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My decision on Radiotherapy -v- Prostatectomy
I hope this story might be useful to others. I'm based in the UK and had a PSA of 12.7 from a test in June 2023. That led to an MRI in August with a PI-RADS of 5 with irregularity on the front of the prostate. I eventually had a biopsy at the end of September after 3 cancellations (this was through the
I hope this story might be useful to others. I'm based in the UK and had a PSA of 12.7 from a test in June 2023. That led to an MRI in August with a PI-RADS of 5 with irregularity on the front of the prostate. I eventually had a biopsy at the end of September after 3 cancellations (this was through the
MarkS
in
Prostate Cancer Network
9 months ago
So down today 🥺 Why does everything take so long and nothing helps
I'm in my late 40s and have a provisional diagnosis of Adenomyosis I don't think I've ever felt so low, as today. I'm waiting for urgent mri scan results, that I had 5 weeks ago. I am in crippling pain. My bowels are all over the place and everyday I have rectal bleeding. I can't tolerate stronger pain
I'm in my late 40s and have a provisional diagnosis of Adenomyosis I don't think I've ever felt so low, as today. I'm waiting for urgent mri scan results, that I had 5 weeks ago. I am in crippling pain. My bowels are all over the place and everyday I have rectal bleeding. I can't tolerate stronger pain
Mindfullness4791
in
Endometriosis UK
9 months ago
Bloating tips
Does anyone have any tips for bloating? Happens with any meal- doesn't matter what I eat or drink? I'm 31, have 2 fibroids, had 2 prostap injections which showed the fibroids slightly shrunk but now have suspected PCOS. I have a constant bloated stomach - I've seen loads online about rheal superfoods
Does anyone have any tips for bloating? Happens with any meal- doesn't matter what I eat or drink? I'm 31, have 2 fibroids, had 2 prostap injections which showed the fibroids slightly shrunk but now have suspected PCOS. I have a constant bloated stomach - I've seen loads online about rheal superfoods
FIBROIDGIRL
in
Endometriosis UK
9 months ago
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Pregnant after Prostap
Hello, please did anyone ever got pregnant after prostap? I'm about to start the monthly injection for treatment of endometriosis and quite worried since the wait list for surgery is quite far. I'll appreciate any information you have. Thank you
Hello, please did anyone ever got pregnant after prostap? I'm about to start the monthly injection for treatment of endometriosis and quite worried since the wait list for surgery is quite far. I'll appreciate any information you have. Thank you
Godliver
in
Endometriosis UK
9 months ago
no bleed yet after Prostap
Happy XMas eve everyone. I got my Prostap injection on 13th Dec, but still no bleed. Also no major symptoms except from a couple of night sweats and being tired all the time, and sore breast since yesterday. Could it be an issue with my lining not being properly thin? I have my scan on the 28th and
Happy XMas eve everyone. I got my Prostap injection on 13th Dec, but still no bleed. Also no major symptoms except from a couple of night sweats and being tired all the time, and sore breast since yesterday. Could it be an issue with my lining not being properly thin? I have my scan on the 28th and
TerryNaples
in
Fertility Network UK
9 months ago
Phase 1 trial participation Nurix NX-1607
I have not been on any treatment since I stopped Docetaxel chemo last year except Prostap injections every 12 weeks. My PSA went up from ~9 to 20 from May to September. I have just been invited to take part in a phase 1a safety and tolerability study of NX-1607. It aims to inhibit CBL-B (Casitas B-lineage
I have not been on any treatment since I stopped Docetaxel chemo last year except Prostap injections every 12 weeks. My PSA went up from ~9 to 20 from May to September. I have just been invited to take part in a phase 1a safety and tolerability study of NX-1607. It aims to inhibit CBL-B (Casitas B-lineage
konichiwa12
in
Advanced Prostate Cancer
9 months ago
Failed Endometrial Ablation: Prostap
Hi folks, Here goes, I had an ablation done but I’ve never had endometriosis - long story - it’s failed and I’m due to have the Prostap injection. I’m worried about weight gain a developing hashimoto’s, I’m paralysed and osteoporosis is also a worry. I’m very high risk for hysterectomy surgery, so
Hi folks, Here goes, I had an ablation done but I’ve never had endometriosis - long story - it’s failed and I’m due to have the Prostap injection. I’m worried about weight gain a developing hashimoto’s, I’m paralysed and osteoporosis is also a worry. I’m very high risk for hysterectomy surgery, so
Chingri2021
in
Endometriosis UK
9 months ago
pros and con of a hysterectomy
hi all I’ve been told I’m going to be put on the waiting list. It could be years before I get one for a hysterectomy. I want to know the pros and cons in your opinion was it worth it for those I’ve had one personally, I am desperate for one week as I’ve had enough of the ProStap injections I desperately
hi all I’ve been told I’m going to be put on the waiting list. It could be years before I get one for a hysterectomy. I want to know the pros and cons in your opinion was it worth it for those I’ve had one personally, I am desperate for one week as I’ve had enough of the ProStap injections I desperately
Prettythings1
in
Endometriosis UK
10 months ago
FET start date!
