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Hydrochlorothiazide and olmesartan
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stem cell transplant survival with MF
This link gives some figures for overall survival with or without a transplant. The headline really is the initial mortality close to the transplant is only worth risking if your MF is quite bad. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7218417/
This link gives some figures for overall survival with or without a transplant. The headline really is the initial mortality close to the transplant is only worth risking if your MF is quite bad. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7218417/
Scaredy_cat
in
MPN Voice
3 months ago
bile duct cancer
can anyone please tell me what liver enzymes including Ggt are elevated with bile duct cancer?
can anyone please tell me what liver enzymes including Ggt are elevated with bile duct cancer?
Watersk
in
British Liver Trust
8 months ago
Prominent pathologist at Johns Hopkins on leave, facing bullying claims, WaPo, by Steve Thompson & Katie Shepherd, 10/22/23
Looks to be another case of professional success breeding professional arrogance and familial preference. Seems to be a lot of that going around these days - in all sectors of society. BTW, as a patient, my fav reader comment to the article is: "tell someone that they make a nice anecdote". * * *
Looks to be another case of professional success breeding professional arrogance and familial preference. Seems to be a lot of that going around these days - in all sectors of society. BTW, as a patient, my fav reader comment to the article is: "tell someone that they make a nice anecdote". * * *
CaptnMojoe
in
Fight Prostate Cancer
10 months ago
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tumor in spleen
my husband is having his spleen out very soon due to 2 tumors. We won’t know for sure if they are cancer until pathology done. He had radiation plus Lupron and has been in remission 2 years. 4 + 4 Psa still non detectable. Tumors picked up on pet scan to check kidney. Radiologist has said rare
my husband is having his spleen out very soon due to 2 tumors. We won’t know for sure if they are cancer until pathology done. He had radiation plus Lupron and has been in remission 2 years. 4 + 4 Psa still non detectable. Tumors picked up on pet scan to check kidney. Radiologist has said rare
Ojsm
in
Advanced Prostate Cancer
10 months ago
Anyone turn down a stem cell transplant?
I have post ET MF. Currently I'm on Rux and getting monthly cycles of 5 aza. I don't need transfusions. Day to day I feel pretty good and can do most of what I want. The SCT was recommended because of the risk of progression to AML. I'm finding the decision making to get the SCT very difficult. My
I have post ET MF. Currently I'm on Rux and getting monthly cycles of 5 aza. I don't need transfusions. Day to day I feel pretty good and can do most of what I want. The SCT was recommended because of the risk of progression to AML. I'm finding the decision making to get the SCT very difficult. My
LongETinUS
in
MPN Voice
4 months ago
Nearly 14 years on - time has flown.
On Friday 16th April 2010 I joined the Pernicious Anaemia Society and posted the following: “I was diagnosed with PA back in 1972 consequent upon having had surgery for a peptic ulcer in April 1959 at the tender age of 17. In those days I was not many years from having to be put on a diet of raw liver
On Friday 16th April 2010 I joined the Pernicious Anaemia Society and posted the following: “I was diagnosed with PA back in 1972 consequent upon having had surgery for a peptic ulcer in April 1959 at the tender age of 17. In those days I was not many years from having to be put on a diet of raw liver
clivealive
Forum Support
in
Pernicious Anaemia Society
8 months ago
Death of Dr. Joseph Chandy
Very sad news of the death of Dr. Chandy, who was a hero for his B12 deficient patients . He wrote , with Hugo Minney , a great book “Vitamin B12 deficiency in clinical practice”. ( Doctor , you gave me my life back) He stood up to the medical authorities in order to treat his B12 deficient patients
Very sad news of the death of Dr. Chandy, who was a hero for his B12 deficient patients . He wrote , with Hugo Minney , a great book “Vitamin B12 deficiency in clinical practice”. ( Doctor , you gave me my life back) He stood up to the medical authorities in order to treat his B12 deficient patients
wedgewood
in
Pernicious Anaemia Society
8 months ago
On another subject …
