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bilateral oophorectomy at 34
Hi all, I am looking to hear from real people (you folks on this forum) about your experiences for a bilateral oophorectomy. I have been suffering with debilitating endometriosis symptoms for more than a decade and on Monday March 4th I saw a consultant about my treatment steps. She was the surgeon
Hi all, I am looking to hear from real people (you folks on this forum) about your experiences for a bilateral oophorectomy. I have been suffering with debilitating endometriosis symptoms for more than a decade and on Monday March 4th I saw a consultant about my treatment steps. She was the surgeon
HomebodyFig
in
Endometriosis UK
6 months ago
Fears confirmed
I posted previously on this long and tortuous journey to ( almost) a diagnosis. Almost because my concierge PCP gave me a heads up on the biopsy report which hasn’t been posted on my digital chart and I haven’t yet heard from my Urologist/ Onocologist. It’s been 4 mos since my annual checkup said my
I posted previously on this long and tortuous journey to ( almost) a diagnosis. Almost because my concierge PCP gave me a heads up on the biopsy report which hasn’t been posted on my digital chart and I haven’t yet heard from my Urologist/ Onocologist. It’s been 4 mos since my annual checkup said my
Willie51
in
Prostate Cancer And Gay Men
6 months ago
Medicare Part D decision
So, I'm going on Medicare in April. I've enrolled in the Blue Cross Plan G Supplement plan and am now trying to decide which Part D plan to get for meds. At the moment my main concern is what it's going to cost for my new Abiraterone prescription. It looks like BCBS is going to be too expensive. Their
So, I'm going on Medicare in April. I've enrolled in the Blue Cross Plan G Supplement plan and am now trying to decide which Part D plan to get for meds. At the moment my main concern is what it's going to cost for my new Abiraterone prescription. It looks like BCBS is going to be too expensive. Their
fireandice123
in
Advanced Prostate Cancer
6 months ago
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Relugolix/Orgovyx or Enzalutamide/Xtandi?
Good morning, all. I have updated my profile with my husband's history. But, long story short, he has been on ADT vacation for 13 months following succesful treatment of metastatic disease with Triplet Therapy (six rounds of Docetaxel, Lupron, and first Abieraterone plus Prednisone and then he switched
Good morning, all. I have updated my profile with my husband's history. But, long story short, he has been on ADT vacation for 13 months following succesful treatment of metastatic disease with Triplet Therapy (six rounds of Docetaxel, Lupron, and first Abieraterone plus Prednisone and then he switched
FaithOverFear104
in
Advanced Prostate Cancer
6 months ago
Feeling let down
Just a bit of a rant really as feeling let down by the system. I’ve been back and forth to the GP’s over the years with Raynuards, rosacea, recently a sun spot that turned cancerous, depression, fainting etc and no one up until me doing my research has ever joined the all the constellation of symptoms
Just a bit of a rant really as feeling let down by the system. I’ve been back and forth to the GP’s over the years with Raynuards, rosacea, recently a sun spot that turned cancerous, depression, fainting etc and no one up until me doing my research has ever joined the all the constellation of symptoms
Fizzwhizz
in
Thyroid UK
6 months ago
One post post decapeptyl injection
I've randomly started bleeding I'm one month post injection my pains have been so bad and ramped up this week even more to point I was being sick and now I been to toilet and I'm bleeding not loads but like start of period amount. But I'm confused I have pcos and can't even tell you last time I had a
I've randomly started bleeding I'm one month post injection my pains have been so bad and ramped up this week even more to point I was being sick and now I been to toilet and I'm bleeding not loads but like start of period amount. But I'm confused I have pcos and can't even tell you last time I had a
En89
in
Endometriosis UK
8 months ago
red light therapy
been using red light therapy for 3 years - has there been double bind trials and if so what were results? Thanks
been using red light therapy for 3 years - has there been double bind trials and if so what were results? Thanks
Coling
in
Cure Parkinson's
10 months ago
Magnesium, zinc and calcium
Nearly a year after ADT and all clear with testosterone recovering well. Been advised by a fellow runner to try a supplement of magnesium, zinc and calcium. The Onco has no objections. Are there reasons no too? Thank you.
