Hi, I've been lurking for a week, and so glad I've found this site.
I had one test after my first late miscarriage and they treated me as if I have APS, too late for second baby, but 3rd baby had full APS protocols - even pre-birth and she is now 7! I've had migraines - including visual disturbances since puberty, pins and needles and numbness in my hands for about 15 years. Had no follow-up after I had my daughter, apart from Consultant Obstetrician putting me on heparin for a further month, and thought nothing of it.
I always have mentioned it to any health provider, including oncologists when I had breast cancer 3 years ago. Just got out of hospital after major breast reconstruction, and they didn't take into consideration that I have/may have APS (but I did tell them). Blood and veins didn't run and work how they should do, and had to go back in for 2 emergency ops as well as the 8 hour main op, had 2 transfusions and ended up in intensive care.
Consultant sought advice of haematologist during first op and have been on 60mg clexane since and for another 2 weeks. Went to see GP this week, he didnt know anything about APS apologised and said a lesson learnt etc, and doing an urgent referral.
Interesting to see so many comments about brain fog, I put it down to the harsh chemo regime, but there are things I can't remember that I used to - such as surnames, don't feel able to do presentations - very difficult at work! Might all be a big coincidence, but very keen I get to the bottom of this. I hopefully will have an urgent appointment to see a haematologist - any tips for preparation or questions to ask? Apologies for the long rambling post. Grateful for any help, thanks Alice.