Progress with Endo appointment

[Esinedharry]

In June I finally got to see an Endo at The Royal Gwent Hospital Newport. He told me there’s no point having a scan now it should have been done in 2000 when I was diagnosed with Hyper thyroid is. He acknowledged that my T3 and T4 are low in range but my TSH is suppressed at 0.02. I had recently had an increase in Levo dose to 100mcg and this has really helped my symptoms. He did bloods and will see me again in 3 months but said he thinks if I stay with a suppressed TSH he will outline to me the risks of this and then it will be my decision if I wish to live with it and carry on on the 100mcg. In the meantime I went for cataract surgery on my left eye last Friday. The consultant there said she was very concerned as I have very poor blood flow to the back of my eyes. This was not identified in March by the optician who told me everything behind my eyes was normal. I have now been prescribed a blood thinner and my GP has been instructed to investigate the cause of this poor blood flow. The Opthalmic Consultant said the probable cause is hyperlipidaemia ! My blood pressure has also suddenly risen to a worryingly high level. I googled hyperlipidaemia and it says one of the causes could be Hypothyroidism. Anyone else had experience of this.?

[SlowDragon Administrator]

Previous post with results from 75mcg levothyroxine

healthunlocked.com/thyroidu...

Shows you were under medicated

What brand levothyroxine are you currently taking on 75mcg dose?

Folate and B12 far too low

Are you now supplementing to improve

No ferritin result.

When was ferritin last tested?

Vitamin D ok. But around 100nmol maybe better

Are you supplementing

Are you male or female?

Helpful to add on your profile

Approx age?

[Esinedharry in reply to SlowDragon]

I am 68 years old and female. I don’t have the blood results from the Endo yet but my GP at my request increased my Levo (Accord) to 100mcg. In May.

[pennyannie]

Hello Esinedharry :

So, the endocrinologist does not consider you worth investigating any further as it " should " have been done in 2000 and likely then your antibodes " should have been done " to see which thyroid auto immune disease you may and still are, dealing with.

So, there isn't the option to look back on the computer to see your medical history - or >>> forbid a file containing the paper results of your throid journey ??

The TSH was originally introduced as a diagnostic tool to help diagnose a case of hypothyroidism and was never intended to be used once the patient was on any form of thyroid hormone replacement.

Sadly in primary care all we get is the yearly thyroid function test that generally is just a TSH result with a computer advising the doctor of the dogma to follow.

The computer does not have your medical history, and doesn't know you from Adam.

It sounds like your doctor is blindly following the guidelines and dogma and not thinking of the patient's history, nor the implications of action taken without proper, thougth through, clinical judgement.

[Esinedharry]

I know. He really couldn’t care less. He was completely dismissive of the information I had gained from this group and became angry when I insisted that the information was gained from years of experience and research. He was clearly exasperated with all of my questions and in the end said ‘Well if you are prepared to take the risks associated (heart and osteoporosis) with a suppressed TSH that’s your decision. I will set out the risks and you must sign to say I have made you aware of them!” It is very difficult to find anyone who is interested!