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Endo nightmare!!!
Well what can I say or should I say where do I start? 2013 I had laproscopy because doctors found a 6cm cyst on right ovary. Went to hospital to see gyno who mentioned I needed a ca125 blood test to see if it was cancer. I was no good. I was 28 years old and scared shitless. I got my op date for 24th
Well what can I say or should I say where do I start? 2013 I had laproscopy because doctors found a 6cm cyst on right ovary. Went to hospital to see gyno who mentioned I needed a ca125 blood test to see if it was cancer. I was no good. I was 28 years old and scared shitless. I got my op date for 24th
Nichar24
in
Endometriosis UK
9 years ago
Feeling incredibly down (Prostap)
Firstly, the reason I have been prescribed Prostap is not for endo, rather a pseudocyst and extensive adhesions caused by major surgery. I bleed pretty much all the time, have intense pain and am also anaemic. I can only empathise and offer my unreserved support for what the majority of you suffer with
Firstly, the reason I have been prescribed Prostap is not for endo, rather a pseudocyst and extensive adhesions caused by major surgery. I bleed pretty much all the time, have intense pain and am also anaemic. I can only empathise and offer my unreserved support for what the majority of you suffer with
JustLiz
in
Endometriosis UK
9 years ago
Hysterectomy and bleeding on prostap
Hi im seriously worried as I've been put on prostap and have had my third injection 2 weeks ago I had no bleeding prior but this third one I've had large clots and heavy bleeding the past three days..even when I'm showering or bathing it's coming out of me..has this happened to anyone else? Also im on
Hi im seriously worried as I've been put on prostap and have had my third injection 2 weeks ago I had no bleeding prior but this third one I've had large clots and heavy bleeding the past three days..even when I'm showering or bathing it's coming out of me..has this happened to anyone else? Also im on
caroline81
in
Endometriosis UK
9 years ago
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Endometriosis sticking my womb and bowel together, need combined op!
I'm wondering if anyone could give me any advise. I'm 26 and was diagnosed in 2013 with stage 4 endo. In my laparoscopy they found my womb and bowel are stuck together. Yesterday I saw a specialist surgeon who specialises in very severe cases on endo. I have been advised to have a combined surgery to
I'm wondering if anyone could give me any advise. I'm 26 and was diagnosed in 2013 with stage 4 endo. In my laparoscopy they found my womb and bowel are stuck together. Yesterday I saw a specialist surgeon who specialises in very severe cases on endo. I have been advised to have a combined surgery to
Emmy-89
in
Endometriosis UK
9 years ago
Prostap
Hi all. You've probably heard this all before but I'm worried. I had my first Prostap injection three weeks ago for heavy bleeding due to a pseudocyst and adhesions. I also have an ileostomy (Stoma) which they believe have compounded my issues as the adhesions are stuck to my womb, ovaries and what's
Hi all. You've probably heard this all before but I'm worried. I had my first Prostap injection three weeks ago for heavy bleeding due to a pseudocyst and adhesions. I also have an ileostomy (Stoma) which they believe have compounded my issues as the adhesions are stuck to my womb, ovaries and what's
JustLiz
in
Endometriosis UK
9 years ago
Prostap and Tibolone
Looking for advice please ladies. I have prostap injections which worked great (after 10 weeks of bleeding) to stop my periods. Now I have to take hrt and 3 weeks in started to bleed heavily, and am now on day 10. Has anyone else experienced this? Will it stop? Do I just need to persevere?
Looking for advice please ladies. I have prostap injections which worked great (after 10 weeks of bleeding) to stop my periods. Now I have to take hrt and 3 weeks in started to bleed heavily, and am now on day 10. Has anyone else experienced this? Will it stop? Do I just need to persevere?