Inspired bya post on another site I’d like to ask if anyone has high risk mutations and has NOT had a stem cell transplant and has NOT progressed to leukaemia? On the other site there were a few who had had MF for quite few years but with treatment were doing ok, and weren’t having transplants, for
Inspired bya post on another site I’d like to ask if anyone has high risk mutations and has NOT had a stem cell transplant and has NOT progressed to leukaemia? On the other site there were a few who had had MF for quite few years but with treatment were doing ok, and weren’t having transplants, for
lizzziep
in
MPN Voice
4 months ago
Feeling really low
I posted here a few weeks ago regarding having an MRI for ongoing back pain. The MRI only showed degenerative changes, but also picked up a small lymph gland outside the pelvis. I’ve had to wait 4 weeks for a CT scan and get the results tomorrow. My mind is playing tricks on me I’m thinking the worse
I posted here a few weeks ago regarding having an MRI for ongoing back pain. The MRI only showed degenerative changes, but also picked up a small lymph gland outside the pelvis. I’ve had to wait 4 weeks for a CT scan and get the results tomorrow. My mind is playing tricks on me I’m thinking the worse
Hota
in
My Ovacome
10 months ago
How effective is fenofibrate for itch?
My doctor suggested a few different drugs, like rifampricin, naltrexone, and fenofibrate for my itch. He prescribed fenofibrate as he thinks it works best. Does anyone here take it and if so, has it helped? I'm worried about the warnings it comes with about severe liver damage.
My doctor suggested a few different drugs, like rifampricin, naltrexone, and fenofibrate for my itch. He prescribed fenofibrate as he thinks it works best. Does anyone here take it and if so, has it helped? I'm worried about the warnings it comes with about severe liver damage.
Carly92
in
PBC Foundation
8 months ago
Weight, bloating, and itchy arms
After a long, tortuous fight to get diagnosed and treated with/for hypothyroidism, which was achieved almost entirely with the help and info from this forum, I think that my meds are now very close to perfect and my blood test results are continuing to improve. So thank you again to everyone. But I
After a long, tortuous fight to get diagnosed and treated with/for hypothyroidism, which was achieved almost entirely with the help and info from this forum, I think that my meds are now very close to perfect and my blood test results are continuing to improve. So thank you again to everyone. But I
noquitter
in
Thyroid UK
8 months ago
symptoms made clearer
maybe I should make my conditions clearer. intussusception is when the lining of the bowel folds back on itself and makes an inverted U shape which then makes it very difficult for anything to pass through the bowel unless it is very soft, so making constipation or blockages , Like a tyre inner
maybe I should make my conditions clearer. intussusception is when the lining of the bowel folds back on itself and makes an inverted U shape which then makes it very difficult for anything to pass through the bowel unless it is very soft, so making constipation or blockages , Like a tyre inner
Corneater
in
IBS Network
6 months ago
Octasa and Diarrhea
Hi there, I have diagnosed UC, on last day of an 8 week course of steroids which stopped all my symptoms (bloody lose stool).I am also on day 10 of 6 x 800 mg Octasa. In the last 48 hours started getting diarrhea and fatigue and mild stomach cramps. 6 x loose/watery stools a day. Is this a normal side
Hi there, I have diagnosed UC, on last day of an 8 week course of steroids which stopped all my symptoms (bloody lose stool).I am also on day 10 of 6 x 800 mg Octasa. In the last 48 hours started getting diarrhea and fatigue and mild stomach cramps. 6 x loose/watery stools a day. Is this a normal side
Sma4fh
in
Crohn's and Colitis Support
8 months ago
Tirosint
I am unable to take tablet form levothyroxine, I have a gene issue with metabolising some medications. I have started liquid thyroxine but I think the ingredients are affecting my stomach and I have been told to stop taking this to see if it is the cause. I see that Tirosint is quite pure but not sure
I am unable to take tablet form levothyroxine, I have a gene issue with metabolising some medications. I have started liquid thyroxine but I think the ingredients are affecting my stomach and I have been told to stop taking this to see if it is the cause. I see that Tirosint is quite pure but not sure
Da52
in
Thyroid UK
8 months ago
Latest results.
