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2022 Top Story in Metastatic Breast Cancer: Improving Discussions of Palliative Care
Published in Oncology and Expert Opinion / Commentary · December 19, 2022
Written by
Lillie D. Shockney RN, BS, MAS, HON-ONN-CG "Palliative care intervention provides meaningful benefit in end-of-life care planning for patients with metastatic breast cancer. We are long overdue in involving
Published in Oncology and Expert Opinion / Commentary · December 19, 2022
Written by
Lillie D. Shockney RN, BS, MAS, HON-ONN-CG "Palliative care intervention provides meaningful benefit in end-of-life care planning for patients with metastatic breast cancer. We are long overdue in involving
Hazelgreen
in
SHARE Metastatic Breast Cancer
2 years ago
Enhertu (Do your research first ALWAYS)
I am HER2- and was given this "infusion" on 11/18 after being told I was out of any more options and had about 3 months left. It has been hell since then. I do not believe it was the medication as I did in the beginning. I believe it was the errors of the cancer center I have been going to. I am
I am HER2- and was given this "infusion" on 11/18 after being told I was out of any more options and had about 3 months left. It has been hell since then. I do not believe it was the medication as I did in the beginning. I believe it was the errors of the cancer center I have been going to. I am
kearnan
in
SHARE Metastatic Breast Cancer
2 years ago
scaredycat!
Hi everyone my consultant is wanting me to have a cataract and stent op to bring my pressures down but iam terrified of being awake for any eye op. I actually asked him if he could put me to sleep and do it!!How does anyone get over this fear and anxiety. Have thought of nothing else for weeks. Surely
Hi everyone my consultant is wanting me to have a cataract and stent op to bring my pressures down but iam terrified of being awake for any eye op. I actually asked him if he could put me to sleep and do it!!How does anyone get over this fear and anxiety. Have thought of nothing else for weeks. Surely
callie77
in
Glaucoma UK
1 year ago
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Dry Eye Masks
Hi, can you use a dry eye mask if you have had both eyes operated with the Preserflo Microshunt. Had my eyes tested at the opticians and they suggested using one. Surely the hospital would have also suggested it? It’s the thought of putting something warm on both eyes and then the instructions to wipe
Hi, can you use a dry eye mask if you have had both eyes operated with the Preserflo Microshunt. Had my eyes tested at the opticians and they suggested using one. Surely the hospital would have also suggested it? It’s the thought of putting something warm on both eyes and then the instructions to wipe
Flowergirl24
in
Glaucoma UK
1 year ago
Unhappy experience with Specsavers
My elderly father visited Specsavers as instructed by the DVLA for his 3 yearly field test (he has glaucoma but this condition has been stable for years); my father is not computer literate and equates the field test equipment as a computer causing a lot of stress. The staff did not inform him he could
My elderly father visited Specsavers as instructed by the DVLA for his 3 yearly field test (he has glaucoma but this condition has been stable for years); my father is not computer literate and equates the field test equipment as a computer causing a lot of stress. The staff did not inform him he could
E853
in
Glaucoma UK
1 year ago
Iopidine after SLT
As I am so allergic to most eye drops yesterday I had SLT as the pressure has been going up. I read that after having this you can have a pressure spike and was really worried because after my cataract surgery the pressure went from 20 to34 and I had to take Acetazolamide for two weeks which made me
As I am so allergic to most eye drops yesterday I had SLT as the pressure has been going up. I read that after having this you can have a pressure spike and was really worried because after my cataract surgery the pressure went from 20 to34 and I had to take Acetazolamide for two weeks which made me
booktwo
in
Glaucoma UK
1 year ago
Concern about getting more Covid-19 vaccines.