Jo2481
in
Endometriosis UK
9 years ago
Had 6months of prostap
Finished my 6months of prostap and pain is back as bad as ever was given morphine to control the pain. I now have a appointment with my consultant at the end of January has anyone ever been through this process im just wanting to know what he can offer me now x
Finished my 6months of prostap and pain is back as bad as ever was given morphine to control the pain. I now have a appointment with my consultant at the end of January has anyone ever been through this process im just wanting to know what he can offer me now x
Lisah82
in
Endometriosis UK
9 years ago
Not a real period???
Hi all, I went straight into the pill a month after last prostap injection and im now on my first pill break. I have pms usual bloating, Moody,cramping etc but I'm barely bleeding at all infact it's more just like a brown discharge, is this normal? Is it because the prostap is still in my system?
Hi all, I went straight into the pill a month after last prostap injection and im now on my first pill break. I have pms usual bloating, Moody,cramping etc but I'm barely bleeding at all infact it's more just like a brown discharge, is this normal? Is it because the prostap is still in my system?
Mewbookitty
in
Endometriosis UK
9 years ago
Out of options
Hi everyone, A few months ago I saw my endo nurse who said more surgery may be needed (had excision two yrs ago) and she would discuss it with the consultant. I found out today they have decided to wait. I'm trying to get another appointment as so far I am on two cerelles a day, the pros are they have
Hi everyone, A few months ago I saw my endo nurse who said more surgery may be needed (had excision two yrs ago) and she would discuss it with the consultant. I found out today they have decided to wait. I'm trying to get another appointment as so far I am on two cerelles a day, the pros are they have
ab24601
in
Endometriosis UK
9 years ago
Did anybody else have to stop early?
Hi everyone, After 4 prostap injections I've had to stop and can't have the last 2, I've gone 5 weeks since my last injection and all I'm capable of doing is sleeping and resting. I feel so worn out, nauseous a lot, upset tummy, dizzy and if I do too much I feel unwell. Did anyone else experience anything
Hi everyone, After 4 prostap injections I've had to stop and can't have the last 2, I've gone 5 weeks since my last injection and all I'm capable of doing is sleeping and resting. I feel so worn out, nauseous a lot, upset tummy, dizzy and if I do too much I feel unwell. Did anyone else experience anything
Kirstiexxx
in
Endometriosis UK
9 years ago
Prostap
Hi everyone, I am suffering from severe endometriosis and its been 6 months since my surgery to get rid of it. Unfortunately it did not help and started to feel worse. My gynaecologist has decided to prescribe me prostap injections. The problem is I have no idea what to expect and I have tried so many
Hi everyone, I am suffering from severe endometriosis and its been 6 months since my surgery to get rid of it. Unfortunately it did not help and started to feel worse. My gynaecologist has decided to prescribe me prostap injections. The problem is I have no idea what to expect and I have tried so many
Jaskirat
in
Endometriosis UK
9 years ago
Today is a bad day
Hi all, today isn't great and I'm pretty sure it's down to the intercourse I had last night with my partner. Since I woke up I've had intense period type pain and sharp pain in my tail bone which is making me feel sick and shaky and I feel so tired I'm trying to work but I just want to sleep. I haven't
Hi all, today isn't great and I'm pretty sure it's down to the intercourse I had last night with my partner. Since I woke up I've had intense period type pain and sharp pain in my tail bone which is making me feel sick and shaky and I feel so tired I'm trying to work but I just want to sleep. I haven't
Mewbookitty
in
Endometriosis UK
9 years ago
Mirena Coil
Hello ladies, I am coming off prostap as the side affects of it I'm finding too unbearable. My gynaecologist recommended the mirena coil which I tried last year but because the op went so wrong (something 'technical' and 'something slipped') it seemed to affect my insides and I was in agony and had
Hello ladies, I am coming off prostap as the side affects of it I'm finding too unbearable. My gynaecologist recommended the mirena coil which I tried last year but because the op went so wrong (something 'technical' and 'something slipped') it seemed to affect my insides and I was in agony and had
Kirstiexxx
in
Endometriosis UK
9 years ago
Is This Normal?
