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Just saying, don't give up
Hi Ladies, I just want to say that never give up. I was diagnosed with stage 4 ovarian cancer with secondary in lung. That was the end of 2016. Had surgery, all the chemo's that they could give me, then out of options, nothing more to give me. I arranged my funeral, Wills done, I was seeing palliative
Hi Ladies, I just want to say that never give up. I was diagnosed with stage 4 ovarian cancer with secondary in lung. That was the end of 2016. Had surgery, all the chemo's that they could give me, then out of options, nothing more to give me. I arranged my funeral, Wills done, I was seeing palliative
1032
in
My Ovacome
3 years ago
Azopt side effects
I'm using azopt eye drops and have developed over weeks upper and side back ache has anyone else had this?
I'm using azopt eye drops and have developed over weeks upper and side back ache has anyone else had this?
Mandeville
in
Glaucoma UK
3 years ago
Eye test sorted
Just to let you all know, had a very thorough eye test today and am very happy that no GCA detected...she thought my xrays showed very healthy eyes for a woman my age! (71) Mild cataracts, but nothing else to concern me. We had a long chat about GCA and what I should be aware of so
Just to let you all know, had a very thorough eye test today and am very happy that no GCA detected...she thought my xrays showed very healthy eyes for a woman my age! (71) Mild cataracts, but nothing else to concern me. We had a long chat about GCA and what I should be aware of so
Poll8
in
PMRGCAuk
3 years ago
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It’s NOT neuroendocrine or small cell!!!
Jeff’s PSA has been trending up since March. As of today, it dropped by 166! It was 476 and today he’s at 310! Woot woot! We saw the oncologist and bone biopsy results were back. Jeff does NOT have neuroendocrine or small cell!!! Additionally, his liver levels have been elevated the last 2 checks
Jeff’s PSA has been trending up since March. As of today, it dropped by 166! It was 476 and today he’s at 310! Woot woot! We saw the oncologist and bone biopsy results were back. Jeff does NOT have neuroendocrine or small cell!!! Additionally, his liver levels have been elevated the last 2 checks
Pancake_Lefse
in
Advanced Prostate Cancer
3 years ago
Necrotizing scleritis
I'm struggling with ongoing eye issues. I had uveitis in my right eye which seems to be clearing up. However, I've started having intense pain in the same eye. This was diagnosed as necrotizing scleritis by my ophthalmologist consultant. Was given more steroid eye drops and prednisolone increased.
I'm struggling with ongoing eye issues. I had uveitis in my right eye which seems to be clearing up. However, I've started having intense pain in the same eye. This was diagnosed as necrotizing scleritis by my ophthalmologist consultant. Was given more steroid eye drops and prednisolone increased.
PSAWarrior28
in
NRAS
3 years ago
Methotrexate issues
For those who have been on this drug; how long were you on the drug before you tried to reduce the prednisone? Also did you get floaters in the eyes from it? I just started taking it by injection twice a week but was not given any direction when to start reduction of pred. I never had floaters before
For those who have been on this drug; how long were you on the drug before you tried to reduce the prednisone? Also did you get floaters in the eyes from it? I just started taking it by injection twice a week but was not given any direction when to start reduction of pred. I never had floaters before
Linny3
in
PMRGCAuk
3 years ago
Telephone follow up conversation
I was so upset yesterday after my telephone follow up phone call from the hospital. Basically the person talked at me, saying I was ok, it was like a reading from a script. I had to interrupt and ask if it was possible for me to speak on three occasions. One of my questions was regard to driving, to
I was so upset yesterday after my telephone follow up phone call from the hospital. Basically the person talked at me, saying I was ok, it was like a reading from a script. I had to interrupt and ask if it was possible for me to speak on three occasions. One of my questions was regard to driving, to
Sunshine88888888
in
Glaucoma UK
3 years ago
Any Experiences with Palliative Care?
