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Ibrutinib
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Platelets and neutrophils dropping
After my taking
Ibrutinib
and venetoclax for 15 months my wbc are within normal range and my lymph nodes are normal. Now my platelets are dropping and my neutrophils which make me concerned. Anyone else experiencing this after stopping the meds. Thanks
After my taking
Ibrutinib
and venetoclax for 15 months my wbc are within normal range and my lymph nodes are normal. Now my platelets are dropping and my neutrophils which make me concerned. Anyone else experiencing this after stopping the meds. Thanks
Ninagram
in
CLL Support
4 years ago
CLL & Coronavirus
I'll get right to the point,I'm worried,but not scared.In the course of the last 15 years since initial diagnosis of CLL,I've had 3 different Chemotherapy courses, each harsher than the last,resulting in a 2nd bout if pneumonia that damaged a lung causing bronchiecstsis.Now I'm on
Ibrutinib
,I pick everything
I'll get right to the point,I'm worried,but not scared.In the course of the last 15 years since initial diagnosis of CLL,I've had 3 different Chemotherapy courses, each harsher than the last,resulting in a 2nd bout if pneumonia that damaged a lung causing bronchiecstsis.Now I'm on
Ibrutinib
,I pick everything
Nickos66
in
CLL Support
4 years ago
Long-Term Ibrutinib Therapy Reverses CD8+ T Cell Exhaustion in B Cell CLL
We investigated the number, phenotype and function of total and virus-specific CD8+ T cells in 65 patients with CLL and 14 patients undergoing long-term
ibrutinib
therapy (median 21 months).
Ibrutinib
substantially reduced the number of both CD3+ T cells and CD8+ T cells.
We investigated the number, phenotype and function of total and virus-specific CD8+ T cells in 65 patients with CLL and 14 patients undergoing long-term
ibrutinib
therapy (median 21 months).
Ibrutinib
substantially reduced the number of both CD3+ T cells and CD8+ T cells.
gardening-girl
in
CLL Support
4 years ago
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Ibrutinib & venetoclax
Only another 5yrs 363 days to go 😀
Only another 5yrs 363 days to go 😀
Sepsur
in
CLL Support
4 years ago
I was diagnosed 8 years ago today
I was diagnosed 8 years ago today, as a matter of fact, and I completed my sixth phase of therapy a few weeks ago when I had to get off of Acalabrutinib because of the cardiac effects i was having, which had actually started in my seventh month of
Ibrutinib
.
I was diagnosed 8 years ago today, as a matter of fact, and I completed my sixth phase of therapy a few weeks ago when I had to get off of Acalabrutinib because of the cardiac effects i was having, which had actually started in my seventh month of
Ibrutinib
.
KevinCLLITP
in
CLL Support
4 years ago
Just got MRD negative 🎉
Excited to say I’m MRD negative 🎉🎉 🎉 I have been in clinical trial for relapsed CLL for 14 months and am on
Ibrutinib
and Venetoclax.
Excited to say I’m MRD negative 🎉🎉 🎉 I have been in clinical trial for relapsed CLL for 14 months and am on
Ibrutinib
and Venetoclax.
Catnap7
in
CLL Support
4 years ago
Time for treatment decision
There is a 50/50 split where 320 patients get obinutuzumag (gazyva) and
Ibrutinib
(imbruvica) and the other 320 patients get these two drugs along with venetoclax. I’m so confused on what to do. If I choose to not partake in the study I will get obinutuzurnab and
Ibrutinib
.
There is a 50/50 split where 320 patients get obinutuzumag (gazyva) and
Ibrutinib
(imbruvica) and the other 320 patients get these two drugs along with venetoclax. I’m so confused on what to do. If I choose to not partake in the study I will get obinutuzurnab and
Ibrutinib
.
harley2018
in
CLL Support
4 years ago
Travel Insurance
I am currently taking
Ibrutinib
as part of the Flair trial for CLL. I am hoping to go to Canada on holiday to celebrate my retirement but am struggling to find travel insurance for less than £3000. Does anybody know of anyone that provides cheaper cover?
I am currently taking
Ibrutinib
as part of the Flair trial for CLL. I am hoping to go to Canada on holiday to celebrate my retirement but am struggling to find travel insurance for less than £3000. Does anybody know of anyone that provides cheaper cover?
Severest
in
CLL Support
4 years ago
Richter Transformation Testimonials. Survivors
I think the
Ibrutinib
stopped the Ricther and made the masses not grow.
I think the
Ibrutinib
stopped the Ricther and made the masses not grow.
Priss69
in
CLL Support
4 years ago
Weight loss
I've been on
Ibrutinib
for 3 months and I've been losing weight. Just wondering if anyone else has been affected. I see my doctor on the 14th...
I've been on
Ibrutinib
for 3 months and I've been losing weight. Just wondering if anyone else has been affected. I see my doctor on the 14th...
habsrule
in
CLL Support
4 years ago
CLL Updates From the 2019 ASH Annual Meeting
Combination
ibrutinib
plus venetoclax: Is undetectable minimal residual disease (MRD) a good surrogate endpoint for survival? Why or why not? and more interesting insights here - https://www.cancertherapyadvisor.com/home/meeting-insights/anthony-mato-md-msce/?
