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1c ovarian cancer
hi I’ve been diagnosed with stage 1 c ovarian luscious cancer and had a full hysterectomy but my consultant has informed me that chemotherapy is not a option as it won’t work is anybody else been in this situation
hi I’ve been diagnosed with stage 1 c ovarian luscious cancer and had a full hysterectomy but my consultant has informed me that chemotherapy is not a option as it won’t work is anybody else been in this situation
Marketlover
in
My Ovacome
3 months ago
Pain management
Hi all I'm suffering with a flare up at the moment I'm awaiting a hysterectomy and have prostap injections but as I can only have them for 6months and a 6months break.I find that when I don't have them the flare ups are every few weeks sometimes lasting 13 days .It really effects my life the pain is
Hi all I'm suffering with a flare up at the moment I'm awaiting a hysterectomy and have prostap injections but as I can only have them for 6months and a 6months break.I find that when I don't have them the flare ups are every few weeks sometimes lasting 13 days .It really effects my life the pain is
Sammy455
in
Endometriosis UK
3 months ago
Stage 4 & POD obliteration
Hi all, Just wanted to come and get some general advice and personal experience please! I had surgery in Dec 2022 but due to the severity, they did what they could, finished and sent me for an MRI. I have had the results back and have been referred for further surgery to included colorectal and
Hi all, Just wanted to come and get some general advice and personal experience please! I had surgery in Dec 2022 but due to the severity, they did what they could, finished and sent me for an MRI. I have had the results back and have been referred for further surgery to included colorectal and
RooLouise
in
Endometriosis UK
3 months ago
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Bleeding Heavily on Zoladex
I've been on Zoladex since the end of December. I'm on it for excessive bleeding. I had an abandoned hysterectomy last September when they found stage 4 endo. After this I saw an endo specialist privately and he put me on zoladex. I had an MRI which showed a lot of endometriosis which has fused my bowel
I've been on Zoladex since the end of December. I'm on it for excessive bleeding. I had an abandoned hysterectomy last September when they found stage 4 endo. After this I saw an endo specialist privately and he put me on zoladex. I had an MRI which showed a lot of endometriosis which has fused my bowel
Sunset-lady
in
Endometriosis UK
3 months ago
Bowel or endometrioma pain?
Hi I'm hoping someone can shed a bit of light on my pain. I have endo in lots of places in POD on ligaments and my bowel.I also have a 5cm endometrioma. I am down for surgery for hysterectomy as I have adenomyosis and endo extraction. I've opted out of a bowel resection as the waiting list is longer
Hi I'm hoping someone can shed a bit of light on my pain. I have endo in lots of places in POD on ligaments and my bowel.I also have a 5cm endometrioma. I am down for surgery for hysterectomy as I have adenomyosis and endo extraction. I've opted out of a bowel resection as the waiting list is longer
Loveneige
in
Endometriosis UK
3 months ago
New here and worried
Potted history. Regular wine drinker. Bottle a night, but recently cut down to 0 since 4 weeks. Have had history of RUQ pain, but it came and went. Has been constant for a month now. Also get lower pelvic pain. I had a hysterectomy with retained ovaries in 2014. I also have lupus and a carrier of haemochromatosis
Potted history. Regular wine drinker. Bottle a night, but recently cut down to 0 since 4 weeks. Have had history of RUQ pain, but it came and went. Has been constant for a month now. Also get lower pelvic pain. I had a hysterectomy with retained ovaries in 2014. I also have lupus and a carrier of haemochromatosis
FleaBee
in
British Liver Trust
3 months ago
Private Consultant Recommendations
I have been given a list of 6 consultants to chose from by my healthcare provider 3 at Ramsey Springfield and 3 at Nuffield Ipswich looking for recommendations for either location, looking at hysterectomy options due to adenomyosis and endometriosis I also have what’s classed as an accessory ovary close
I have been given a list of 6 consultants to chose from by my healthcare provider 3 at Ramsey Springfield and 3 at Nuffield Ipswich looking for recommendations for either location, looking at hysterectomy options due to adenomyosis and endometriosis I also have what’s classed as an accessory ovary close
Sara1978
in
Endometriosis UK
3 months ago
Anyone tried Ryeqo?
