I've got ET and started taking Hydroxycarbamide 10 days ago. I'm taking it in the early morning with various other tablets. I'm now wondering whether this is a good idea.
I have read on here that many people suffer from exhaustion as a side-effect. As I'm only taking 1 capsule a day I don't think I am experiencing this although I do get sleepy in the afternoon (this could just be indolence and the fact that it is mid winter). I also have difficulty with getting to sleep at night (even if I haven't succumbed to an afternoon snooze) and wondered whether I could harness the tiredness side-effect to help me sleep.
I appreciate that if I do decide to take it at a different time of day I will have to make a gradual change as the instructions specifically state to keep to the same time each day.
I was just wondering what other people do and what is generally thought to be the best time to take it.
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ChrisAnnSen
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Hi ChrisAnnSen, I have been on hydroxycarbamide for nearly a year now. I made the decision to take my aspirin after breakfast and the hydroxycarbamide after my evening meal. This suits me fine, and I have had no adverse side effects to date.
Now that I know more about hydroxy it does certainly make more sense Mary - I just wish I'd known that 10 days ago when I started out (I didn't find this Forum until afterwards).
Hi, I was on Hydroxy for two years and started taking it in the morning then saw advice on here to take it at bed time so I changed to that with no problems. I was advised that if one had any side effects taking it at bed time would allow one to sleep through the worst. Best wishes, Frances.
Hi luv, I take 2 tablets. I found if I took them in the morning I was so sleepy so took everyone's advice and started taking them at night. Much better. Swapped straight over from morning to night with no problems.
I took my hydroxy in the evening on the consultants advice, theoretically it lessens the fatigue! I'm on Anagrelide now which I take morning and evening.
I take it in the evening, just before I lie down in bed, and I find I'm fast asleep in no time. I think you could just switch your time to take it - there have been a few times when I
travelled that I've been off a bit with the usual timeI to take it and its been fine. Best of luck(incidentally I found myself fatigued and thought it was the hydroxy - it turned out to be my thyroid) but everyone is different.
Thanks so much for your comments. I'm definitely going to start taking it in the evening rather than morning. I also think it will be just before I go to bed as sometimes our evening meal is at home and other time with friends and then I would most likely forget. I'm very good at forgetting to do things these days ... and have been for a while so can't blame it on the meds.
I take 3x 500mgs daily and have been on this dose or higher for a year. I take mine either before or after my evening meal. In the beginning I suffered ever side effect on the leaflet but now they are very few and far between. I take them at night because if any side effects were to rear their ugly head, I would be asleep!
Evening looks to be the most popular. I've now changed my time to about 10:00 pm - hoping that the glass of water I take with it doesn't interrupt my sleep.
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