Hydroxycarbamide & nauseous : I started on... - MPN Voice

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Hydroxycarbamide & nauseous

Sueworthington profile image
8 Replies

I started on Hydroxycarbamide earlier this week, I feel ok ish!!! But do have a constant nauseous feeling, can anyone suggest anything to take which might help xxxx

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Sueworthington
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8 Replies
Merry6 profile image
Merry6

I take mine at night so the side effects occur while I'm asleep. Seems to help. Three months in and I'm feeling more like myself again. :) xxx

Sueworthington profile image
Sueworthington in reply toMerry6

Thanks for that, however it's through the night that I feel nauseous, but I might try taking them at night & see what happensxx

Scottishterrier profile image
Scottishterrier

When I had a blood clot to the liver I have ET Jak2+ I was put on hydroxycarbamide I was feeling the same as you are I mentioned this to my Gastrointestinal consultant who was taking care of the liver side and he put me on domperidone which I take three times a day and never looked back within 1 week nausea had vanished

Sueworthington profile image
Sueworthington in reply toScottishterrier

Thank you for your response, I'll see how it goes for another couple of days, & maybe see my GP xx

Andyls profile image
Andyls

When I first started hydroxy, I ate a biscuit or two at night just before I took the capsule. That seemed to help. After a few weeks, I stopped taking it with food and the nausea has not recurred.

revfee profile image
revfee

Hi, I used to take domperidone then stopped and the nausea didn't return. Now if the dose goes up it returns a bit but I find I sort of get used to it after a couple of weeks. So it could be that a couple of weeks in you may find it subsides.

Good luck, Fee

Bridie123 profile image
Bridie123

Hi there, I do the complete opposite of the others, because of a sensitive stomach, I take mine after my breakfast with a pint of water, more if it's a larger dose.😊

MCW22 profile image
MCW22

Ginger is supposed to be good for nausea, so I stocked up on ginger biscuits, ginger beer and ginger cake, but touch wood, so far I haven't had any side effects. Mind you I have not felt any benefits either. Still itching like mad, still blurry vision every so often and still heavy breathing.

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