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RGA 314 gene therapy
my doctor asked me to participate in phase 3 RGA 314 gene therapy for macular degeneration. I received the reading material to decide if I want to enter the clinical trials. When I read the possible ricks of the procedure, this statement worried me “once RGA 314 is given to you, there may not be a way
my doctor asked me to participate in phase 3 RGA 314 gene therapy for macular degeneration. I received the reading material to decide if I want to enter the clinical trials. When I read the possible ricks of the procedure, this statement worried me “once RGA 314 is given to you, there may not be a way
Slattery
in
Macular Society
1 year ago
EYE DROPS RECALLED
HI All, just thought it was a good idea to post after I read this worrying article on contaminated eye drops, the particular brands are in the US, as a user of preservative free eye drops everyday for my dry eyes, it was a good reminder to ensure I keep them clinically clean and use them only for short
HI All, just thought it was a good idea to post after I read this worrying article on contaminated eye drops, the particular brands are in the US, as a user of preservative free eye drops everyday for my dry eyes, it was a good reminder to ensure I keep them clinically clean and use them only for short
Annsandra13
in
Macular Society
1 year ago
Will my squint affect the outcome of the DVLA field test?
I recently advised the DVLA that I had Glaucoma and I have now received the "standard letter" from the DVLA telling me to book an appointment with Specsavers for my eyesight to be tested. I have my appointment on 27 March 2023 at 10.00am at the Totnes Branch of Specsavers. When I have had a field test
I recently advised the DVLA that I had Glaucoma and I have now received the "standard letter" from the DVLA telling me to book an appointment with Specsavers for my eyesight to be tested. I have my appointment on 27 March 2023 at 10.00am at the Totnes Branch of Specsavers. When I have had a field test
Rescobie
in
Glaucoma UK
1 year ago
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Uveitis treatment opinion please
I have been an intermediate uveitis patient ( vasculitis of the eye) for about 18 months now. Have had several steroid implants in the eye and has been on methotexrate injections for 6 months now. But the oedema due to vasculitis is coming back repeatedly. So seems like I have 2 options now in terms
I have been an intermediate uveitis patient ( vasculitis of the eye) for about 18 months now. Have had several steroid implants in the eye and has been on methotexrate injections for 6 months now. But the oedema due to vasculitis is coming back repeatedly. So seems like I have 2 options now in terms
Udupik
in
Vasculitis UK
1 year ago
Glaucoma patient
I have started using Collide silver to alleviate irritation I suffer using Glaucoma meds. I also use Optaze heat mask and wipes. I was using Hylo drops but get more relief using Collide silver. Any opinions?
I have started using Collide silver to alleviate irritation I suffer using Glaucoma meds. I also use Optaze heat mask and wipes. I was using Hylo drops but get more relief using Collide silver. Any opinions?
Stringwells
in
Glaucoma UK
1 year ago
Questions on PMR & GCA
The visit to my new Rheumatologist was unusual, she looked at me and just said, you don't have PMR or GCA within 5 minutes of consultation. No poking or touching. I presume because she had no results to go with we wait for tests to come back. So as to my previous post on the tests that I have just had
The visit to my new Rheumatologist was unusual, she looked at me and just said, you don't have PMR or GCA within 5 minutes of consultation. No poking or touching. I presume because she had no results to go with we wait for tests to come back. So as to my previous post on the tests that I have just had
Triumph650
in
PMRGCAuk
1 year ago
Intrusive thoughts of Ex
I can’t get over my ex for the life of me and it’s almost been a year . Thoughts pop up of her all day long , I get flashbacks of our relationship, fear at times , scared to leave my house since she lives close to me . What is this ? Trauma ? PTSD ? C-PTSD? It’s super sad . I’ve done EMDR
I can’t get over my ex for the life of me and it’s almost been a year . Thoughts pop up of her all day long , I get flashbacks of our relationship, fear at times , scared to leave my house since she lives close to me . What is this ? Trauma ? PTSD ? C-PTSD? It’s super sad . I’ve done EMDR
Sushi2345
in
Anxiety and Depression Support
1 year ago
Vision Issues
I'm a GCA patient since AUG 2022, having started with 60 MG PRED and decreased slowly to 20 MG PRED at this time. Ever since starting the PRED, I have noticed that my vision is fuzzy, blurry, etc. I thought it was a side effect of the PRED. But after slowly decreasing PRED for 7 months, my vision
I'm a GCA patient since AUG 2022, having started with 60 MG PRED and decreased slowly to 20 MG PRED at this time. Ever since starting the PRED, I have noticed that my vision is fuzzy, blurry, etc. I thought it was a side effect of the PRED. But after slowly decreasing PRED for 7 months, my vision
montebello
in
PMRGCAuk
1 year ago
Glaucoma, sight loss, and dyslexia
Hi, I would appreciate it if anyone has come across information or support about having the above issues. 😊
Hi, I would appreciate it if anyone has come across information or support about having the above issues. 😊
Maltakitty
in
Glaucoma UK
1 year ago
Hello from Manchester
Just to say hello - I have had a recent diagnosis of SLE - Lupus and grateful to have discovered Lupus UK - having spent too much time doom=scrolling and reading about Selena Gomez and kidney transplants. Wishing everyone a good day and positive mental health in our personal battles.
