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shift work
Hi all, so glad I found this group.Diagnosed 10 years ago and have always worked night shifts, I’m now being told I must work 12 hour days (7-7.30)as well even though occupational health advise nights only, stiffness and pain in the mornings make it impossible to be anywhere for 7am in the morning, nevermind
Hi all, so glad I found this group.Diagnosed 10 years ago and have always worked night shifts, I’m now being told I must work 12 hour days (7-7.30)as well even though occupational health advise nights only, stiffness and pain in the mornings make it impossible to be anywhere for 7am in the morning, nevermind
Nitenurse63
in
NRAS
4 months ago
Endo in bowel tips
I was just wondering if anybody could help in regards to having endometriosis in their bowel, as I've found it quite hard to find out about it when researching. My surgeon found it on the outside of my bowel, and I am seeing a colon specialist to see if it has entered my bowel. I was just wondering if
I was just wondering if anybody could help in regards to having endometriosis in their bowel, as I've found it quite hard to find out about it when researching. My surgeon found it on the outside of my bowel, and I am seeing a colon specialist to see if it has entered my bowel. I was just wondering if
shaqshuka101
in
Endometriosis UK
4 months ago
constipation help
hope you knowledgeable people can help me. I was shouted at by my gp and bought to tears. She insisted I follow her Plan. 3 docusate and 1 fybogel sachet daily. To ignore what other drs have said. I began with this on 1st March, I’m now on day 6, have still not opened my bowels. I have terrible
hope you knowledgeable people can help me. I was shouted at by my gp and bought to tears. She insisted I follow her Plan. 3 docusate and 1 fybogel sachet daily. To ignore what other drs have said. I began with this on 1st March, I’m now on day 6, have still not opened my bowels. I have terrible
Laxido21
in
IBS Network
4 months ago
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NICE guideline on B12 Deficiency diagnosis and monitoring in over 16s
The Vitamin B12 Deficiency Guideline in Over 16's has been published.
What does this mean for those with Pernicious Anaemia whether formally diagnosed or not?
What does it mean with those struggling to get sufficiently frequent treatment for their B12 deficiency?
What does
The Vitamin B12 Deficiency Guideline in Over 16's has been published.
What does this mean for those with Pernicious Anaemia whether formally diagnosed or not?
What does it mean with those struggling to get sufficiently frequent treatment for their B12 deficiency?
What does
PAScomms
in
Pernicious Anaemia Society
4 months ago
Steroid inhalers and oral thrush.
Have recently started Relvar Ellipta inhaler and would like to know how to treat oral thrush? With many thanks. 🤗
Have recently started Relvar Ellipta inhaler and would like to know how to treat oral thrush? With many thanks. 🤗
Lupino
in
Lung Conditions Community Forum
4 months ago
Had results but still confused 🤷🏻♀️
After having biopsy samples taken during an incomplete colonoscopy back on 20th Jan and then having the CT pneumocolon on 8th Feb I have finally had the results read out to me by the med sec….not sure if it’s left me with more questions rather than answers 🤷🏻♀️ The biopsy results show inflammation
After having biopsy samples taken during an incomplete colonoscopy back on 20th Jan and then having the CT pneumocolon on 8th Feb I have finally had the results read out to me by the med sec….not sure if it’s left me with more questions rather than answers 🤷🏻♀️ The biopsy results show inflammation
PinkBubblez1
in
Colon Cancer Connected
4 months ago
anyone else feel wierd after discontinuing Piqray / Faslodex?
Hi all, my docs took me off Piqray and Faslodex a week ago. Since then I’ve had worse night sweats and diarrhea then when I was on the drugs! Plus a lingering headache and overall yucky feeling. I assumed it would resolve after a couple days but it’s been a full week. Has anyone else experienced that
Hi all, my docs took me off Piqray and Faslodex a week ago. Since then I’ve had worse night sweats and diarrhea then when I was on the drugs! Plus a lingering headache and overall yucky feeling. I assumed it would resolve after a couple days but it’s been a full week. Has anyone else experienced that
LDR1
in
SHARE Metastatic Breast Cancer
7 months ago
Reacting to piqray.
