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STAGE 1C1 Grade 2
Hello again everyone Hope you’re all keeping well 😊 I did a reply to my original post a while back but thought I’d give another update I have decided for the one agent only Carboplatin had my first dose yesterday and touch wood feeling ok so far. Thanks for all your replies. The only reason I
Hello again everyone Hope you’re all keeping well 😊 I did a reply to my original post a while back but thought I’d give another update I have decided for the one agent only Carboplatin had my first dose yesterday and touch wood feeling ok so far. Thanks for all your replies. The only reason I
Kscott10
in
My Ovacome
8 months ago
Adenomyosis, should I have hysterectomy?
The short version is that I have adenomyosis. I've always had heavy periods with period pains that make my thighs numb and require prescription painkillers. At the age of 44 I had some symptoms of perimenopause and tried HRT. After two years I came off and that seems to have triggered a strong reaction
The short version is that I have adenomyosis. I've always had heavy periods with period pains that make my thighs numb and require prescription painkillers. At the age of 44 I had some symptoms of perimenopause and tried HRT. After two years I came off and that seems to have triggered a strong reaction
mavenmi
in
Endometriosis UK
8 months ago
Hysterectomy leaving 1 ovary...
Does anyone have experience of this? I seen an expert gynae BSGE clinical lead and he was so blaze about the fact I may as well just get a hysterectomy since I'm done having kids. I have andenomyosis and endo 6 cysts on one ovary so he said I could keep one which would stop menopause symptoms. But I'm
Does anyone have experience of this? I seen an expert gynae BSGE clinical lead and he was so blaze about the fact I may as well just get a hysterectomy since I'm done having kids. I have andenomyosis and endo 6 cysts on one ovary so he said I could keep one which would stop menopause symptoms. But I'm
DarkStar85
in
Endometriosis UK
8 months ago
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Should I have a hysterectomy?
The short version is that I have adenomyosis, but it is well enough managed on zoladex/Tibolone that I'm not having any significant pain and not bleeding enough that it is a problem, but I do have lots of more minor issues and my consultant thinks a hysterectomy would be better. I've got the op booked
The short version is that I have adenomyosis, but it is well enough managed on zoladex/Tibolone that I'm not having any significant pain and not bleeding enough that it is a problem, but I do have lots of more minor issues and my consultant thinks a hysterectomy would be better. I've got the op booked
mavenmi
in
Menopause and Perimenopause Support
8 months ago
Recurrence :(
Hi ladies,I haven't posted on here for a while, but I've just found out that my cancer has come back. I was initially diagnosed in October 2021 with stage 4 HGSOC and had 6 rounds of carbotaxol with a total abdominal hysterectomy and omentectomy after the 3rd cycle. I then went on to Olaparib, initially
Hi ladies,I haven't posted on here for a while, but I've just found out that my cancer has come back. I was initially diagnosed in October 2021 with stage 4 HGSOC and had 6 rounds of carbotaxol with a total abdominal hysterectomy and omentectomy after the 3rd cycle. I then went on to Olaparib, initially
Kjpip
in
My Ovacome
3 months ago
Thank you for all the support and bye for now
Warning this is very long and contains some sensitive information that might be triggering for some. Hello lovely people, hope you are all coping ok and having a comfortable day. I have been quite active on here for a few months telling my story of living with endo since I was very
Warning this is very long and contains some sensitive information that might be triggering for some. Hello lovely people, hope you are all coping ok and having a comfortable day. I have been quite active on here for a few months telling my story of living with endo since I was very
Poppyg16
in
Endometriosis UK
3 months ago
hormonnes .. are they ok or not
have been unwel for over 4 years now I have fibromyalgia since 2014 which I managed fine until 4/5 years ago became increased unwel daily .. have had to leave my job now due to ill health … recently had health check to see if could help as GP kept saying all in my head … results for Hormonnes were as
have been unwel for over 4 years now I have fibromyalgia since 2014 which I managed fine until 4/5 years ago became increased unwel daily .. have had to leave my job now due to ill health … recently had health check to see if could help as GP kept saying all in my head … results for Hormonnes were as
kes2008
in
Menopause and Perimenopause Support
8 months ago
Anyone have side effects from omenectomy?