Hello all, Im new here too… advised by my GP to try a forum for ideas and support for my Adenomyosis. I’m currently awaiting a hysterectomy. I was put on Ryeqo last September by my gynae consultant, who advised it was a last chance saloon & “miracle drug” that would solve all my problems! But it’s done
Hello all, Im new here too… advised by my GP to try a forum for ideas and support for my Adenomyosis. I’m currently awaiting a hysterectomy. I was put on Ryeqo last September by my gynae consultant, who advised it was a last chance saloon & “miracle drug” that would solve all my problems! But it’s done
Adeno_39
in
Endometriosis UK
3 months ago
Any success with only one Lap surgery for DIE?
Hi ladies, hope everyone is doing as well as possible. I'm 5 weeks post op for my first lap for DIE, large cysts organs stuck together. All the good stuff. I've recovered pretty well and feel ok now. I'm on Utrogestan 200mg to hopefully stop my period and reduce chances of regrowth. I also take NAC,
Hi ladies, hope everyone is doing as well as possible. I'm 5 weeks post op for my first lap for DIE, large cysts organs stuck together. All the good stuff. I've recovered pretty well and feel ok now. I'm on Utrogestan 200mg to hopefully stop my period and reduce chances of regrowth. I also take NAC,
DarkStar85
in
Endometriosis UK
3 months ago
Hysterectomy neglect
Girls l'm struggling today I don't know how tofeel or what to do, so I had a mri done 3 years ago showed extensive endometriosis organs stuck together organs covered inside and out and 7 cysts on one ovarie. Got told my only option was a hysterectomy i was gutted I wanted another baby but i did what
Girls l'm struggling today I don't know how tofeel or what to do, so I had a mri done 3 years ago showed extensive endometriosis organs stuck together organs covered inside and out and 7 cysts on one ovarie. Got told my only option was a hysterectomy i was gutted I wanted another baby but i did what
amygrubb
in
Endometriosis UK
3 months ago
prostap injections
I have been on these horrible horrible injections now for over two years, and I am getting no closer to having a hysterectomy. I was promised. has anyone been on ProStap injection is for over two years. Can you please tell me if your pain started to come back after 2 years on the injections. I wonder
I have been on these horrible horrible injections now for over two years, and I am getting no closer to having a hysterectomy. I was promised. has anyone been on ProStap injection is for over two years. Can you please tell me if your pain started to come back after 2 years on the injections. I wonder
Cheesychips
in
Endometriosis UK
3 months ago
Op for Frozen Pelvis (stage 5 Endo)
IM SORRY ABOUT THE LENGTH OF THIS POST, ITS LIKE A BLOODY NOVEL. SORRY What a nightmare, 50 next year & dealt with this since I was 16. I'm so sick of Endo. After Ectopics, miscarriages, so many laparoscopies I've lost count and a few laparotomy & finally full hysterectomy, kept the 1 remaining ovary
IM SORRY ABOUT THE LENGTH OF THIS POST, ITS LIKE A BLOODY NOVEL. SORRY What a nightmare, 50 next year & dealt with this since I was 16. I'm so sick of Endo. After Ectopics, miscarriages, so many laparoscopies I've lost count and a few laparotomy & finally full hysterectomy, kept the 1 remaining ovary
Liseann
in
Endometriosis UK
3 months ago
Not sure what to do....
