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Uncontrollable use of toothbrush
My wife has PSP and in the last week when brushing her teeth she starts normally but then starts scrubbing them extremely hard and fast I have had to take the brush out of her hand forcibly. Today her gums were bleeding. This is with a manual toothbrush I am going to try her with an electric brush that
My wife has PSP and in the last week when brushing her teeth she starts normally but then starts scrubbing them extremely hard and fast I have had to take the brush out of her hand forcibly. Today her gums were bleeding. This is with a manual toothbrush I am going to try her with an electric brush that
Wombatz
in
PSP Association
1 year ago
balance issues
I have had glaucoma for years, last December 2023i had cataracts done to help with opening angles, then in March I had SLT & my pressures went down to 13&17 but since then my balance is not good, it hasn’t been good for long enough but worse now, could it be to do with when I am in shops with the light
I have had glaucoma for years, last December 2023i had cataracts done to help with opening angles, then in March I had SLT & my pressures went down to 13&17 but since then my balance is not good, it hasn’t been good for long enough but worse now, could it be to do with when I am in shops with the light
Hidden
in
Glaucoma UK
1 year ago
"Get a new therapist" 💔. Hurts so damn much. It's like a break up. The only decent therapist i had
So today i had an appointment i made more than two weeks ago when i was in a crisis. She told me she's really busy, i asked for the first available appointment, she gave me today. I called to say im not in the city and could we do it online, she said she was busy but i still told her this and she just
So today i had an appointment i made more than two weeks ago when i was in a crisis. She told me she's really busy, i asked for the first available appointment, she gave me today. I called to say im not in the city and could we do it online, she said she was busy but i still told her this and she just
Against_the_current
in
Anxiety and Depression Support
9 months ago
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Loss of Sharpness after Eylea injection
Hello folks. My name is Michael. For years I was receiving shots of Eylea by a doctor that I trusted completely. About 3 years ago I moved and it was just too far to travel to continue seeing this great doctor. I then continued Eylea injections with a new Retina man. On about the 4th visit I noticed,
Hello folks. My name is Michael. For years I was receiving shots of Eylea by a doctor that I trusted completely. About 3 years ago I moved and it was just too far to travel to continue seeing this great doctor. I then continued Eylea injections with a new Retina man. On about the 4th visit I noticed,
shobud71
in
Macular Society
1 year ago
latanoprost and headaches
hi I’ve been using latanoprost eye drops for 7 weeks now, I have suspicious discs and a family history of glaucoma ( mother) and when prescribed my pressures were 22 in both eyes. For the last week I have woken with a headache, and I’m wondering if this could be related to the eye drops, as this is
hi I’ve been using latanoprost eye drops for 7 weeks now, I have suspicious discs and a family history of glaucoma ( mother) and when prescribed my pressures were 22 in both eyes. For the last week I have woken with a headache, and I’m wondering if this could be related to the eye drops, as this is
Popsicle57
in
Glaucoma UK
1 year ago
Would anyone be willing to share the past DVLA Group 1 Visual Field Test Results and DVLA response.
Hi All, I am a 50 year old male from England. I was recently advised by my consultant that I should report my Glaucoma to DVLA. Which I have done a few weeks ago and straight away got a letter from them to go and get a Group 1 Visual Field Test at Spec savers. Yesterday was the day of the big
Hi All, I am a 50 year old male from England. I was recently advised by my consultant that I should report my Glaucoma to DVLA. Which I have done a few weeks ago and straight away got a letter from them to go and get a Group 1 Visual Field Test at Spec savers. Yesterday was the day of the big
hathiams
in
Glaucoma UK
1 year ago
Things that made a difference...
Trigger: Late loss and live birth mentions Quick list of things that worked for me after 3 years of IVF treatment , 6 rounds, a late loss at 18 weeks, and finally a live birth at 43 years old. I was lucky to have lots of eggs (averaging 14 each collection), good number of blasts (averaging 4 per
Trigger: Late loss and live birth mentions Quick list of things that worked for me after 3 years of IVF treatment , 6 rounds, a late loss at 18 weeks, and finally a live birth at 43 years old. I was lucky to have lots of eggs (averaging 14 each collection), good number of blasts (averaging 4 per
SB342
in
Fertility Network UK
10 months ago
Bioflex PMBT Device
Does anyone have any information or experience with the photobiomodulation (light delivered via low level laser) therapy device sold by the Bioflex Company located in Toronto, CA? Their claim is it energizes mitochondria, lowers inflammation, and promotes healing. Thanks - John G
Does anyone have any information or experience with the photobiomodulation (light delivered via low level laser) therapy device sold by the Bioflex Company located in Toronto, CA? Their claim is it energizes mitochondria, lowers inflammation, and promotes healing. Thanks - John G
reedboat2
in
Cure Parkinson's
1 year ago
Eye drops for dry eyes
I am sorry to hear that some members of the group have been denied the opportunity to get these on free prescriptions as they can be very beneficial I have Glaucoma and apply eye drops 4 times a day and have been prescribed the following for dry eyes over the years Hyaback,Visu Evo,Clinatas and Thealoz
I am sorry to hear that some members of the group have been denied the opportunity to get these on free prescriptions as they can be very beneficial I have Glaucoma and apply eye drops 4 times a day and have been prescribed the following for dry eyes over the years Hyaback,Visu Evo,Clinatas and Thealoz
lesphoto
in
Glaucoma UK
1 year ago
Does anyone else over 60 with Glaucoma pay for eye lubrication in the UK ?
