1c ovarian cancer

[Marketlover]

hi I’ve been diagnosed with stage 1 c ovarian luscious cancer and had a full hysterectomy but my consultant has informed me that chemotherapy is not a option as it won’t work is anybody else been in this situation

[Doggies221]

So sorry that you got this diagnosis:(. But hang in there. Stage 1c is still early stage. Is “luscious” a typo? There’s no such histotype of OC.

[Marketlover in reply to Doggies221]

Hi it should say luscious ovarian cancer

[Lyndy in reply to Marketlover]

Mucinous? xx

[Marketlover]

thanks mucous xx

[wendydee]

I was stage 1 and I didn’t have chemo (or radiotherapy). It wasn’t an option back then but the surgeon told me he thought he’d got everything out that he could see. So far he’s been right. That was 22 years ago (always crossing fingers though!). It’s not always necessary but seems to be what some hospitals do nowadays. I’m sure your consultant knows what he’s doing.

All the best to you xx

[Marketlover]

thanks for the reply Wendy it gives hope to hear stories like this

My doctor has told me that muscinous ovarian cancer doesn’t really work with chemotherapy that’s why he’s not advising any but I had a ruptured mass and some of the cells escaped so that’s the worry I’m having because I’ve read this type of cancer can grow really fast xx

[wendydee in reply to Marketlover]

If you need more expert, accurate advice, why don’t you give the Ovacome helpline a ring. It’s 0800 008 7054, office hours only. There’s more info about email support on their website. It’s always worth looking on there. I think there’s a fact sheet about mucinous type ov cancer too. It’s ovacome.org.uk

[StilCrazy in reply to Marketlover]

Dear Marketlover, read Dr Nasha Winter's books and listen to her podcasts. She had stage 4 ovarian cancer at 20 and she is now 47. Avoid chemo until you are sick but focus on diet, therapy, your spiritual life, reduce stress, work on all your relationships and end those that are causing you endless unhappiness and make your body and mind as inhospitable to cancer as possible

[Marketlover in reply to StilCrazy]

Thanks I’ve just ordered the book xx

[Jannibags]

Hi! Yes, me too. Although mine was predominantly borderline with low grade serous carcinoma. My Consultant also said chemo not really appropriate as unlikely to respond. She was confident that she had got it all out and no evidence of spread. One of the two masses ruptured during surgery, it was a big'un, 25cm 😱This was four and a half years ago and all ok so far🤞🤞🤞 Good luck, so lucky to be diagnosed at such an early stage 👍😊!

[Marketlover]

hi yes it’s so scary waiting around for a scan in 3 months especially as everyone’s story have had chemotherapy and are on a path and know what is happening I feel like I’m waiting around for this aggressive cancer to come back with no treatment .I know they said the operation was the treatment but when you have still got aggressive cancer cells left after the mass rupture it’s still so scary xx

I

[Mund2121]

I had a similar situation in December 2019 stage 1C borderline mucinous ovarian tumour which ruptured during surgery.

One session of chemotherapy then stopped due to covid. Did some research and yes mucinous tends not to respond well to chemotherapy, however I spoke with Dr Susanna Banerjee at the Royal Marsden hospital and some types of chemotherapy are more effective for this particular type. The American health site Inspire has a lot of information on mucinous which I think you would find helpful together with a lot of posts on here from those of us who have had this diagnosis. I think once you do some more research you will feel more settled .

[Marketlover in reply to Mund2121]

Thanks for this information any information is a great help xx

[Marketlover]

hi did you have any more treatments xx

[Jholly4]

I had 1c3 mucinous last year and leakage had been for a few months before the op. Surgery completed to remove tumour ( and other bits like everyone else). Like you advised mucinous does not currently know evidence base respond better to chemo and as some studies show same outcome for those who do and don't have adjuvant chemo so my oncologist said I could have it if I wanted hit her experience was the side effects feom chemo outweighed benefit for our subtype. I chose not to but feel it has to be a personal choice ( I was lucky my oncologist had prior experience of treating mucinous but know many don't due to prevelance). 9 months out I am doing ok still NED sonfongers crossed for many years to come this stays the same. I recommend you chatbot through with your team and if not happy ask for another opinion then weigh it all up to help you decide what is best for you.

[Marketlover in reply to Jholly4]

Thank you jholly4 for your reply I’m starting to feel a bit better now I have started speaking to women who are going through the same experiences as myself and finding things out which is so helpful to me thanks again xx

[Jholly4 in reply to Marketlover]

It's harder when there are choices to be made , A friend this year was diagnosed with high grade type and her plan was clearly mapped out . Most days I still have a few minutes pondering whether I made the right choice and I find this forum really helps as hear so many ladies who made the same choice living life well many years down the line.

[SopSinger]

You are always entitled to a second opinion on the NHS from a major cancer centre (e.g. the Royal Marsden in London). If you think that would help you, your consultant can make the referral (if s/he refuses, that's a big red flag!).

[Marketlover]

Thanks I appreciate your advice and I am thinking of getting a second opinion or just to wait until my 3 month scan which should be mid June to see if there is any change then I think I will have

I feel that all I’m doing is waiting for results xx