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Drugs advice for Type III Hyperlipoproteinaemia.
I have recently been diagnosed with the above after genetic testing (I am 51 year old female.) I am otherwise fit, slim and healthy but have ridiculous levels of cholesterol, though the ratios are good. I am reluctantly beginning to see the ned for medication and discussions are beginning. The possibilities
I have recently been diagnosed with the above after genetic testing (I am 51 year old female.) I am otherwise fit, slim and healthy but have ridiculous levels of cholesterol, though the ratios are good. I am reluctantly beginning to see the ned for medication and discussions are beginning. The possibilities
Miggins
in
Cholesterol Support
12 years ago
start of Pravastatin 10mg - not good!
After a fantastic and relaxing holiday, I thought I would bite the bullet and go back to my GP to see if we can start again on lowering my Cholesterol. I started 10mg of Pravastatin at 10pm last night. 4am this morning my knees, thighs and fingers were aching terribly, it is so bad that you just do
After a fantastic and relaxing holiday, I thought I would bite the bullet and go back to my GP to see if we can start again on lowering my Cholesterol. I started 10mg of Pravastatin at 10pm last night. 4am this morning my knees, thighs and fingers were aching terribly, it is so bad that you just do
goldie
in
Cholesterol Support
12 years ago
Do you suffer from food allergys/anaphalaxis?
Hi everyone my daughter suffers from food allergies/anaphalaxis,now it is though that one of her 3 year old twins does as well. My daughter and grandaughter suffer with allergies to some of the creams and sun creams that they were given on prescription,now my grandaughter has been given a moisturiser
Hi everyone my daughter suffers from food allergies/anaphalaxis,now it is though that one of her 3 year old twins does as well. My daughter and grandaughter suffer with allergies to some of the creams and sun creams that they were given on prescription,now my grandaughter has been given a moisturiser
nanny4
in
LUPUS UK
12 years ago
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How did you get referred to a lipid clinic?
I'm breaking in a new GP ;-) and he definitely won't refer before my notes arrive from the last GP and I feel like he's going to be reluctant even then. The last GP never referred me - I was referred when I saw a locum after 5 years of increasing problems while taking Atorvastatin. So, how did you get
I'm breaking in a new GP ;-) and he definitely won't refer before my notes arrive from the last GP and I feel like he's going to be reluctant even then. The last GP never referred me - I was referred when I saw a locum after 5 years of increasing problems while taking Atorvastatin. So, how did you get
DakCB-UK
in
Cholesterol Support
12 years ago
Exercise Treadmill Test
When I went for my last lipid assessment, I was advised to take the ETT which I am doing next Monday pending my next clinic appointment in early August. They will then tell me my cholesterol type and prescribe the correct medication. I was last diagnosed 25 years ago with hyperlipidaemia and am taking
When I went for my last lipid assessment, I was advised to take the ETT which I am doing next Monday pending my next clinic appointment in early August. They will then tell me my cholesterol type and prescribe the correct medication. I was last diagnosed 25 years ago with hyperlipidaemia and am taking
Hidden
in
Cholesterol Support
12 years ago
Lipid Clinic Appointment
Had my most disappointing lipid clinic appointment in 16 years of attending. Saw a different consultant from the usual ones. When I raised concerns about angina he said "You are a 46 year old woman who doesn't smoke. I can confidently say you do not have heart disease and I am a heart doctor". How arrogant
Had my most disappointing lipid clinic appointment in 16 years of attending. Saw a different consultant from the usual ones. When I raised concerns about angina he said "You are a 46 year old woman who doesn't smoke. I can confidently say you do not have heart disease and I am a heart doctor". How arrogant
Seahorse
in
Cholesterol Support
12 years ago
Diagnosis and Cholesterol
Hello, I was diagnosed with type 2 Diabetes today and came out with so many questions about this but of course once I had left the doctors but I have another appointment with the nurse next week. He also said that my cholesterol was 8.4 and has referred me to a Lipid clinic. How long do you usually have
Hello, I was diagnosed with type 2 Diabetes today and came out with so many questions about this but of course once I had left the doctors but I have another appointment with the nurse next week. He also said that my cholesterol was 8.4 and has referred me to a Lipid clinic. How long do you usually have
Jakster
in
Cholesterol Support
12 years ago
high cholesterol and have a statin intolerance. What to do?