Any folks have experience with palliative care. I have had MBC for slightly over 5 years and currently taking Faslodex andt recently (4 months ago) added Ibrance. I've been given many painkillers from Tramadol to Oxy and even CBD and Medical Maraj. but all of them make my pain more intense. I'm miserable
Any folks have experience with palliative care. I have had MBC for slightly over 5 years and currently taking Faslodex andt recently (4 months ago) added Ibrance. I've been given many painkillers from Tramadol to Oxy and even CBD and Medical Maraj. but all of them make my pain more intense. I'm miserable
sunnyday3
in
SHARE Metastatic Breast Cancer
3 years ago
Trabeculectomy panicking
Hi everyone, just got back from seeing consultant and he wants to carry out a trab op. I nearly broke down in front of him. I feel sick with worry and anxiety. Don't know how I'm going to go through with it. Can anyone help me I'm feeling so depressed. Thank you
Hi everyone, just got back from seeing consultant and he wants to carry out a trab op. I nearly broke down in front of him. I feel sick with worry and anxiety. Don't know how I'm going to go through with it. Can anyone help me I'm feeling so depressed. Thank you
callie77
in
Glaucoma UK
3 years ago
About me
My name is Tracey and I'm 54 years old. I have 3 grown up children and 4 Grandchildren. I've worked in Social Care for over 23 years covering adults and children, Dementia, Mental Health, Learning Disabilities, Challenging Behaviour and Palliative Care. My hobbies include going to the gym, paddle
My name is Tracey and I'm 54 years old. I have 3 grown up children and 4 Grandchildren. I've worked in Social Care for over 23 years covering adults and children, Dementia, Mental Health, Learning Disabilities, Challenging Behaviour and Palliative Care. My hobbies include going to the gym, paddle
TraceyJCook
in
Mencap
3 years ago
Metabolic syndrome (disease) can be managed with IF.
Hi everyone, This is good news for sufferers of hereditary metabolic syndrome whose genetic makeup interferes with their metabolism resulting in obesity type 2 diabetes heart disease to name a few conditions that are of concern to sufferers and their families. Here's about Metabolic syndrome and a link
Hi everyone, This is good news for sufferers of hereditary metabolic syndrome whose genetic makeup interferes with their metabolism resulting in obesity type 2 diabetes heart disease to name a few conditions that are of concern to sufferers and their families. Here's about Metabolic syndrome and a link
Hidden
Administrator
in
Healthy Eating
3 years ago
COVID after 2 vaccines and PMR flareup
Covid & PMR I wonder if anyone else has had covid after two vaccines ( Moderna) and experienced PMR flareup. I was ill with covid for 2 weeks loss of taste is still a problem and tiredness. I was not completely bedridden and would consider I had it mildly coughing and needing to sleep each day. I was
Covid & PMR I wonder if anyone else has had covid after two vaccines ( Moderna) and experienced PMR flareup. I was ill with covid for 2 weeks loss of taste is still a problem and tiredness. I was not completely bedridden and would consider I had it mildly coughing and needing to sleep each day. I was
Pawscat11
in
PMRGCAuk
3 years ago
Does anyone experience excessive floaters in the eye?
Over the years I have experienced floaters in my eyes of various shapes and sizes. Two weeks ago I had my second cataract operation, over the last few I’m experiencing floaters which are more akin to black rain drops! Now and again they can make me jump, as it appears on looking down my top is covered
Over the years I have experienced floaters in my eyes of various shapes and sizes. Two weeks ago I had my second cataract operation, over the last few I’m experiencing floaters which are more akin to black rain drops! Now and again they can make me jump, as it appears on looking down my top is covered
Sunshine88888888
in
Glaucoma UK
3 years ago
My Ex is giving up
Yesterday my ex’s sister called to say the end is upon us and she granted me permission to see my ex. We communicated through squeezing (as much as he could squeeze) hands and eye contact with tears. I brought up episodes from our time together and we both just stared at each other ….. knowing there
Yesterday my ex’s sister called to say the end is upon us and she granted me permission to see my ex. We communicated through squeezing (as much as he could squeeze) hands and eye contact with tears. I brought up episodes from our time together and we both just stared at each other ….. knowing there
ConcernedEx
in
PSP Association
3 years ago
Myopic CNV 45 years old newly diagnosed in second eye. Just want a hug really
Hey I’m -15 in my left eye and -13 in my right. My left eye bled three years ago, I got avastin injections and all was right for a year. Then it recurred a year later, more injections then I was symptom free for two years then two weeks ago I saw the familiar scotoma…off for round three of eye jabs.
