Experiences with

Home hemodialysis

If you are considering at-home hemodialysis, please see my e-book with an enormous amount of information including what to expect from at-home hemodialysis, general info about dialysis, and my 20-year journey living End-Stage Renal Disease.

If you are considering at-home hemodialysis, please see my e-book with an enormous amount of information including what to expect from at-home hemodialysis, general info about dialysis, and my 20-year journey with end-stage renal disease.

I would love to hear about your experience and how it's going.... Do you have a in home care giver or are you solo? How long did it take to get comfortable with the process or do you ever get comfortable with it?

Can anyone shed some light on home haemodialysis? Or any advice would be great! my dad is currently on Haemodialysis (via central line) done in hospital. He has been told he needs to do longer hours & home haemo is an option! The problem is… he had a Cardiac arrest 8 months ago whilst on Dialysis in

It has been the hardest month I have ever had in my life. I promised I would write an honest and complete description of the process. I started on October 16th. The first week, I wrote about already. Not too many issues. But in my head, I was so overwhelmed. I was not ready for dialysis mentally in

Morning EveryoneLooking for a bit of advice and just to have a little rant ☹️... Since i started Haemodialysis approx 30 months ago, I have issues with getting a good sleep. Most dialysis patients I talk to, seem to sleep a lot. However I just can't sleep. I am tired but as soon as I go to bed, im awake

I've been doing haemodialysis for a little over 3 years. And I have been like clock work never missing a session. But lately I'm wanting to give up. I'm struggling with my dry weight and I was wondering if anyone has felt like this or is going through this. Quita55

Here is our story so far - any thoughts and guidance much appreciated: My wife has been battling polycystic kidney disease for years, and we now suspect she has polycystic liver disease too. But getting a diagnosis and treatment for her enlarged liver has been an uphill struggle that's left us feeling

Here is my latest on my journey in home hemodialysis. I started this process on October 16th. And we came home on December 18th. Many people get home faster but I had issues with a couple of weeks of when they infiltrated my fistula (poked through it and I was bleeding internally).

Hi Friends My mother is on Maintenance Haemodialysis thrice a week since 4 months. She is now adjusted to this process. As she lives in the tropical country, in the summer season it will be difficult for her to limit the fluid intake. Can any one advice how to control the thirst to limit fluid intake

I will be doing home hemodialysis. I am already did the initial interviews; they have done the home eval and approved me. We were just waiting for the start date. I have a ton of questions..... Why are you on home dialysis? How often and how much do you do HD? Was it hard to learn?

I have since been on home hemodialysis for 3.5 years now waiting for my 2nd transplant. I get frustrated at times and it feels like I will never get another " gift " but I will it's just taking longer because my anti-body's are so high from my past transplant and blood transfusions.

Hello from the UK. My lovely Dad, 73 came out of hospital last week and is having palliative care at home in a hospital bed. He’s completely bed-bound with a catheter and is asleep nearly all the time. He can’t even pull himself up to sit up in bed or put the duvet cover over his shoulders. We’ve got

How do we know that resumption of pain is due to a flare of PMR rather than general aches and pains in the same areas i..e. Shoulders, arms, thighs, buttocks…. .? I have had PMR for a year now and have gone from 20 mg a day to 5.5mg. I have 2 stomas and I have struggled managing my colostomy on the

Hello, my husband is since two weeks in hospital with Cryptococcal Meningitis. He left Intensive care a few days ago. is anyone out there who is going through the same stuff? I realise that this will be a long way of recovery and it would be nice to share it with someone who is in the same position

was much more frequent on here years ago, but around 11 years ago didn’t quite make it to work. Had a few days in hospital following a skull fracture and some brain bleeds, my work luckily where more aware than I was and I got phased return to work, I did try full time for a while but it crushed me

Long story, don't want to TLDR. Had car accident as toddler, possible skull fractures. Never talked about in the family. Didn't really find out about it until I was in my 30s. I have always had really poor coordination, can't catch a ball etc. Could my brain injury have caused clumsiness? I don't have

Hi, I've seen a couple of items on here regarding the palliative care and making sure its on medical records.My husband was diagnosed 16th December 2024 with CBD after seeing a neurologist. We have been seeing the parkinsons physiotherapists and got an OT that is due to come and access our home for his

My daughter is 9 and for the past few years seems to have gone backwards and is having more accidents than ever. It started by her wetting the bed occasionally to this being every night. The bed wetting we can cope with and isn't the main issue but more recently she's been having regular accidents throughout

Thank you to all who encouraged and supported me. I got home from hospital c8.45pm but the day was not without incident. As promised, an update.In order to be there for the requested 7.30am, an alarm of 5.15am was needed. Just under an hour's journey on -2° roads is it exactly calming. But we arrived