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Experiences with
Hydroxycarbamide
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Hydroxyurea vs aspirin question
This is my first post: I was diagnosed with ET two days ago. (Am male, age 62, in fairly good health and am active, despite a neuro-muscular disease - see below.) The oncologist here in the US prescribed low-dose aspirin and Hydrea (Hydroxyurea), which I started taking that day, i.e. I've been on it
This is my first post: I was diagnosed with ET two days ago. (Am male, age 62, in fairly good health and am active, despite a neuro-muscular disease - see below.) The oncologist here in the US prescribed low-dose aspirin and Hydrea (Hydroxyurea), which I started taking that day, i.e. I've been on it
Isoruku
in
MPN Voice
7 years ago
learning about ET
following this blood tests confirmed ET Jak2 Positive, my platelets were high at 843, after many hosp appts and treatment I have just been told they are now down too 455, I am on
Hydroxycarbamide
1000mg Monday-Saturday and 500mg on a Sunday, I also take clopidigrel daily, Can anyone tell me if these
following this blood tests confirmed ET Jak2 Positive, my platelets were high at 843, after many hosp appts and treatment I have just been told they are now down too 455, I am on
Hydroxycarbamide
1000mg Monday-Saturday and 500mg on a Sunday, I also take clopidigrel daily, Can anyone tell me if these
tina6
in
MPN Voice
8 years ago
What time of day to take Hydroxy?
I've got ET and started taking
Hydroxycarbamide
10 days ago. I'm taking it in the early morning with various other tablets. I'm now wondering whether this is a good idea. I have read on here that many people suffer from exhaustion as a side-effect.
I've got ET and started taking
Hydroxycarbamide
10 days ago. I'm taking it in the early morning with various other tablets. I'm now wondering whether this is a good idea. I have read on here that many people suffer from exhaustion as a side-effect.
ChrisAnnSen
in
MPN Voice
8 years ago
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Dental Fillings and Hydroxycarbamide
I've just started on Hydroxy and went to the dentist for a filling. When I told him what I was taking he didn't want to give me a numbing injection as he didn't want to put more chemicals into my body. I was a big brave girl and had the filling done without it. (He'd assured me it wouldn't hurt as he
I've just started on Hydroxy and went to the dentist for a filling. When I told him what I was taking he didn't want to give me a numbing injection as he didn't want to put more chemicals into my body. I was a big brave girl and had the filling done without it. (He'd assured me it wouldn't hurt as he
ChrisAnnSen
in
MPN Voice
8 years ago
Breathlessness and Hydroxyurea
I have been on Hydroxyurea for PV for 3 years or so, and have now developed marked breathlessness which is beginning to get problematic. I am having cardiac investigation 24-hr holter), but just read Maz's response from some months ago about side-effects on the lungs from Hydrea: sounds like me! What
I have been on Hydroxyurea for PV for 3 years or so, and have now developed marked breathlessness which is beginning to get problematic. I am having cardiac investigation 24-hr holter), but just read Maz's response from some months ago about side-effects on the lungs from Hydrea: sounds like me! What
lucieboo
in
MPN Voice
7 years ago
Does anyone have any info whether Interferon is contraindicated if you have a history of PE or other thrombolytic event ?
Hi I was diagnosed with Pv in September 2016. My platelets have constantly been rising -They are now 1,300,000 My haematologist commenced me on anagrelide 4 weeks ago but platelets still rising She has increased my anagrelide but said she would like to change me on to pegasys interferon but is
Hi I was diagnosed with Pv in September 2016. My platelets have constantly been rising -They are now 1,300,000 My haematologist commenced me on anagrelide 4 weeks ago but platelets still rising She has increased my anagrelide but said she would like to change me on to pegasys interferon but is
Dianne-Guisborough
in
MPN Voice
7 years ago
Trying Something New
http://nattokinasehearthealth.com/20/what-is-nattokinase-and-health-benefits/ http://nattokinasehearthealth.com/60/what-is-lumbrokinase/ http://nattokinasehearthealth.com/142/serrapeptase-benefits/ This is the third time I am trying to write this post. I keep clicking on the wrong thing and losing my
http://nattokinasehearthealth.com/20/what-is-nattokinase-and-health-benefits/ http://nattokinasehearthealth.com/60/what-is-lumbrokinase/ http://nattokinasehearthealth.com/142/serrapeptase-benefits/ This is the third time I am trying to write this post. I keep clicking on the wrong thing and losing my
Cynt-ann53
in
Sickle Cell Society
8 years ago
Ulcers
I have had ET for over5 years-treated successfully with
Hydroxycarbamide
. This last5 monthe=s ,following a fall I got an infection in my foot.All cleared up apart from what seems like a pressure ulcer on my r.ankle bomne. Now the left ankle bone has followed suit.
I have had ET for over5 years-treated successfully with
Hydroxycarbamide
. This last5 monthe=s ,following a fall I got an infection in my foot.All cleared up apart from what seems like a pressure ulcer on my r.ankle bomne. Now the left ankle bone has followed suit.
bossybo
in
MPN Voice
8 years ago
Commencing anagrelide
Hi I was diagnosed with polycythemia jak2 + in November 2016 and up until now have been treated with warfarin , clopidergrol and weekly venesections . Today my haematologist has commenced me on anagrelide 500mcgs twice per day as my platelets are between 850,000 and 1.03 million most of the time
Hi I was diagnosed with polycythemia jak2 + in November 2016 and up until now have been treated with warfarin , clopidergrol and weekly venesections . Today my haematologist has commenced me on anagrelide 500mcgs twice per day as my platelets are between 850,000 and 1.03 million most of the time
Dianne-Guisborough
in
MPN Voice
8 years ago
Long term effects
So I saw my Heam today and blood levels are still ok, however he mentioned about me being too young to be on
Hydroxycarbamide
, however the Interferon puts me in hospital and although I have approval for the Rux we need to hold off until I have my liver transplant....which is fine and I agree with him
So I saw my Heam today and blood levels are still ok, however he mentioned about me being too young to be on
Hydroxycarbamide
, however the Interferon puts me in hospital and although I have approval for the Rux we need to hold off until I have my liver transplant....which is fine and I agree with him
Chelle_
in
MPN Voice
8 years ago
I'm new here, I have ET - does anyone also have IIH?