I was diagnosed under 2 years ago. I guess I’ve had it since 2007. Just wondering about getting more Covid-19 vaccines. I have believed it is a good idea to get them. But every time I have I get some very odd things I’ve never experienced before. Rash. Sore in my eye. Eye infection. I cut my arm and
I was diagnosed under 2 years ago. I guess I’ve had it since 2007. Just wondering about getting more Covid-19 vaccines. I have believed it is a good idea to get them. But every time I have I get some very odd things I’ve never experienced before. Rash. Sore in my eye. Eye infection. I cut my arm and
Y5cc8j
in
CLL Support
1 year ago
Scared to death
Had my laser iridotomy today.Anxious all day.Had it done wasn't too bad.However my pressure spiked at 39. Started shaking. Doctor was fab.Gave me medication loads of drops Got to take tablets for 3 days and immflammatory drops for 7 days. Going to go back tomorrow to get pressuees checked.tablets run
Had my laser iridotomy today.Anxious all day.Had it done wasn't too bad.However my pressure spiked at 39. Started shaking. Doctor was fab.Gave me medication loads of drops Got to take tablets for 3 days and immflammatory drops for 7 days. Going to go back tomorrow to get pressuees checked.tablets run
Paula1710
in
Glaucoma UK
1 year ago
Mixed up with recent diagnosis
Hi everyone. It has been so good to read all the different posts about Glaucoma and Glaucoma suspect and interocular eye pressure. I was with private consultant here in Ireland just three days ago who did visual field test and put in the dye etc. to exam my optic nerve. She said optic nerve seemed normal
Hi everyone. It has been so good to read all the different posts about Glaucoma and Glaucoma suspect and interocular eye pressure. I was with private consultant here in Ireland just three days ago who did visual field test and put in the dye etc. to exam my optic nerve. She said optic nerve seemed normal
Emerneurosis
in
Glaucoma UK
1 year ago
Eye side effects on biologics for rheumatoid arthritis
Has anyone else has very dry and sore eyes on biologics? Did it get better over time or did you have to stop/ switch to an alternative? I had this with adalimumab (Amgevita) so switched to etanercept (Benepali) but the same thing is happening again. I’m so keen to get better but my eyes are very sore
Has anyone else has very dry and sore eyes on biologics? Did it get better over time or did you have to stop/ switch to an alternative? I had this with adalimumab (Amgevita) so switched to etanercept (Benepali) but the same thing is happening again. I’m so keen to get better but my eyes are very sore
Cocobean1
in
NRAS
1 year ago
Glycine
is glycine powder safe for Rls ? To use at night before bed? It helps me as well as magnesium glycinate but I am not using for rls. Anyone know?
is glycine powder safe for Rls ? To use at night before bed? It helps me as well as magnesium glycinate but I am not using for rls. Anyone know?
RCHD
in
Restless Legs Syndrome
1 year ago
APs and Fatigue
Hi I have had APS since 2016, living in Norway and have “fatigue”. This is by far the most demanding problem with my APS. I read on the APS support UK page the following recommendation: “Take 200-400g hydroxychloroquine daily. This drug has long been used to treat fatigue and joint pain in autoimmune
Hi I have had APS since 2016, living in Norway and have “fatigue”. This is by far the most demanding problem with my APS. I read on the APS support UK page the following recommendation: “Take 200-400g hydroxychloroquine daily. This drug has long been used to treat fatigue and joint pain in autoimmune
Jonr
in
Hughes Syndrome APS Forum
1 year ago
Not diagnosed yet, suffering for many years
Hi everyone, My name is Kimberly, I live in Northwestern United States. I have been struggling with symptoms for years and had no idea this could be MS. I’ve had a hard time going up stairs as well as walking on flat ground for several months, maybe a year. My legs feel as though they weigh a hundred
Hi everyone, My name is Kimberly, I live in Northwestern United States. I have been struggling with symptoms for years and had no idea this could be MS. I’ve had a hard time going up stairs as well as walking on flat ground for several months, maybe a year. My legs feel as though they weigh a hundred
GrmaK
in
My MSAA Community
1 year ago
Itchy eyes
I know that glaucoma makes our eyes sensitive, and I do use lubricating eye drops SO many times during the day, but I still find that my eyes - especially inner eye, and around the base of the lids - gets really itchy. And of course we can't scratch our eyes. So does anybody else find this, and if so
I know that glaucoma makes our eyes sensitive, and I do use lubricating eye drops SO many times during the day, but I still find that my eyes - especially inner eye, and around the base of the lids - gets really itchy. And of course we can't scratch our eyes. So does anybody else find this, and if so
PBX142
in
Glaucoma UK
1 year ago
Hi fellow sufferers.