Don’t want to worry anyone, but just wanting to know if anyone has had this reaction to Piqray. I’m into my second week. On Piqray and Fulvestrant. At first I thought it was only my bottom, (left side) near site of injection, that was itchy. Then I started feeling a prickly feeling all over my body.
Don’t want to worry anyone, but just wanting to know if anyone has had this reaction to Piqray. I’m into my second week. On Piqray and Fulvestrant. At first I thought it was only my bottom, (left side) near site of injection, that was itchy. Then I started feeling a prickly feeling all over my body.
Timtam56
in
SHARE Metastatic Breast Cancer
7 months ago
Alone and Surgery 03/01/2024
Hello All, I am 60 on the 1st January 2024 and I am having an upper lobectomy 2 days after. Cancer was picked up by the targeted lung cancer team initiative CT scan and confirmed by PET scan, luckily it seems to have been picked up early and not spread elsewhere I live alone and don't have a support
Hello All, I am 60 on the 1st January 2024 and I am having an upper lobectomy 2 days after. Cancer was picked up by the targeted lung cancer team initiative CT scan and confirmed by PET scan, luckily it seems to have been picked up early and not spread elsewhere I live alone and don't have a support
xinte60
in
The Roy Castle Lung Cancer Foundation
7 months ago
Treatment help
just been told I have deep endometriosis on my uterus and my rectum. I already have a stoma due to Crohn’s disease and currently having prostap injections. Does anyone know what the treatment is for endo on the uterus and the rectum?
just been told I have deep endometriosis on my uterus and my rectum. I already have a stoma due to Crohn’s disease and currently having prostap injections. Does anyone know what the treatment is for endo on the uterus and the rectum?
Red476
in
Endometriosis UK
5 months ago
Bowel preparation before surgery
Hi everyone! 💛 Just been on pre op assessment and nurse said I don’t need to do bowel preparation at home. I will have hysterectomy with bowel resection and Endo excision. Has anyone had bowel preparation at hospital just before the operation? I am quite concerned what is going on 🤷♀️
Hi everyone! 💛 Just been on pre op assessment and nurse said I don’t need to do bowel preparation at home. I will have hysterectomy with bowel resection and Endo excision. Has anyone had bowel preparation at hospital just before the operation? I am quite concerned what is going on 🤷♀️
Endolemon
in
Endometriosis UK
5 months ago
Thyroid Cancer
I had thyroid cancer so had mine removed. My food only goes down my right side of my pipe and my breathing pipe was damaged as well. I seem to get a lot of chest infections on my left side. I have a horse voice all the time. I have nodules on my lungs. I have other medical issues. I suffer from depression
I had thyroid cancer so had mine removed. My food only goes down my right side of my pipe and my breathing pipe was damaged as well. I seem to get a lot of chest infections on my left side. I have a horse voice all the time. I have nodules on my lungs. I have other medical issues. I suffer from depression
Germany1924
in
Thyroid UK
7 months ago
Weekly Paclitaxol
Has anyone had success with with weekly taxol? I've got two stubborn cancerous pelvis lymph nodes. I'm deemed platinum refractory. Thanks.
