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Prof Hughes' August blog
In the meantime, as with other patients with this clinical picture, we are left with a clinical trial, either firstly aspirin or, at some stage, with three weeks of low molecular weight
heparin
. Such an important issue. I will keep you posted.
In the meantime, as with other patients with this clinical picture, we are left with a clinical trial, either firstly aspirin or, at some stage, with three weeks of low molecular weight
heparin
. Such an important issue. I will keep you posted.
Hidden
in
Hughes Syndrome APS Forum
12 years ago
What are the alterntives to Warfarin if one faces a life time on it (age 46) for PVT and MPD. Heparin intolerant so that is not an option.
Daws
in
MPN Voice
12 years ago
Is it APS or MS or both?
I became pregnant in 2004 and was treated with aspirin and
heparin
which I took throughout pregnancy and for 8 weeks after the birth of my daughter.
I became pregnant in 2004 and was treated with aspirin and
heparin
which I took throughout pregnancy and for 8 weeks after the birth of my daughter.
mitzygaynor
in
Hughes Syndrome APS Forum
12 years ago
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We do NOT have APS. We have AUTOIMMUNITY!
But what he/she has failed to do is understand that Warfarin and/or
Heparin
(my strong drug of choice), only addresses the clotting; it does not address your overall inflammatory state. As such, you continue to endure the stress of constant chronic inflammation.
But what he/she has failed to do is understand that Warfarin and/or
Heparin
(my strong drug of choice), only addresses the clotting; it does not address your overall inflammatory state. As such, you continue to endure the stress of constant chronic inflammation.
TheKid
in
Hughes Syndrome APS Forum
12 years ago
Re heparin
Also if you wanted to stay on the
heparin
do they allow this or do they make you take warfarin. Thanks h.
Also if you wanted to stay on the
heparin
do they allow this or do they make you take warfarin. Thanks h.
Moonbug
in
Hughes Syndrome APS Forum
12 years ago
Please help!!
Until now it's has only affected me during pregnancy but after being diagnosed and placed on aspirin and
heparin
I now have a little girl.
Until now it's has only affected me during pregnancy but after being diagnosed and placed on aspirin and
heparin
I now have a little girl.
Gemgem
in
Hughes Syndrome APS Forum
12 years ago
Best way to give birth?
Im now nearly 26 weeks pregnant taking aspirin and 10,000 units of
Heparin
a day. Im looking for some advice on the best way to give birth to our child, is a C Section or Vaginal birth best? and what kinds of pain relief would be suitable? Thank you
Im now nearly 26 weeks pregnant taking aspirin and 10,000 units of
Heparin
a day. Im looking for some advice on the best way to give birth to our child, is a C Section or Vaginal birth best? and what kinds of pain relief would be suitable? Thank you
katrinahug03
in
Hughes Syndrome APS Forum
12 years ago
Pregnancy and medication related question
I have always been on
heparin
and aspirin as soon as I get a positive pregnancy test results but he has had poor results for me as I have had 7 miscarriages out of 8 pregnancies and the 1 pregnacy that did make it wasn't ideal with my daughter being low birth weight due to placenta problems at full term
I have always been on
heparin
and aspirin as soon as I get a positive pregnancy test results but he has had poor results for me as I have had 7 miscarriages out of 8 pregnancies and the 1 pregnacy that did make it wasn't ideal with my daughter being low birth weight due to placenta problems at full term
kateb81
in
Hughes Syndrome APS Forum
12 years ago
What is likely to happen to me? Please, any advice is needed.
I am really terrified, I am being tested for APS and other things, but only the APS test is going to show anything up, because I had to be given
Heparin
injections before there was time to take bloods. Please tell me, I have no idea - what is this going to do to my life?
I am really terrified, I am being tested for APS and other things, but only the APS test is going to show anything up, because I had to be given
Heparin
injections before there was time to take bloods. Please tell me, I have no idea - what is this going to do to my life?
anniesensi
in
Hughes Syndrome APS Forum
12 years ago
LIVERPOOL WOMEN'S HOSPITAL 5 STAR TREATMENT
They started me on
heparin
injection on that day just to be on the safe side. After taking the injection for about 8 weeks I got terrible rash over my thighs, knees and belly where I was injecting myself.
They started me on
heparin
injection on that day just to be on the safe side. After taking the injection for about 8 weeks I got terrible rash over my thighs, knees and belly where I was injecting myself.
