years since I saw the gynecologist. I'm excited to finally have one. Ive had the coil and worried they will try again to suggest i
Hey,First time posting, been reading many post, but just thought I would ask for any advise for my first laparoscopy ? After waiting 2 years since my pre operation and 11 years since I saw the gynecologist. I'm excited to finally have one. Ive had the coil and worried they will try again to suggest i
ektmj78
in
Endometriosis UK
5 months ago
Three shocks in last twelve months and not been to hospital, anyone else had a similar experience?
I've had my
ICD
since 2013 and have recently (2 days ago) received my 10th shock. This was confirmed by the hospital over the phone as a VF arrest. The two shocks previous to this were the same, and I've also had some anti-tachy pacing. All this in the last 12 months.
I've had my
ICD
since 2013 and have recently (2 days ago) received my 10th shock. This was confirmed by the hospital over the phone as a VF arrest. The two shocks previous to this were the same, and I've also had some anti-tachy pacing. All this in the last 12 months.
Colin_P
in
British Heart Foundation
1 year ago
wtf is this
I’m in so much pain these days and waiting to see the GI doctor to have a colonoscopy and a endoscopy done at the same time . Unfortunately Kaiser is such an amazing hospital that I can’t be seen till mid march since they have to make a bigger time slot for me to have both procedures at once. So he is
I’m in so much pain these days and waiting to see the GI doctor to have a colonoscopy and a endoscopy done at the same time . Unfortunately Kaiser is such an amazing hospital that I can’t be seen till mid march since they have to make a bigger time slot for me to have both procedures at once. So he is
Imsosickandtired
in
Crohn's and Colitis Support
5 months ago
At my wits end 😢
I am honestly in floods of tears writing this as I can't believe the way I have been treated. I have been bleeding now every day for the last few years. I have been put into chemical menopause several times which hasn't worked, I have had to fight, beg and plead for someone to help me. I have very
I am honestly in floods of tears writing this as I can't believe the way I have been treated. I have been bleeding now every day for the last few years. I have been put into chemical menopause several times which hasn't worked, I have had to fight, beg and plead for someone to help me. I have very
Bleedinglove
in
Endometriosis UK
5 months ago
New diagnosis and bad clinic experience
Hi all. After battling through symptoms for years, being dismissed, being referred to every which specialty, I asked for a gynae referral and had an MRI. The consultant unsympathetically told me I have adhesions, my uterus has moved, and an ovary is squished and attached to my colon. So she's recommended
Hi all. After battling through symptoms for years, being dismissed, being referred to every which specialty, I asked for a gynae referral and had an MRI. The consultant unsympathetically told me I have adhesions, my uterus has moved, and an ovary is squished and attached to my colon. So she's recommended
Watercolour12
in
Endometriosis UK
5 months ago
A bit late for me but...
A bit late for me as I am a woman who has just passed her 60 years milestone, but I wanted to share my experience anyway. I dont think it will be news to people on this forum though, so not sure if should be sharing it here. I had painful periods from day one and regularly ended up in Nurses room
A bit late for me as I am a woman who has just passed her 60 years milestone, but I wanted to share my experience anyway. I dont think it will be news to people on this forum though, so not sure if should be sharing it here. I had painful periods from day one and regularly ended up in Nurses room
Larscamp
in
The Endometriosis Foundation
5 months ago
heart failure
No more fluid restrictions, no
ICD
required and no further appointments for a year. To say I am delighted is an understatement!
No more fluid restrictions, no
ICD
required and no further appointments for a year. To say I am delighted is an understatement!
MyHF
in
British Heart Foundation
1 year ago
laparoscopy
After waiting for years, I finally have a laparoscopy booked for weds (31st Jan) to prove I have endo and have the mirina coil fitted. I have just realised I am due on my period any day now which means I will be on for the op 😫 please can someone tell me this won’t make a difference and I don’t have
After waiting for years, I finally have a laparoscopy booked for weds (31st Jan) to prove I have endo and have the mirina coil fitted. I have just realised I am due on my period any day now which means I will be on for the op 😫 please can someone tell me this won’t make a difference and I don’t have
MusicLover87
in
Endometriosis UK
5 months ago
Endo/Adeno Rant .... Exhausted!! Microgynon 30?