Has anyone had success with with weekly taxol? I've got two stubborn cancerous pelvis lymph nodes. I'm deemed platinum refractory. Thanks.
win_56
in
My Ovacome
5 months ago
Serositis
Hi I’m new here, been struggling with bilateral pleural effusion since may last year and now my second bout of pericarditis so my respiratory consultant is sending everything to a rheumatologist as he believes I have lupus but does anyone else have this please and what medication are you on etc.. Any
Hi I’m new here, been struggling with bilateral pleural effusion since may last year and now my second bout of pericarditis so my respiratory consultant is sending everything to a rheumatologist as he believes I have lupus but does anyone else have this please and what medication are you on etc.. Any
Numptybrain
in
LUPUS UK
5 months ago
Fallout from PET/CT Scan
My PET/CT scan on November 1 detected progression of metastatic prostate cancer while on Lupron. This made my cancer castrate resistant and I am on Abiraterone 1000 mg + Prednisone 5 mg. The PET/CT report also stated severe coronary artery calcification. Yesterday I had CT scan of the heart. The report
My PET/CT scan on November 1 detected progression of metastatic prostate cancer while on Lupron. This made my cancer castrate resistant and I am on Abiraterone 1000 mg + Prednisone 5 mg. The PET/CT report also stated severe coronary artery calcification. Yesterday I had CT scan of the heart. The report
dac500
in
Advanced Prostate Cancer
7 months ago
Elevated CA125 from 11 8 months ago to 93.
Has anyone experience their CA, 125 elevated to 93? I was diagnosed five years ago and was in remission until two years ago. It came back a swollen lymph node above my diaphragm. Now I’m very concerned since the last couple of months my count has gone up significantly. My oncologist has done, pets,
Has anyone experience their CA, 125 elevated to 93? I was diagnosed five years ago and was in remission until two years ago. It came back a swollen lymph node above my diaphragm. Now I’m very concerned since the last couple of months my count has gone up significantly. My oncologist has done, pets,
marmay88o
in
My Ovacome
7 months ago
What’s the protocol for GP actioning full iron panel?
It’s become apparent that my daughter’s ferritin levels are deficient and she’s going to put in a request to her GP for a full iron panel. I routinely read here that one shouldn’t supplement with iron based on a low ferritin reading alone but I’d like to know what the supporting information for this
It’s become apparent that my daughter’s ferritin levels are deficient and she’s going to put in a request to her GP for a full iron panel. I routinely read here that one shouldn’t supplement with iron based on a low ferritin reading alone but I’d like to know what the supporting information for this
J972
in
Thyroid UK
5 months ago
Lap V Lap Hysterectomy
At the risk of summoning a barrage of 'hysterectomies are evil' replies, I wondered if anyone can help me as I am totally lost for what to do next. I am 41 and I have deep-infiltrating Endo, as many of you do I'm sure. Today I went to see an Endo specialist after an 18 month wait as he is supposed
At the risk of summoning a barrage of 'hysterectomies are evil' replies, I wondered if anyone can help me as I am totally lost for what to do next. I am 41 and I have deep-infiltrating Endo, as many of you do I'm sure. Today I went to see an Endo specialist after an 18 month wait as he is supposed
Guineafowlrach
in
Endometriosis UK
7 months ago
HGSC 3B
Ive been on Lynparza for 2years after finishing chemo taxol/carbo and Avastin and now my ca125 has been low right through now its increased from. 12 to 24 and now 60 and im waiting on scan but im worried. Has anyone else been in similar position?
Ive been on Lynparza for 2years after finishing chemo taxol/carbo and Avastin and now my ca125 has been low right through now its increased from. 12 to 24 and now 60 and im waiting on scan but im worried. Has anyone else been in similar position?
0151tmac69
in
My Ovacome
6 months ago
portal vein pressure test
Hi everyone. I havent posted for a few weeks . my partner Nick has now had all his tests, scans and a biopsy on his hhc tumor to confirm that it is actually HCC. He has been told that he cannot have ablation, which is what he wanted to have, because of the position of the tumor. He may possibly be
Hi everyone. I havent posted for a few weeks . my partner Nick has now had all his tests, scans and a biopsy on his hhc tumor to confirm that it is actually HCC. He has been told that he cannot have ablation, which is what he wanted to have, because of the position of the tumor. He may possibly be
pussycat66
in
British Liver Trust
7 months ago
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