I have been visiting the Lipid clinic for years, it is always a different registrar and I always need to go through the same scenario. I cannot take any of the statins or ezetimes. I have FH and my cholesterol level at the present time is 11. My theory is that the statins target where I have Cholesterol
I have been visiting the Lipid clinic for years, it is always a different registrar and I always need to go through the same scenario. I cannot take any of the statins or ezetimes. I have FH and my cholesterol level at the present time is 11. My theory is that the statins target where I have Cholesterol
goldie
in
Cholesterol Support
12 years ago
Virtigo
Hi all Just been DX with BPPV = Benign Paroxysmal Positional Vertigo I get so dizzy when I bend or turn my head I loose my hearing and sight feel very sick and fainty it's all over in a few minutes but it's horrible anyone got it or have any advice for me x
Hi all Just been DX with BPPV = Benign Paroxysmal Positional Vertigo I get so dizzy when I bend or turn my head I loose my hearing and sight feel very sick and fainty it's all over in a few minutes but it's horrible anyone got it or have any advice for me x
taffydaffy
in
Hughes Syndrome APS Forum
12 years ago
What to do Next.
The present state of my cholesterol saga is that I have been taking pravastatin 20mg for about six weeks. I have been OK with it, just a couple of very painful cramps and a bit of muscle twitching at night. Latest results are TC 6.5, LDL 4.1, trigs 0.84 and HDL 2. I know this will not be good enough
The present state of my cholesterol saga is that I have been taking pravastatin 20mg for about six weeks. I have been OK with it, just a couple of very painful cramps and a bit of muscle twitching at night. Latest results are TC 6.5, LDL 4.1, trigs 0.84 and HDL 2. I know this will not be good enough
Aliwally
in
Cholesterol Support
12 years ago
some good news!
Hi everyone , after 3 appointments in the same week I feel like I am a step closer to the transplant list. I spoke to a cardiologist who specialises in heart transplants on friday who told me my pulmonary hypertension is purely down to my IPF and has not damaged the chambers in my heart although there
Hi everyone , after 3 appointments in the same week I feel like I am a step closer to the transplant list. I spoke to a cardiologist who specialises in heart transplants on friday who told me my pulmonary hypertension is purely down to my IPF and has not damaged the chambers in my heart although there
mrWheezy
in
Lung Conditions Community Forum
12 years ago
I have FH and am in a quandary regarding diet following recent revelation that there's no link between high cholesterol & heart disease?!
I was diagnosed with familial hypercholestrolaemia (FH) when I was 4. I have never really done much to actively help my FH (as a child I was on a low fat diet and I've always been very sporty and fit) but as my levels are now very high (in the 8's I think, and I have a large fat deposit on my eyelid)
I was diagnosed with familial hypercholestrolaemia (FH) when I was 4. I have never really done much to actively help my FH (as a child I was on a low fat diet and I've always been very sporty and fit) but as my levels are now very high (in the 8's I think, and I have a large fat deposit on my eyelid)
littleowl
in
Cholesterol Support
12 years ago
GP Confuses Me (again).
I went to the GP to get a prescription for pravastatin as ordered by the lipid clinic. I saw another GP in the practice who I could describe as being either realistic or anti statin. He described pravastatin as being the "cleanest statin", said he sees side effects all the time and totally believed the
I went to the GP to get a prescription for pravastatin as ordered by the lipid clinic. I saw another GP in the practice who I could describe as being either realistic or anti statin. He described pravastatin as being the "cleanest statin", said he sees side effects all the time and totally believed the
Aliwally
in
Cholesterol Support
12 years ago
I have sugar & cholesterol of about 7.2; HDl of 1.7.Doc put me on 40mg statin but i had liver probs on Lamisil. Can i do it with diet?
nutritionnut
in
Cholesterol Support
12 years ago
Seen consultant for cholesterol results, levels down a little with diet but unsure what to do next. Any comments very welcome!