Julieanne
in
Hughes Syndrome APS Forum
12 years ago
HEPARIN
i AM ON
HEPARIN
FOR INR BELOW 3. OF LATE BEEN GIVING IT EVERY DAY AND I SEEM TO GET BRUISES ON TUMMY - DOES ANYONE ELSE HAVE THIS. YET WHEN IN HOSPITAL HARDLY A BRUISE ANY TIPS. IAM ALSO ON WARFARIN, STATIN AND PLAQUNIL.
i AM ON
HEPARIN
FOR INR BELOW 3. OF LATE BEEN GIVING IT EVERY DAY AND I SEEM TO GET BRUISES ON TUMMY - DOES ANYONE ELSE HAVE THIS. YET WHEN IN HOSPITAL HARDLY A BRUISE ANY TIPS. IAM ALSO ON WARFARIN, STATIN AND PLAQUNIL.
daisy11
in
Hughes Syndrome APS Forum
12 years ago
Bridging therapy when you have a procedure
My brother, who has an artificial heart valve, had to go in earlier this year and they completely messed it up so that he was left with no "cover" his INR was 0.6 for three days until I said that if they did not put him back on
heparin
he would probably have a stroke. That worked!
My brother, who has an artificial heart valve, had to go in earlier this year and they completely messed it up so that he was left with no "cover" his INR was 0.6 for three days until I said that if they did not put him back on
heparin
he would probably have a stroke. That worked!
AFman
in
Anticoagulation Support
12 years ago
Worried Mum and new to site.
Was given
heparin
and warfarin which they said needed to be continued for 6 months. She then had symptoms of a stroke but they could find nothing on MRI and say it was an atypical migraine ( she does suffer from several different types of migraine).
Was given
heparin
and warfarin which they said needed to be continued for 6 months. She then had symptoms of a stroke but they could find nothing on MRI and say it was an atypical migraine ( she does suffer from several different types of migraine).
JennyD
in
Hughes Syndrome APS Forum
12 years ago
Any suggestions for how to prepare for first appointment with haematologist?
Had no follow-up after I had my daughter, apart from Consultant Obstetrician putting me on
heparin
for a further month, and thought nothing of it. I always have mentioned it to any health provider, including oncologists when I had breast cancer 3 years ago.
Had no follow-up after I had my daughter, apart from Consultant Obstetrician putting me on
heparin
for a further month, and thought nothing of it. I always have mentioned it to any health provider, including oncologists when I had breast cancer 3 years ago.
aliceblue
in
Hughes Syndrome APS Forum
12 years ago
APS only causes late miscarriages?
He said I don't need to be on
Heparin
and told me to stop taking it. He took blood so he could run the tests again in his lab. I only had a couple injections left and when I ran out of
heparin
all 3 of my Dr's overseeing my pregnancy stood together.
He said I don't need to be on
Heparin
and told me to stop taking it. He took blood so he could run the tests again in his lab. I only had a couple injections left and when I ran out of
heparin
all 3 of my Dr's overseeing my pregnancy stood together.
SassyOne
in
Hughes Syndrome APS Forum
12 years ago
My journey
A specialist started me on
heparin
and an asprin I went fullterm and had a baby girl. My kids are now 13 and 10 and my preemie baby is now 5 ft 9 " and an honor roll student.
A specialist started me on
heparin
and an asprin I went fullterm and had a baby girl. My kids are now 13 and 10 and my preemie baby is now 5 ft 9 " and an honor roll student.
Maizey
in
Hughes Syndrome APS Forum
12 years ago
Saw hematologist, eek!, am not sure......
She agrees I can't take any meds (warfarin or
heparin
) because I am also a hemophiliac (bleeder)..... and she does say this is probably lucky for me. However, this 118 count still sounds very high. Any of you out there get very high IgM counts?????
She agrees I can't take any meds (warfarin or
heparin
) because I am also a hemophiliac (bleeder)..... and she does say this is probably lucky for me. However, this 118 count still sounds very high. Any of you out there get very high IgM counts?????
Leigha
in
Hughes Syndrome APS Forum
12 years ago
Anyone else have Low Factor VIII Levels???
Because my Factor VIII Levels are low (which is hemophilia) I was not a candidate for warfarin and
heparin
did not agree with me either. In other words, I have both the sticky blood of APS and the inability of the blood to clot with Low Factor VIII. Talk about opposites!
Because my Factor VIII Levels are low (which is hemophilia) I was not a candidate for warfarin and
heparin
did not agree with me either. In other words, I have both the sticky blood of APS and the inability of the blood to clot with Low Factor VIII. Talk about opposites!
Leigha
in
Hughes Syndrome APS Forum
12 years ago
Have met a couple of consultants recently who have a gobsmackingly different opinion of Hughes syndrome!
Long story but subseqently put on Warfarin with an ever increasing target (up to 3.5) and although I always respond better to
Heparin
(have injections to hand in case I fall too low), I've struggled with the INR regime for 2 years now.
Long story but subseqently put on Warfarin with an ever increasing target (up to 3.5) and although I always respond better to
Heparin
(have injections to hand in case I fall too low), I've struggled with the INR regime for 2 years now.
Eagle
in
Hughes Syndrome APS Forum
12 years ago
My APS experience - hopefully I'm not alone!
I was then put on daily injections of
heparin
for 2 weeks as a precaution given my positive antibodies test.
I was then put on daily injections of
heparin
for 2 weeks as a precaution given my positive antibodies test.
APSmum
in
Hughes Syndrome APS Forum
12 years ago
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