Good evening beautiful people. The clinic called me this afternoon and I was finally provided a start date for my FET after being rejected last month. Prostap injection Wednesday 13th and scan on the 28th. Any FET buddies starting te same time? Good luck and baby dust to everybody here! Terry
Good evening beautiful people. The clinic called me this afternoon and I was finally provided a start date for my FET after being rejected last month. Prostap injection Wednesday 13th and scan on the 28th. Any FET buddies starting te same time? Good luck and baby dust to everybody here! Terry
TerryNaples
in
Fertility Network UK
10 months ago
asking about heavy bleeding
Hello I was diagnosed with endometriosis in November and I was bleeding heavily, doctor prescribed (provera and Tranexamic acid). After taking these medications, my bleeding got heavy with pain, then the doctor changed it to Prostap injection with a tablet called Tibolone. Now after one week of these
Hello I was diagnosed with endometriosis in November and I was bleeding heavily, doctor prescribed (provera and Tranexamic acid). After taking these medications, my bleeding got heavy with pain, then the doctor changed it to Prostap injection with a tablet called Tibolone. Now after one week of these
Dlpak
in
Endometriosis UK
10 months ago
How long symptoms stay
hi I had 1 injection of Prostap end of sept and unfortunately I suffered with, headaches, insomnia, no appetite. I became really depressed and anxious as well. My dr said it works in your system 5/6 weeks and then stops and will start to leave my body. So I’m 4 weeks now past that. I’m just trying
hi I had 1 injection of Prostap end of sept and unfortunately I suffered with, headaches, insomnia, no appetite. I became really depressed and anxious as well. My dr said it works in your system 5/6 weeks and then stops and will start to leave my body. So I’m 4 weeks now past that. I’m just trying
Lothead01
in
Endometriosis UK
10 months ago
Prostrap experiences please. Also returned endo pain after a bowel resection advice
In june this year I had excision surgery for stage 4 endometriosis including a bowel resection. I was pain free for about 2 months then unfortunately it came back in my bowels and flare ups are more frequent. I met with my specialist this week and she wants me to go onto Prostap injections for at least
In june this year I had excision surgery for stage 4 endometriosis including a bowel resection. I was pain free for about 2 months then unfortunately it came back in my bowels and flare ups are more frequent. I met with my specialist this week and she wants me to go onto Prostap injections for at least
Pinny27
in
Endometriosis UK
10 months ago
Prostap and Tibolone
Hello everyone, just wanted some advice, started Prostap and tibolone on Monday and since then have felt like I've been hit by a bus ( headache, nausea, fatigue, body aches, ovary pain etc) and I can honestly say I have never felt so emotional in my life! It's like the worst PMS on steroids, I am literally
Hello everyone, just wanted some advice, started Prostap and tibolone on Monday and since then have felt like I've been hit by a bus ( headache, nausea, fatigue, body aches, ovary pain etc) and I can honestly say I have never felt so emotional in my life! It's like the worst PMS on steroids, I am literally
Shellbell2023
in
Endometriosis UK
10 months ago
Mirena coil fitted
I've had my prostap injection where I have had fatigue and muscle pain. I've just had my hysteroscopy with mirena coil fitted too now. I am hoping the size of my uterus starts to go down with time now it's been a rollercoaster of getting here a nightmare really. The muscle pain has been hard with the
I've had my prostap injection where I have had fatigue and muscle pain. I've just had my hysteroscopy with mirena coil fitted too now. I am hoping the size of my uterus starts to go down with time now it's been a rollercoaster of getting here a nightmare really. The muscle pain has been hard with the