Combination
ibrutinib
plus venetoclax: Is undetectable minimal residual disease (MRD) a good surrogate endpoint for survival? Why or why not? and more interesting insights here - https://www.cancertherapyadvisor.com/home/meeting-insights/anthony-mato-md-msce/?
Jm954
Administrator
in
CLL Support
4 years ago
Off Ibrutinib .. on Acalabrutinib
Off
Ibrutinib
for 2 months , on Acalabrutinib ... all is well , blood tests are almost perfect , next visit to MDAnderson in 3 months ... asked about using Vento in combo with Acalabrutinib and was told that better results will come if I wait a year .. itchy controlled by creams ( CBD and cortisone )
Off
Ibrutinib
for 2 months , on Acalabrutinib ... all is well , blood tests are almost perfect , next visit to MDAnderson in 3 months ... asked about using Vento in combo with Acalabrutinib and was told that better results will come if I wait a year .. itchy controlled by creams ( CBD and cortisone )
fish61
in
CLL Support
4 years ago
Complete Remission
This is amazing as I've only been on
Ibrutinib
for just 3 months & 2 weeks. My biggest surprise was that after examining me he said that my spleen is normal. I haven't heard those words since 1999. Always was enlarged.
This is amazing as I've only been on
Ibrutinib
for just 3 months & 2 weeks. My biggest surprise was that after examining me he said that my spleen is normal. I haven't heard those words since 1999. Always was enlarged.
habsrule
in
CLL Support
4 years ago
IBS
Now I have CLL and am on
Ibrutinib
, just starting my 2nd month. Has anyone experienced any problems with this? Increase in diarrhea or stomach problems. I am 95 years of age.
Now I have CLL and am on
Ibrutinib
, just starting my 2nd month. Has anyone experienced any problems with this? Increase in diarrhea or stomach problems. I am 95 years of age.
Ninetyfive
in
CLL Support
4 years ago
$$$ HELP. Just need to know what these new drugs cost.
Just saw Ivotedfornixon's post and just realized how little I know about
Ibrutinib
and all the other pills out there. I did BR 10/16 to 2/17. According to NCCN guidelines I am in remission. My oncologist told me if I relapse she would treat me with a pill next time. Sounded like no big deal.
Just saw Ivotedfornixon's post and just realized how little I know about
Ibrutinib
and all the other pills out there. I did BR 10/16 to 2/17. According to NCCN guidelines I am in remission. My oncologist told me if I relapse she would treat me with a pill next time. Sounded like no big deal.
louie48
in
CLL Support
4 years ago
Real-World Sequence Patterns of Novel Agents in CLL
The most common BCRi-based therapy used was
ibrutinib
(85.3%), but 42.8% of these patients ended up needing another line of therapy.
The most common BCRi-based therapy used was
ibrutinib
(85.3%), but 42.8% of these patients ended up needing another line of therapy.
Jm954
Administrator
in
CLL Support
4 years ago
Dr Nicole Lamanna's Thoughts on the Recent FDA Approval of Acalabrutinib in CLL
Second-generation BTK inhibitors such as acalabrutinib and zanubrutinib were developed with the hope of similar or possibly improved efficacy and reduced toxicity compared with
ibrutinib
.
Second-generation BTK inhibitors such as acalabrutinib and zanubrutinib were developed with the hope of similar or possibly improved efficacy and reduced toxicity compared with
ibrutinib
.
AussieNeil
Partner
in
CLL Support
4 years ago
Cataract surgery and CLL
He is on
Ibrutinib
, which seems to help, but he has low platellets count. He will need a cataract surgery on both eyes pretty soon. I am interested to hear others' experiences with cataract surgery while on CLL treatment.
He is on
Ibrutinib
, which seems to help, but he has low platellets count. He will need a cataract surgery on both eyes pretty soon. I am interested to hear others' experiences with cataract surgery while on CLL treatment.
MikeOr
in
CLL Support
4 years ago
My good news and more research news from EHA and iwCLL
his findings related to our co-morbidities: https://cllsociety.org/2019/11/eha-2019-dr-alexey-danilov-discusses-idelalisib-and-comorbidities-in-cll-chronic-lymphocytic-leukemia-patients/ The phase III Alliance A041202 collaborative multi-centered trial demonstrated once and for all the superiority of
ibrutinib
his findings related to our co-morbidities: https://cllsociety.org/2019/11/eha-2019-dr-alexey-danilov-discusses-idelalisib-and-comorbidities-in-cll-chronic-lymphocytic-leukemia-patients/ The phase III Alliance A041202 collaborative multi-centered trial demonstrated once and for all the superiority of
ibrutinib
bkoffman
CLL CURE Hero
in
CLL Support
4 years ago
Experiences with Ibrutinib?
What are other people’s experience with the
ibrutinib
treatment?
What are other people’s experience with the
ibrutinib
treatment?
Hidden
in
Leukaemia CARE
4 years ago
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