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Three days ago the niggles started nagging. I’ve gone up on Pred 3 to 5. Improving. How long can I or should stay at 5.
Don't know where my post went. I have really been lucky with my PMR journey. Not complaining. But in the past week I've been feeling wonky. I should have predicted it. I've taken on too much, physically and mentally in the last several weeks. I lost my pacing and just kept crossing my fingers that
Don't know where my post went. I have really been lucky with my PMR journey. Not complaining. But in the past week I've been feeling wonky. I should have predicted it. I've taken on too much, physically and mentally in the last several weeks. I lost my pacing and just kept crossing my fingers that
Hindags
in
PMRGCAuk
6 years ago
My beautiful husband has become another star in the sky
My darling husband of only 2 months lost his battle with PSP this evening. I had managed to get him home on 17th Dec after nearly 5 months in hospital. Unfortunately his SATs dropped over the last couple of days and I couldn’t get them up in the early hours despite suctioning through his tracheostomy
My darling husband of only 2 months lost his battle with PSP this evening. I had managed to get him home on 17th Dec after nearly 5 months in hospital. Unfortunately his SATs dropped over the last couple of days and I couldn’t get them up in the early hours despite suctioning through his tracheostomy
Hiking13
in
PSP Association
6 years ago
Champix can be disruptive after a while...
Hi there; hope everyone had a good Christmas. I did okay on not smoking and over-eating, but last night was tough. I went to my sister's for Christmas Day supper. Everyone was drinking wine, eating desert and the baked goods were on display. After supper I had an urge to step outside away from the noise
Hi there; hope everyone had a good Christmas. I did okay on not smoking and over-eating, but last night was tough. I went to my sister's for Christmas Day supper. Everyone was drinking wine, eating desert and the baked goods were on display. After supper I had an urge to step outside away from the noise
Quit4Money
9 Months Smoke Free
in
No Smoking Day
6 years ago
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Update on Sudden Decline
Several weeks ago, I wrote about my husband's sudden decline-losing his clarity of speech and his inclination to speak, loss of appetite, even worse balance issues. I had assumed that 3 years from the diagnosis of PSP, his relative slow decline had made up for lost time. I was wrong. During one
Several weeks ago, I wrote about my husband's sudden decline-losing his clarity of speech and his inclination to speak, loss of appetite, even worse balance issues. I had assumed that 3 years from the diagnosis of PSP, his relative slow decline had made up for lost time. I was wrong. During one
Baytalon
in
PSP Association
6 years ago
Could this be IBS?
My mum is a sufferer of IBS, I am currently going through test for many repoductive issues but am beginning to wonder if my problem is IBS. I get very sudden urges for needing the toilet, sometimes mild but also sometimes chronic stomach discomfort before needing the toilet. I also suffer from diarrhoea
My mum is a sufferer of IBS, I am currently going through test for many repoductive issues but am beginning to wonder if my problem is IBS. I get very sudden urges for needing the toilet, sometimes mild but also sometimes chronic stomach discomfort before needing the toilet. I also suffer from diarrhoea
Jojo1899
in
IBS Network
6 years ago
Round ligament pain??
Has anyone experienced round ligament pain? And if so how can you describe it? I'm 14 weeks 4 days and I've got really bad discomfort like pain on my low left part my belly so I'm just a bit nervous it might be something else 😵😵
Has anyone experienced round ligament pain? And if so how can you describe it? I'm 14 weeks 4 days and I've got really bad discomfort like pain on my low left part my belly so I'm just a bit nervous it might be something else 😵😵
Hidden
in
Pregnancy and Parenting Support
6 years ago
How to get off Madopar125
I'm 70 years old man living in Australia. In recent years I found my body movements a bit clumsy as I always bumped into things and knocked down things. I could not control although my mind is clear. I went to a neurolohgist and I am told I have Parkinson's disease. He prescribed me Madopar125. I started
I'm 70 years old man living in Australia. In recent years I found my body movements a bit clumsy as I always bumped into things and knocked down things. I could not control although my mind is clear. I went to a neurolohgist and I am told I have Parkinson's disease. He prescribed me Madopar125. I started
Cheehong
in
Cure Parkinson's
6 years ago
Just read article that Kefir (drink) is better than Probiotic yogurt for IBS and IBS-C. Does anyone take this..is it helpful for IBS, IBS-C?
