Experiences with

Hodgkin lymphoma

The type of cancer I have is Hodgkin lymphoma unfortunately a lot of my symptoms were similar to fibromyalgia. I was very tired, even resting didn’t help, poor sleeping, wide spread pain. Hot and cold sweats.

hi, The person I’m caring for has had non-Hodgkin b cell lymphoma 3 times. This time they are treating her with Zanubrutinib. She’s been on it for 2 weeks and her limbs have become very swollen with what looks like lymphodema. Has anyone had any experience with this side effect?

I got my kidney transplant in dec 2018 now In nov 2024 suffered from NON hodgkin lymphoma now only on tacrolimus 5mg daily .Any advice regarding this then plz

Any ideas - when you look online comes up with Hodgkin lymphoma- which I hope it’s not

I’m awaiting some blood tests but when look at the symptoms and put them altogether it comes up with non Hodgkin lymphoma .

In August 2023 I was diagnosed with non Hodgkin lymphoma stage4 , 6 months of chemo , and on the 15 th jan was told that I am now clear . Decided to do a thyroid check now that my body is clear of all the different drugs I was on .

[/i] [i][/i] CB-010 also is being tested as a potential treatment for refractory B-cell non-Hodgkin lymphoma, a type of blood cancer, in a Phase 1 clinical trial dubbed ANTLER (NCT04637763).

[u][i]Golexanolone[/i][/u] [i]A relatively new drug that is in clinical trial mostly being tested to help relieve cognitive and motor functions. It is hopefully to be used for Parkinson patients as well as those with hepatic encephalopathy in PBC. it was being tested in the laboratories

My Platelet count on my three monthly blood test has gone from 201 to 160 do they increase again or keep going down.? WBC is now 57.8 and Lymphocytes 53.5 Heamoglobin 140 Neutrophils 3.6 Basophils 0.2. Thanks

hi everyone not strictly pain related. But I’ve been a life long blusher / flusher. I’ve heard venlafaxine can help. Had anyone had any experience with this please? Or any other remedies please! Thanks

Hello, My dad started 100mg/daily of Calquence for manle cell lymphoma on September 9, 2024- a smaller dose because of his age, and high risk status. He has lost a lot of weight and is always tired. Any one else experience extreme fatigue - and any suggestions on how to deal with it, and same with advice

My ex was diagnosed with CLL about 6 years ago and was at stage zero until this year. She is starting Venetoclax and immunotherapy this week and I was just checking to see if anyone had experience with this? TIA

Hi Tedrog, I also started allopurinol when I started my Acalabrutinib one and a half years ago. It took almost a year for my lymphocytes to go down, so I remained on allopurinol the whole time until they were within normal limits. The thinking was that I should stay on it as long as my lymph’s were

it’s been a while and my last post was not very positive . This is a quick update . I’m still unclear as to how I got here with my illness but I received palliative chemotherapy six cylcles one every three weeks. I think it was a variation of chop plus an immunotherapy drug beginning with B . The treatment

H.”ere is an article that some might be interested in: There are many more news articles about this. The research was done at University of Windsor in Canada and the clinical trial is at the Windsor Cancer Center. There is also some ongoing research of cancer cells and various types of mushroom

I have CLL. I be am 4 months into a 1 year targeted immunotherapy plan. I receive a monthly infusion of Obitinubinazab and 300mg venclexta daily. I am very tired everyday. Went from 400mg to 300mg to try and help. Still exhausted. Anyone have similar experience ?

I’ve had the Bone Marrow Transplant!!! That was actually the easiest part. 5 hours of fluids leading up to the BMT and the previous 5 days of chemo infusions (day5 was the worst) were much harder. Chemo: Fladarabine -6 thru-2 with addition of Melphalan on day-2. When you start treatment (chemo) for

The doctors tell us that you don't die from CLL; you die with CLL. What they don't tell you very often is that even though it isn't the CLL that gets you, it could very well be a secondary primary malignancy caused by the CLL that does it. Bennevisplace wrote on this a few months ago; i.e. the fact

Back in November I noticed a swelling under my arm. My doctor set me up with ultrasounds and found it was swollen lymph nodes. After the surgery in December to remove the largest one, I was told I had SLL. My world turned upside down. I had a PET scan in January and I lit up like a Christmas tree. The

I just got this result after a year of Acalabrutinib and Venetoclax on the Majic trial. I'm currently waiting for the clonoSEQ MRD6 results. Below are the FLOW test results. Are they comparable. If so, I have a long long way to go for MRD6. Bone marrow, flow cytometric immunophenotyping