Experiences with Ibrutinib?: Hi i just... - Leukaemia CARE

Leukaemia CARE
813 members415 posts

Experiences with Ibrutinib?

alfaman2020
alfaman2020

Hi

i just started Ibutrinib treatment this week for CLL/SLL. I have a mutant P53 gene. Also two inguinal lymphomas.

So far so good. What are other people’s experience with the ibrutinib treatment?

7 Replies
oldestnewest
HAIRBEAR_UK
HAIRBEAR_UKAdministrator

Hi alfaman2020 welcome I hope things are going OK for you and you are coping well. Have you any specific questions of us? How long have you lived with your diagnosis? A great many of are now using this effective treatment, most can be found in the CLL/SLL support group here: healthunlocked.com/cllsupport

2003UK
2003UKChampion

I am sorry I cannot help, but I just wanted to say to look after yourself and keep posting how you are feeling and thinking so we can support you. I hope someone will be able to share their experiences.

Hi

I am on imbruvica Which I believe it’s the same thing as ibrutinib .. I have been on it for three weeks and it’s doing wonders go back for my blood every two weeks my white blood count was 230 that was him and it went down to one 115,000 for miracle. All Other bloodwork is good you will be fine take care talk to you soon keep in touch

Little dab

Hi

Thanks for this, that sounds really good.

My bloods not too high to start with but two lymphomas quite large so that’s my main concern at moment

Otherwise I feel good

😀

You’re welcome It does a miracle I have a lymph node on my neck and I’m feeling it and it’s gone down so much take care and keep in touch little dab

Hi

I am on imbruvica Which I believe it’s the same thing as ibrutinib .. I have been on it for three weeks and it’s doing wonders go back for my blood every two weeks my white blood count was 230,000 that was and it went down to one 115,000 a miracle. That This pill can do this it’s going to clear out cancer in your bone marrow All Other bloodwork is good you will be fine take care talk to you soon keep in touch

Little dab

You’re welcome It does a miracle I have a lymph node on my neck and I’m feeling it and it’s gone down so much take care and keep in touch little dab

You may also like...