Nearly a year after ADT and all clear with testosterone recovering well. Been advised by a fellow runner to try a supplement of magnesium, zinc and calcium. The Onco has no objections. Are there reasons no too? Thank you.
Runner1957
in
Prostate Cancer Network
6 months ago
Cyberknife+IMRT combination treatment for High Risk PCa, that has spread to the seminal vesicle.
Has anyone done a cyberknife-imrt combination radiation treatment for prostate cancer? My PCa has spread to the Seminal Vesicle. So, instead of a planned 5 session cyberknife treatment to the prostate only ( when the PCa was thought to be confined to the prostate), my doc is putting me on 3 cyberknife
Has anyone done a cyberknife-imrt combination radiation treatment for prostate cancer? My PCa has spread to the Seminal Vesicle. So, instead of a planned 5 session cyberknife treatment to the prostate only ( when the PCa was thought to be confined to the prostate), my doc is putting me on 3 cyberknife
Sushupthi
in
Advanced Prostate Cancer
2 months ago
Testosterone volatility
My testosterone was measured @ 490 in 2014 when I was DX with PCa Gleason 6, it was measured again in 2016 at 463. It was not measured again until after I started on ADT and it has been >7 ever since. Is there a way for me to extrapolate what it would have been in 2021 when I was DX with Gleason
My testosterone was measured @ 490 in 2014 when I was DX with PCa Gleason 6, it was measured again in 2016 at 463. It was not measured again until after I started on ADT and it has been >7 ever since. Is there a way for me to extrapolate what it would have been in 2021 when I was DX with Gleason
Scout4answers
in
Prostate Cancer Network
6 months ago
Unsure about increasing T3
Hi Everyone, I’ve had my appointment with my thyroid specialist today and she wants me to increase my T3 from 15mcg a day to 25mcg a day and keep levo at 100mcg. However I’m really hesitant to do this as last time I increased my T3 (see my original post below) I got my T4 to 6 and felt awful. Plus I
Hi Everyone, I’ve had my appointment with my thyroid specialist today and she wants me to increase my T3 from 15mcg a day to 25mcg a day and keep levo at 100mcg. However I’m really hesitant to do this as last time I increased my T3 (see my original post below) I got my T4 to 6 and felt awful. Plus I
Fallleaves
in
Thyroid UK
6 months ago
Hypo, Hashi's, Menopause & Testosterone
My last sex hormone blood test showed my testosterone at [u]
1.91!
[/u]
(range of 0.10-1.42) This concerns my Endo doc who has been amazing treating my thyroid issues, but has now informed me that AFTER
age 60
you shouldn't BEGIN hrt. 😪 So, that's out of the question for me since
My last sex hormone blood test showed my testosterone at [u]
1.91!
[/u]
(range of 0.10-1.42) This concerns my Endo doc who has been amazing treating my thyroid issues, but has now informed me that AFTER
age 60
you shouldn't BEGIN hrt. 😪 So, that's out of the question for me since
wavedancers
in
Thyroid UK
6 months ago
Low testosterone is associated with extremely poor survival metrics, post-ADT.
These companion plots compare: (A) median survival times, (B) PSA doubling times, and (C) Time to PSA Failure for two different levels of testosterone: Low and Normal. The low testosterone has a median value of 162 ng/dL [120-236] and the average normal T = 680 ng/dL. The cohort is 58 men with unfavorable
These companion plots compare: (A) median survival times, (B) PSA doubling times, and (C) Time to PSA Failure for two different levels of testosterone: Low and Normal. The low testosterone has a median value of 162 ng/dL [120-236] and the average normal T = 680 ng/dL. The cohort is 58 men with unfavorable
janebob99
in
Prostate Cancer Network
6 months ago
Low Testosterone reduces Survival by a huge amount.
