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Carbo/Gem
Stage 3 primary peritoneal diagnosed October 2021. Previously: Carbo/taxol/avastin, carbo/caelyx, Niraparib. I have just had treatment 2 of cycle 1 of carbo/gem and I have a very itchy red rash between my neck and just below my breast. I am using e45 and taking anti histamine at present. Has
Stage 3 primary peritoneal diagnosed October 2021. Previously: Carbo/taxol/avastin, carbo/caelyx, Niraparib. I have just had treatment 2 of cycle 1 of carbo/gem and I have a very itchy red rash between my neck and just below my breast. I am using e45 and taking anti histamine at present. Has
NewtonEmma1900
in
My Ovacome
3 months ago
Risk vs reward in clinical trials
Morning folks, I just finished reading my clinical protocol consent paperwork and don’t get the good warm feeling that the risk is worth the reward. This trial is through Sarah Cannon Research and involves a first in human investigational drug called TAK 280. It utilizes an approach already in clinical
Morning folks, I just finished reading my clinical protocol consent paperwork and don’t get the good warm feeling that the risk is worth the reward. This trial is through Sarah Cannon Research and involves a first in human investigational drug called TAK 280. It utilizes an approach already in clinical
Pmann
in
Advanced Prostate Cancer
7 months ago
Weird sensation below right ribs
for about 4 years now I’ve had this feeling below right ribs it’s a full/swollen feeling when I sit down I notice it more and if I’m running it feels like I’m carrying something but I’ve had X-ray and 3 ultrasound all came back normal I’ve had colonoscopy which they removed some polyps and they still
for about 4 years now I’ve had this feeling below right ribs it’s a full/swollen feeling when I sit down I notice it more and if I’m running it feels like I’m carrying something but I’ve had X-ray and 3 ultrasound all came back normal I’ve had colonoscopy which they removed some polyps and they still
Warfare
in
Thyroid UK
3 months ago
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swollen feeling in right side of stomach below the rib cage
for about 4 years now I’ve had this feeling below right ribs it’s a full/swollen feeling when I sit down I notice it more and if I’m running it feels like I’m carrying something but I’ve had X-ray and 3 ultrasound all came back normal I’ve had colonoscopy which they removed some polyps and they still
for about 4 years now I’ve had this feeling below right ribs it’s a full/swollen feeling when I sit down I notice it more and if I’m running it feels like I’m carrying something but I’ve had X-ray and 3 ultrasound all came back normal I’ve had colonoscopy which they removed some polyps and they still
Warfare
in
IBS Network
3 months ago
uncomfortable feeling below rib cage
for about 4 years now I’ve had this feeling below right ribs it’s a full/swollen feeling when I sit down I notice it more and if I’m running it feels like I’m carrying something but I’ve had X-ray and 3 ultrasound all came back normal I’ve had colonoscopy which they removed some polyps and they still
for about 4 years now I’ve had this feeling below right ribs it’s a full/swollen feeling when I sit down I notice it more and if I’m running it feels like I’m carrying something but I’ve had X-ray and 3 ultrasound all came back normal I’ve had colonoscopy which they removed some polyps and they still
Warfare
in
Bowel Disease Support
3 months ago
What should I do - follow-ups not feeling thorough
Hi everyone, before I start my question I want to send out love to everyone on here and I really wish being well for everyone. I wish there wasn’t a load of experts on here because it means we are all in this. I was diagnosed in 2022 - they thought they would find ovarian but they were surprised to
Hi everyone, before I start my question I want to send out love to everyone on here and I really wish being well for everyone. I wish there wasn’t a load of experts on here because it means we are all in this. I was diagnosed in 2022 - they thought they would find ovarian but they were surprised to
OrdinarySoul
in
My Ovacome
7 months ago
BAM severe
I have been diagnosed with bile acid malabsorbtion after years of diahorea. I had a sehcat scan and was told my levels were less than 3 and I am in the severe category. I started treatment which is acid binding medication. These are sachets mixed in water and have helped the diahorea to settle most of
