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Experiences with
Hydroxycarbamide
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More News from the Battle Zone, and a gift from the kiln!
Happy to report that the jolly Hydroxyurea ordnance that I bravely swallow after lunch every day is doing the trick. I am now 4 weeks into the battle and the platelets have gone from 1255 to 939 over that period. The good thing is that the reduction is happening on just one 500mg tablet per day, I consider
Happy to report that the jolly Hydroxyurea ordnance that I bravely swallow after lunch every day is doing the trick. I am now 4 weeks into the battle and the platelets have gone from 1255 to 939 over that period. The good thing is that the reduction is happening on just one 500mg tablet per day, I consider
stillkicking
in
MPN Voice
6 years ago
Platelets!
I was wondering, if when they get within a normal range, if I would still have to take
hydroxycarbamide
. I think he thinks I will. What are anyone else’s thoughts or experiences please ?
I was wondering, if when they get within a normal range, if I would still have to take
hydroxycarbamide
. I think he thinks I will. What are anyone else’s thoughts or experiences please ?
Juliet46
in
MPN Voice
6 years ago
Rash/spots
I have very dry skin and get a wash cream and emollient from my doctors to use so was wondering if it's all related to dry skin .i am on
hydroxycarbamide
and aspirin amongst other things. I have et Thankyou
I have very dry skin and get a wash cream and emollient from my doctors to use so was wondering if it's all related to dry skin .i am on
hydroxycarbamide
and aspirin amongst other things. I have et Thankyou
Pippa63
in
MPN Voice
6 years ago
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Blood Clots
I am on 1000mg of
Hydroxycarbamide
daily, and 1500 mg at weekends, also 75 mg aspirin (well not now). Has anyone else experienced similar on medication? I would love to hear what I might expect? Thank you x
I am on 1000mg of
Hydroxycarbamide
daily, and 1500 mg at weekends, also 75 mg aspirin (well not now). Has anyone else experienced similar on medication? I would love to hear what I might expect? Thank you x
Mallard
in
MPN Voice
6 years ago
Ruxolitinib and high platelets
I have PV and been taking
Hydroxycarbamide
for a year and had many side effects and my blood counts are not being controlled. I came off Hydroxy 3 weeks ago and started on Ruxolitinib since when my platelet counts have kept going up - now 680.
I have PV and been taking
Hydroxycarbamide
for a year and had many side effects and my blood counts are not being controlled. I came off Hydroxy 3 weeks ago and started on Ruxolitinib since when my platelet counts have kept going up - now 680.
RosemaryHarper
in
MPN Voice
6 years ago
Report from the Platelet Factory. Battle Damage, production slowing! 2 weeks of Hydroxyurea.
The production line for wonky platelets had been thundering along at full steam ahead for a number of months and the grimy windows of the old factory building rattled as machinery, puffed, thumped and banged 24 hours a day, 7 days a week. Share holders were delighted, the wicked Big Boss bought a blue
The production line for wonky platelets had been thundering along at full steam ahead for a number of months and the grimy windows of the old factory building rattled as machinery, puffed, thumped and banged 24 hours a day, 7 days a week. Share holders were delighted, the wicked Big Boss bought a blue
stillkicking
in
MPN Voice
6 years ago
Is bone marrow biopsy necessary?
Hi Everyone, I was diagnosed with ET after Jak 2 positive and a platelet count of neat 1 million. November 30th I had a heart attack and everyone in the hospital kept saying my blood was very viscous but no testing was done. I followed up with my GP and he ran more blood work and platelet counts were
Hi Everyone, I was diagnosed with ET after Jak 2 positive and a platelet count of neat 1 million. November 30th I had a heart attack and everyone in the hospital kept saying my blood was very viscous but no testing was done. I followed up with my GP and he ran more blood work and platelet counts were
mbr8076
in
MPN Voice
6 years ago
hydroxyurea can increase uric acid?
Its really frustating me, my gout seems to be worst when im taking up hydroxyurea, is there a connection with it, hydroxyurea increase my uric acid? Thanks
Its really frustating me, my gout seems to be worst when im taking up hydroxyurea, is there a connection with it, hydroxyurea increase my uric acid? Thanks
Gringz_
in
MPN Voice
6 years ago
Links to latest research
I thought it would be easier if I grouped all the links I’ve posted into one thread. Imo it’s all encouraging and uplifting. I’ve run out of time to find the link re Graft Host rejection advances, will do so later. Best Paul (Hope all the links open!) Replacing Chemo/Radiation in SCT’s https://med.stanford.edu
I thought it would be easier if I grouped all the links I’ve posted into one thread. Imo it’s all encouraging and uplifting. I’ve run out of time to find the link re Graft Host rejection advances, will do so later. Best Paul (Hope all the links open!) Replacing Chemo/Radiation in SCT’s https://med.stanford.edu
Paul123456
in
MPN Voice
6 years ago
sunblocks for hydroxycarbamide users
hi everyone, i am shortly to start
hydroxycarbamide
and was wondering what level of sunblock i need to use.and if there are any particularly good face creams/ body creams with the right factor in that anyone could recommend.Any advice welcome .thankyou carolyn
hi everyone, i am shortly to start
hydroxycarbamide
and was wondering what level of sunblock i need to use.and if there are any particularly good face creams/ body creams with the right factor in that anyone could recommend.Any advice welcome .thankyou carolyn
Carolyn77
in
MPN Voice
6 years ago
Hair!
