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Hysterectomy & Hormones
Hi all, I'm booked in for a total abdominal hysterectomy with bilateral salpingo-oophorectomy next month and wondered if anyone will check my hormone levels as part of the follow up? I've been on Prostap injection for 2months now (due my 3rd this week) and have gained a stone already. I read that a surgical
Hi all, I'm booked in for a total abdominal hysterectomy with bilateral salpingo-oophorectomy next month and wondered if anyone will check my hormone levels as part of the follow up? I've been on Prostap injection for 2months now (due my 3rd this week) and have gained a stone already. I read that a surgical
BlueMocktail
in
Endometriosis UK
3 days ago
Prostap SR DCS 3.75mg Injection: Where in London Can I get it Administered?
Hi everyone, I hope you're all keeping well. As part of the preparations for an IVF cycle with donor eggs, my IVF clinic which is based abroad have prescribed Prestap SR DCS 3.75mg powder and sovent. I'm struggling to find where I can have it administered as I need to have the shot done in less than
Hi everyone, I hope you're all keeping well. As part of the preparations for an IVF cycle with donor eggs, my IVF clinic which is based abroad have prescribed Prestap SR DCS 3.75mg powder and sovent. I'm struggling to find where I can have it administered as I need to have the shot done in less than
Katiluna
in
Fertility Network UK
14 days ago
Endometrial Ablation / Endo / Help!!!!!!
Help!! Contraceptive pill for 10 years plus… 2 babies 2011 & 2014 lap 2021 prostap until 2022 Ovaries & tubes removed 2022 Hysteroscopy 2024 Endometrial Ablation 4 weeks post op. There has to be more to life than this?!? last surgery has really taken it out of me. Don’t bleed much after, just
Help!! Contraceptive pill for 10 years plus… 2 babies 2011 & 2014 lap 2021 prostap until 2022 Ovaries & tubes removed 2022 Hysteroscopy 2024 Endometrial Ablation 4 weeks post op. There has to be more to life than this?!? last surgery has really taken it out of me. Don’t bleed much after, just
JH21
in
Endometriosis UK
16 days ago
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change in meds?
I’m about to be changed over from Degarelix (Firmagon) to Prostap (Lupron) in a couple of weeks because 3 monthly injection is more convenient. I’ve read that Degarelix is better though.., maybe I should ask to stay on that? Or I’m wondering about asking to switch to Orgovyx instead. I’ve had a quite
I’m about to be changed over from Degarelix (Firmagon) to Prostap (Lupron) in a couple of weeks because 3 monthly injection is more convenient. I’ve read that Degarelix is better though.., maybe I should ask to stay on that? Or I’m wondering about asking to switch to Orgovyx instead. I’ve had a quite
Broccoli24
in
Advanced Prostate Cancer
23 days ago
Solo travel
Hey! I’ve just been informed by my GP that I probably shouldn’t be going backpacking solo as my flare ups are so bad I’m unable to move at all when they occur. They have also said I should take prostap every month for a year. Has anyone been told to not travel alone before or had these injections
Hey! I’ve just been informed by my GP that I probably shouldn’t be going backpacking solo as my flare ups are so bad I’m unable to move at all when they occur. They have also said I should take prostap every month for a year. Has anyone been told to not travel alone before or had these injections
GreenQueen92
in
Endometriosis UK
24 days ago
bleeding won’t stop after first prostap injection
I had my first 4 weekly injection 4 weeks ago and I am spitting every day I am sick of this anyone else had this it’s freaking me out now
I had my first 4 weekly injection 4 weeks ago and I am spitting every day I am sick of this anyone else had this it’s freaking me out now
Sara0102
in
Endometriosis UK
1 month ago
Prostap?
