Hello everyone and Happy New Year.
So I saw my Heam today and blood levels are still ok, however he mentioned about me being too young to be on Hydroxycarbamide, however the Interferon puts me in hospital and although I have approval for the Rux we need to hold off until I have my liver transplant....which is fine and I agree with him, whilst I'm stable let's not rock the boat and all. But he mentioned about long term effects of being on hydroxy and that we will deal with that when the time comes, but I have so much going on in my head I didn't dare ask what he meant....so I turn to you (sure there's a spice girls song there somewhere 😆) have any of you experienced long term effects, or heard of any....or maybe point me in the right direction of someone who might have an answer.
I think he's talking about increased chance of skin cancer and maybe moving from PV to MF or AML....
Much love and hope your all well xx