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Hoyeraal-Hreidarsson syndrome
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Lyrica and neupro patch together.
Has anybody tried both lyrica and the patch with a good result?I saw my neuro today and she recommended it together with lipoic acid and ferrum. I stopped pram because of augmentation.It has been 4 months now that i am on lyrica but it doesnt help much.Some combo of meds that i had found offering me
Has anybody tried both lyrica and the patch with a good result?I saw my neuro today and she recommended it together with lipoic acid and ferrum. I stopped pram because of augmentation.It has been 4 months now that i am on lyrica but it doesnt help much.Some combo of meds that i had found offering me
Katerina22
in
Restless Legs Syndrome
6 years ago
7 to 10 bowel movements per day. But still constipated
Is there any way I can stop having this amount of bowel movements per day. Been to see the doctor, she said that there was nothing she could give me for my frequent bowel movements and prescribed me with some Colofac (Mebeverine). And some Biocare probiotics 30 billion.
Is there any way I can stop having this amount of bowel movements per day. Been to see the doctor, she said that there was nothing she could give me for my frequent bowel movements and prescribed me with some Colofac (Mebeverine). And some Biocare probiotics 30 billion.
IBSsufferer_26
in
IBS Network
6 years ago
Agony š
Legs have been in pain for weeks now and cant even sleep let alone walk. I was on pramipexole years ago but my Dr stopped them over year ago cant remember why. Can someone please tell me is there better medication? Im also on iron tablets as iron low
Legs have been in pain for weeks now and cant even sleep let alone walk. I was on pramipexole years ago but my Dr stopped them over year ago cant remember why. Can someone please tell me is there better medication? Im also on iron tablets as iron low
Annimay43
in
Restless Legs Syndrome
6 years ago
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Semen analysis translator plz?
Anyone speak sperm analysis lingo? GP said results ānormalā ... that tells us nothing I said. Requested report. We shall take this with us to IVF referral but would love to know what any of this means? Errmm the word abnormal with 95% next to it isnāt exactly giving me ānormalā vibes?!
Anyone speak sperm analysis lingo? GP said results ānormalā ... that tells us nothing I said. Requested report. We shall take this with us to IVF referral but would love to know what any of this means? Errmm the word abnormal with 95% next to it isnāt exactly giving me ānormalā vibes?!
Emmyeve
in
Fertility Network UK
6 years ago
give it a try
I am fairly new to this post and I find it heartbreaking to read these letters. I understand what it is like to suffer from this horrible disorder. I had 8-9 years of utter misery. One of the many, many drugs I had which actually helped was Neupro, which was the 3rd dopamine I had tried. I was on
I am fairly new to this post and I find it heartbreaking to read these letters. I understand what it is like to suffer from this horrible disorder. I had 8-9 years of utter misery. One of the many, many drugs I had which actually helped was Neupro, which was the 3rd dopamine I had tried. I was on
darena
in
Restless Legs Syndrome
6 years ago
5 wks out of 2wk induced coma, possible anoxia during open heart & fighting histoplasmosis. Minimally conscious. Not enough for drs?
Russ is now nodding yes, giving kisses EVERY time asked and even makes the smacking noise if kisses your cheek, hes starting to initiate kisses, he smiles a lot and consistently when appropriate, he will lift his head for a pillow or help roll when nurses ask him to when time to reposition. He is tracking
Russ is now nodding yes, giving kisses EVERY time asked and even makes the smacking noise if kisses your cheek, hes starting to initiate kisses, he smiles a lot and consistently when appropriate, he will lift his head for a pillow or help roll when nurses ask him to when time to reposition. He is tracking
Angelia1234
in
Headway
6 years ago
Going Crazy!!!!!!!!!!!
I feel like I am going crazy..... nothing helps my RLS.........nothing. I have tried everything, cold/hot packs, tens machine, heat creams and sprays, GABA, magnesium, pramipexole, tramadol, muscle relaxer......and the list goes on. It shifts from one arm to the other, one leg to the other.... then
I feel like I am going crazy..... nothing helps my RLS.........nothing. I have tried everything, cold/hot packs, tens machine, heat creams and sprays, GABA, magnesium, pramipexole, tramadol, muscle relaxer......and the list goes on. It shifts from one arm to the other, one leg to the other.... then
lalake
in
Restless Legs Syndrome
6 years ago
Supplement breakthrough but now what??