This plot compares prostate cancer specific mortality probability versus time for two different levels of testosterone: Low and Normal. The low testosterone has a median value of 162 ng/dL [120-236] and the average normal T = 680 ng/dL. The cohort is 58 men with unfavorable intermediate risk who underwent
This plot compares prostate cancer specific mortality probability versus time for two different levels of testosterone: Low and Normal. The low testosterone has a median value of 162 ng/dL [120-236] and the average normal T = 680 ng/dL. The cohort is 58 men with unfavorable intermediate risk who underwent
janebob99
in
Prostate Cancer Network
6 months ago
Updating and confused
First, I would like to say a big thank you to Jools and Sue Johnson in particular, and others on this site. I wrote on here some time ago that, because I know that a lot of MS sufferers suffer with restless legs, I was going to try oxygen therapy at our local MS Centre and want to share the results
First, I would like to say a big thank you to Jools and Sue Johnson in particular, and others on this site. I wrote on here some time ago that, because I know that a lot of MS sufferers suffer with restless legs, I was going to try oxygen therapy at our local MS Centre and want to share the results
Mulberry100
in
Restless Legs Syndrome
1 year ago
My own PSA values over time: 70% drop in just 3 months on Dutasteride and no ADT
Here are my own PSA values versus time plot. You can see there is an exponential rise in PSA starting at around 6/1/23, and doubling from PSA = 5 to 10 in about 8 months. My MRI at PSA = 10 showed a T3a tumor about 1.3 cm long (PIRADS 5). A subsequent targeted biopsy showed Gleason 3+4 in 4 cores,
Here are my own PSA values versus time plot. You can see there is an exponential rise in PSA starting at around 6/1/23, and doubling from PSA = 5 to 10 in about 8 months. My MRI at PSA = 10 showed a T3a tumor about 1.3 cm long (PIRADS 5). A subsequent targeted biopsy showed Gleason 3+4 in 4 cores,
janebob99
in
Prostate Cancer Network
6 months ago
Doubling Times and PSA acceleration - Part II
This is a more realistic schematic plot of PSA levels increasing over time at an ever faster rate (acceleration). What could cause this? My theory is that as the tumor grows, the number of androgen receptors (ARs) increases proportionally. That makes sense...more PCa cells inside a tumor...more ARs
This is a more realistic schematic plot of PSA levels increasing over time at an ever faster rate (acceleration). What could cause this? My theory is that as the tumor grows, the number of androgen receptors (ARs) increases proportionally. That makes sense...more PCa cells inside a tumor...more ARs
janebob99
in
Prostate Cancer Network
6 months ago
Non metastasis castrate resistant
When you are on ADT and become Non metastatic Castrate resistant and your testosterone levels are below zero, what is the cancer feeding off to cause the PSA to still rise? Hoping for your replies so as to give me some understanding. Thank you.
When you are on ADT and become Non metastatic Castrate resistant and your testosterone levels are below zero, what is the cancer feeding off to cause the PSA to still rise? Hoping for your replies so as to give me some understanding. Thank you.
Sailameme
in
Advanced Prostate Cancer
6 months ago
help with bloods.
I have been on HRT for 5 years. I'm currently on 300mg Utrogestan (100mg to 200mg 17/10 then 200mg 25 on 3 days off then up to 300mg on 11/2/24 25 days on 3 days off) and 100 evorel patch plus 1 pump of tostran gel twice a week. I have been having bleeds since June 23 (had an internal scan and biopsy
I have been on HRT for 5 years. I'm currently on 300mg Utrogestan (100mg to 200mg 17/10 then 200mg 25 on 3 days off then up to 300mg on 11/2/24 25 days on 3 days off) and 100 evorel patch plus 1 pump of tostran gel twice a week. I have been having bleeds since June 23 (had an internal scan and biopsy
WendyW1964
in
Menopause and Perimenopause Support
6 months ago
post menopause bleeding
Hi all, I’m a 64 year old woman whose periods stopped when I was 50, I chose HRT after a few years of non stop daytime sweats, zero concentration and bursting into tears at the drop of a hat 🙈 I stopped the HRT back in 2020 but had to start it again last year as the sweats returned with a vengeance
Hi all, I’m a 64 year old woman whose periods stopped when I was 50, I chose HRT after a few years of non stop daytime sweats, zero concentration and bursting into tears at the drop of a hat 🙈 I stopped the HRT back in 2020 but had to start it again last year as the sweats returned with a vengeance
NanaFifi
in
Women's Health
6 months ago
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