Have you been offered Prostap? What do you think of prostap and would you take it? I have been offered it as a last resort, after my second laparoscopy they don’t really want to continue with surgeries so they have offered me the injections but the side affects are scary I haven’t seen much about
Have you been offered Prostap? What do you think of prostap and would you take it? I have been offered it as a last resort, after my second laparoscopy they don’t really want to continue with surgeries so they have offered me the injections but the side affects are scary I haven’t seen much about
StrongestAvenger
in
Endometriosis UK
1 month ago
More prostasp or hysterectomy?
Just wondered what to expect when I get to the end of my 3months of Prostap I've been prescribed and meet with my consultant again. How will she decide whether to prescribe more or just go ahead with a hysterectomy (which is my preference)? Also, because I'm private am I able to just tell her I want
Just wondered what to expect when I get to the end of my 3months of Prostap I've been prescribed and meet with my consultant again. How will she decide whether to prescribe more or just go ahead with a hysterectomy (which is my preference)? Also, because I'm private am I able to just tell her I want
BlueMocktail
in
Endometriosis UK
1 month ago
Prostap Flare - how long?
hey team. looking for some reassurance and info. Did you flare after starting prostap and if so how long did it last? I’m on week four following my first injection and it’s been excruciating for the last 2.5 weeks. I’ve got low add back estrogen patches and a mirena coil, whilst waiting for colorectal
hey team. looking for some reassurance and info. Did you flare after starting prostap and if so how long did it last? I’m on week four following my first injection and it’s been excruciating for the last 2.5 weeks. I’ve got low add back estrogen patches and a mirena coil, whilst waiting for colorectal
PotatoSalad
in
Endometriosis UK
1 month ago
Possible Hysterectomy at 42 as feel everything else hadn’t worked
My first time posting and really sorry for the long post. I have been struggling for the last 13 years, I’ve lost all of my thirties to pain and discomfort. My first laparoscopy and helium beam treatment back in 2011 they detected peritoneal pocketing found in the left uteri- sacral ligament and left
My first time posting and really sorry for the long post. I have been struggling for the last 13 years, I’ve lost all of my thirties to pain and discomfort. My first laparoscopy and helium beam treatment back in 2011 they detected peritoneal pocketing found in the left uteri- sacral ligament and left
LK20
in
Endometriosis UK
1 month ago
endometriosis centre
My surgeon has referred me to the endometriosis centre in Manchester. Has anyone else ever had to wait upto a year to see them? My surgeon isn’t in my area I have moved to so I’m struggling with what to do now as my treatment has finished this month after being on prostap for stage 4 endo.
My surgeon has referred me to the endometriosis centre in Manchester. Has anyone else ever had to wait upto a year to see them? My surgeon isn’t in my area I have moved to so I’m struggling with what to do now as my treatment has finished this month after being on prostap for stage 4 endo.
Red476
in
Endometriosis UK
1 month ago
prostap
I’ve been on prosap for 7 months, how soon after stopping will my period come back? And the hot flushes stop
I’ve been on prosap for 7 months, how soon after stopping will my period come back? And the hot flushes stop
Red476
in
Endometriosis UK
1 month ago
MRI false positive?