Hey I’m -15 in my left eye and -13 in my right. My left eye bled three years ago, I got avastin injections and all was right for a year. Then it recurred a year later, more injections then I was symptom free for two years then two weeks ago I saw the familiar scotoma…off for round three of eye jabs.
Mehness
in
Macular Society
3 years ago
CLL Society A patient Story: From color, such comfort!
CLL Society Patient Story: During decades of working in hospice and palliative care, CLL patient and artist True Ryndes experienced uncommon exposure to grief and loss. "I would, every so often, repaint rooms in our home, heeding some call or need." From color, such comfort! We are grateful to be able
CLL Society Patient Story: During decades of working in hospice and palliative care, CLL patient and artist True Ryndes experienced uncommon exposure to grief and loss. "I would, every so often, repaint rooms in our home, heeding some call or need." From color, such comfort! We are grateful to be able
bkoffman
CLL CURE Hero
in
CLL Support
3 years ago
Progress with Endo appointment
In June I finally got to see an Endo at The Royal Gwent Hospital Newport. He told me there’s no point having a scan now it should have been done in 2000 when I was diagnosed with Hyper thyroid is. He acknowledged that my T3 and T4 are low in range but my TSH is suppressed at 0.02. I had recently had
In June I finally got to see an Endo at The Royal Gwent Hospital Newport. He told me there’s no point having a scan now it should have been done in 2000 when I was diagnosed with Hyper thyroid is. He acknowledged that my T3 and T4 are low in range but my TSH is suppressed at 0.02. I had recently had
Esinedharry
in
Thyroid UK
3 years ago
Thyroid eye disease
Hi all I have Graves’ disease diagnosed 1 year ago, since then Iv developed thyroid eye disease in one eye, my eye is buldging and eye lid has retracted back. I am becoming more controlled now on my meds I started on 80mg carbimazole and am now down to 15mg a day with a normal TSH . My doctor says my
Hi all I have Graves’ disease diagnosed 1 year ago, since then Iv developed thyroid eye disease in one eye, my eye is buldging and eye lid has retracted back. I am becoming more controlled now on my meds I started on 80mg carbimazole and am now down to 15mg a day with a normal TSH . My doctor says my
Busyy
in
Thyroid UK
3 years ago
Leaving Pegasys behind
Saw new haematologist in Toulouse ( France)last week. After long discussion doctor’s advice was that I stop taking Pegasys. A decision I think I’d already realised I needed to take. I tolerated the drug well for 6-7 months, but for the last 4-5 months the side effects have been getting progressively
Saw new haematologist in Toulouse ( France)last week. After long discussion doctor’s advice was that I stop taking Pegasys. A decision I think I’d already realised I needed to take. I tolerated the drug well for 6-7 months, but for the last 4-5 months the side effects have been getting progressively
Ellipops
in
MPN Voice
3 years ago
I must take Dry Eye Drops
Hi everyone as you all know I had SLT last Tuesday and all went well and you all supported me with your lovely messages. Well over the weekend I felt my eye was getting blurry and was getting worried. Today I came home from work early has it did get really blurry and as most of you know I worry all the
Hi everyone as you all know I had SLT last Tuesday and all went well and you all supported me with your lovely messages. Well over the weekend I felt my eye was getting blurry and was getting worried. Today I came home from work early has it did get really blurry and as most of you know I worry all the
Hidden
in
Glaucoma UK
3 years ago
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