Hi everyone, I’m after some advice. I’ve decided to have a preventative total hysterectomy with salpingo-oopherectomy (one ovary is already gone with my OC tumor - I’m one year NED so far). I also have endometriosis too, so I’m hoping this helps stop that pain too. My procedure, together with a hernia
Hi everyone, I’m after some advice. I’ve decided to have a preventative total hysterectomy with salpingo-oopherectomy (one ovary is already gone with my OC tumor - I’m one year NED so far). I also have endometriosis too, so I’m hoping this helps stop that pain too. My procedure, together with a hernia
Hailun
in
My Ovacome
3 months ago
Saw a specialist
I saw a specialist in endometriosis last week and it was eye opening. I had to pay for it or wait 12 months so I opted to go private. I spent over an hour with him and he was incredible. He explained everything and was very practical. I had a list of questions and he answered all of them. I already know
I saw a specialist in endometriosis last week and it was eye opening. I had to pay for it or wait 12 months so I opted to go private. I spent over an hour with him and he was incredible. He explained everything and was very practical. I had a list of questions and he answered all of them. I already know
Sunset-lady
in
Endometriosis UK
8 months ago
Monthly endometriosis bleeding after hysterectomy
Hi, I'm new here, so sorry if this has been asked before. I had a hysterectomy (retaining ovaries and cervix) in June, but since August have had monthly bleeding. Pretty sure it's endometriosis, which I was only diagnosed with when the hysterectomy was undertaken. It was in my bowel and pouch of Douglas
Hi, I'm new here, so sorry if this has been asked before. I had a hysterectomy (retaining ovaries and cervix) in June, but since August have had monthly bleeding. Pretty sure it's endometriosis, which I was only diagnosed with when the hysterectomy was undertaken. It was in my bowel and pouch of Douglas
Emwb
in
Endometriosis UK
8 months ago
I've been prescribed Amitriptyline for pelvic pain. Has anyone had success with this medication?
I've seen the consultant for Adenomyosis. He is referring me for an urgent mri to confirm it's Adenomyosis and listed for a hysterectomy, including my ovaries. It's an 18 month wait.So, I've been prescribed Amitriptyline and he wants me to trial Prostsap again. Which I'm nervous to do, as it was the
I've seen the consultant for Adenomyosis. He is referring me for an urgent mri to confirm it's Adenomyosis and listed for a hysterectomy, including my ovaries. It's an 18 month wait.So, I've been prescribed Amitriptyline and he wants me to trial Prostsap again. Which I'm nervous to do, as it was the
Mindfullness4791
in
Endometriosis UK
8 months ago
Does tibilone get better?
Hello everyone, I've just finished a 6 month course of prostap with no add back hrt. I had a pretty rough time on prostap alone, apparently I was supposed to be prescribed hrt alongside but never was, and in order to carry on my consultant has now added in tibilone. I thought the prostap was bad but
Hello everyone, I've just finished a 6 month course of prostap with no add back hrt. I had a pretty rough time on prostap alone, apparently I was supposed to be prescribed hrt alongside but never was, and in order to carry on my consultant has now added in tibilone. I thought the prostap was bad but
Womble84
in
Endometriosis UK
8 months ago
Post Surgery Issues
Hi All, I had a total laparoscopic hysterectomy in July and all healed well - very happy. Then the past few days the incision in my belly button has started hurting, I have a swollen belly and it feels like a UTI then I have some bleeding from my belly button and it has a red mark around it. It looks
Hi All, I had a total laparoscopic hysterectomy in July and all healed well - very happy. Then the past few days the incision in my belly button has started hurting, I have a swollen belly and it feels like a UTI then I have some bleeding from my belly button and it has a red mark around it. It looks
TJ2021
in
Endometriosis UK
8 months ago
Mounjaro
I’ve been off the Verity boards for over 10 years but I find myself needing new advice as I continue my PCOS life. A lot has happened. I had cancer and a total hysterectomy so I’m experiencing the menopause and PCOS stage. I’ve managed to maintain my weight through constant careful eating but any gains
I’ve been off the Verity boards for over 10 years but I find myself needing new advice as I continue my PCOS life. A lot has happened. I had cancer and a total hysterectomy so I’m experiencing the menopause and PCOS stage. I’ve managed to maintain my weight through constant careful eating but any gains
Lennysanders-gould
in
PCOS UK (Verity)
4 months ago
first lap - nothing found. Please help.