Hidden
in
Endometriosis UK
10 months ago
No down regulation before FET (with endometriosis)
Please tell me that this is okay for when I do an FET? I had prostap on a previous cycle which failed and had it again in September with the intention of having an FET the next month. That cycle had to be cancelled because of spotting related issues and lining not developing. I then had a mega long
Please tell me that this is okay for when I do an FET? I had prostap on a previous cycle which failed and had it again in September with the intention of having an FET the next month. That cycle had to be cancelled because of spotting related issues and lining not developing. I then had a mega long
Skittles11
in
Fertility Network UK
10 months ago
Prostap injection
Had a prostap injection just under a week ago. Feel awful. Tired and can't sleep walking up and down the stairs causes me to sit down. I'm hoping it will reduce the size of my uterus as I have adenymosis and fibrioids. I'm having a hysteroscopy under anesthesia for the mirena coil in hospital on weds
Had a prostap injection just under a week ago. Feel awful. Tired and can't sleep walking up and down the stairs causes me to sit down. I'm hoping it will reduce the size of my uterus as I have adenymosis and fibrioids. I'm having a hysteroscopy under anesthesia for the mirena coil in hospital on weds
Hidden
in
Endometriosis UK
10 months ago
Sensitive : BFP rainbow baby
I was in two minds if to write this post as I know how difficult it is to read these updates if you are still struggling. and the fact that I am still in shock at a positive result. But I would also like to share a story of hope. So some of you will know my history, we had success on our second ICSI
I was in two minds if to write this post as I know how difficult it is to read these updates if you are still struggling. and the fact that I am still in shock at a positive result. But I would also like to share a story of hope. So some of you will know my history, we had success on our second ICSI
butterfliez
in
Fertility Network UK
10 months ago
cancelled cycle - period ten days early
Hi just wondered if anyone else has been in a similar situation following a cancelled cycle. I had Prostap to help with down regulation before transfer for 3 months (last injection June transfer July). Unfortunately it wasn’t successful. I have had normal periods since then (or what seemed normal
Hi just wondered if anyone else has been in a similar situation following a cancelled cycle. I had Prostap to help with down regulation before transfer for 3 months (last injection June transfer July). Unfortunately it wasn’t successful. I have had normal periods since then (or what seemed normal
Keepondreaming
in
Fertility Network UK
10 months ago
No period return after 18 weeks stopping prostap
Hia. No periods returned after being off prostap for 18 weeks. Anyone been through this?
Hia. No periods returned after being off prostap for 18 weeks. Anyone been through this?
Elllll1
in
Endometriosis UK
10 months ago
coming off prostap
hi i had a Prostap injection 7 weeks ago for a pre op (which I didn’t have) I really did t get on well with it. Very very depressed mood and terrible anxiety, insomnia and crushing headaches. Also lost my appetite. I’ve never felt so poorly before :-( it was scary. Especially the mental health side
hi i had a Prostap injection 7 weeks ago for a pre op (which I didn’t have) I really did t get on well with it. Very very depressed mood and terrible anxiety, insomnia and crushing headaches. Also lost my appetite. I’ve never felt so poorly before :-( it was scary. Especially the mental health side
Lothead01
in
Endometriosis UK
10 months ago
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