Hi everyone. Fairly new to the site. I have had RLS for about 12 years now. It has been well controlled through Mirapex/Ropinirole but a couple of months ago it seemed to not be working as well. Started feeling symptoms in my arms and onset was earlier in the day. Even would wake up some days with symptoms
Hi everyone. Fairly new to the site. I have had RLS for about 12 years now. It has been well controlled through Mirapex/Ropinirole but a couple of months ago it seemed to not be working as well. Started feeling symptoms in my arms and onset was earlier in the day. Even would wake up some days with symptoms
cnote1213
in
Restless Legs Syndrome
6 years ago
Tramadol efficiency
Hello I augmented on Ropinirole 2 years ago and used Tramadol to help the withdrawal symptons. Once over the withdrawal my legs were so much better (I hadn't realised how awful they had become while on Ropinirole). At the same time I increased my ferritin levels to over 100 (currently 128). I took 50mg
Hello I augmented on Ropinirole 2 years ago and used Tramadol to help the withdrawal symptons. Once over the withdrawal my legs were so much better (I hadn't realised how awful they had become while on Ropinirole). At the same time I increased my ferritin levels to over 100 (currently 128). I took 50mg
Pam34
in
Restless Legs Syndrome
6 years ago
Question about RLS and meds.
I am new to the forum and have learned a lot from reading the many entries. I am curious to see if anyone has done the following: I just eliminated the antidepressant Cymbalta and hope to soon eliminate Ropinirole from my system. Why? I am convinced both have contributed to my restless leg issues
I am new to the forum and have learned a lot from reading the many entries. I am curious to see if anyone has done the following: I just eliminated the antidepressant Cymbalta and hope to soon eliminate Ropinirole from my system. Why? I am convinced both have contributed to my restless leg issues
tuckbo
in
Restless Legs Syndrome
6 years ago
Constant thirst, dry mouth, glug glug
Hi there. I had neg biopsy for Sjogren's this time last year, diagnosis of SLE. Not sure if sun affect, but the last couple of weeks my usual constant thirst and dry mouth is much worse. I take a drink of water and it's as if nothing happened, so I'm constantly drinking now.. Sores in mouth too. Any
Hi there. I had neg biopsy for Sjogren's this time last year, diagnosis of SLE. Not sure if sun affect, but the last couple of weeks my usual constant thirst and dry mouth is much worse. I take a drink of water and it's as if nothing happened, so I'm constantly drinking now.. Sores in mouth too. Any
DJK99
in
LUPUS UK
6 years ago
SO MUCH BETTER!!
Hi everyone, Over the last 2 months I have cut out all biscuits, cookies and crisps and the desired result is that I have lost 4 kgs or roughly 8 lbs of weight! I am also more careful about wine (I have the odd glass), caffeine and chocolate and the result is I am more tired in the evening and sleep
Hi everyone, Over the last 2 months I have cut out all biscuits, cookies and crisps and the desired result is that I have lost 4 kgs or roughly 8 lbs of weight! I am also more careful about wine (I have the odd glass), caffeine and chocolate and the result is I am more tired in the evening and sleep
Hidden
in
Restless Legs Syndrome
6 years ago
Recovery Update on Fathers Day
During the date of my RTI, 04/08/14 I was a Semi-pro footballer, with my Wife Married since 2006. When I was discharged from Hospital in 2016 we carried out a vowel renewal as we were married for 10 years at the aforementioned date, I can not mention how happy & proud of her support that Iāve received
During the date of my RTI, 04/08/14 I was a Semi-pro footballer, with my Wife Married since 2006. When I was discharged from Hospital in 2016 we carried out a vowel renewal as we were married for 10 years at the aforementioned date, I can not mention how happy & proud of her support that Iāve received
United99
in
Headway
6 years ago
Restless leg relief
Please anyone with restless leg try potassium citrate and vitamin B1 youāre symptoms will be gone within a few days. I had restless leg so bad I wore holes in my bottom sheet. This is safe and my belief itās a vitamins deficiency. Worth a try