Advice, personal experiences, and comments most welcome.... Apologies for the long post, but it covers my story so far to provide context. So.... probably the same story as many of you here: I have probably had endo for a very very long time, frequent visits to doctors re bleeding and pain etc. to be
Advice, personal experiences, and comments most welcome.... Apologies for the long post, but it covers my story so far to provide context. So.... probably the same story as many of you here: I have probably had endo for a very very long time, frequent visits to doctors re bleeding and pain etc. to be
fed_up_of_endo
in
Endometriosis UK
3 months ago
Hysterectomy surgery- odd pain
Hi all, I had a laproscopic hysterectomy on 27th march, first 5 days as you would anticipate had pains, following 4 days felt much better, now since yesterday I feel shattered, and keep getting these pulling/spams sensation pains, which feels like its coming from the ovaries... is this normal? Or something
Hi all, I had a laproscopic hysterectomy on 27th march, first 5 days as you would anticipate had pains, following 4 days felt much better, now since yesterday I feel shattered, and keep getting these pulling/spams sensation pains, which feels like its coming from the ovaries... is this normal? Or something
Feelsad
in
Endometriosis UK
3 months ago
endo & bursitis
hi has anyone been diagnosed with bursitis in the hips/pelvis as a result of their endometriosis? If so what were the treatment options? I’ve had a hysterectomy, salpingoopherectomy, bowel shave and pelvic clearance in January ‘24 and my surgery is healing well but the pain in my specifically left hip
hi has anyone been diagnosed with bursitis in the hips/pelvis as a result of their endometriosis? If so what were the treatment options? I’ve had a hysterectomy, salpingoopherectomy, bowel shave and pelvic clearance in January ‘24 and my surgery is healing well but the pain in my specifically left hip
Jem33
in
Endometriosis UK
4 months ago
Surgery
Hi ladies I'm going to see my gynaecologist 29th April to speak about surgery but I'm telling him I want a hysterectomy I've done everything els e.g coil,tablets,injections to start my menapose (I'm 34.35 in june) also had my.tubes tied but nothing has stopped the bleeding or pain. How long do u stay
Hi ladies I'm going to see my gynaecologist 29th April to speak about surgery but I'm telling him I want a hysterectomy I've done everything els e.g coil,tablets,injections to start my menapose (I'm 34.35 in june) also had my.tubes tied but nothing has stopped the bleeding or pain. How long do u stay
Mammyof2gals
in
The Endometriosis Foundation
4 months ago
Surgery
Hi ladies I'm going to see my gynaecologist 29th April to speak about surgery but I'm telling him I want a hysterectomy I've done everything els e.g coil,tablets,injections to start my menapose (I'm 34.35 in june) also had my.tubes tied but nothing has stopped the bleeding or pain. How long do u stay
Hi ladies I'm going to see my gynaecologist 29th April to speak about surgery but I'm telling him I want a hysterectomy I've done everything els e.g coil,tablets,injections to start my menapose (I'm 34.35 in june) also had my.tubes tied but nothing has stopped the bleeding or pain. How long do u stay
Mammyof2gals
in
Endometriosis UK
4 months ago
significant free fluid in pouch of douglas
Hello I have been suffering with terrible pain in my right side lower groin. I described to the Gap that it feels like I am carrying something or a pressure in lower back and at times causes my right thigh to actually go numb. I went to the GP and was referred for an ultrasound for a hernia. No hernia
Hello I have been suffering with terrible pain in my right side lower groin. I described to the Gap that it feels like I am carrying something or a pressure in lower back and at times causes my right thigh to actually go numb. I went to the GP and was referred for an ultrasound for a hernia. No hernia
brontec
in
Endometriosis UK
4 months ago
Private Consultation
Hi all. Looking for advice/ info from any one who has been to a private consultation. Long story short, I have been referred to a endo specialist centre by my local consultant, I got my appoint through for begining July, which moved to 6th August and which has now moved to 30th August. I'm desperate
Hi all. Looking for advice/ info from any one who has been to a private consultation. Long story short, I have been referred to a endo specialist centre by my local consultant, I got my appoint through for begining July, which moved to 6th August and which has now moved to 30th August. I'm desperate
Lornalost89
in
Endometriosis UK
4 months ago
Waiting for results after Hysterectomy
Hello everyone, I had a total laparoscopic hysterectomy ( with conservation of ovaries) at the beginning of this month. I am 40 years old. I had fully expected the surgery to find Endometriosis however there wasn't any. I am now waiting on the pathology test results on what was removed. I am wondering
Hello everyone, I had a total laparoscopic hysterectomy ( with conservation of ovaries) at the beginning of this month. I am 40 years old. I had fully expected the surgery to find Endometriosis however there wasn't any. I am now waiting on the pathology test results on what was removed. I am wondering
Kittie5117
in
Adenomyosis Advice Association
4 months ago
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