Hello everyone, I'm really struggling with some weird feelings and I'm wondering is it the prostap injection, the hrt tibolone or endo. But I'm feeling really numb in my fingers, legs and arms and woke up to my ovaries being quite painful and had that numb feeling there too?! I'm wondering whether to
Hello everyone, I'm really struggling with some weird feelings and I'm wondering is it the prostap injection, the hrt tibolone or endo. But I'm feeling really numb in my fingers, legs and arms and woke up to my ovaries being quite painful and had that numb feeling there too?! I'm wondering whether to
Starryeyes15
in
Endometriosis UK
9 years ago
Prostap issues
I'm in much need of some advice, I'm not new to prostap, Iv had 3 courses of Monthly prostap, having a month break and having another course, it's the only way I can control my pain. I also have the coil in which I know is not much use as a contraception while on these injections. - Iv had endo for
I'm in much need of some advice, I'm not new to prostap, Iv had 3 courses of Monthly prostap, having a month break and having another course, it's the only way I can control my pain. I also have the coil in which I know is not much use as a contraception while on these injections. - Iv had endo for
Hidden
in
Endometriosis UK
9 years ago
Taking the pill after prostap
Hi everyone, I've just finished a 9 month course of prostap and as soon as it was 4 weeks since my last injection I started the pill (gadarel) so I haven't had a period as my doctor recommended going back on the pill back to back for 3 months at a time and there was no need to wait for my period to come
Hi everyone, I've just finished a 9 month course of prostap and as soon as it was 4 weeks since my last injection I started the pill (gadarel) so I haven't had a period as my doctor recommended going back on the pill back to back for 3 months at a time and there was no need to wait for my period to come
Mewbookitty
in
Endometriosis UK
9 years ago
Bleeding 3 months into Prostap?
Hiya, I am just looking for similar experiences whilst I waiting my nurse coming back to me if ok? I won't go way back into my history as I will be here all night, but basically I'm on Prostap for Endo and suspected Adeno. I had 3rd injection Fri 27th Nov and overall my experience has been pretty good
Hiya, I am just looking for similar experiences whilst I waiting my nurse coming back to me if ok? I won't go way back into my history as I will be here all night, but basically I'm on Prostap for Endo and suspected Adeno. I had 3rd injection Fri 27th Nov and overall my experience has been pretty good
Hidden
in
Endometriosis UK
9 years ago
Fainting with ovary pain - endo related
Hey guys, Something unusual happened night before, woke up with severe pain in left ovary, thought i was stabbed. On that note that full day i had ovulation type pain. Went to bathroom, an as i was passing urine i felt like i was about to pass out, visions all blurred an next min i was on floor. I mustv
Hey guys, Something unusual happened night before, woke up with severe pain in left ovary, thought i was stabbed. On that note that full day i had ovulation type pain. Went to bathroom, an as i was passing urine i felt like i was about to pass out, visions all blurred an next min i was on floor. I mustv
needsomehope
in
Endometriosis UK
9 years ago
Is this normal?
Hi ladies, I've been on prostap and HRT for 4 months now and although I'm rid of a lot of pain I keep feeling so tired although it is different to that intense fatigue feeling I still don't feel up to much and do get into work more but still having to work some days from home. I feel so done in this
Hi ladies, I've been on prostap and HRT for 4 months now and although I'm rid of a lot of pain I keep feeling so tired although it is different to that intense fatigue feeling I still don't feel up to much and do get into work more but still having to work some days from home. I feel so done in this
Kirstiexxx
in
Endometriosis UK
9 years ago
Weight Gain with prostap
Hi I was just wondering if anyone experienced weight whilst on the prostap injections? I've only had the injection for 3 months and despite eating healthily and exercising that weight is creeping on :-(
Hi I was just wondering if anyone experienced weight whilst on the prostap injections? I've only had the injection for 3 months and despite eating healthily and exercising that weight is creeping on :-(
Meganwilkinson
in
Endometriosis UK
9 years ago
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