Apparently North East Essex patients have to pay for eye lubricants, also some areas of Somerset. Does anyone else ? It would be very useful to know. HRT now only costs £20 a year available to all women (probably only needed for a few years), so why not all Gaucoma medications ? Is lifetime conservation
Apparently North East Essex patients have to pay for eye lubricants, also some areas of Somerset. Does anyone else ? It would be very useful to know. HRT now only costs £20 a year available to all women (probably only needed for a few years), so why not all Gaucoma medications ? Is lifetime conservation
muddledme
in
Glaucoma UK
1 year ago
Glaucoma in babies
is conjunctivitis common with baby glaucoma patients? My daughters had it a few times now. She was diagnosed at 10 weeks old
is conjunctivitis common with baby glaucoma patients? My daughters had it a few times now. She was diagnosed at 10 weeks old
EmilyEvelyn
in
Glaucoma UK
1 year ago
Glasses for eye infection
Had bells palsy for almost 2 months. Palsy eye has an infection. Used antibiotic gel twice. Healing slowly when indoors applying eye drops frequently and using night ointment. Going outside makes eye super dry. Tried normal glasses...not enough protection. Saw moisture chamber glasses with detachable
Had bells palsy for almost 2 months. Palsy eye has an infection. Used antibiotic gel twice. Healing slowly when indoors applying eye drops frequently and using night ointment. Going outside makes eye super dry. Tried normal glasses...not enough protection. Saw moisture chamber glasses with detachable
Gree88
in
Facial Palsy UK
1 year ago
NHS Somerset C.C.G have said they will not prescribe eye lubricants on prescription
Recently I have had difficulty obtaining my regular eye lubrication from the pharmacy and last week the G.P surgery told me that I would have to buy my own eye medication. I was given a leaflet explaining that the Somerset CCG considers these lubricating drops of limited clinical value and for minor
Recently I have had difficulty obtaining my regular eye lubrication from the pharmacy and last week the G.P surgery told me that I would have to buy my own eye medication. I was given a leaflet explaining that the Somerset CCG considers these lubricating drops of limited clinical value and for minor
muddledme
in
Glaucoma UK
1 year ago
eye stroke or retinal artery occlusion ; any experiences
3 am, I go blind in my right eye for and hour. Next day see eye dr, he calls cardio,2nd day see primary dr,3rd day see cardio- mri, ct scan, echo, tee scan. results leaking Watchman, Patent Foramen Ovale (PFO) from ablations; end results back on Xarelto( " put the watchman in and never take blood thinners
3 am, I go blind in my right eye for and hour. Next day see eye dr, he calls cardio,2nd day see primary dr,3rd day see cardio- mri, ct scan, echo, tee scan. results leaking Watchman, Patent Foramen Ovale (PFO) from ablations; end results back on Xarelto( " put the watchman in and never take blood thinners
champdoberman
in
AF Association
1 year ago
Update
He cannot have dialysis because he is on palliative care
He cannot have dialysis because he is on palliative care
Carolsos
in
NRAS
1 year ago
RGA 314 gene therapy
my doctor asked me to participate in phase 3 RGA 314 gene therapy for macular degeneration. I received the reading material to decide if I want to enter the clinical trials. When I read the possible ricks of the procedure, this statement worried me “once RGA 314 is given to you, there may not be a way
my doctor asked me to participate in phase 3 RGA 314 gene therapy for macular degeneration. I received the reading material to decide if I want to enter the clinical trials. When I read the possible ricks of the procedure, this statement worried me “once RGA 314 is given to you, there may not be a way
Slattery
in
Macular Society
1 year ago
Advice please - CBD
Hi all Just wondering if anyone can offer any words of advice. My dad has CBD and has recently been in hospital for 6 weeks. He has now been released home for palliative care. He is non-verbal, he has no mobility, he is doubley incontinent and is bedbound. My mum now has carers that come in 4 times
Hi all Just wondering if anyone can offer any words of advice. My dad has CBD and has recently been in hospital for 6 weeks. He has now been released home for palliative care. He is non-verbal, he has no mobility, he is doubley incontinent and is bedbound. My mum now has carers that come in 4 times
Stormtrooper4
in
PSP Association
1 year ago
EYE DROPS RECALLED
HI All, just thought it was a good idea to post after I read this worrying article on contaminated eye drops, the particular brands are in the US, as a user of preservative free eye drops everyday for my dry eyes, it was a good reminder to ensure I keep them clinically clean and use them only for short
HI All, just thought it was a good idea to post after I read this worrying article on contaminated eye drops, the particular brands are in the US, as a user of preservative free eye drops everyday for my dry eyes, it was a good reminder to ensure I keep them clinically clean and use them only for short
Annsandra13
in
Macular Society
1 year ago
Will my squint affect the outcome of the DVLA field test?
I recently advised the DVLA that I had Glaucoma and I have now received the "standard letter" from the DVLA telling me to book an appointment with Specsavers for my eyesight to be tested. I have my appointment on 27 March 2023 at 10.00am at the Totnes Branch of Specsavers. When I have had a field test
I recently advised the DVLA that I had Glaucoma and I have now received the "standard letter" from the DVLA telling me to book an appointment with Specsavers for my eyesight to be tested. I have my appointment on 27 March 2023 at 10.00am at the Totnes Branch of Specsavers. When I have had a field test
Rescobie
in
Glaucoma UK
1 year ago
Uveitis treatment opinion please
I have been an intermediate uveitis patient ( vasculitis of the eye) for about 18 months now. Have had several steroid implants in the eye and has been on methotexrate injections for 6 months now. But the oedema due to vasculitis is coming back repeatedly. So seems like I have 2 options now in terms
I have been an intermediate uveitis patient ( vasculitis of the eye) for about 18 months now. Have had several steroid implants in the eye and has been on methotexrate injections for 6 months now. But the oedema due to vasculitis is coming back repeatedly. So seems like I have 2 options now in terms
Udupik
in
Vasculitis UK
1 year ago
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