I have been diagnosed with bile acid malabsorbtion after years of diahorea. I had a sehcat scan and was told my levels were less than 3 and I am in the severe category. I started treatment which is acid binding medication. These are sachets mixed in water and have helped the diahorea to settle most of
Dor21
in
IBS Network
3 months ago
Neuroendocrine prostate cancer could be restored to a state that responds to treatment
[i]It may be possible to restore drug-resistant neuroendocrine prostate cancer to a state that responds to treatment by depletion of a certain protein in cancer cells. A recent study published in Communications Biology by the University of Eastern Finland found that this protein, DPYSL5, is expressed
[i]It may be possible to restore drug-resistant neuroendocrine prostate cancer to a state that responds to treatment by depletion of a certain protein in cancer cells. A recent study published in Communications Biology by the University of Eastern Finland found that this protein, DPYSL5, is expressed
Don_1213
in
Advanced Prostate Cancer
7 months ago
Iron deficiency
I was on iron tablets after blood tests the doctor said stop taking the pain tablets as they may be causing the problem but it wasn't it was my small intestine dying because I had the coeliac disease and ive not had a iron problem since being diagnosed coeliac. so if you've got a iron problem their
I was on iron tablets after blood tests the doctor said stop taking the pain tablets as they may be causing the problem but it wasn't it was my small intestine dying because I had the coeliac disease and ive not had a iron problem since being diagnosed coeliac. so if you've got a iron problem their
Bantamdyno
in
Restless Legs Syndrome
3 months ago
treatment side effects vs cancer side effects
”Pain” vs “discomfort” in abdomen region following radiation and on Lupron- is it side effects or the cancer itself? Dad was diagnosed November 2023 and received radiation for 5 weeks that ended Jan 3rd. Started Lupron end of November. Cancer has spread to part of hip bone and pelvic lymph nodes.
”Pain” vs “discomfort” in abdomen region following radiation and on Lupron- is it side effects or the cancer itself? Dad was diagnosed November 2023 and received radiation for 5 weeks that ended Jan 3rd. Started Lupron end of November. Cancer has spread to part of hip bone and pelvic lymph nodes.
alysona828
in
Advanced Prostate Cancer
7 months ago
Information
Hi all. I have had some bad attacks over the last several months when I’m in a crowded place and it’s noisy, so much so that I’ve had to leave the building. I think I know what causes it having completed a first aid course in 1976 but just wondering if this has happened to anyone else. It’s like a panic
Hi all. I have had some bad attacks over the last several months when I’m in a crowded place and it’s noisy, so much so that I’ve had to leave the building. I think I know what causes it having completed a first aid course in 1976 but just wondering if this has happened to anyone else. It’s like a panic
paul456
in
Ataxia UK
2 months ago
heart palpitation from suboxome
Lately due to frequent cold I have to increase Buprenorphine and Naloxone to 1.5 mg sublingually (3 quarters of film (2 mg), then I have experienced horrendous heart palpitation and my heart rate goes down to 42 to 44 /minute. Even when I return to my previous dosage which is 1 mg (half film) sublingually
Lately due to frequent cold I have to increase Buprenorphine and Naloxone to 1.5 mg sublingually (3 quarters of film (2 mg), then I have experienced horrendous heart palpitation and my heart rate goes down to 42 to 44 /minute. Even when I return to my previous dosage which is 1 mg (half film) sublingually
halperinchen
in
Restless Legs Syndrome
4 months ago
Iron supplementation
Hi I have Hashimoto's - as yet untreated due to fluctuating TSH levels. My symptoms are numerous, and due to low levels of B12 and vitamin D, I am supplementing those. I am gluten Soy and Dairy free. My ferritin has been historically low and the GPs have frequently me prescribed Ferrous Fumarate.
Hi I have Hashimoto's - as yet untreated due to fluctuating TSH levels. My symptoms are numerous, and due to low levels of B12 and vitamin D, I am supplementing those. I am gluten Soy and Dairy free. My ferritin has been historically low and the GPs have frequently me prescribed Ferrous Fumarate.
Justine_Case
in
Thyroid UK
3 months ago
Bowel Problems...
