Experiences with

Hodgkin lymphoma

The type of cancer I have is Hodgkin lymphoma unfortunately a lot of my symptoms were similar to fibromyalgia. I was very tired, even resting didn’t help, poor sleeping, wide spread pain. Hot and cold sweats.

hi, The person I’m caring for has had non-Hodgkin b cell lymphoma 3 times. This time they are treating her with Zanubrutinib. She’s been on it for 2 weeks and her limbs have become very swollen with what looks like lymphodema. Has anyone had any experience with this side effect?

I got my kidney transplant in dec 2018 now In nov 2024 suffered from NON hodgkin lymphoma now only on tacrolimus 5mg daily .Any advice regarding this then plz

I’m awaiting some blood tests but when look at the symptoms and put them altogether it comes up with non Hodgkin lymphoma .

Any ideas - when you look online comes up with Hodgkin lymphoma- which I hope it’s not

[/i] [i][/i] CB-010 also is being tested as a potential treatment for refractory B-cell non-Hodgkin lymphoma, a type of blood cancer, in a Phase 1 clinical trial dubbed ANTLER (NCT04637763).

In August 2023 I was diagnosed with non Hodgkin lymphoma stage4 , 6 months of chemo , and on the 15 th jan was told that I am now clear . Decided to do a thyroid check now that my body is clear of all the different drugs I was on .

I have question- I just had CT scan and all my lymph nodes have decreased in size the scan reader said I was responding to treat well ( I’m not currently in treatment) good thing? But my white count has gone from 80k to 130k in 3 months my other markers are no loss of the 11 or 17 or loss of p53 is that

On 6 January 2025, the journal [i]BJ Haem[/i] published a review article titled [i]Management strategies for patients with chronic lymphocytic leukaemia harbouring complex karyotype[/i] written by a team from Padua, Italy. The article summary explains its aims: [i]"Chronic lymphocytic leukaemia

Hi All An update to what I would have described as a failed Stem Cell Transplant has actually been a part success- I don’t seem to have any sign of CLL but instead I am back to SLL status which is what I was initially diagnosed with 10 years ago. The scans post transplant show enlarged nodes but bloods

Happy Holidays to Everyone! CLL Dx July 2022 when I was 78. W&W, Living an active and normal life except some swollen lymph nodes on necks and under chin (diameter of largest is about one inch). A month ago my Hemo/Oncologist ordered a FISH Test and Flow Cytometry. Results are as follows FISH FINAL

Recently diagnosed with Stage 3 CLL. Currently on Brukinsa and will be soon be starting Zometa (bone resorption infusion). Apparently, it is quite rare to have CLL that also presents with bone damage. In my case, I had a walnut sized tumor in my T12 vertebrae that had to be radiated. I also have

[u][i]Golexanolone[/i][/u] [i]A relatively new drug that is in clinical trial mostly being tested to help relieve cognitive and motor functions. It is hopefully to be used for Parkinson patients as well as those with hepatic encephalopathy in PBC. it was being tested in the laboratories

My Platelet count on my three monthly blood test has gone from 201 to 160 do they increase again or keep going down.? WBC is now 57.8 and Lymphocytes 53.5 Heamoglobin 140 Neutrophils 3.6 Basophils 0.2. Thanks

hi everyone not strictly pain related. But I’ve been a life long blusher / flusher. I’ve heard venlafaxine can help. Had anyone had any experience with this please? Or any other remedies please! Thanks

Hello, My dad started 100mg/daily of Calquence for manle cell lymphoma on September 9, 2024- a smaller dose because of his age, and high risk status. He has lost a lot of weight and is always tired. Any one else experience extreme fatigue - and any suggestions on how to deal with it, and same with advice

My ex was diagnosed with CLL about 6 years ago and was at stage zero until this year. She is starting Venetoclax and immunotherapy this week and I was just checking to see if anyone had experience with this? TIA

Hi Tedrog, I also started allopurinol when I started my Acalabrutinib one and a half years ago. It took almost a year for my lymphocytes to go down, so I remained on allopurinol the whole time until they were within normal limits. The thinking was that I should stay on it as long as my lymph’s were

it’s been a while and my last post was not very positive . This is a quick update . I’m still unclear as to how I got here with my illness but I received palliative chemotherapy six cylcles one every three weeks. I think it was a variation of chop plus an immunotherapy drug beginning with B . The treatment