Hi, I’m new here (or I’ve been acting like a shadow for months, reading your stories & experiences and feeling a sense of support from you all without reaching out, so firstly thank you) I have had ongoing pelvic pain since 2021. Continuously. It started as a niggle in my right ovary. I noticed it
Hi, I’m new here (or I’ve been acting like a shadow for months, reading your stories & experiences and feeling a sense of support from you all without reaching out, so firstly thank you) I have had ongoing pelvic pain since 2021. Continuously. It started as a niggle in my right ovary. I noticed it
GraceElli
in
Endometriosis UK
8 months ago
Recently had stoma
I was diagnosed 2 years ago stage 4 high serious ovarian part bowel removed and 6 sessions chemo lived normal 18months then recurrence and more chemo then total hysterectomy omentom removed and shock when I woke I had stoma that is pernament finding it hard deal with and see consultant next week
I was diagnosed 2 years ago stage 4 high serious ovarian part bowel removed and 6 sessions chemo lived normal 18months then recurrence and more chemo then total hysterectomy omentom removed and shock when I woke I had stoma that is pernament finding it hard deal with and see consultant next week
PaumicB123
in
Living with a Stoma
4 months ago
pelvic floor
Hi everyone, I hope that you are doing okay. I was wondering if anyone is also suffering with pelvic floor dysfunction as well as evil endo? I have stage 3/4 my consultant wanted me to try prostap prior to hysterectomy (I am petrified) and have not started it yet. I guess I’m wondering if anyone
Hi everyone, I hope that you are doing okay. I was wondering if anyone is also suffering with pelvic floor dysfunction as well as evil endo? I have stage 3/4 my consultant wanted me to try prostap prior to hysterectomy (I am petrified) and have not started it yet. I guess I’m wondering if anyone
Silkthrow
in
Endometriosis UK
8 months ago
Bowel pain, bleeding and colonoscopy
Hello, I am writing today for advice - I am 40 year old, waiting for a Hysterectomy in Scotland. Suspected Endometriosis due to pain and bleeding, this is being managed with Provera and transexamic acid. Anyway, the most recent problem is bleeding from my bottom. Spoke to GP and had blood tests and
Hello, I am writing today for advice - I am 40 year old, waiting for a Hysterectomy in Scotland. Suspected Endometriosis due to pain and bleeding, this is being managed with Provera and transexamic acid. Anyway, the most recent problem is bleeding from my bottom. Spoke to GP and had blood tests and
Kittie5117
in
Endometriosis UK
8 months ago
Abdominal ultrasound
Hiya,Would just like people's views/experiences on if endo will be picked up on an ultrasound or the abdomen. I've had pelvic mri before which picked up endo everywhere and I'm awaiting surgery (endo,hysterectomy and bowel). I've not got abdomen pains so they've got me down for an ultrasound. I feel
Hiya,Would just like people's views/experiences on if endo will be picked up on an ultrasound or the abdomen. I've had pelvic mri before which picked up endo everywhere and I'm awaiting surgery (endo,hysterectomy and bowel). I've not got abdomen pains so they've got me down for an ultrasound. I feel
Loveneige
in
Endometriosis UK
8 months ago
Smear test problems
So I went for a smear on Tuesday and it was pretty awful. She couldn't find my cervix and I was bleeding (because I'm always bleeding). She tried all different sizes and had me lying on my side at one point but no joy. She said I'd have to come back in 6 weeks. Has anyone else had problems with smears
So I went for a smear on Tuesday and it was pretty awful. She couldn't find my cervix and I was bleeding (because I'm always bleeding). She tried all different sizes and had me lying on my side at one point but no joy. She said I'd have to come back in 6 weeks. Has anyone else had problems with smears
Sunset-lady
in
Endometriosis UK
8 months ago
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