Hi, I have severe and chronic constipation, and nothing helps..nothing! I have tried it all. My last options are 2-3 stool softeners a day (Colace), and Senna once a week on Sundays which is an excellent laxative. But it disrupts my life, I have been on once a week Senna for about 8 years. Stool softeners
Hi, I have severe and chronic constipation, and nothing helps..nothing! I have tried it all. My last options are 2-3 stool softeners a day (Colace), and Senna once a week on Sundays which is an excellent laxative. But it disrupts my life, I have been on once a week Senna for about 8 years. Stool softeners
Eliana5
in
IBS Network
6 years ago
The future looks bright
So just over a year ago we had a 13 yr old boy placed with us. He had been soiling day and night since he was five and we were told it was emotional and not physical. We started from square one with a referral to continence clinic. They said he had severe constipation and that his bowel did not work
So just over a year ago we had a 13 yr old boy placed with us. He had been soiling day and night since he was five and we were told it was emotional and not physical. We started from square one with a referral to continence clinic. They said he had severe constipation and that his bowel did not work
Nicky555
in
ERIC
6 years ago
Clonidine...
I’m on day 3 of my Viibryd and I have had the worst morning.. woke up as usual with crazy high heart rate and just couldn’t shake the fear. I was in complete panic and wanted to burst into tears and was so scared because I was have left arm and chest pain. I’ve calmed down now but I was thinking about
I’m on day 3 of my Viibryd and I have had the worst morning.. woke up as usual with crazy high heart rate and just couldn’t shake the fear. I was in complete panic and wanted to burst into tears and was so scared because I was have left arm and chest pain. I’ve calmed down now but I was thinking about
DisneyMom3
in
Anxiety Support
6 years ago
Immune system
Had my monthly review with GP last week and was told my white blood cell count was low, she said this can happen with long term steroid use. Am now on 7.5mg from 40mg. I asked what, if anything, I could do, and was told to keep eating a healthy diet, keep hydrated and keep on with my walking. I wondered
Had my monthly review with GP last week and was told my white blood cell count was low, she said this can happen with long term steroid use. Am now on 7.5mg from 40mg. I asked what, if anything, I could do, and was told to keep eating a healthy diet, keep hydrated and keep on with my walking. I wondered
Fifegran
in
PMRGCAuk
6 years ago
Sad
Hubbys hip surgery went well but he has a touch of pneumonia he’s not well at all, the doctors have indicated he will be in hosp rehab 4-6 weeks.. Have a meeting tomorrow in regards to his swallow as it is almost completely gone can’t help but feel so so sad and glummie ( just have a bad feeling) it
Hubbys hip surgery went well but he has a touch of pneumonia he’s not well at all, the doctors have indicated he will be in hosp rehab 4-6 weeks.. Have a meeting tomorrow in regards to his swallow as it is almost completely gone can’t help but feel so so sad and glummie ( just have a bad feeling) it
demlac
in
PSP Association
6 years ago
Thanks Immune system happy Christmas to you too!!
My immune systems gift to me in the last week thanks you dysfunctional pain in the butt! I’ve tried loads of different potions to calm the flare down and I can’t get a steroid injection for another 2 weeks! Any ideas what might help!