Results are : TC 7.5 (down 1.1), LDL 6.0 (down 0.9) and trigs 0.94 (down 0.56). Am pleased with this as stopped statins 3 months ago and wanted to see if I could make improvements with diet. (Lower carb, and following Portfolio diet to a certain extent). Consultant said this was pretty insignificant
Results are : TC 7.5 (down 1.1), LDL 6.0 (down 0.9) and trigs 0.94 (down 0.56). Am pleased with this as stopped statins 3 months ago and wanted to see if I could make improvements with diet. (Lower carb, and following Portfolio diet to a certain extent). Consultant said this was pretty insignificant
deepblue
in
Cholesterol Support
12 years ago
Successful Consultation
In contrast to DakCB-UK's post a month ago I have just had a successful visit to the Lipid Clinic. I was dreading this one as I haven't been taking any medication since January and last time I went I had a heated disagreement with the consultant over misdiagnosis and conflicting information about genetic
In contrast to DakCB-UK's post a month ago I have just had a successful visit to the Lipid Clinic. I was dreading this one as I haven't been taking any medication since January and last time I went I had a heated disagreement with the consultant over misdiagnosis and conflicting information about genetic
Aliwally
in
Cholesterol Support
12 years ago
Being treated for FH but no marker gene found when tested and have stopped statins
Hi, Have just joined heart UK. I live in Wales and after finding out a family member has possible FH had my cholesterol tested - it was 8.6 with bad ratio of HDL/LDL but normal trigs. So because Wales has a free gene test was tested around a year ago but they could not find the normal marker genes
Hi, Have just joined heart UK. I live in Wales and after finding out a family member has possible FH had my cholesterol tested - it was 8.6 with bad ratio of HDL/LDL but normal trigs. So because Wales has a free gene test was tested around a year ago but they could not find the normal marker genes
deepblue
in
Cholesterol Support
12 years ago
Food reactions. APS causes?
Hi, everyone. I'm sorry if this question has already been addressed here. I'm wondering if any of you with APS suffers with severe food reactions? I've read, with APS, that many people have developed food and / or environmental allergies when they never had any, or had very few, due to the autoimmune
Hi, everyone. I'm sorry if this question has already been addressed here. I'm wondering if any of you with APS suffers with severe food reactions? I've read, with APS, that many people have developed food and / or environmental allergies when they never had any, or had very few, due to the autoimmune
Lindajoy
in
Hughes Syndrome APS Forum
12 years ago
Hate having asthma how it stops other treatment.
The doctor put me on a medication Gabapentin for another problem.My chest went tight then really puffed and blue lips at work for 15 minutes.Had to ring doctor and stop the meds.Asthma puffed now and big Nellie on my chest.My Hospital asthma team know about my blue lips and pic of me in my notes with
The doctor put me on a medication Gabapentin for another problem.My chest went tight then really puffed and blue lips at work for 15 minutes.Had to ring doctor and stop the meds.Asthma puffed now and big Nellie on my chest.My Hospital asthma team know about my blue lips and pic of me in my notes with
Hidden
in
Asthma Community Forum
12 years ago
Please see question below. Sorry i wasnt sur ehow to enter this
Hi Everyone, I havent written in a while. I am having a terrible time with my gums they are swollen and bleeding plus the dentist said I have major bone loss due to the Hughes. My hemotologist wants to put me on DDAVP because my Factor VIII is too low due to the vonWillebrands disease, however Im scared
Hi Everyone, I havent written in a while. I am having a terrible time with my gums they are swollen and bleeding plus the dentist said I have major bone loss due to the Hughes. My hemotologist wants to put me on DDAVP because my Factor VIII is too low due to the vonWillebrands disease, however Im scared
lovemyheart
in
Hughes Syndrome APS Forum
12 years ago
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