mirena coil and migraines: I got the mirena... - Endometriosis UK

Endometriosis UK

70,670 members52,134 posts

mirena coil and migraines

sw04 profile image
sw04
2 Replies

I got the mirena coil two weeks ago.

Had constant bleeding, cramps / contracting near the coil. On and off headaches. Now I have the worst migraine. Feels like constant pms symptoms. I know it can take 6 months to settle but not sure I can cope with the headaches. Long did you wait for it to settle or get it removed.

Written by
sw04 profile image
sw04
To view profiles and participate in discussions please or .
Read more about...
2 Replies
1Poppy1234 profile image
1Poppy1234

I have had the mirena for over ten years and have suffered with hormone related migraines at period time all the whole I've been using it. I have also bled with it at every period. Not heavy but got about five days. It's difficult most doctors consultants say it helps my last consultant wanted me to have it removed.

Cocoacupid profile image
Cocoacupid

I have the mirena and have done for a while the first one moved so actually only had in for about two years had a break to have the implant and depo which were worse for me. Definitely 💯 for me made my periods disappear which was so helpful as every single month was down the out or hours not being able to walk having a pain injection and being able to walk out then out of the building. At first I think I had cramping but for me it took few months or so when I first had it for my body to get used to it. I think I had already got severe endo by the time I had the first coil put in. Everyone is different though for me it was a life changer but for others it makes their periods worse but for me they stopped until during covid when I started to bleed heavily which was due to endometioma s . It was only also through lock down or the year after I suffered with sickness that lasted all day and I would get severe pain and even though the pelvic floor physio said I drank to much during the day my constipation was still severe could t empty bowels properly then two years ago started getting severe diarrhea once or twice in the month. Now it’s more often. Thankfully I have been using buscapan and also merbeverine and also have anti sickness medication and anti diarrhoea tablets when I need them. That has calmed it down abit as I have severe bowel endo and most likely ibs as well. I had a colonoscopy a couple years now ago as they found blood in my poo but colonoscopy fine and it was last April I had my lap which diagnosed the endo am waiting for bowel surgery to have a large amount taken out then the bowel rejoined. Am so glad I had a reason for the excruciating pain and a rash. Why I was being sick as when I had be sick for ten days solid went to hospital as dyhydrated and they did pregnancy test as they said that my symptoms were pregnancy ones . They also didn’t believe me when I said I don’t have a boyfriend haven’t had it for such a long time so it would be a miracle if I was. They did a test as they said I was lying which I wasn’t and then they said oh your not pregnant. I said why would I lie about having a bf or anything they then called psych on me as I said something was wrong and they didn’t believe me all they wanted to do was give me laxative s I said I don’t know laxatives I said I really need help and they did nothing. I hate how people assume things and gaslight us. If I ever see that doctor in the hospital ever again I will be making a full complaint against him as they didn’t do any tests on me. :( . So after a few years of not being able to empty my bladder and bowels effectively I was so relieved for the diagnosis and that I wasn’t mental but it’s a horrible disease and us women are gaslighted to the extent I think we like suck up the pain until it gets to the point where we can’t go on any further and then get diagnosed with severe disease . Nothing is ever easy especially for people like me who had a history of mental ill health and because of the diagnosis they gave me which is again wrong as am waiting for an autism assessment which make a a lot more sense . As that is on my notes they see that and not me even though that diagonis is wrong and it will probably take a long time for that to go off my medical records. I am utterly disgusted how people with borderline personality disorder are treated even though I have fought that that isn’t my problem as the treatment for that never worked for me. Also I knew others with that illness and I was nothing like them. I also think people as they don’t know what’s wrong they just place you in a box and I think it’s the same with gynecological disorder before you you get the right diagnosis and the right treatment for that. Like you I think that some of us or previous generations like our grandparents had this issues but was told to suck it up or get on with life so I do think it is an undiagnosed condition and think that it’s more common now as more and more women are hopefully being more proactive and know more about the condition and are being educated so I think the younger generations are being diagnosed a lot younger and then us slightly older women have just had enough of being gaslighted by our gp s and other specialists to then get the diagnosis we need. Sorry for long response xxx take care

You may also like...

To Mirena coil or not to Mirena coil?

had the Mirena coil but it came out* about 3 days after it was fitted. Apart from the Mirena coil,...

Mirena coil - advice needed

to 'give it 6 months' but is it really acceptable to be in pain and bleeding constantly for that...

Question about Mirena coil

Hi I got the coil fitted two weeks ago and have been in terrible pain from it getting it fitted was...

Mirena coil removal advice

I'm having my Mirena coil hopefully taken out today after nearly 5 years. I'm feeling anxious as I...

Mirena Coil-extreme pain

anyone else suffers with the mirena coil? I had mine inserted a month ago during my lap and I am...