Platelets and neutrophils dropping: Hi everybody... - CLL Support

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Platelets and neutrophils dropping

Ninagram profile image
2 Replies

Hi everybody. After my taking Ibrutinib and venetoclax for 15 months my wbc are within normal range and my lymph nodes are normal. Now my platelets are dropping and my neutrophils which make me concerned. Anyone else experiencing this after stopping the meds. Thanks

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Ninagram
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AussieNeil profile image
AussieNeilAdministrator

I note that you been off Ibrutinib and Venetoclax for about 9 months and were concerned 5 months ago about dropping platelet counts. How low have your platelet and neutrophil counts dropped? Has your specialist commented about these changes? Have you started any other medication in that time?

You know to be more careful about avoiding infection with low neutrophils, but provided they remain above 1.5/1,500, your risk of infection shouldn't be too concerning. Platelets can drop down to under 50/50,000 before you start to experience spontaneous bruising, but the influence of clotting factors can change that. Platelet transfusions aren't required until counts drop under 20 (,000), but obviously you would like to know why this is happening!

Neil

lankisterguy profile image
lankisterguyVolunteer

Hi Ninagram,

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We had a similar discussion with a member from India a few weeks back. You may want to read this post and all of the replies.

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healthunlocked.com/cllsuppo...

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There is not an easy answer, and it is best that an experienced CLL expert doctor guide you. For more ideas, please look on this page, for the box labeled

"Related Posts

"

*Sudden drop in platelets

*platelet count dropped

*platelet levels still dropping

*Boost neutrophills/platelets

*Platelets dropping after 7 Months on Ibrutinib

That box is in the upper right column on computer screens or scroll way below on mobile devices.

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Len

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