After waiting 16 months for surgery I finally had my lap yesterday which didn’t find any endo - it was done with a specialist at a BSGE centre too. I’m so confused as 16 months ago I had a MRI which showed thickened uterosacral ligaments, mild adhesions near right ovary and right ovary possibly stuck
After waiting 16 months for surgery I finally had my lap yesterday which didn’t find any endo - it was done with a specialist at a BSGE centre too. I’m so confused as 16 months ago I had a MRI which showed thickened uterosacral ligaments, mild adhesions near right ovary and right ovary possibly stuck
CrochetCrayola
in
Endometriosis UK
2 months ago
Thoracic Endo & Prostap
Just wondered if anyone has been in the same situation as me and would be happy to share their experience.....I'm early 40's and had an MRI which showed endometriosis and multiple large fibroids. I also requested a CT scan for my chest as I'd been having chest pain and shortness of breath. The CT showed
Just wondered if anyone has been in the same situation as me and would be happy to share their experience.....I'm early 40's and had an MRI which showed endometriosis and multiple large fibroids. I also requested a CT scan for my chest as I'd been having chest pain and shortness of breath. The CT showed
BlueMocktail
in
Endometriosis UK
2 months ago
Back home & overthinking
After 12 days in hospital I am back home. I now have to wear morphine patches, (butec), take oramorph, cyclizine and various other medication. I've started my prostap injections so I'm mindful of monitoring my mood. I take HRT gel and tablets. It's a drain. So I decided not to to with the emergency
After 12 days in hospital I am back home. I now have to wear morphine patches, (butec), take oramorph, cyclizine and various other medication. I've started my prostap injections so I'm mindful of monitoring my mood. I take HRT gel and tablets. It's a drain. So I decided not to to with the emergency
Faylen34
in
Endometriosis UK
2 months ago
Hormone therapy for the older generation
My calendar is telling me that I've just completed 12 months of hormone therapy (prostap) and my PSA after radio and brachytherapy when last measured was 0.01. I'm nearly 77 and after 12 months, I'm really suffering from complete lack of energy, just getting out of bed in the morning is hard work, I
My calendar is telling me that I've just completed 12 months of hormone therapy (prostap) and my PSA after radio and brachytherapy when last measured was 0.01. I'm nearly 77 and after 12 months, I'm really suffering from complete lack of energy, just getting out of bed in the morning is hard work, I
tunybgur
in
Advanced Prostate Cancer
2 months ago
One last push ..please...help for my Dad. NHS treatments no longer viable - Pca stage 4.
Guys...do not know how to connect this post to my previous ones..sorry. I'm also all over the place, forgive my ramblings! I have finally gotten hold of Dad's records. Nothing more NHS can do, so am looking at Turkey for Lu 177. I know this is an option, but want to literally exhaust anything in the
Guys...do not know how to connect this post to my previous ones..sorry. I'm also all over the place, forgive my ramblings! I have finally gotten hold of Dad's records. Nothing more NHS can do, so am looking at Turkey for Lu 177. I know this is an option, but want to literally exhaust anything in the
kikinini
in
Advanced Prostate Cancer
2 months ago
Enzalutamide
Hi I take 30mg Targinact and 300mg Gabapentin for severe RLS I'm also taking quarterly Prostap injections to prevent the spread of prostate cancer. I was also taking 400mg Enzalutamide daily. I was experience serious daytime sleepiness and brain fog, so the oncologist stopped the Enzalutamide for 6
Hi I take 30mg Targinact and 300mg Gabapentin for severe RLS I'm also taking quarterly Prostap injections to prevent the spread of prostate cancer. I was also taking 400mg Enzalutamide daily. I was experience serious daytime sleepiness and brain fog, so the oncologist stopped the Enzalutamide for 6
RLSHell
in
Restless Legs Syndrome
3 months ago
Prostap injections?? Does anyone have any tips pls.
The consultant has just prescribed Prostap injections, whilst I'm on the waiting list for a hysterectomy through endometriosis. Has anyone used Prostap? And what were/ are your experiences?
The consultant has just prescribed Prostap injections, whilst I'm on the waiting list for a hysterectomy through endometriosis. Has anyone used Prostap? And what were/ are your experiences?
Pixinix
in
Endometriosis UK
3 months ago
Prostap causing pain & stiffness
Hi everyone, I just wondered if anyone has any experience of pain and stiffness while on prostap? I have been on prostap for a year now and I have been getting a lot of joint pain and stiffness in my ankles, knees and hips. Also my bones hurt, particularly in my legs and feet. In the past couple
Hi everyone, I just wondered if anyone has any experience of pain and stiffness while on prostap? I have been on prostap for a year now and I have been getting a lot of joint pain and stiffness in my ankles, knees and hips. Also my bones hurt, particularly in my legs and feet. In the past couple
Capybara123
in
Endometriosis UK
3 months ago
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