I now take aspirin and
Hydroxycarbamide
and eveything looks good. I do not take any other medication and have no more headaches. I am in the intermediate age group (40-60) with no other health issues and so could stop the
Hydroxycarbamide
.
I now take aspirin and
Hydroxycarbamide
and eveything looks good. I do not take any other medication and have no more headaches. I am in the intermediate age group (40-60) with no other health issues and so could stop the
Hydroxycarbamide
.
CurlyKale
in
MPN Voice
8 years ago
Sores in the mouth
I have just taken my second table of
Hydroxycarbamide
. So far, so good. I am writing a 'just in case' post as I know that a lot people on this drug have mouth sores.
I have just taken my second table of
Hydroxycarbamide
. So far, so good. I am writing a 'just in case' post as I know that a lot people on this drug have mouth sores.
Splb3317
in
MPN Voice
8 years ago
Apprehensive about returning to work......
Hi everyone I have been off work since October due to 2 splenic infarcts and my recent diagnosis of JAK 2 positive MPN, most likely ET (consultant will not 100% confirm the ET!!). I take daily aspirin and 500mg Hydroxyurea 4 times a week and am feeling generally quite well. I am due to return to my full
Hi everyone I have been off work since October due to 2 splenic infarcts and my recent diagnosis of JAK 2 positive MPN, most likely ET (consultant will not 100% confirm the ET!!). I take daily aspirin and 500mg Hydroxyurea 4 times a week and am feeling generally quite well. I am due to return to my full
Janlol
in
MPN Voice
8 years ago
Hydroxycarbamide - the best time to take it
Hi everyone. It's strange - I use a computer for Emails, reports, letters etc. I text on the phone, but each time I put a post on here, I make a mistake and put it in a reply box. Well , I'll try again. My "reply" post was a bit long so I'll summarise. I am due to start Hydroxy, immediately after
Hi everyone. It's strange - I use a computer for Emails, reports, letters etc. I text on the phone, but each time I put a post on here, I make a mistake and put it in a reply box. Well , I'll try again. My "reply" post was a bit long so I'll summarise. I am due to start Hydroxy, immediately after
Splb3317
in
MPN Voice
8 years ago
ET and antibiotics.
70 yrs old, ET, JAK2+,
Hydroxycarbamide
500-1000mg daily, Warfarin 5mg, aspirin 81mg, factor V Leiden, peripheral neuropathy, intense burning in toes, no finger prints, numb aching shaking hands. Bone pain. Poor circulation. Slightest wounds won't heal and almost always infected.
70 yrs old, ET, JAK2+,
Hydroxycarbamide
500-1000mg daily, Warfarin 5mg, aspirin 81mg, factor V Leiden, peripheral neuropathy, intense burning in toes, no finger prints, numb aching shaking hands. Bone pain. Poor circulation. Slightest wounds won't heal and almost always infected.
Jerrymohler
in
MPN Voice
8 years ago
hydroxyurea
Read testimonials from around the world about the only approved medication for sickle cell disorder at www.scdjournal.com/editions/hydroxyurea
Read testimonials from around the world about the only approved medication for sickle cell disorder at www.scdjournal.com/editions/hydroxyurea
sicklecellnews
in
Sickle Cell Society
8 years ago
Stiff joints in hands
Hi I am ET JAK2 positive and am taking aspirin daily and 500 mg
hydroxycarbamide
4 days and 1000 mg 3 days.
Hi I am ET JAK2 positive and am taking aspirin daily and 500 mg
hydroxycarbamide
4 days and 1000 mg 3 days.
Jane-r
in
MPN Voice
8 years ago
Sudden nausia
Cll and et, on hydroxyurea for high platelets(Et)... Every once in a while I get sudden nausia, only lasts maybe 5 mins. I try to stay hydrated but wondered if with my uber dry skin,torso and legs almost covered with petechae and sporadic heart palpitations if my dry skin being a rather large organ might
Cll and et, on hydroxyurea for high platelets(Et)... Every once in a while I get sudden nausia, only lasts maybe 5 mins. I try to stay hydrated but wondered if with my uber dry skin,torso and legs almost covered with petechae and sporadic heart palpitations if my dry skin being a rather large organ might
kitcat49
in
CLL Support
8 years ago
1st Time
Hello, I was diagnosed with PRV/ET just over a year ago and am on a daily dose of
Hydroxycarbamide
. I would like to know how others are getting on.
Hello, I was diagnosed with PRV/ET just over a year ago and am on a daily dose of
Hydroxycarbamide
. I would like to know how others are getting on.
ARW99
in
Leukaemia Support
8 years ago
Eczema & MPN's & Hydroxycarbamide
Occasionally, I get very dry skin in between my fingers which can lead to tiny little cuts and these are very irritating at times. I was prescribed epiderm which works very well. I just wondered whether anyone else has the same problem and whether it's because of the HU or MPN? Regards Mark
Occasionally, I get very dry skin in between my fingers which can lead to tiny little cuts and these are very irritating at times. I was prescribed epiderm which works very well. I just wondered whether anyone else has the same problem and whether it's because of the HU or MPN? Regards Mark
MarkD6701
in
MPN Voice
8 years ago
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