My immune systems gift to me in the last week thanks you dysfunctional pain in the butt! I’ve tried loads of different potions to calm the flare down and I can’t get a steroid injection for another 2 weeks! Any ideas what might help!
oKerrio
in
NRAS
6 years ago
Signs that death is near
I think I posted something similar before Signs that Death Is Approaching Certain signs and symptoms can help health care providers and family caregivers anticipate when death is near. Common end-of-life indicators are explained below along with suggestions on how to handle these changes. Drowsiness
I think I posted something similar before Signs that Death Is Approaching Certain signs and symptoms can help health care providers and family caregivers anticipate when death is near. Common end-of-life indicators are explained below along with suggestions on how to handle these changes. Drowsiness
daffodil48
in
PSP Association
6 years ago
School care plans
Help needed plz.. as anyone struggled to get a school care plan for bladder and bowel incontinence my school nurse recons there's no care plan for him as he's not autistic or special needs (her words) but he had bladder and bowel incontinence daily accidents he's not telling his teacher because they
Help needed plz.. as anyone struggled to get a school care plan for bladder and bowel incontinence my school nurse recons there's no care plan for him as he's not autistic or special needs (her words) but he had bladder and bowel incontinence daily accidents he's not telling his teacher because they
Lollypop1
in
ERIC
6 years ago
I'm new here and looking for a similar situation to mine for advice and support...
As the title says I'm new here and I've been quite active reading posts on this forum for a few weeks - it's actually been quite a lifeline while I've been backwards and forwards to the hospital. So 8 weeks ago to the day my gran (75) suffered a bleed on the brain for the second time - she had one in
As the title says I'm new here and I've been quite active reading posts on this forum for a few weeks - it's actually been quite a lifeline while I've been backwards and forwards to the hospital. So 8 weeks ago to the day my gran (75) suffered a bleed on the brain for the second time - she had one in
blueandwhitearmy93
in
Headway
6 years ago
Coma semi conscious, eyes opened. head turning a lot?
Hi my partner has just woken from a sedated state(3 weeks ago) In icu. Has been head turning a lot . Is he doing involuntary movements or is he in a lot of pain from anoxic head injury? He has wide awake eyes but don’t know if he can communicate yet as got a trach fitted and fingers arms slightly move
Hi my partner has just woken from a sedated state(3 weeks ago) In icu. Has been head turning a lot . Is he doing involuntary movements or is he in a lot of pain from anoxic head injury? He has wide awake eyes but don’t know if he can communicate yet as got a trach fitted and fingers arms slightly move
Worriedfor
in
ICUsteps
6 years ago
Coma semi conscious, eyes opened. head turning a lot?
Hi my partner has just woken from a sedated state(3 weeks ago) In icu. Has been head turning a lot . Is he doing involuntary movements or is he in a lot of pain from anoxic head injury? He has wide awake eyes but don’t know if he can communicate yet as got a trach fitted and fingers arms slightly move
Hi my partner has just woken from a sedated state(3 weeks ago) In icu. Has been head turning a lot . Is he doing involuntary movements or is he in a lot of pain from anoxic head injury? He has wide awake eyes but don’t know if he can communicate yet as got a trach fitted and fingers arms slightly move
Worriedfor
in
ICUsteps
6 years ago
Coma semi conscious, eyes opened. head turning a lot?
Hi my partner has just woken from a sedated state(3 weeks ago) In icu. Has been head turning a lot . Is he doing involuntary movements or is he in a lot of pain from anoxic head injury? He has wide awake eyes but don’t know if he can communicate yet as got a trach fitted and fingers arms slightly move
Hi my partner has just woken from a sedated state(3 weeks ago) In icu. Has been head turning a lot . Is he doing involuntary movements or is he in a lot of pain from anoxic head injury? He has wide awake eyes but don’t know if he can communicate yet as got a trach fitted and fingers arms slightly move
Worriedfor
in
ICUsteps
6 years ago
Coma semi conscious, eyes opened. head turning a lot?
Hi my partner has just woken from a sedated state(3 weeks ago) In icu. Has been head turning a lot . Is he doing involuntary movements or is he in a lot of pain from anoxic head injury? He has wide awake eyes but don’t know if he can communicate yet as got a trach fitted and fingers arms slightly move
Hi my partner has just woken from a sedated state(3 weeks ago) In icu. Has been head turning a lot . Is he doing involuntary movements or is he in a lot of pain from anoxic head injury? He has wide awake eyes but don’t know if he can communicate yet as got a trach fitted and fingers arms slightly move
Worriedfor
in
ICUsteps
6 years ago
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