I am new here but have suffered from wet AMD since January 2021 and have had several injections of Eylea in both eyes since. I am currently stable and on an 8 week re-check each time. I also suffer from diplopia (double vision) and this eye problem conflicts with the AMD disease making it difficult
I am new here but have suffered from wet AMD since January 2021 and have had several injections of Eylea in both eyes since. I am currently stable and on an 8 week re-check each time. I also suffer from diplopia (double vision) and this eye problem conflicts with the AMD disease making it difficult
Mando007
in
Macular Society
1 year ago
Ocular hypertension
I have ocular hypertension and narrow angles. I have had a successful iridotomy but my pressures remain between 20-30 . Never higher and never lower. My glaucoma consultant whom I saw this week is happy. My eyes are stable. Good visual fields. No optic nerve damage. I use Tiopex and Latanopost drops
I have ocular hypertension and narrow angles. I have had a successful iridotomy but my pressures remain between 20-30 . Never higher and never lower. My glaucoma consultant whom I saw this week is happy. My eyes are stable. Good visual fields. No optic nerve damage. I use Tiopex and Latanopost drops
EthelPledge94
in
Macular Society
1 year ago
mtx and adalimumab/ Idacio
Hi please could anyone let me know if they have changed from mtx tablets to Idacio ? I was told that you still have to take mtx tablets but at a lower dose with Idacio ? I was told biologics can work within a couple of weeks ?? I don't know if I want to go down the biologics route yet, I am a bit
Hi please could anyone let me know if they have changed from mtx tablets to Idacio ? I was told that you still have to take mtx tablets but at a lower dose with Idacio ? I was told biologics can work within a couple of weeks ?? I don't know if I want to go down the biologics route yet, I am a bit
lindyloo2018
in
NRAS
1 year ago
Amlopidine
Hi all...a few weeks ago there was a thread on here about a possible connection between high eye pressure/eye conditions and Amlopidine blood pressure tablets I have since attended two appointments at Kings College Hospital ....glaucoma clinic (I'm a glaucoma suspect) and medical retina clinic (
Hi all...a few weeks ago there was a thread on here about a possible connection between high eye pressure/eye conditions and Amlopidine blood pressure tablets I have since attended two appointments at Kings College Hospital ....glaucoma clinic (I'm a glaucoma suspect) and medical retina clinic (
EthelPledge94
in
Glaucoma UK
1 year ago
Just diagnosed
HiI've just been diagnosed with Primary Angle closure.Opthamologist says no glaucoma.Im on pilocarpine drops.Eye pressure both eyes 25.Apparantley my eyes are small.Have dry eyes too Bit scared to be honest having anxiety I'm having laser peripheral iridotomy I was shaking today getting the tests nearly
HiI've just been diagnosed with Primary Angle closure.Opthamologist says no glaucoma.Im on pilocarpine drops.Eye pressure both eyes 25.Apparantley my eyes are small.Have dry eyes too Bit scared to be honest having anxiety I'm having laser peripheral iridotomy I was shaking today getting the tests nearly
Paula1710
in
Glaucoma UK
1 year ago
Yes, Malecare helped write the ‘‘Comprehensive Cancer Survivorship Act’
I received several nice phone calls this morning, so I thought to share some good news and also highlight more of Malecare's brilliant work. Working with the congressional office of U.S. Rep. Debbie Wasserman Schultz (FL-23) and several of my counterparts, I, representing Malecare and the prostate cancer
I received several nice phone calls this morning, so I thought to share some good news and also highlight more of Malecare's brilliant work. Working with the congressional office of U.S. Rep. Debbie Wasserman Schultz (FL-23) and several of my counterparts, I, representing Malecare and the prostate cancer
Darryl
Partner
in
Advanced Prostate Cancer
2 years ago
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