Please anyone with restless leg try potassium citrate and vitamin B1 youāre symptoms will be gone within a few days. I had restless leg so bad I wore holes in my bottom sheet. This is safe and my belief itās a vitamins deficiency. Worth a try
Karenfried
in
Restless Legs Syndrome
6 years ago
Clonazepam and lyrica
I am on 100mg of lyrica and one drop of clonazepam liquid at night for the last 5 days and works very well.No side effects.I am also opiod free since staring this combination.Furthermore i am on 100 mg of lyrica at noon but it doesnt help much and rls is hard.I ll talk with my doctor on Monday.He will
I am on 100mg of lyrica and one drop of clonazepam liquid at night for the last 5 days and works very well.No side effects.I am also opiod free since staring this combination.Furthermore i am on 100 mg of lyrica at noon but it doesnt help much and rls is hard.I ll talk with my doctor on Monday.He will
Katerina22
in
Restless Legs Syndrome
6 years ago
Update
I saw Rheumatologist and Respiratory Specialist as well. I had a pulmonary function test. Unfortunately, I had first appointment rescheduled so had doctors on 12 and 13th. The clinic is at the UBC clinic so hour and 45 minutes one way. I was so exhausted I crashed when I got home lol . I have started
I saw Rheumatologist and Respiratory Specialist as well. I had a pulmonary function test. Unfortunately, I had first appointment rescheduled so had doctors on 12 and 13th. The clinic is at the UBC clinic so hour and 45 minutes one way. I was so exhausted I crashed when I got home lol . I have started
Damaged
in
NRAS
6 years ago
Specialist recommendations
Specialist referral. Goidfairy here. My husband saw specialist who was excellent. Diagnosis.severe RLS. Subtle non motor symptomology and possible Parkinsons disease. Recommendations. Dat scan. Continue Ropinirole and add low dose Targinact 2.5/5mg.prolonged release 3 times a day.increasing evg.dose
Specialist referral. Goidfairy here. My husband saw specialist who was excellent. Diagnosis.severe RLS. Subtle non motor symptomology and possible Parkinsons disease. Recommendations. Dat scan. Continue Ropinirole and add low dose Targinact 2.5/5mg.prolonged release 3 times a day.increasing evg.dose
Goodfairy
in
Restless Legs Syndrome
6 years ago
Breaking the MAGIC: Mouth and Genital Ulcers with Inflamed Cartilage Syndrome
I found the following link to an article about Behcets and relapsing polychondritis really very interesting and may help many others with these two differing yet similar conditions. Mouth and genital ulcers with inflamed cartilage (MAGIC) syndrome refers to a condition in which features of Behcetās disease
I found the following link to an article about Behcets and relapsing polychondritis really very interesting and may help many others with these two differing yet similar conditions. Mouth and genital ulcers with inflamed cartilage (MAGIC) syndrome refers to a condition in which features of Behcetās disease
gillianTS
in
BehƧet's UK
6 years ago
All about cannabis
The first series called 'The Sacred Plant', about the history and use of cannabis, was extremely informative. The second series is now airing free for the next few hours. If you hop on quick you can view the episode on pain. It might help. Please watch it if you can. It will stop any fear you may have
The first series called 'The Sacred Plant', about the history and use of cannabis, was extremely informative. The second series is now airing free for the next few hours. If you hop on quick you can view the episode on pain. It might help. Please watch it if you can. It will stop any fear you may have
Parminter
in
Restless Legs Syndrome
6 years ago
Second cycle of Clomid
Hi, I donāt want to bore you with my life story so Iāll try and keep to the present. Iām in the middle of treatment with clomid. Given three months worth and I have taken the first two with no success. I am now on cycle day 85 and have my hospital appointment in 15 days. I didnāt track my cycles before
Hi, I donāt want to bore you with my life story so Iāll try and keep to the present. Iām in the middle of treatment with clomid. Given three months worth and I have taken the first two with no success. I am now on cycle day 85 and have my hospital appointment in 15 days. I didnāt track my cycles before
Smithy14
in
Fertility Network UK
6 years ago
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