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Experiences with
Hydroxycarbamide
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First time on Hydroxyurea
Hi all. Can’t sleep tonight and thought of sharing my fears. I am terrified as everybody who starts medication. I am 67 years old and active. 15 years now was on aspirin only, with platelets around 550-700. Lately my haematocrit started to rise, now 51 with very low iron and ferritin. I have Jack 2
Hi all. Can’t sleep tonight and thought of sharing my fears. I am terrified as everybody who starts medication. I am 67 years old and active. 15 years now was on aspirin only, with platelets around 550-700. Lately my haematocrit started to rise, now 51 with very low iron and ferritin. I have Jack 2
Kelly2
in
MPN Voice
6 years ago
Hydroxycarbamide
Hi it’s taken two years on
hydroxycarbamide
to get my platelets to 400 has anyone else had this experience?
Hi it’s taken two years on
hydroxycarbamide
to get my platelets to 400 has anyone else had this experience?
PhilReade
in
MPN Voice
6 years ago
Amlodopine
Is anyone else taking blood pressure medication as well as clopidogrel and
hydroxycarbamide
.? I am currently still taking amlodopine and bendroflumethiazide. Thankyou
Is anyone else taking blood pressure medication as well as clopidogrel and
hydroxycarbamide
.? I am currently still taking amlodopine and bendroflumethiazide. Thankyou
Juliet46
in
MPN Voice
6 years ago
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Coq10
I’m on a statin and hydroxyurea I am wondering if there r any problems with taking coq10 when on hydroxy
I’m on a statin and hydroxyurea I am wondering if there r any problems with taking coq10 when on hydroxy
Petsch
in
MPN Voice
6 years ago
Symptoms!
Hello Everybody Just a question to people who have symptoms, did they start right away when you took
hydroxycarbamide
or when it builds up in your system. Thankyou
Hello Everybody Just a question to people who have symptoms, did they start right away when you took
hydroxycarbamide
or when it builds up in your system. Thankyou
Juliet46
in
MPN Voice
6 years ago
Hydroxyurea with eliquis or aspirin
My husband was diagnosed with Polycythemia vera and chronic thrombosis in the left leg. I am concerned of the side affects of Eliquis with Hydroxyurea. If anyone was diagnosed with PV and thrombis in the leg, can you please let me know what medications you are taking and if I should be concerned. Thank
My husband was diagnosed with Polycythemia vera and chronic thrombosis in the left leg. I am concerned of the side affects of Eliquis with Hydroxyurea. If anyone was diagnosed with PV and thrombis in the leg, can you please let me know what medications you are taking and if I should be concerned. Thank
sandswims
in
MPN Voice
6 years ago
Et
Hydroxyurea
Hydroxyurea
Petsch
in
MPN Voice
6 years ago
Side effects!
Hello I wondered why no one replied to my post and then realised it was total nonsense, I meant to ask everyone if, when you started to take
hydroxycarbamide
, if you had side effects, did you have them right away or did they build up over time Thankyou
Hello I wondered why no one replied to my post and then realised it was total nonsense, I meant to ask everyone if, when you started to take
hydroxycarbamide
, if you had side effects, did you have them right away or did they build up over time Thankyou
Juliet46
in
MPN Voice
6 years ago
Newly diagnosed with pv
Once phlebotomy gets my blood normal I am commencing
hydroxycarbamide
. The thing is I am just terribly exhausted.and although my blood picture is almost normal now ,I get this horrible head fog. Can anyone give me some advice or reassurance about this. I've read quite alot on this fantastic site .
Once phlebotomy gets my blood normal I am commencing
hydroxycarbamide
. The thing is I am just terribly exhausted.and although my blood picture is almost normal now ,I get this horrible head fog. Can anyone give me some advice or reassurance about this. I've read quite alot on this fantastic site .
Carolyn77
in
MPN Voice
6 years ago
I'm new and would like help
I'm new to posting on any boards, I'm on
hydroxycarbamide
, nearly 2 months now and and feeling nausea every day - I am very anxious. What can I do to help myself?
I'm new to posting on any boards, I'm on
hydroxycarbamide
, nearly 2 months now and and feeling nausea every day - I am very anxious. What can I do to help myself?
Imogen82
in
MPN Voice
6 years ago
just wondering what side effects come with hydroxycarbamide.
I was recently fitted with a pacemaker. a few weeks afterwards I went for pacing where the tech was concerned that he couldn't get my heart rate lower than 90 bpm and that is how things stood until I read an article that stated that it causes a fast heart beat. Now I'm wondering which would be more important
I was recently fitted with a pacemaker. a few weeks afterwards I went for pacing where the tech was concerned that he couldn't get my heart rate lower than 90 bpm and that is how things stood until I read an article that stated that it causes a fast heart beat. Now I'm wondering which would be more important
fairenough
in
LDN Research Trust
6 years ago
PREDNISONE AND ASPIRIN
However in March 2017 I was diagnosed with Polycythemia and was put on 75 mg of Aspirin and 500 mg of
Hydroxycarbamide
. , I have just read on this forum that Aspirin and Prednisone should not be given together because of drug interaction.