Just to say hello - I have had a recent diagnosis of SLE - Lupus and grateful to have discovered Lupus UK - having spent too much time doom=scrolling and reading about Selena Gomez and kidney transplants. Wishing everyone a good day and positive mental health in our personal battles.
ancoats23
in
LUPUS UK
1 year ago
Update
He cannot have dialysis because he is on palliative care
He cannot have dialysis because he is on palliative care
Carolsos
in
NRAS
1 year ago
Short course of Prednisone
I have developed some ringing in my ears and exploring all kinds of reasons for why. Had an episode of Nystagmus (dizziness) in Feb but it went away. Also seeing an eye doc to make sure eyes not related to ear ringing. Still on W&W 2.5 years. WBC is at 20. Primary care doc wants me to take a 6 day
I have developed some ringing in my ears and exploring all kinds of reasons for why. Had an episode of Nystagmus (dizziness) in Feb but it went away. Also seeing an eye doc to make sure eyes not related to ear ringing. Still on W&W 2.5 years. WBC is at 20. Primary care doc wants me to take a 6 day
CBME
in
CLL Support
1 year ago
Advice please - CBD
Hi all Just wondering if anyone can offer any words of advice. My dad has CBD and has recently been in hospital for 6 weeks. He has now been released home for palliative care. He is non-verbal, he has no mobility, he is doubley incontinent and is bedbound. My mum now has carers that come in 4 times
Hi all Just wondering if anyone can offer any words of advice. My dad has CBD and has recently been in hospital for 6 weeks. He has now been released home for palliative care. He is non-verbal, he has no mobility, he is doubley incontinent and is bedbound. My mum now has carers that come in 4 times
Stormtrooper4
in
PSP Association
1 year ago
SLT for Glaucoma
I had SLT a few years ago as my pressures were in the high 20's . An easy process done in a few minutes. My pressures dropped within days and settled at around 12/14 ever since. I later had Cataracts removed which had the additional benefit of maintaining low pressures. Ganfort drops had worked
I had SLT a few years ago as my pressures were in the high 20's . An easy process done in a few minutes. My pressures dropped within days and settled at around 12/14 ever since. I later had Cataracts removed which had the additional benefit of maintaining low pressures. Ganfort drops had worked
Safehaven23
in
Glaucoma UK
1 year ago
Gel nails & UV lamps
Hope this post finds you well 🙏🏽 My younger sister has recently been diagnosed with SLE and retinal vasculitis. As it’s very new to her, we are trying to adhere to any do’s and don’ts for her condition. She recently had gel nails done, forgetting about the need to not be exposed to UV rays, and is
Hope this post finds you well 🙏🏽 My younger sister has recently been diagnosed with SLE and retinal vasculitis. As it’s very new to her, we are trying to adhere to any do’s and don’ts for her condition. She recently had gel nails done, forgetting about the need to not be exposed to UV rays, and is
Gooner786
in
LUPUS UK
1 year ago
Lupus Eyes
Its been sometime since I have contacted Health unlocked about My BP/Asthma and also about my wife having Lupus. Can anyone please tell me about the medication causing red eyes and little hard bits around the eye lids. Thankyou in advance
Its been sometime since I have contacted Health unlocked about My BP/Asthma and also about my wife having Lupus. Can anyone please tell me about the medication causing red eyes and little hard bits around the eye lids. Thankyou in advance
just-typing
in
LUPUS UK
1 year ago
Epsom Salt and essential oils foot soak query
just a quick enquiry. I bought these lovely Epsom salts to give myself a relaxing foot soak but then read the list of essential oils and thought they might not be so good after all. 🤦♀️ I take flecainide, bisoprolol, warfarin and levothyroxine. Do foot soaks mean you absorb a lot of the essential
just a quick enquiry. I bought these lovely Epsom salts to give myself a relaxing foot soak but then read the list of essential oils and thought they might not be so good after all. 🤦♀️ I take flecainide, bisoprolol, warfarin and levothyroxine. Do foot soaks mean you absorb a lot of the essential
Gilli54
in
AF Association
1 year ago
Intramuscular Depo Injection resulting in Flare From Hell 3 days later…..
…..anyone else? Excruciating pain from actual injection site after 3 days accompanied by worse flare I’ve ever had. Maybe tomorrow will be better? PS…first couple of days my awful spinal pain lessened, also inflammation in hands. This is just completely debilitating…..and after so many many months
…..anyone else? Excruciating pain from actual injection site after 3 days accompanied by worse flare I’ve ever had. Maybe tomorrow will be better? PS…first couple of days my awful spinal pain lessened, also inflammation in hands. This is just completely debilitating…..and after so many many months
CallMeSunny
in
NRAS
1 year ago
Posterior vitreous detachment
Yesterday feeling great for the first time in ages. Did yoga with no impact on shoulders and then a bit of weeding. Then in the evening I noticed quite a prominent floater. It was still here this morning and joined by a cloud of tiny floaters that were hardly visible. It felt wrong so I got an emergency
Yesterday feeling great for the first time in ages. Did yoga with no impact on shoulders and then a bit of weeding. Then in the evening I noticed quite a prominent floater. It was still here this morning and joined by a cloud of tiny floaters that were hardly visible. It felt wrong so I got an emergency
Viveka
in
PMRGCAuk
1 year ago
This looks interesting :) I know people with PTSD who have benefited from EMDR ...
... so hope it will be beneficial to p/w FND too :) https://doi.org/10.1136/bmjopen-2023-073727
... so hope it will be beneficial to p/w FND too :) https://doi.org/10.1136/bmjopen-2023-073727
210272
in
Functional Neurological Disorder - FND Hope
1 year ago
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