My hairdresser is reluctant to use colour while I’m on
hydroxycarbamide
but my hair has gone quite grey and needs something doing to it! Thankyou for any advice!
My hairdresser is reluctant to use colour while I’m on
hydroxycarbamide
but my hair has gone quite grey and needs something doing to it! Thankyou for any advice!
Juliet46
in
MPN Voice
6 years ago
"Damn Foreign Food", spluttered Biggles indignantly! Hydroxyurea the first 10 days
There he was at 4000 feet, not a care in the world, when suddenly..... Biggles performed a desperate falling leaf manoeuvre, and expertly side-slipped his biplane into a tiny clearing in the jungle with scarcely an inch to spare. Vaulting from the cockpit, he headed to the shadows of nearest tree with
There he was at 4000 feet, not a care in the world, when suddenly..... Biggles performed a desperate falling leaf manoeuvre, and expertly side-slipped his biplane into a tiny clearing in the jungle with scarcely an inch to spare. Vaulting from the cockpit, he headed to the shadows of nearest tree with
stillkicking
in
MPN Voice
6 years ago
New here- aching legs
Diagnosed with ET last year and started
Hydroxycarbamide
in November. Still trying to find right level so having blood tests every two weeks. I am experiencing burning sensation in my feet the past week with pain in finger joints . Anyone else experience these symptoms.
Diagnosed with ET last year and started
Hydroxycarbamide
in November. Still trying to find right level so having blood tests every two weeks. I am experiencing burning sensation in my feet the past week with pain in finger joints . Anyone else experience these symptoms.
Thouaret
in
MPN Voice
6 years ago
Yes! all counts in normal range but...
He said a rare few have a reaction to the
Hydroxycarbamide
which can affect the lungs and heart and this is what he is checking for. I am waiting to hear the results. Has anyone had similar please? Grace.
He said a rare few have a reaction to the
Hydroxycarbamide
which can affect the lungs and heart and this is what he is checking for. I am waiting to hear the results. Has anyone had similar please? Grace.
Mica11
in
MPN Voice
6 years ago
Bad effects from hydroxycarbamide
Since starting HU almost three years ago, I have been getting order progressively worse bleeding under the skin particularly on my hands. It has now also started tearing. My hair has thinned dramatically too I was put on HU when platelets were 550. I can ndetstand that HU alters cells and understand
Since starting HU almost three years ago, I have been getting order progressively worse bleeding under the skin particularly on my hands. It has now also started tearing. My hair has thinned dramatically too I was put on HU when platelets were 550. I can ndetstand that HU alters cells and understand
130396
in
MPN Voice
6 years ago
Lots of water?
I notice every one talks about the importance of water when on Hydroxyurea but I never heard of that in my 3 yrs on it. Info please?
I notice every one talks about the importance of water when on Hydroxyurea but I never heard of that in my 3 yrs on it. Info please?
kp27kathleen
in
MPN Voice
6 years ago
Booklet update: Stem Cell transplants + AML treatments
Just a quick update on new booklets available from Leukaemia Care Allogeneic Stem Cell transplants Autologous Stem Cell Transplants DA (Daunarubicin) and ARAc (Cytarabine) for Acute Myeloid Leukaemia FLAG-Ida for Acute Myeloid Leukaemia (AML)
Hydroxycarbamide
for Acute Myeloid Leukaemia (AML) Low dose
Just a quick update on new booklets available from Leukaemia Care Allogeneic Stem Cell transplants Autologous Stem Cell Transplants DA (Daunarubicin) and ARAc (Cytarabine) for Acute Myeloid Leukaemia FLAG-Ida for Acute Myeloid Leukaemia (AML)
Hydroxycarbamide
for Acute Myeloid Leukaemia (AML) Low dose
NicoleLeukaemiaCare
in
Leukaemia Support
6 years ago
Sickness
I have been on
hydroxycarbamide
since just before Christmas, with few side effects until yesterday & today when I have felt sick most of the time, can you help, do you think this is the drug & if so, any remedies!!!!
I have been on
hydroxycarbamide
since just before Christmas, with few side effects until yesterday & today when I have felt sick most of the time, can you help, do you think this is the drug & if so, any remedies!!!!
Sueworthington
in
MPN Voice
6 years ago
Hydroxycarbamide Side Effects - What are your experiences?
Hi All, I recently started taking
Hydroxycarbamide
on suggestion of my consultant, I'm 35 and have SS. Its been a couple of weeks and so far i've been noticeably more tired and about 2 days ago i developed a rash across one side of my face - i believe this is a direct side effect of the medication.
Hi All, I recently started taking
Hydroxycarbamide
on suggestion of my consultant, I'm 35 and have SS. Its been a couple of weeks and so far i've been noticeably more tired and about 2 days ago i developed a rash across one side of my face - i believe this is a direct side effect of the medication.
lumo
in
Sickle Cell Society
6 years ago
Effects worth side effects?
I started hydroxyurea on 2/14. within a couple of days my throat started to feel scratchy and kept getting more pronounced. By the 24th I had a very sore throat. stopped taking it on the 26th. I seem to be susceptible to side effects. there must be a better way to reduce my platelet count. 10 years
I started hydroxyurea on 2/14. within a couple of days my throat started to feel scratchy and kept getting more pronounced. By the 24th I had a very sore throat. stopped taking it on the 26th. I seem to be susceptible to side effects. there must be a better way to reduce my platelet count. 10 years
harry98
in
MPN Voice
6 years ago
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