Hello everyone, I think I already know the answer from other posts, so sorry for repeating, but I get so confused over the symptoms I get and I'd like to see what you think. I had a lap 15 years ago and was told I had adhesions between my uterus and bowel and I believe it was treated. I had two kids
Hello everyone, I think I already know the answer from other posts, so sorry for repeating, but I get so confused over the symptoms I get and I'd like to see what you think. I had a lap 15 years ago and was told I had adhesions between my uterus and bowel and I believe it was treated. I had two kids
LivvyCat
in
Endometriosis UK
3 months ago
Use hormone therapy or not with Proton therapy
Hi All, Question, doctor is suggesting hormone therapy along with proton therapy (28 treatments of radiation) my gleason score went from 3+3 to 4+3 last year and psa doubled from 10 to 20. I tried to get in to this study to determine the genetics of tumor but they said tumor sample was bad. should
Hi All, Question, doctor is suggesting hormone therapy along with proton therapy (28 treatments of radiation) my gleason score went from 3+3 to 4+3 last year and psa doubled from 10 to 20. I tried to get in to this study to determine the genetics of tumor but they said tumor sample was bad. should
jbsnv
in
Prostate Cancer Network
7 months ago
Ibs- C then sudden D. Any successes?
My issue is that I will be constipated for several days. Then at sudden moment, I have to go to the bathroom fast— like within a couple of minutes. And it will be total diarrhea for hours until I’m completely empty. Anyone else experience this? Any tips? it’s more pronounced when traveling. I’ll
My issue is that I will be constipated for several days. Then at sudden moment, I have to go to the bathroom fast— like within a couple of minutes. And it will be total diarrhea for hours until I’m completely empty. Anyone else experience this? Any tips? it’s more pronounced when traveling. I’ll
Senin
in
IBS Network
4 months ago
Chronic pain after prostatectomy
My friend had robotic prostatectomy in May 2019. In the almost 5 years since he has experienced daily abdominal pain. He has seen numerous doctors but none of them have been able to diagnose the source of the pain. He is an invalid due to this problem. Does anyone else know of a similar case? Any
My friend had robotic prostatectomy in May 2019. In the almost 5 years since he has experienced daily abdominal pain. He has seen numerous doctors but none of them have been able to diagnose the source of the pain. He is an invalid due to this problem. Does anyone else know of a similar case? Any
Sineah
in
Advanced Prostate Cancer
7 months ago
TruQap progress-lower TM
I posted about beginning this newly approved FDA drug in December. My blood tests last week showed that my TM dropped by 135 points. This is added to the Fulvestrant jabs I started around spring 2023. The combination seems to be going well so far. I was previously on Ibrance for several years until
I posted about beginning this newly approved FDA drug in December. My blood tests last week showed that my TM dropped by 135 points. This is added to the Fulvestrant jabs I started around spring 2023. The combination seems to be going well so far. I was previously on Ibrance for several years until
Yikes123
in
SHARE Metastatic Breast Cancer
7 months ago
Changing the name of cancer...would speed up research
I thought it wasn't something that had an impact, but thanks to the patience of an acquaintance of mine who works in clinical research, I finally understood the significance of what some newspapers (Italian and European, but maybe in the USA as well) are saying about the need to change the names of various
I thought it wasn't something that had an impact, but thanks to the patience of an acquaintance of mine who works in clinical research, I finally understood the significance of what some newspapers (Italian and European, but maybe in the USA as well) are saying about the need to change the names of various
Maxone73
in
Advanced Prostate Cancer
7 months ago
How can one person be so Lucky?
Diagnosed in December 2022 with Stage 4 metastatic PC Gleason 4 + 3, due to a PSMA Pet Scan. Highest my PSA got was 7.4, Pet Scan discovered a small spot on my T2 vertebrae that the MRI and bone scan did not find. I subsequently started on a regimen of Lupron and Erleada, adjusted to the SE and
Diagnosed in December 2022 with Stage 4 metastatic PC Gleason 4 + 3, due to a PSMA Pet Scan. Highest my PSA got was 7.4, Pet Scan discovered a small spot on my T2 vertebrae that the MRI and bone scan did not find. I subsequently started on a regimen of Lupron and Erleada, adjusted to the SE and
Condor77
in
Advanced Prostate Cancer
7 months ago
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