Hey Ladies, I guess this is just a rant for me to maintain sanity and clarity that im not the only one feeling crap with this condition. I've avoided the "recommended treatment" of Decapeptyl injections (put you through early menopause), the IUD, the pill and of course the glamourous hysterectomy
Hey Ladies, I guess this is just a rant for me to maintain sanity and clarity that im not the only one feeling crap with this condition. I've avoided the "recommended treatment" of Decapeptyl injections (put you through early menopause), the IUD, the pill and of course the glamourous hysterectomy
Princess_11
in
Endometriosis UK
5 months ago
Weight gain
Hi , I'm joining from ireland hope that's OK, I had laparoscopy and diagnoses last August, like many others it was endo and it had fused to bowel ,twisted ovary , cysts on right ovary , and pushing uterus against my back , and they said they think it could be adamiosis in the womb, they inserted a
Hi , I'm joining from ireland hope that's OK, I had laparoscopy and diagnoses last August, like many others it was endo and it had fused to bowel ,twisted ovary , cysts on right ovary , and pushing uterus against my back , and they said they think it could be adamiosis in the womb, they inserted a
Masie_
in
Endometriosis UK
5 months ago
Fibroids and ovarian cysts - the affects and reality
Ok here is my story. I have had bad periods all my life and at 47 it's still causing me grief.I was placed on the pill as a teenager to help.The 25year old threshold, became a significant landmark for me. I started to experience really painful heavy periods where I have felt like I can't move from my
Ok here is my story. I have had bad periods all my life and at 47 it's still causing me grief.I was placed on the pill as a teenager to help.The 25year old threshold, became a significant landmark for me. I started to experience really painful heavy periods where I have felt like I can't move from my
CheeseOrNoCheese
in
Pelvic Pain Support Network
5 months ago
Coil during sex
Hi all, !!!! TMI !!! Firstly please let me apologise. I've googled and looked up answers before having to come on here and ask for answer/advice. 😭 I had a coil fitted after a laparoscopy to remove Endo. All has been okay however a week or so ago whilst having sex I felt my husband "hit" it and had
Hi all, !!!! TMI !!! Firstly please let me apologise. I've googled and looked up answers before having to come on here and ask for answer/advice. 😭 I had a coil fitted after a laparoscopy to remove Endo. All has been okay however a week or so ago whilst having sex I felt my husband "hit" it and had
AMJ88
in
Endometriosis UK
5 months ago
Mirena coil and urge incontinence - help!
I had a Mirena coil put in 2 years ago due to PCOS and irregular periods. From the last 3 months (Oct 2023), every time I'm on my period I have had a few minor leaks, sometimes its just a drop or two. I literally have to make a quick dash to the loo to make it just in time. This can last up to 2 days
I had a Mirena coil put in 2 years ago due to PCOS and irregular periods. From the last 3 months (Oct 2023), every time I'm on my period I have had a few minor leaks, sometimes its just a drop or two. I literally have to make a quick dash to the loo to make it just in time. This can last up to 2 days
Pam55
in
PCOS UK (Verity)
5 months ago
thyroid?cortisol?
hello everyone , I’m writing from France, where information about thyroid/adrenals correlation are quite inexistants , as well as doctors aware of. One year ago I’ve been diagnostics of secondary hypothyroidism (TSH 0,6 FT4 7,9 range 9,2-17) FT3 2,5 range 2-4,4). At the ecography my gland is small
hello everyone , I’m writing from France, where information about thyroid/adrenals correlation are quite inexistants , as well as doctors aware of. One year ago I’ve been diagnostics of secondary hypothyroidism (TSH 0,6 FT4 7,9 range 9,2-17) FT3 2,5 range 2-4,4). At the ecography my gland is small
Ir18
in
Thyroid UK
6 months ago
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