However in March 2017 I was diagnosed with Polycythemia and was put on 75 mg of Aspirin and 500 mg of
Hydroxycarbamide
. , I have just read on this forum that Aspirin and Prednisone should not be given together because of drug interaction.
Heather270240
in
PMRGCAuk
6 years ago
Anyone on hydroxyurea for calr positive? Any side effects?
Hi all I am 48yo, female diagnoised carl positive 2yrs ago and i did not start with any medication till yesterday dr wanted me to start with hydroxyurea 500mg, mon-fri which i am still very reluctant. My count was 713, texted yesterday. I am not on aspirin as well. I read alot on the side effects and
Hi all I am 48yo, female diagnoised carl positive 2yrs ago and i did not start with any medication till yesterday dr wanted me to start with hydroxyurea 500mg, mon-fri which i am still very reluctant. My count was 713, texted yesterday. I am not on aspirin as well. I read alot on the side effects and
swess
in
MPN Voice
6 years ago
Hydroxycarbamide & nauseous
I started on
Hydroxycarbamide
earlier this week, I feel ok ish!!! But do have a constant nauseous feeling, can anyone suggest anything to take which might help xxxx
I started on
Hydroxycarbamide
earlier this week, I feel ok ish!!! But do have a constant nauseous feeling, can anyone suggest anything to take which might help xxxx
Sueworthington
in
MPN Voice
7 years ago
Sticky Eyes / Dry Nasal Passage
Does anyone else suffer from dry eyes & nose who are on
Hydroxycarbamide
? Or have I got something else going on that I should see my GP. (Added later. . . I meant to say go back to my GP again as first visit, I was just told it’s something you have to live with)
Does anyone else suffer from dry eyes & nose who are on
Hydroxycarbamide
? Or have I got something else going on that I should see my GP. (Added later. . . I meant to say go back to my GP again as first visit, I was just told it’s something you have to live with)
Raphael_UK
in
MPN Voice
7 years ago
Polycythemia Vera
Hello,I'm new to the group and I'm so glad I found this site. I was diagnosed with pv 6 months ago. I was put on Hydroxyurea and did fine until about a month ago. Every day when I take my 81 mg aspirin and my cholesterol med I get a headache and a very heavy gravity type feeling all thru my body. My
Hello,I'm new to the group and I'm so glad I found this site. I was diagnosed with pv 6 months ago. I was put on Hydroxyurea and did fine until about a month ago. Every day when I take my 81 mg aspirin and my cholesterol med I get a headache and a very heavy gravity type feeling all thru my body. My
charlene63
in
MPN Voice
6 years ago
Ace inhibitors and Hydroxy
Does anyone have experience of using ACE inhibitors alongside
hydroxycarbamide
and low dose aspirin? I have been taking Amlodipine to control blood pressure but it is losing its effectiveness and even doubling the dose doesn't stop the increase.
Does anyone have experience of using ACE inhibitors alongside
hydroxycarbamide
and low dose aspirin? I have been taking Amlodipine to control blood pressure but it is losing its effectiveness and even doubling the dose doesn't stop the increase.
Ovingite
in
MPN Voice
7 years ago
Fascinating drug comparison table
This has been posted on MPN-Net, not seen it before. Since every specialist seems to have a different viewpoint I’m not sure how reliable it is but definitely food for thought! This Table published by Dr. Hasselbalch earlier this year summarizes the differences between interferon, hydroxyurea, Jakafi
This has been posted on MPN-Net, not seen it before. Since every specialist seems to have a different viewpoint I’m not sure how reliable it is but definitely food for thought! This Table published by Dr. Hasselbalch earlier this year summarizes the differences between interferon, hydroxyurea, Jakafi
Paul123456
in
MPN Voice
7 years ago
PV JAK2
I was diagnosed in April & have had regular venesections since then, I am now iron deficient & it's looking like
Hydroxycarbamide
next.
I was diagnosed in April & have had regular venesections since then, I am now iron deficient & it's looking like
Hydroxycarbamide
next.
Sueworthington
in
MPN Voice
7 years ago
No improvement in first month at all.
I had my 2nd hospital visit yesterday to find out that 500mg of
hydroxycarbamide
a day has not lowered my platelet count one bit. From today I have to take 1g per day. Feeling a bit disappointed. Has this happened to anyone else and did increasing the dose work for you?
I had my 2nd hospital visit yesterday to find out that 500mg of
hydroxycarbamide
a day has not lowered my platelet count one bit. From today I have to take 1g per day. Feeling a bit disappointed. Has this happened to anyone else and did increasing the dose work for you?
Mica11
in
MPN Voice
7 years ago
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