Hi all. I wonder if you could share your thoughts on my latest results. My levothyroxine has been increased from 50 to 75mg. I have had a very sore mouth and tongue for over 12 months and was hoping if my B12 levels increased and my levothyroxine was working well, it would go. It hasn’t. My B12
Hi all. I wonder if you could share your thoughts on my latest results. My levothyroxine has been increased from 50 to 75mg. I have had a very sore mouth and tongue for over 12 months and was hoping if my B12 levels increased and my levothyroxine was working well, it would go. It hasn’t. My B12
Kebabalon
in
Thyroid UK
8 months ago
Bronchoscopy
Tomorrow I am having a bronchoscopy and it's obviously necessary since I have lung involvement with my breast cancer. I am having a little anxiety about this procedure. I have a DVT under my left armpit where one of the cancer mass is with numerous blood clots. The surgeon said I will be asleep. Can
Tomorrow I am having a bronchoscopy and it's obviously necessary since I have lung involvement with my breast cancer. I am having a little anxiety about this procedure. I have a DVT under my left armpit where one of the cancer mass is with numerous blood clots. The surgeon said I will be asleep. Can
monkeygirl62
in
SHARE Metastatic Breast Cancer
10 months ago
what is this exactly. ?
hi there. I have experienced the most intense pain ever to my righ thigh eventually spreading to my left leg also. I’m October 23 Doctors decided to fit a 7 inch titanium rod to the right femur as they believe that will provide support to the cancerous leg. I continue to have pain from the femur
hi there. I have experienced the most intense pain ever to my righ thigh eventually spreading to my left leg also. I’m October 23 Doctors decided to fit a 7 inch titanium rod to the right femur as they believe that will provide support to the cancerous leg. I continue to have pain from the femur
db1966
in
Advanced Prostate Cancer
10 months ago
calprotectin levels
Hi just seeing if anyone is in same position or has been Basically I’ve been having bowel issues since I had my son jan 2022 I stayed having constipation lose bowels with blood mucus urgency to go stomach cramps ect So doctor said I needed to do calprotectin test and that came back at 157 repeated
Hi just seeing if anyone is in same position or has been Basically I’ve been having bowel issues since I had my son jan 2022 I stayed having constipation lose bowels with blood mucus urgency to go stomach cramps ect So doctor said I needed to do calprotectin test and that came back at 157 repeated
Lo181
in
Bowel Disease Support
9 months ago
Kidney update and possible gallstones
Hi everyone, it’s been a hot minute since I posted about my kidneys! A few weeks ago I found out I had leaky protein, but I saw the specialist (who was pretty thorough) and he’s not worried about it. And if he’s not worried, I’m not worried! We’re gonna review in 3 months’ time. I’m so glad it turned
Hi everyone, it’s been a hot minute since I posted about my kidneys! A few weeks ago I found out I had leaky protein, but I saw the specialist (who was pretty thorough) and he’s not worried about it. And if he’s not worried, I’m not worried! We’re gonna review in 3 months’ time. I’m so glad it turned
MusicalFurbaby
in
LUPUS UK
6 months ago
Seeking advice about starting my Ovarian Cancer journey
Hello Everyone, Let me say thanks in advance for any and all advice or comments. It is very kind of you to share your stories and opinions. I may not be able to respond right away. Sorry for such a long post. I just want to get all of my info and questions out there. I will update with new information
Hello Everyone, Let me say thanks in advance for any and all advice or comments. It is very kind of you to share your stories and opinions. I may not be able to respond right away. Sorry for such a long post. I just want to get all of my info and questions out there. I will update with new information
Texas_Mom
in
My Ovacome
9 months ago
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