Had 6months of prostap

[Lisah82]

Finished my 6months of prostap and pain is back as bad as ever was given morphine to control the pain. I now have a appointment with my consultant at the end of January has anyone ever been through this process im just wanting to know what he can offer me now x

[Hidden]

You may well be offered something stronger like Danazol; I had six months of Prostap SR (back in 1994) and then was given Danazol but it didn't agree with me at all - I put on lots of weight, my heart couldn't take the strain and I ended up with an albeit minor cardiac arrhythmia!! I also found it had a terrible impact on my mood with severe anger episodes so personally I wouldn't repeat the experience. However I have heard some people react very well so this is just one aspect for me.

Have you tried Letrozole? This is another way to stop oestrogen production and again although I didn't find it useful, some may.

Good luck

Maria

[Lisah82 in reply to Hidden]

Thank you for your reply im due to see my consultant on the 29th of jan im hoping for hystrectomy really as 8 years of endo has put a stop to daily life for a lot of time xx

[Hidden in reply to Lisah82]

I remember trying to get mine; I was 31 at the time, and like you had endo since I was young (about 12/13). Having had a dozen surgeries and four miscarriages I knew being a mother wasn't going to happen for me so I chose that option. To do so I had to see a CPN to ensure I knew what the procedure meant, and ultimately I ended up paying privately to get it done as the NHS weren't keen.

I don't regret it though; I had a good period of no pain at all and then a couple of years or minor niggles before it returned even worse than before (I genuinely think this is linked to my diet and/or lifestyle as when I ate organically and exercised daily I had no issues. Funnily enough, my hormone (oetrogen) levels are still very high despite having no ovaries which is likely related to the amount of fat I have (I have gained around six or seven stones over the last few years, mainly because I can't walk and the pain is too bad).